Archives for May 2011

post

The Beauty Of Autism

"Peep And The Big Wide World" by George

It was a beautiful moment. One of those moments that autism parents celebrate, that parents of neurotypical children completely fail to notice.

I got home after a long, hard day at work, feeling tired and cranky. As I trudged my way up the driveway, all I wanted to do was grab a glass of wine, collapse into a chair, and never get up again. I didn’t just feel lethargy. At that moment, I was lethargy.

I opened the front door and stepped into the house. Moments later, I heard a pair of feet thundering up the stairs from the basement, and a seven-year-old whirlwind launched itself at me, almost knocking me to my feet. After giving me a ferocious hug, George said, in his sweet sing-song voice, “Hi, Mommy!”

Without me saying hi to him first.

Without me or anyone else prompting him.

This was a social exchange that was initiated completely, 100%, by my child with autism – my child who has, as one of his biggest challenges, social communication difficulties.

Instantly, my energy was back and I was ready to laugh and play with my family, with this amazing child who always seems to give me surprises of wonder.

As a special needs mom, I find that my life is punctuated with moments like this. I remember firsts that I probably wouldn’t even notice if I didn’t have a child with autism.

Like the first time he pointed. What a joyous occasion that was, coming as it did after almost a full year of me teaching him how to point. I blubbed my eyes out that night, all over the Bob the Builder book that had been the vehicle for this accomplishment.

Then there was the first time he made a request using a full sentence. It didn’t matter to me that the sentence was only three words long. This child who said, “I want juice” was streets ahead of the child who, just a few months before, had indicated his need by grabbing my hand and thrusting it in the general direction of the juice boxes.

And what about the first time he pretend-played? It was a simple game that consisted of George crouching down on the ground, and crawling around with his back arched skyward while repeatedly saying, “Turtle.” So what if it was unsophisticated play that included only himself? He was pretending – something he had never done before.

More recently, we celebrated him drawing his first picture. He’d made lots of scribbly-type drawings in the past, of course (and I have kept every single one of them), but this was his first picture depicting an actual scene. That it was an instantly recognizable scene from his favourite kids’ show, Peep And The Big Wide World, makes it even more special.

We have seen the advent of humour, and this is all kinds of significant. Humour is a complicated intellectual process, and George gets it. And let me tell you, he is funny.

All of these moments, when strung together, tell a story of a very special little boy who is making a journey through life that is somewhat different to the way other kids do it. But the point is that he is making the journey and having all kinds of adventures. He may be taking the scenic route, but ultimately, he does pass through the same places that other kids do. He achieves many of the same things, but it takes a little longer and is accomplished in unconventional ways.

I believe that having a child with autism makes me a better parent than I would be otherwise.

It has given me the ability to spot a single flower in a sea of long grass, and more importantly, the power to stop and smell every single flower that I pass on this journey through my kids’ childhoods.

post

The Beauty Of Autism

"Peep And The Big Wide World" by George

It was a beautiful moment. One of those moments that autism parents celebrate, that parents of neurotypical children completely fail to notice.

I got home after a long, hard day at work, feeling tired and cranky. As I trudged my way up the driveway, all I wanted to do was grab a glass of wine, collapse into a chair, and never get up again. I didn’t just feel lethargy. At that moment, I was lethargy.

I opened the front door and stepped into the house. Moments later, I heard a pair of feet thundering up the stairs from the basement, and a seven-year-old whirlwind launched itself at me, almost knocking me to my feet. After giving me a ferocious hug, George said, in his sweet sing-song voice, “Hi, Mommy!”

Without me saying hi to him first.

Without me or anyone else prompting him.

This was a social exchange that was initiated completely, 100%, by my child with autism – my child who has, as one of his biggest challenges, social communication difficulties.

Instantly, my energy was back and I was ready to laugh and play with my family, with this amazing child who always seems to give me surprises of wonder.

As a special needs mom, I find that my life is punctuated with moments like this. I remember firsts that I probably wouldn’t even notice if I didn’t have a child with autism.

Like the first time he pointed. What a joyous occasion that was, coming as it did after almost a full year of me teaching him how to point. I blubbed my eyes out that night, all over the Bob the Builder book that had been the vehicle for this accomplishment.

Then there was the first time he made a request using a full sentence. It didn’t matter to me that the sentence was only three words long. This child who said, “I want juice” was streets ahead of the child who, just a few months before, had indicated his need by grabbing my hand and thrusting it in the general direction of the juice boxes.

And what about the first time he pretend-played? It was a simple game that consisted of George crouching down on the ground, and crawling around with his back arched skyward while repeatedly saying, “Turtle.” So what if it was unsophisticated play that included only himself? He was pretending – something he had never done before.

