Archives for April 2010

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Against the wind

April 28, 2010 By

Preparations for my weekday runs usually involve a great deal of stealth.  I wake up at five in the morning, and then sneak around in my own house, getting dressed as silently as possible.  There’s a lot of tiptoeing and feeling my way around in order to avoid alerting the short people to the fact that I’m actually awake.  It’s dark and I look like a burglar.  Once I’m dressed, I make my way to the front door in my socks, grab my shoes, and leave.  I close and lock the door behind me as quietly as possible, and then put my ear up against the door to listen to the blissful sound of silence coming from within.  Now that I have successfully made my escape, I put on my shoes, plug in my music, fiddle with buttons on my training watch, and set off.

If the kids wake up at any point during this process, I can say goodbye to my run. They tend to be somewhat Mommy-centric in the mornings (if they wake up and I’m already gone, Daddy is an acceptable substitute; but if they wake up while I’m there, they want me and only me). On those days, I tend to their needs and then get ready for work, staring wistfully at my pile of discarded running clothes.  In general, though, I have become very good at the art of stealth.  I could probably give James Bond a run for his money, except that I can’t fire a gun, I don’t have any fancy gadgets in my car, and I like my martinis stirred, not shaken.

Anyway, yesterday I was able to go for a run at a normal time of the day, without the stealth factor.  I was working from home, which meant that I had an extra two hours – time that is usually spent commuting.  So I got up at a time of day considered by most people to be reasonably civilized, offloaded James at his daycare, and returned home to work.  I planned my day’s activities around an early afternoon run, which would have me back by the time George got home from the therapy centre.

Halfway through the morning, though, I was not so sure about this plan.  I had been steadily working through the morning, and had gradually become aware that the house was feeling a bit stuffy, like a vacuum cleaner’s armpit (to borrow a phrase from comedic author Douglas Adams).  I poured a cup of coffee and went out onto the back deck, where I almost got blown away by a gust of wind.  If I’d had an umbrella I would have been like Mary Poppins.

I don’t mind a bit of a breeze, but I hate wind.  I can handle just about any other weather condition, but wind makes me intensely irritable.  It blows my hair everywhere, makes my ears hurt, and generally sets me on edge.  I will not forego a training run because of rain or snow, but I must confess that I have rescheduled runs because I just didn’t want to run in the wind.  So when I went outside yesterday and stood there in the wind, I seriously questioned whether I really wanted to go running in that.

I quickly got a hold of myself, though.  I have a 10km race coming up this weekend – one that I’ve been looking forward to for weeks – and this is really not the week for me to be flaking out because of a little bit of wind.  I need to be well-conditioned this week; my limbs need to be loose and agile.  And besides, what I am going to do if it’s windy on race day?  Whine about how I don’t want my hair to get messed up?

So yesterday afternoon, I surfaced from my work and got ready to go running as planned.  I braced myself, opened the front door – and stepped out into a stunningly gorgeous afternoon.  The sun was shining and a light breeze was blowing – nothing like the gusty wind that had set my teeth on edge just four hours previously.  As I set off down the road, I could not believe that I had almost foregone this run.

It turned out to be fantastic.  The sun was gently touching my shoulders and the breeze was keeping me cool.  In the beginning I was taking it slow and easy; for the last two kilometres I was flying.  I was on a high for the rest of the day; the physical activity boosted my energy, and as always after a run, I felt a sense of accomplishment.

If I felt that great after a 5.5km training run, imagine how I will feel standing at the finish line of my run for autism.

Filed Under: running Tagged With: , , , , , ,
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He ain’t heavy, he’s my brother

April 23, 2010 By

My boys have fallen into a new sleep routine.  At bedtime, we do all the stuff we always did.  They get their jammies on, use the bathroom, brush their teeth (most days they have a bath earlier in the evening).  For story-time, I sit on my glider chair between their beds – the same glider chair that saw me through countless night-time feedings when my boys were infants.  George gets right into bed, James curls up on my lap, and they each drink their milk while I read a story (current flavour of the day: anything to do with Thomas the Train).  After the story, James gets into his bed, each of them gets sip more milk, and the lights go out.

