Archives for May 2013

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An Unexpected Treasure

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While I’m waiting impatiently for my coffee machine to work its magic, my son suddenly appears by my side.

“Little pig, little pig, let me in!” he says.

I know the drill. I’ve done this enough times. “Not by the hair of my chinny chin chin!” I reply.

“Then I’ll HUFF! And I’ll PUFF! And I’ll BLOW your house in!”

He draws in an enormous lungful of air and then blows mightily in my direction, while I pretend to fall backwards from the force of wind.

Like many kids with autism, my son George has never really been one for stories, but from time to time a story comes along that really captivates him. The Brown Bear, Brown Bear books fell into this category when he was younger, and he still occasionally returns to them. The current flavour of the month, though, is The Three Little Pigs. George takes great pleasure in watching YouTube videos of the story, and quite significantly for a child with autism, he likes to role play some of the scenes.

By coincidence, The Three Little Pigs was the central activity of a training course I attended last week. The course was about Agile project management, and the theory was covered on the first day. Day Two was given over to a practical application of the theory. We were divided into teams and given the task of using Agile project management practices to make a comic book depicting the story of The Three Little Pigs.

The process was fun and interesting, and definitely helped highlight the ideas behind Agile project management.

The end result was pretty much what you’d expect from a group of five IT types, none of whom can draw to save their lives. Let’s just say that none of us will be leaving our day jobs anytime soon.

Since I had played the role of “product owner” during the exercise, and since my team-mates know that I am the mother of young children, I was allowed to keep the comic book we made at the end of the training. When I got home, I put the book on my desk, and George immediately pounced on it.

“The Three Little Pigs!” he said excitedly. And he started paging through the book, reading all of the words out loud in his sweet lyrical voice. When he got to the end, he took the book to his computer, clicked onto a Three Little Pigs YouTube video, and read the book while the video was running. During dinnertime, the book was beside George’s plate on the table. At bedtime, it was taken to his bed and stashed under his pillow.

While George was sleeping, I managed to sneak the book out from under his pillow so that I could reinforce the makeshift binding that was beginning to come apart from overuse. I put the book back where I had found it, and it was there for George in the morning.

George doesn’t care that the pages aren’t all quite the same size, that the pigs look more like cats and that the wolf looks more like a horse. All he sees when he looks at the book is a treasure to be enjoyed over and over again.

The training course did a great deal for me and my professional growth.

It has done a lot more for the happiness of one child.

(Photo credit: fdecomite. This picture has a creative commons attribution license.)

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George And The Silent-E Machine

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It’s been more than a few days since I last posted here. I could give you all kinds of reasons for this, like lack of sleep, lack of energy and lack of time. Ultimately, the reason for my mini-hiatus can be traced back to one thing: the silent-E machine. Known to most people as the dishwasher.

My son George is the one who started referring to our dishwasher as the silent-E machine. He is a big fan of the Leapfrog movies. If you have young kids and you don’t know about Leapfrog, Google it. The movies are fun and educational, and entirely appropriate for youngsters learning how to read or count. Anyway, one of the movies features the Leapfrog characters in the Letter Factory learning about how silent E’s can change the way a word sounds. The silent E’s are manufactured by a machine called – you guessed it – a silent-E machine.

After George watched this movie several dozen times, he decided that he wanted a silent-E machine of his own. He grabbed one of his fridge magnet E’s and placed it on the dishwasher, and hey presto! We had a silent-E machine.

George is very particular about routine, and part of the essential routine is that the silent-E machine be turned on right around bedtime. Usually, he will quite happily go to bed and drift off to sleep with the silent-E machine running in the background. And this is fine. If he wanders out of bed from time to time to check on the progress of the cycle, I’m OK with that. He likes to make sure that all is well in the world as he knows it.

About a week ago, the silent-E machine started to act up. I started running it only at times when I could keep a constant watch on it. Which meant running it outside of George’s regular schedule. Most autism parents will bear witness to the fact that this is a recipe for disaster. The entire household applecart was severely disrupted, and all of us started getting a lot less sleep.

Then, on Mother’s Day, we reached a point of not being able to use the silent-E machine at all. We had to start lugging dishes up and down the stairs so we could borrow my mother-in-law’s dishwasher, and this meant that her dishwasher was being run at the wrong times.

Oy.

It got ugly. Now George was staying awake more or less through the night, crying about his beloved silent-E machine, and running up and down the stairs at odd times of the night to inspect my mother-in-law’s dishwasher.

I am hoping that it will all be fixed tomorrow. The problem seems to be nothing more serious than a clogged pipe, and I have acquired some chemicals to pour down it.

Wish me luck, friends. It’s been a rough ride.

What happens when normal routines are disrupted in your house? Is there chaos or does everyone go with the flow?

(Photo credit: kevin dooley. This picture has a creative commons attribution license.)

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More Than Just A Toy

It is snowing outside, but it is almost too warm in the speech therapist’s office. None of us really wants to be there. Not me, not George, not even, I suspect, the speech therapist. George – three years old and non-verbal yet defiant – has refused to remove his coat even though he must be getting toasted under all of those layers.

He sits down unwillingly, and I position myself between him and the door to prevent any escape attempts. I settle in to watch what will undoubtedly be yet another fruitless session. We’ve been coming here for almost a month now, and George has not responded to a single thing. His speech is no further along than it was to begin with, and although I like the therapist very much, a part of me is wondering what the point of all of this is.

As usual, George is making niggling whiny noises, not-quite-crying noises, little sniffles and moans that make it abundantly clear that he does not want to be here. He doesn’t care for any of the toys that the therapist is producing out of nowhere, like a magician. He doesn’t care for toys, period, but the therapist patiently insists that it’s just a question of trying until we find the one thing that will work.

As George starts to noisily rock his chair back and forth, I sigh inwardly, but following the therapist’s early instructions, I do not say anything. I am tired. I am sad. I am frustrated. I suddenly find myself having to blink back tears that threaten to spill down my cheeks.

And then… a miracle.

The speech therapist puts Mr. Potato Head down in front of George.

It is love at first sight. Instantly, the rocking stops and the whiny noises are replaced with a stunned silence. I can literally see my child’s eyes filling with wonder. It’s like witnessing a rain shower on a parched desert.

Instinctively, I hold my breath and stay completely still. I just know that something special is happening, and I don’t want to ruin the moment.

George reaches out shyly and touches Mr. Potato Head. Then his entire face – his entire soul – erupts in the biggest, most beautiful smile I’ve ever seen.

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From that moment, George started making progress at his speech therapy sessions. Thanks to Mr. Potato Head, his vocabulary started to explode. Not only that – he finally had a toy he was interested in playing with. Not staring at, not lining up according to colour, but actually playing with. When friends and family members asked what they should get him for birthdays, we had something we could tell them.

Six years have passed since that day in the speech therapist’s office, but George’s devotion to Mr. Potato Head has never wavered. He collection takes up two large Rubbermaid tubs – and those are just the Potato Heads that are not adorning his desk, his bed, and other flat surfaces at various points throughout the house. He has Mr. Potato Heads, Mrs. Potato Heads, Baby Potato Heads, Darth Tater, Indiana Jones Taters of the Lost Ark. There’s a hockey player Potato Head, a pirate Potato Head, a doctor, a fireman and a sheriff. George has an entire Potato Head community that keeps on growing.

Earlier this week, Mr. Potato Head celebrated his 61st birthday. This is one of the most iconic toys of the 20th Century, right up there with Barbie and Lego.

But to George – and to his grateful mama – Mr. Potato Head will always be more than just a toy.

(Photo credit: Kirsten Doyle)