More recently, we celebrated him drawing his first picture. He’d made lots of scribbly-type drawings in the past, of course (and I have kept every single one of them), but this was his first picture depicting an actual scene. That it was an instantly recognizable scene from his favourite kids’ show, Peep And The Big Wide World, makes it even more special.

We have seen the advent of humour, and this is all kinds of significant. Humour is a complicated intellectual process, and George gets it. And let me tell you, he is funny.

All of these moments, when strung together, tell a story of a very special little boy who is making a journey through life that is somewhat different to the way other kids do it. But the point is that he is making the journey and having all kinds of adventures. He may be taking the scenic route, but ultimately, he does pass through the same places that other kids do. He achieves many of the same things, but it takes a little longer and is accomplished in unconventional ways.

I believe that having a child with autism makes me a better parent than I would be otherwise.

It has given me the ability to spot a single flower in a sea of long grass, and more importantly, the power to stop and smell every single flower that I pass on this journey through my kids’ childhoods.

post

Moving On After A Disappointment

This morning I woke up with a heavy heart. I got up and half-heartedly made breakfast for my family. I put on a cheerful enough face as we all ate together, but Gerard could tell that I was not quite my usual self. As we were drinking our coffee, he asked me what was wrong.

“I was supposed to be running a race today,” I said.

That’s right, ladies and gentlemen. Today is the day I was supposed to line up at the start line of the Toronto Women’s Half-Marathon, run a gruelling but satisfying race, and be doused with water by shirtless firefighters.

But because of life getting in the way of my training all season, I was not able to run today. Since the beginning of the year it’s been one thing after another. Weather so bad that I just couldn’t face outdoor training. Me being sick. James being in hospital. Me being sick again. Gerard being faced with ridiculous work deadlines and therefore being unavailable to watch the kids. Planning a wedding.

I have not, at any point, stopped running altogether, so I’m in reasonable enough shape. But still, considering how sporadic my running has been, attempting a half-marathon today would have been sheer lunacy. I would have risked illness or injury or both, and I would have stood a better-than-average chance of sidelining myself for the rest of the season.

But still. Knowing that I did the right thing in forfeiting this race does not make me feel any better about it. My Facebook page is full of statuses and pictures of people who did run the race, and I am – well, jealous. I feel as if I missed out by not being there.

At the same time, though, I cannot allow myself to dwell on this. Sure, I could mope around all day lamenting the fact that I missed a race I registered for months ago, and have been looking forward to for ages. I could tell myself that running at all today is out of the question because Gerard is at work and I have no-one to watch the kids.

Or I can put on my running clothes, pull out the treadmill, and as much as I hate treadmill running, get in the 10km that I want to do today.

I am going to choose the second one. I am going indulge in my guilty pleasure (a DVD of Friends episodes) while I clock up some miles on my lab-rat machine. The good thing about this: it’s a treadmill that has a slight built-in incline, so it replicates outdoor running fairly well. It’s a lot harder to run on than the treadmills at the gym.

Because I have a big goal this year: to break two hours in a half-marathon. And I want to do it in the Scotiabank Toronto Waterfront Half-Marathon in October – my annual autism run. I want to break all kinds of records this year. I want to kick butt with my fundraising, and make lots of moolah to benefit people like my son – people who are loaded with potential that can be realized if the services are there. And I want smash last year’s time of 2:22:38.

It’ll be tough, but it’s never too late to start working towards it. I definitely won’t get there by sitting on my ass and feeling sorry for myself.

I do, however, stand a good chance of it if I start working towards my next race: a half-marathon in the Niagara region on July 18th. I’m not running this race with the intention of clocking up a specific time. I just want to gain the psychological advantage of having done a half-marathon this year: a practice run in preparation for the real thing.

So, this is my choice: I am going to write off today’s missed event as an unfortunate but necessary loss, and I am going to immediately start focusing on the race coming up.

I may have woken up feeling down this morning, but I am by no means out.

I am ready to pick myself up, dust myself off, and kick some serious ass.

post

Making A Living Out Of Dying

A week ago, my co-worker H lost her father. He had been sick with cancer for a long time, and seeing him go through so much pain had taken its toll on H and her family. His death, as one would expect, hit the family hard. I know perfectly well what it’s like, having been through this with my own Dad several years ago.

As if losing her father was not a huge enough thing to begin with, H has been dealing with the funeral home making it abundantly clear that him dying right before a long weekend was inconvenient to them. They didn’t come right out and say that, of course (that would have been insensitive – note the dripping sarcasm). No, they just showed the sentiment through their actions and their stonewalling.