About five minutes later, we usually see a little face quietly peeking around the corner: George, trying to sneak onto the futon we have in our living room so he can watch TV.  Or maybe he just wants the extra hugs we always give him, because once we’ve hugged him he goes back to bed amenably enough.  At some point during the night, usually fairly early on, he migrates to the sofabed in the playroom, and sleeps there for the rest of the night.

Sometimes I worry about this.  From time to time, when one of the kids is having a hard time, I have to sleep on the sofabed with said kid, and that thing ruins my back.  I always wake up the next morning feeling as if I’ve been tortured by Vikings.  I worry about whether the sofabed is doing to George’s back what it’s doing to mine.  But once he’s there he won’t budge, he sleeps soundly, and he wakes up cheerfully enough.  So maybe he’s OK and I just need to chill out a little instead of finding yet another thing to be perpetually stressed about.

In the meantime, James is sleeping soundly in his own bed.  He’s a little champion at bedtime, James is.  Once the lights are out he goes right to sleep without a fuss.  He usually wakes up in the middle of the night, though – sometime between midnight and three in the morning.  When I found out the reason for his nocturnal awakenings, my heart soared: he gets lonely for his big brother.  He makes his way to the sofabed, climbs in beside George, and goes right back to sleep.  George surfaces just enough to shift to make room for James, then he goes to sleep as well.

I am always the first one in the household to wake up in the mornings.  Some days – like today – I go for an early morning run.  Other days, I like to get dressed, pour out a cup of coffee, and have some me-time at the computer reading emails or playing meaningless games on Facebook.  I love carving out that time for myself in the mornings, before the rest of the world wakes up.

Whatever I am doing – running or playing on the computer – the first thing I always do is check on my boys.  I go to the playroom and watch them sleeping peacefully, each completely at ease with the other’s presence.  They look cosy and comfortable, like a pair of sleepy kittens.  There is always physical contact between the two: James’ hand resting on George’s, or George’s hand lightly touching James’ shoulder.  When I checked on them this morning, George’s arm was flung over James’ shoulders.  It looked big brotherly and protective.

I savour those moments as I watch them and wonder what dreams are going on in those little heads.  Even though they are sleeping, I feel as if I am witnessing a moment of special connection between the two brothers.

Filed Under: family, Siblings, sleep Tagged With: , , , ,
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A whole new world of hope

April 19, 2010 By

On Saturday morning I woke up full of anticipation.  Gerard, George and I were headed to York University to get the results of George’s latest assessment.  It had been a year since the previous assessment, and the results of that had left us feeling bereft and overwhelmed.  We did not need this latest assessment to tell us that George has made progress: we have seen that unfold right in front of us.  Every single new word and every moment of connection, however fleeting, has been a cause for celebration.  However, it is always nice to have these things acknowledged as part of a formal assessment, to receive confirmation that the progress we see is not just the imaginings of hopeful parents.

The psychologist who led the assessment started by talking about adaptive skills – play skills, social communication, daily living skills such as tidying up at the end of the day, going shopping, and knowing to look before crossing the road.  In this area, George has made very little progress over the last year.  He has not actually lost skills, but compared to typical children of his age, he is relatively further behind than he was a year ago.  We discussed possible reasons for this lack of progress: Gerard and I are often so exhausted and worn out by the demands of day-to-day life that sometimes we just take the path of least resistance.  On hard days it is easier to tidy up ourselves instead of going through the whole time-consuming and exhausting process of prompts and reinforcements that would be necessary to get George to do it.  But recognizing that short-term pain so often leads to long-term gain, we have to change our strategy.

As it turned out, that was the only bad-news part of the whole assessment.  We spoke about verbal skills: George’s vocabulary and use of language, whether he can read and spell, how much he understand what is said to him, his ability to follow instructions with and without additional prompting.  A year ago, George had the verbal skills of an eleven-month-old.  Now, he has the verbal skills of a 30-month-old.  He is still well behind where typical six-year-olds are, but the gains over the last year are huge.  He has made nineteen months’ worth of progress in just a year.  So while there is still a sizeable gap, the gap has narrowed.

When we started talking about non-verbal skills, the news got even better.  Non-verbal skills include things like cognitive skills, problem-solving, understanding of what numbers are for, the ability to see patterns and solve puzzles, and all that kind of good stuff.  George has, to put it simply, made a gigantic leap in this area over the last year.  A year ago, he was functioning at about a twenty-month-old level.  And now – I get goosebumps just thinking about it – he is functioning at a 51-month-old level.  That, my friends, is a gain of 31 months – more than two and a half years – over the space of just one year.  Yes, his overall functioning in this area is still about two years below where it should be.  But a year ago, it was about three and a half years behind.  Again, a narrowing of the gap.

Overall, George has moved down on the autism spectrum.  While he is clearly still on the spectrum and has a long way to go, his autism is not as severe as it was.  The therapy that he has been going to has been making an enormous difference, and with continued therapy and intervention, George can move that much closer to where he should be for his age.

I don’t have a crystal ball.  I cannot say for certain what George’s future holds.  Maybe he will never be much of a talker.  Maybe he will never be able to live completely independently.  Or maybe he will – who am I to say something like that cannot ever happen?  But there is no doubt in my mind that he is loaded with potential, and that he will be great at whatever line of work he ultimately chooses as an adult.

Whatever the future holds for George, he is my boy and I am so proud of him that I could just weep.  It is an honour to be Mom to such an amazing little boy.

Filed Under: autism, Medical, parenting Tagged With: , , , , , , , ,
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To sleep, perchance to dream

April 16, 2010 By

On Monday night, George had one of his stay-awake-for-half-the-night nights. It happens once every two weeks or so.  He goes to sleep easily enough, aided by the melatonin we give him with his bedtime milk, but then he wakes up in the early hours of the morning – anywhere from midnight to 3:00 a.m. – and he stays awake for about three hours.  He is not upset, he does not cry.  Apart from occasional bursts of laughter (which, to be honest, are a bit creepy at four in the morning when nothing is funny), he is actually very quiet.  He is not still, though.  He gets up and wanders around, or he climbs into bed beside me and starts playing with my hair, or he sits on the end of my bed rocking back and forth.  It is a level of activity that leaves me in an uncomfortable state of consciousness: he is not active enough to force me to just get up and do something useful, and he is not still enough for me to be able to drift back to sleep.  So I lie there in bed in a state of exhaustion, trying to settle him and get him to go back to sleep.  Experience has taught me that I cannot really force this.  When he has these nights, the best thing for me to do is just lie as still as I can, ignore George as much as possible, and wait for him to go back to sleep.

As long as he sticks to his regular schedule – about once every two weeks – I can handle it.  I always feel like the undead the following day, but at least I know that I’ll be getting relatively normal sleep for the next two weeks.  This is just part of his autism that I’ve kind of learned to live with.  Autism and sleep disorders frequently go together, and I reckon that once every two weeks isn’t too bad considering what some parents have to go through.

This time he did not stick to the schedule.  Instead of waiting for two weeks, we were treated to another one of those nights after a mere two days.  On Wednesday afternoon Catherine came.  Catherine is the new respite worker, and this was the first time she was working with George.  For a first encounter, they did OK with each other, but George was definitely stressed out by this change to his day.  After Catherine left, he was prowling around with a mood that could have gone either way at a moment’s notice.  At bedtime he was narky, unsettled, and uncooperative.  We were patient: knowing that changes in his daily routine do tend to reflect on his sleeping patterns, we had kind of expected this.  George eventually settled down in my bed and went to sleep.

At about 1:00 a.m. he woke up in a mood.  He was crying, he was angry, and he was noisily rooting around in his box of alphabetic fridge magnets announcing to the world that he wanted “small letter a”.  Much to his chagrin, we removed his access to the box of fridge magnets, and with some soothing, he settled down with his dad.  To give him more space, I abandoned my spot on the bed and went to sleep on the sofa-bed.  Predictably, George followed.  When he wakes up in the middle of the night, he goes into full-on “Mommy mode”.

For three hours, he was playing with my hair, sitting up on the bed, lying down again, demanding that I scratch his back, telling me he wanted popcorn, getting up to wander around and look for his box.  I was mostly ignoring him, occasionally telling him to lie down, moving his hand away from my hair (the way he constantly plays with my hair sometimes drives me crazy, especially in the middle of the night).  I was watching the clock, and at about 3:30 a.m. I ruefully accepted that I would not be going for my planned early morning run.