H’s father was cremated in accordance with his wishes. Sounds easy enough, no? No. Because of that pesky long weekend, the funeral home couldn’t arrange the cremation until five days after the deceased passed away. Which, OK, I can kind get because lots of people aren’t around for long weekends. Just don’t be narky about it to the grieving family.

In the meantime, the cemetery have a policy whereby they refuse to begin preparing the plot until the ashes are in their possession. Again, OK. You don’t want a hole in the ground – even a little one that will contain an urn – and then be faced with delays.

The crematorium had promised the family that they would have the ashes on Tuesday evening. The plan was to get the ashes to the cemetery, who for reasons known only to them need two full days to dig a little hole for an urn, and then have the funeral on Friday.

Despite H making repeated phonecalls to a bunch of people, the funeral home only told H this morning that they had received the ashes from the crematorium. Which meant that the cemetery did not have the ashes. Which meant that they were not willing to dig that little hole in time for a funeral on Friday.

Which means that this grieving family have not only been waiting to say goodbye to their loved one, they have been getting royally jerked around while they’ve been waiting.

To add insult to injury, the funeral home admitted that they received the ashes yesterday morning and didn’t bother to tell the family. If they had, the funeral could have happened on Friday as planned.

While this has all been going on, the funeral home guy has been – to put it mildly – a condescending, arrogant, insensitive jackass.

I feel very angry on behalf of H and her family. I think it is disgusting that a grieving family can be treated this callously at such a sad time in their lives.

If you’re going to be in the business of death, at least be kind and sensitive, and mindful of the fact that your clients are vulnerable and grieving.

post

Time’s A Bitch, But I’m Gonna Beat It

I am having a battle with Time. This battle has been going on for a while, and I confess that for the most part, I have been letting Time win. I’ve decided that from now on, I’m going to stand tall, square my shoulders, hoist up my big girl panties, and KICK TIME IN THE ASS!

I am tired of the following statements being rules of my life:
– I don’t have time to run.
– I don’t have time to write.
– I don’t have time to cook nutritious meals.
– I don’t have time to get enough sleep.
– I don’t have time to relax with my family.

Basically, all I have time to do is commute, work, commute again, and then do a different kind of work when I get home.

This is no way to live. And I’m not going to do it anymore. I’m going to take the time to sort out the logistics of my life, so that going forward, I can do the stuff that matters.

I’m going to systematically go through the stuff in my house and throw crap away so that I can have the physical space to be organized. (I’ve already made a start on that – this weekend I cleaned out my kitchen cupboards and linen closet, and Freecycled three big garbage bags full of baby things).

I’m going to get all of my paperwork filed and up to date, and THEN I’m going to deal with things as they come in instead of waiting for a big fat pile of papers to be teetering over like the Leaning Tower of Pisa. (I’ve made a start on that too).

I’m going to prepare kids’ clothing and lunches for the following day, and get my own stuff ready as well, as soon as I get home from work. That way it will be over and done with, and I won’t be dashing around at eleven at night looking for the kids’ socks or trying to find an apple to slice up for a lunch box.

I’m going to go to bed at a reasonable time.

That way, I will be able to get up early to RUN.

I will have time to write, time to cook real food, time to live my life the way it should be lived.

And with all of the crap and clutter out of my way (physical and mental clutter), I will have time for the most important stuff of all. My husband and children.

So that’s the plan, and I am publicly declaring it here.

Now, wish me luck. I think I’ll need it!

(Photo credit: http://www.flickr.com/photos/atportas/329630852)

post

For Some People It’s Not So Funny

It’s almost too easy to make fun of Harold Camping. For the second time the world has, with absolutely no fanfare whatsoever, failed to come to an end despite his predictions. He was so sure of it this time. He said that “there is no possibility that it will not happen.”

Now, I am one of the most Biblically illiterate people around. I know some basics, of course, having been educated in a girls-only Catholic school that’s short on life training and high on guilt training. The Bible story that I know best is the one where Jesus turns water into wine, but I have a vested interest in that one.

As vague about the Bible that I am, even I know that there’s some passage in there somewhere that says the Rapture will pretty much sneak up on us without warning, and that even Jesus doesn’t know when it will happen.

Why Harold Camping thinks he knows something that Jesus doesn’t is beyond me. But anyway.

Now he is saying that his date was off by five months, and that the Rapture will actually happen on October 21st, the date that was originally supposed to be the earth-turning-into-great-ball-of-fire date.

What’s he going to say come October 22nd? That he had the year wrong?

I confess that in the last week or so, I have made much mockery of all of this. On Saturday I posted a Facebook status update suggesting that everyone fail to answer their phones after 6:00 p.m., just to mess with their friends. I posted links to post-Rapture animal rescue services, and I shared Rapture-related jokes. I tweeted about what I planned to wear to the Rapture, and pondered the question of whether I would still be able to go on Facebook when it was all over.

Not that I expected to go anywhere. With all of my skepticism and mockery, if the Rapture ever does happen, the most I’ll see of God is his middle finger.

As easy as it is to poke fun, though, there is a serious side to all of this.

There are people who really and truly believed Harold Camping’s prophecy. Some of them based their entire belief systems on the idea that they would be taken to Heaven on Saturday. Some non-believers might be tempted to dismiss these people as stupid, but that’s hardly fair. I would venture to say that many of them were vulnerable, and got caught up at a time in their life when they really needed something to believe in.

Can you imagine their disappointment when nothing happened? It must have been crushing for a number of Camping’s followers. They are now in a position where they are having to re-evaluate everything they believed in, and in some cases, cope with the onset of depression and anxiety. I think it would be a fair bet to say that there will be a sharp rise in mental illness among Camping’s followers, and that is so, so sad.

What about the people who spent their life savings in the belief that they would need the money after May 21st? Some of them are retired, and they no longer have the nest eggs that they had spent years working hard to put together for their old age.

What about the pregnant lady who gave up medical school, and who now faces life as a new Mom with her chosen career thrown away?

Harold Camping and his prophecy have cost many people a lot – both financially and spiritually.

What of Harold Camping himself? Is he an arrogant opportunist who knowingly deceived his followers, or did he truly believe what he was preaching? Is he deserving of sympathy or criticism?

(Photo credit: Kelly Beall)

post

Time For Each Other

So, my post a day initiative has gone to goat shit lately. Sometimes life has this annoying habit of getting in the way of stuff we really want to do. Having said that, this evening me and my husband took some time to be together in a special way. He came home from work (yes, he was working on a Sunday due to a ridiculous deadline), and we had a picnic. Right in our front yard. We had nice fresh-baked bread, some cold cuts, cheese, and wine. And we spread out a blanket in the front yard, and sat there eating our food and drinking our wine. And just being together.

After a while, the kids migrated from the back yard to the front yard, and they joined our little picnic. James showed us some games that he tells us are virtually mandatory at picnics. Red Light, Green Light. Doggie, Doggie. Bug In The Rug. We played the games with him. It was lovely.

Sometimes we struggle to find time to just enjoy ourselves, either as a couple or as a family. But when we do, it is totally worth it.

Being married is awesome. Yes, we have lived together for ten years now, so in practical terms, nothing has changed. But somehow the depth of our love for each other is more pronounced. Looking at this man and being able to call myself his wife – that’s pretty darned special. I really and truly appreciate what I have in him. We have our moments of conflict, but that doesn’t matter. Because we have each other.

At our wedding, we had well over 1000 photos taken. Out of all of those, there is one that stands out. It stands out because it is a perfect reflection of the joy we felt that day. The joy we feel now about being married to each other.

Sometimes, life gets in the way of important stuff, like running, or writing, or spending time with loves ones.

But sometimes, the important stuff wins.

post

Top Ten Questions I Have About Tomorrow’s Rapture

10. Will it look like something out of a Dean Koontz novel?

9. How do you decide what to wear to a Rapture?

8. Will it be aired live on CNN?

7.  As people are ascending, will they be able to post Facebook statuses and Tweets about what it’s like?

6. Is there free wireless Internet in Heaven, for people to Facebook those left behind that they’ve arrived safely?

5.  What if it’s raining? Will there be a rain day or will the Rapture go ahead no matter what the weather is like?

4.  Will all the “good” people ascend at once? Or will people with children in strollers be allowed to go first, like when they board airplanes?

3. Will it happen all at once across the globe, or will it be phased in across time zones, like ringing in the New Year?

2. When it’s all over and done with, will the earthly telephone and Internet connections remain intact, so those of us left behind can figure out who else didn’t make the cut to get into Heaven?

1. When the world wakes up completely unchanged on May 22nd, what reason will the Rapturites give for the fact that the promised event failed to materialize?

post

Talking Toys

The day before yesterday, I felt like buying presents for the kids. It’s not Christmas, it’s not anyone’s birthday, it was just a day when I wanted to pull out surprises for the kids when I got home and see their faces exploding with smiles.