George eventually fell asleep at about 4:00, and I fell asleep shortly thereafter.  I woke up just over two hours later, almost weeping with exhaustion.  Somehow I got through the day, helped no doubt by the knowledge that I would be leaving early due to a medical appointment. Throughout the day I was filled with anxiety: Catherine was coming again.  Were we in for another tumultuous night?

George and catherine had a successful session.  When Catherine left George gave her a hug; he was happy and smiling for the rest of the day.  He was contentedly playing with his box of magnets, which had been restored to him.  Although I felt pitifully tired, I went for a run (it was a good one too – I well and truly flounced my target pace).  At bedtime, George was relaxed and cooperative, and he went to sleep right away.  There was a brief moment of anxiety in the middle of the night when we heard him digging through his box.  Once more, I removed the box – this time, George went back to sleep immediately, and I spent the rest of the night in glorious oblivion.

Having had two virtually sleepless nights over the course of three days, I still feel exhausted.  Sometimes a single good night of sleep is not sufficient to wipe out the sleep deficit.  I am looking forward to another night of good slumber and a restful weekend.

Filed Under: autism, sleep Tagged With: , , , , , , , , ,
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Moments of connection

April 14, 2010 By

Last night I had a hot date with the vacuum cleaner.  The boys had come home with a frightening amount of sand in their shoes, which had of course ended up on the carpet.  When I walked into my living room, I had a moment of severe dislocation.  Had I accidentally wandered onto a beach?  The sand was actually getting between my toes and making them all gritty.  Hence the unscheduled quality time with the vacuum cleaner.

I was moving at speed, like a crazed woman.  Before I could vacuum, I had to ensure that toys were picked up and put away, that there were no socks or other items of clothing littering the floor, that there were no cups lying around (my family uses an inordinate amount of cups, most of which get left under beds, beside the couch, or at random points on the floor).  I was barking out orders to the kids to tidy up their things, and they were so startled by this flurry of activity that they actually did what I asked.  Things were picked up, vacuuming was done, linen was laundered and replaced.  While all of this was happening, Gerard was in the kitchen cooking a very nice dinner.  I have to say, it’s great having a man who can cook!

Finally the work was done.  The floor was clean, the sheets were fresh, the vacuum cleaner was unplugged and put away.  Then George caught sight of a tub of Playdough high up on a shelf and wanted it.  I told him he couldn’t use the Playdough on the grounds that I was in no mood to have bits of Playdough ground into my freshly cleaned carpet.  I should mention at this point that I was somewhat cranky last night.  I hadn’t slept the previous night and I was beyond exhausted.  I was afraid that I would not cope with the idea of getting down on hands and knees to dig Playdough out of the carpet.  Besides, it was so close to the kids’ bedtime and it would have been a bad idea to allow George to start a new activity.

But George was not taking no for an answer.  One thing about autistic kids is that they can be very focused on what they want.  We once endured a four-hour tantrum because George was trying to spell a sentence with his fridge magnets and ran out of the letter “a”.  So I was a little worried about the possibility of the Playdough issue escalating.  George kept repeating, over and over, “I want Playdough, please.  I want Playdough, please.” His use of the word “please” was tearing at my heartstrings.  It sounded so plaintive, so imploring.  It made me feel like I was being mean to my child.

Then George, who is nothing if not resourceful, dragged over the little red plastic kiddies’ table.  The table has a gammy leg that keeps coming off – not to be deterred, George reattached the leg, stood on the table and tried to reach the Playdough.  Needing a quick diversion, I decided to turn this into a game.  I ran to him as he stretched up and grabbed him off the table.  I ran with him through the house and dumped him on my bed.  George, it must be said, was quite surprised and momentarily startled.  Then he saw the laughter in my eyes and started giggling.  “Tickle,” he ordered.  I obliged, and was rewarded with the sound of his laughter.  It is the best sound in the world, that laugh.  George has one of the most infectious laughs I have ever heard.

Next thing I knew, he was off the bed and pulling my hand.  He dragged me all the way to the kitchen, him giggling so much he was almost out of breath, me feigning reluctance.  In the kitchen, he pushed me right up against the counter, then he slowly backed away, making sure I was staying put.  Then he turned around and ran away!  I chased him through the house, following the sound of the giggles, and finally caught him on the couch.  I was tickling him, hugging him, and giving him lots of the deep pressure sensory input that he craves.  Then James joined the fray and we were all tickling each other until we collapsed in a breathless, giggling heap.

As I lay on the couch with my two boys, I glanced up at the shelf and noticed that the Playdough had disappeared.  Gerard, taking the opportunity provided by the distraction, had removed it and put it out of sight.  The Playdough was forgotten, a possible crisis had been averted, and my boys went to bed smiling.

This is why parenting is the best thing in the whole world.  All of the stress in the world dissolves during those moments of connection.

Filed Under: autism, parenting Tagged With: , , , , , , ,
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Autism funding – not a game for the faint-hearted

April 12, 2010 By

When George was first diagnosed with autism, I remember being overwhelmed by many things.  The overload of information, the attempts to separate the good information from the inaccurate yet guilt-inducing nonsense, the diagnosis itself, the fact that in an instant, all of my preconceptions of what my family’s life would be like were shattered, the confusing labyrinth of autism funding.

Somehow I navigated my way through the confusion and the funding.  It’s so easy to say that in one sentence, but the acquisition of funding was a long and painful process, one that was so complex that thinking about it made my head hurt.  Trying to figure out how the funding worked was like trying to memorize pi to 59 decimal places while simultaneously doing long division in my head.  In the end, once I had been told that I qualified to apply for funding (see?  You have to qualify just to apply), I took the application forms and all of my information to the good folks at Respite Services.  The Respite Services guy, with endless patience, helped me fill out the forms.  He wrote down lists of what supporting documentation I would need to send with which forms, where to send them to, in what sequence to send them, and what I would be able to actually use the funding for.  If it hadn’t been for the Respite Services guy, I would still be wandering around in the metaphorical maze looking like a lost fart.

If I’m to be completely honest, I still don’t really have my head wrapped around the funding.  Some of the funding is used for things like educational materials, specialized equipment or support aids, parking costs for medical appointments, anything that I have to actually purchase as a result of George’s autism.  Other funding is used to pay respite workers to come to my house and work with George.  Some funding is deposited into my account on predetermined days, other funding is reimbursed when I submit invoices.  I couldn’t tell you, though, which agency provides what funding or what all the acronyms stand for.

Anyway, I recognize that I am extremely lucky to have any funding at all.  Once our funding was first approved a couple of years ago, we hired a respite worker.  George had actually known her for some time – she used to work at his daycare and kind of transitioned into babysitting for us occasionally.  When the funding came through, she agreed to come to our place every Sunday morning to work with George.  She would play with him, give him some lunch, talk to him – all geared in a way to develop his speech and social skills.

This arrangement worked very well for a couple of years, during which this wonderful lady became a friend to our family as well as a respite worker.  Sadly, she became ill a few months ago and had to step back from respite work in order to focus on her health.  It was a blow to our family, but we completely understood.  We still keep in touch with her, and she has visited us a couple of times to say hello and see the boys.

We did have to get a new respite worker, though.  I had never actively recruited for one – our previous worker kind of came to us through circumstance.  So when the need arose, I called up my friends at Respite Services and told them I needed a worker.  They asked me a bunch of questions.  On what days would I need a worker?  What goals would they be helping George to achieve?  How energetic was George and what kind of things did he like?  Was he allergic to any foods?  Did we care whether the worker was a man or a woman, what age they were, or whether they spoke with an accent?  Some obvious questions, some fairly obscure ones.  In the end, we came up with a profile, and the Respite Services people sent out a notification to the workers they had on file.

Two weeks later, I got sent an email with four matches.  I read through the resumes, and immediately eliminated one because the worker had indicated a preference for working with adults over children.  I contacted the other three and last week, I met Catherine.  You know when you like someone instantly, the moment you first meet them?  That was Catherine.  She was cheerful and outgoing, and both of the boys liked her on sight – and they are pretty good judges of character.  We spoke with her at length, and agreed on regular days and times for her to work with George.  And she will be starting with us on Wednesday, when George gets home from the therapy centre.