Getting presents for James is easy. There’s just one general guideline to follow: if it has wheels, he’ll love it. When he was younger, it was Thomas the Train. Then it was Hotwheels. And for the last year or so, it’s been Disney’s Cars. The kid has about twenty Lightning McQueens and fifteen Maters, plus a Sally, a Sheriff, a Red The Fire Truck, a Doc Hudson, and all of the other characters, and it’s still not enough. The Cars obsession showed signs of starting to flag a little, but that was before the preview for Cars 2 came out.

And now the toy stores have come out with a whole new line of Cars 2 products. And so I headed straight for the display and picked out a Lightning McQueen (yes, another one) and a Mater (yes, another one). These aren’t just any Lightning and Mater, though. Some previous iterations have had features like the ability to light up or make vroom-vroom noises. These new ones do all of that AND talk!

Buying presents for George is more of a challenge. He doesn’t play with toys in the same way that other kids do. He’s into more cerebral stuff that lets him work with words or numbers, but there are only so many alphabetic fridge magnets and alphanumeric toys that you can buy for one child. The only toy toys that he really likes are Lego blocks and Mr. Potato Head. And again, he has so much of that stuff that buying more would seem like overkill. I mean, his Mr. Potato Head collection fills three large boxes.

But still, there’s always hope that Hasbro has come up with a new Mr. Potato Head character to add to Indiana Jones Taters of the Lost Ark, Darth Tater, and all the rest of them. So I headed over to the Mr. Potato Head section, and to my utter astonishment, I struck gold.

A talking Mr. Potato Head.

This thing is super-cool. You don’t even have to press any buttons to make him talk. He’s equipped with a built-in microphone that picks up on conversation and noises in the room, and he talks back. His repertoire of things to say is surprisingly extensive. An added feature is that when the room is silent, he will say things like, “Can I get some attention around here?” And if you make a sudden loud noise like banging on the table or clapping your hands, Mr. Potato Head’s pieces come flying off.

It’s a fun, fun toy. A bit challenging to have in the room when you’re trying to watch TV because it keeps providing a running commentary, but that’s a minor detail to live with. What’s really fantastic about it is how much George loves it. Getting him a toy that he instantly engages with and has fun with is such a rare experience, and we savour it.

In the meantime, James has fallen in love with his talking Cars cars. He gets them to have conversations with each other (they too, have a decent repertoire).

So things are peaceful in my house right now, with the kids each having cool new toys to play with.

And because of the nature of the toys involved, things are very, very talkative.

(Photo credit: http://www.flickr.com/photos/kiraca/5651863946)

post

Resurrecting Beanie

On Saturday afternoon, I was startled from a Facebook-induced trance by the sound of James wailing as if the world had just ended.

“What on earth is the matter?” I asked.

“Plant died!” he cried. “Plant died!”

Bearing in mind that five minutes previously, James had been crashing toy monster trucks into each other, it is understandable that I was completely confused.

When I investigated, I discovered that each child in James’ class at school had grown a small potted plant from seed as part of a project. On Friday, the project was deemed a success, and the children were allowed to take their plants home with them. James’ plant was placed in a large brown paper bag, which was placed in his backpack. Which James’ lazy mommy did not check on Friday evening.

So by the time James opened his backpack on Saturday, the soil in the pot was dry and much of it had spilled into the bottom of the paper bag.

The good news, though, was that although the plant looked a little the worse for wear, it was still alive. Somehow I managed to calm down this hysterical child who was screaming as if the family Labrador had died, and I convinced him that – um, Plant – would be OK.

I poured the soil from the paper bag back into the pot. I stood the pot on a saucer and stuck a stick into the soil to support the plant, which is some kind of viney thing that cannot stand on its own. I watered the plant and showed James how it was green and strong, and not at all dead. I promised him that together, him and I would take care of it.

Yesterday, I asked James if he wanted to check on Plant’s progress.

“His name is not Plant,” said James in grand tones. “His name is Beanie.”

Beanie? Why Beanie?

When asked, James replied as if I was a complete moron for not getting it: “Because it’s a beanstalk.”

It is? Well, I’ll just have to take James’ word for it. I wouldn’t know a beanstalk if it jumped up and bit me on the butt.

Beanie was doing well. James fed it – I mean, him – some more water. On the advice of my mother-in-law, who knows considerably more about gardening than I do, we moved Beanie to a different spot, where he would get just the right mix of sun and shade.

And so the care of Beanie, who is maybe seven inches high but is, according to James, fourteen years old, has become an integral part of our daily routine.

This plant had better not die. There is a lot of pressure on me to make sure it stays alive. If anyone has any horticultural tips on ensuring the survival of what may or may not be a beanstalk, please pass them on.

(Photo credit: http://www.flickr.com/photos/emeryjl/1157150558)