We are looking forward to this new chapter in George’s life.  We are looking forward to seeing him interact with a new person, and we are excited about seeing the ideas that Catherine might come to the table with.

The jury will be out for a while, until we as a family have gotten to know Catherine better (and she us – we may be really groovy people, but she could turn out to not like us!), but we are hopeful.  And in the life of an autism family, hope is essential.

Filed Under: autism, parenting Tagged With: , , , , , ,
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Questioning my sanity…

April 8, 2010 By

While I was out for my early morning run today, I seriously contemplated the possibility that I was going mad.  I actually pondered out loud, to the bemusement of a pair of young men who were standing in a bus shelter.  I was muttering about how I must be crazy to be doing this, and how normal people were tucked up in their nice warm beds at that hour of the day. Although to be honest, the hour of the day wasn’t bothering me as much as the God-awful weather I was trying to run in.

Since I got all serious about my running about a year ago, I have openly told people that I will run in any weather.  And I will.  The hot sun is not a deterrent as long as I am wearing a hat and keeping myself hydrated.  Even though I am now Canadian, I am from Africa.  I am a child of the sun.  I don’t mind the rain – in fact, a light drizzle of rain during a run can be extremely comfortable and refreshing.  Snow?  No problem, as long as I watch my step and take care to avoid slipping.  Even sub-zero temperatures will not deter me.  I have good quality winter running gear.  All things being equal, I prefer to run in clear, warm conditions, but that is certainly not a prerequisite to me hitting the road.

The hour of the day isn’t a big factor to me either.  If I had my way, I would run at about ten in the morning.  But since I have not yet made my millions publishing my first novel or won the lottery, I have to get to work in the mornings, so any weekday running is done either before or after work, or during lunch.  My preference is before work because of all that feel-good stuff about starting the day with an accomplishment and not having the go through the day all tense about when I’ll get to go running.

So for today’s run, I dragged my sorry butt out of bed at 5:15 a.m.  Because I didn’t think to look out of the window while I was getting dressed, I was completely oblivious to what was going on outside. As a result, when I stepped outside at 5:30 and beheld the dark and the mist and the rain, I was completely taken by surprise. No problem, I thought, as I quickly ducked back into the house to grab my running jacket.  I set off on my way, and got halfway down the road before I realized that the rain was actually heavier than I had thought.

Still, it wasn’t too bad.  I’m not scared of a little rain.  It’s only water falling out of the sky.  I maintained a fairly brisk pace for three kilometres, and despite the weather I quite enjoyed myself.  During the last two kilometres, though, the weather abruptly changed.  What had been a gentle breeze suddenly kicked up to a full-on wind that I was running straight into, and the rain really started pelting down.  The temperature plummeted, and I realized that there were little bits of ice in the rain, hitting me in the face like lots of tiny hammers.

That is the point at which I asked myself if I was crazy.

You would think that these awful conditions would slow down my pace, but I actually kicked it up a notch.  The faster I ran, the faster I would be able to get home and get inside. When I rounded the final corner, I sprinted home, and embraced the warmth of indoors.  Looking at the run stats on my computer, I was not surprised to see that I had run the final kilometre in less than six minutes, such had been my desparation to get home.

Am I crazy? Probably.  Will I run again in those conditions?  Most definitely.

My name is Kirsten and I am a runnaholic!

Filed Under: running Tagged With: , , , , , , ,
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Back to the start line

April 7, 2010 By

On Saturday, the day after World Autism Awareness Day, I officially made my comeback to the world of racing. My previous race had been a ten-miler back in November – a fairly miserable affair in which I had been overdressed, over-complacent, and completely confused by poor course marshalling.  I was scheduled to run in the Resolution Run on New Years Day, but my freshly acquired pinched nerve took care of that ambition.  So now, during the Easter weekend, I was ready to race again.

I did not really have any great expectations. Even if I had been healthy in the interim, I would have expected a bit of a slowdown due to the challenges of running in winter conditions.  You just cannot maintain any kind of speed running into strong icy winds with snow coming at you, while wearing multiple layers and a balaclava that makes you look like a burglar.  As it was, I was out of action for almost three months because of various things that were wrong with me.

So my goal on Saturday was simply to finish the 10km race.  I had a friend with me who was running in the 5km event.  Fran and I have known each other for years, and she has recently been bitten by the running bug.  Saturday was her first race ever, so there was a sense of occasion for both of us.  Although we were running different distances, we had a common goal – to cross the finish line.

Ten minutes before the race started we discovered that the 5km and 10km races were starting from different places.  The 5km runners stayed in the designated starting area, and the 10km runners were sheperded to a different point, about 600m away.  I set my training watch, listened for the starting siren, and off I went, wondering how far I would be from my pre-injury pace of 6 minutes 30 seconds per kilometre.  In defiance of my usual strategy to start slow, I ran my first kilometre in exactly 6 minutes and 30 seconds.  The second kilometre was slower.  The third one was very fast by my standards – 6 minutes and 13 seconds.  There were still seven kilometres remaining; I knew that I was going to regret this early spurt later on.

At around six kilometres, I passed Fran, who was coming in for her final stretch.  She was looking good; we waved at each other and went on our way. And true to my predictions, I started to seriously flag in the eighth kilometre – this unfortunately coincided with a couple of pretty intense hills along the course.

But mental power means a lot in running, and the fact that there were only two kilometres remaining helped restore some energy.  I got a further boost thinking of George, the ultimate reason I’m doing all of this running in the first place.  I used the ninth kilometre to recover, and I was able to run the final kilometre fast and come in for a strong finish.  My final time was 1:06:14.  My pace was 6 minutes and 38 seconds per kilometre – not far off from my pre-injury pace.  I was very happy with how I did.  I am now looking forward to my next race – also 10km – at the beginning of May.

It is now four days after the race.  I have been for one run since then, and my legs have not complained too much.  I must be in better shape than I’d thought!

Filed Under: running Tagged With: , , , , , , ,
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World Autism Awareness Day

April 2, 2010 By

Today is World Autism Awareness Day.  This is the day to reflect on people of all ages who are touched by autism.  Wherever they happen to be on the spectrum – whether they are verbal or not, high- or low-functioning – they are important members of society.  They deserve love, respect, admiration for all they have to live with and overcome, and opportunities.  Autism manifests in countless ways.  There are probably as many forms of autism as there are autistic people.  Some auties talk, some don’t.  Some have enough capacity for academic learning to complete high school and go to university, some don’t.  There are auties who are brilliant artists, some who are mathematical whiz-kids, photographers, musicians.  Some become famous.  Some don’t become famous, but manage nevertheless to carve niches for themselves in the communities in which they live.

We had a very good World Autism Awareness Day.  It started with George requesting and wearing a pair of shorts instead of the long pants I had selected for him.  Traditionally, George has a hard time with the transition of seasons.  If he’s used to wearing winter clothing, he doesn’t want summer clothing.  If he is used to shorts and T-shirts, he will not wear winter clothing until he has experienced the freezing cold weather for himself.  So the fact that he transitioned so seamlessly into summer clothing is a big deal indeed.

Once we were all dressed and ready for the day, me, my mother-in-law, and my friend Fran sat at the kitchen table chatting and having a lazy morning.  James was playing with his cars, George was wandering around the room, not really doing anything.  Gradually, we became aware that he was counting while he was wandering.  So far, not really a big deal.  For a long time, George has been rote counting, and even doing mathematical sums, but it’s never really been applied to the real world.  This morning, however, we realized that there was a purpose to his counting.  He was counting how many chairs were in the room, how many tables, how many cups were on the table.  Instead of rote counting, he was counting groups of objects.  He was using the concept of counting for something real.

While I was still celebrating this very meaningful accomplishment, George paused his constant activity to tug at my sleeve.  “Let’s sing O Canada”, he said.  And he started singing our national anthem.  Admittedly, he wasn’t word-perfect, but he did really well for a six-year-old, especially one with autism and limited verbal skills.  He sang sweetly, with lots of heart.  He made me proud to be Canadian, and proud to be his Mom.

Later in the day, we went to the park.  I sat on a bench watching my boys running and playing, I pushed them on a swing and showed James how to go down the fireman’s pole.  I laughed as James grabbed a handful of leaves and dumped them over George’s head, and I smiled when they insisted on holding hands with each other for the walk home.  It was a perfect brotherly moment for the two boys.

And so I wrap up a wonderful day, and I prepare for tomorrow’s 10km race.  I am eagerly looking forward to the race.  It will be a significant and exciting step in my quest to run for autism.

Filed Under: autism, parenting, Siblings Tagged With: , , , , , , , ,
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Thank you for being there

April 1, 2010 By

Every now and then I have a run that is so great that I do a happy dance at the end of it.  I mean that quite literally – I stand in my driveway and do this weird little hoppity-hop thing that I’m sure makes the neighbours more than a little perplexed.  I had been looking forward to this yesterday’s run since the weekend.  I am currently enjoying some time off from work, so instead of dragging myself out into the dark at 5:00 a.m. yesterday, I was able to wake up at my leisure, get the kids safely off to their respective places, and hit the road at about 9:00 a.m.

I woke up feeling a little rough.  Although I had a reasonable amount of sleep the previous night – meaning I got more than six hours – half the night was spent on the sleeper couch with James, who had woken up feeling lonely (quick diversion: I want my kids to know that they can come to me at any time of the day or night. There are people who believe co-sleeping with their children is a Very Bad Thing.  I am not one of these people).  Here’s the thing about the sleeper couch: it ruins my back.  When I sleep there I wake up feeling as if someone has spent the night pounding on the back of my neck with a rubber mallet.  However, I was determined to go running – I am a bit weird that way, once went for an eight-kilometre run with a sprained ankle – so I did some stretches, laced up my shoes and went out.

It was only 5km, but it was a really fantastic run.  For the first time since returning from my illness/injury, I actually beat my virtual partner.  Maybe I should explain the virtual partner.  A few months ago I upgraded my training watch to one that has GPS.  The new training watch has a feature that allows you to set a target pace per kilometre, and throughout the run you can visually see how you’re performing compared with the target pace.  The virtual partner “runs” at the target pace.  Since recovering from my illness I have been consistently running fifteen to thirty seconds per kilometre behind the virtual partner.  I have been OK with that – I have, after all, been in recovery mode.  Today, though, I finished my run several seconds ahead of pace.  The psychological boost I felt from that was tremendous.

Yesterday’s run was part of what is turning out to be a phenomenal week.  On Tuesday, I had my first consultation with Brandon, my holistic lifestyle coach.  Under his guidance, I am going to take steps to get my life in balance.  It will have a positive impact on all areas of my life – parenting, running, work, my relationship with Gerard.  I feel as if I have entered a new positive phase of my life.  I also have a maid of honour for my wedding!  There are no words to describe how amazing my friend Michelle is.  What started as a simple car-pooling arrangement has turned into a deep friendship, and it will truly be an honour to have her standing beside me when I get married.  My friend Jenny also deserves a special mention.  She has been my best friend since we were both ten.  She has put up with all kinds of crap from me, seen me through some very intense crises, and just been there for me no matter what.  The fact that she lives on the other side of the world to me has not lessened our friendship one bit.  And because distance will prevent her from being here for my wedding in person, I know that she will be here in every other sense.  She will be as involved as she can be in the planning of the wedding – thanks to the joys of the Internet.

Yesterday I went to the airport to pick up my friend Fran.  Fran is a South African who moved to Vancouver (well, an hour outside of Vancouver) a few months ago.  I have known her for years, and have not seen her for a long time.  She is staying with me for a few days: we are planning to hang out, relax, have fun, go running together (even a race on Saturday!), and gossip about people we both used to spend a lot of time with.

In talking about these people – my family, my friends, people like Brandon who are helping me in a professional capacity – I realize just how blessed I am.  I am surrounded by really incredible people.  I am very lucky, and I hope I can always remember that when things get rough.  And I want to say to these people – Gerard, my boys, my Mom, my late Dad, my biological parents who did such an amazing unselfish thing to give me a better life forty years ago, my wonderful, wonderful friends, everyone who touches my life in such a special way – thank you for being you.  Thank you for being there.

Filed Under: family, Friendship, running Tagged With: , , , , , , , , , ,
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