Archives for November 2013

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Holiday Season Survival Tips For Autism Families

November 28, 2013 By

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We have reached the time of year when Christmas decorations come out and people start talking about how much Christmas shopping they have left to do. In my case, I still have to do 100% of my Christmas shopping left to do. That percentage is not likely to change until about a week before Christmas.

Christmas also means spending time with people, going to different events, making sure the Santa picture gets taken – all of that good stuff that gets a little bit overwhelming. If it’s overwhelming for me, I cannot imagine what it must be like for a child who has autism. And so I asked a group of autism parents what measures they take to ensure that they – and their kids – get through the holiday season intact. Here are their responses.

* Schedule everything out. Avoid scheduling too much for one day, and ensure that the schedule includes breaks.

* Do a visual schedule and/or social story for each day that something is happening.

* Tie a knot in the end of the rope and hang on!

* Do what works for your family and don’t compare your celebrations to anyone else’s. Remember that all those Pinterest and Facebook pictures are snapshots of one posed instant and do not mean that everyone else has their act together. Dare to send a Christmas picture of your kids pulling each other’s Santa hats off and poking each other with candy canes.

* Do not let your relatives turn the holiday gathering into an annual progress/lack-of-progress check on your autie. Refuse to be quizzed and just pour another round of drinks.

* Appreciate the fact that your autie doesn’t care about the presents. Know that you’re giving him plenty that can’t be wrapped up — like permission to play Raffi’s Christmas album 24/7 all December. Priceless.

* Go at your kid’s speed. When it’s time to call it quits, call it quits, even if that means it takes three days to open Christmas presents.

* Try to minimize sensory input to avoid meltdowns.

* Have a quiet room your autie can retreat to when everything gets overwhelming.

* Do not insist that your autie open all of his presents at once. Let them set the pace.

* Limit the number of parties you go to with your autie. Make arrangements to leave early if you need to.

* Bring his favorite food with you, so he has something to eat if he can’t tolerate any of the party foods.

* Ask family members to remove all those wire and plastic pieces from the packaging of gifts they are giving to your child. That way, your child can just open the present and take it out.

* Take two cars if possible, so when the autie is ready to go, one parent can stay with the other kids.

* Bring familiar stuff, especially if festivities will be in an unfamiliar place. That could be a toy, or a favourite cup or plate to use.

* Don’t feel guilty about not having a Norman Rockwell Christmas. Have a Christmas your kid will enjoy, not what everyone else thinks it should be. Christmas is for kids including ours.

* Don’t be afraid to stand up for your child “just because it’s the holiday”. You and your child shouldn’t have to put up with someone’s crap just because you only see them on the holidays.

* Ask people to come to you. Other people may not have “autism friendly” houses, so it may be easier to host everything at your house. This works better for small families.

* If you have a large family, it might be easier to let someone else host the festivities. That way, you and your autie can leave if things get overwhelming, which is easier than kicking guests out of your house.

* If you have one of those families that doesn’t get along, don’t feel bad about not spending Christmas with them. Stress is not good for our kids.

If you have any tips of your own, please add them in the comments!

This is an original post by Kirsten Doyle, which input from some amazing autism parents.

Filed Under: autism, Christmas, family, Holidays Tagged With: , , , , , ,
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Product Review: Guideline Eyewear Draft Sunglasses

November 22, 2013 By

I have always resisted the idea of running in sunglasses. Somehow, I just cannot get excited by the prospect of having something on my face that adds to the already-abundant sweat and makes my vision go all foggy. Besides, with my fuel belt, my phone, my training watch and everything else, don’t I already have enough stuff when I run? I don’t like the feeling of being bogged down.

But I’m nothing if not open-minded, so when I was offered a pair of Guideline Eyegear Draft sunglasses – specially made to cater for the needs of athletes –  in exchange for a review, I thought, “Why not?”

The first thing that struck me when I received the sunglasses was their weight – or the lack thereof. The glasses I use for watching TV, which look like this…

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… are roughly the same weight as the Draft sunglasses and the case they come in, which look like this…

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Armed with the reassurance that weight was not going to be a problem, I picked a bright sunny day and took the sunglasses out for a test run. I have to say, I was pleasantly surprised.

The sunglasses fit me like a very comfortable glove. I can shake my head around and tilt my head to look at the ground, and they don’t budge. They don’t do that annoying thing glasses sometimes do, of sliding off the bridge of my nose. At the same time, they are not actually tight. The arms curve inward to ensure a snug fit, but then the ends curve very slightly outwards, so as to avoid digging painfully into my head behind my ears.

A couple of other nice features make these sunglasses comfortable for athletes. Like this:

Floating nose pads: no more uncomfy dents on the bridge of my nose!

Floating nose pads: no more uncomfy dents on the bridge of my nose!

 

And this:

Brow ventilation prevents the glasses from swimming around in a pool of sweat

Brow ventilation prevents the glasses from swimming around in a pool of sweat

Functionally, the glasses are great. I tested them on a bright, bright day, and they did a good job of protecting my eyes from the sun’s glare. They didn’t shift while I was running, and I didn’t have any sweat dripping into my eyes. I had one teeny, tiny complaint: three times during a 5K run, the lenses fogged up. But each time, they cleared by themselves within seconds, without me having to take them off.

Going forward, I will definitely incorporate these glasses into my regular outdoor running outfit. I look forward to trying them out in the winter, on a day when the sun reflects off the snow.

An added bonus? These glasses look pretty darned cool!

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Disclaimer: A pair of Guideline Eyewear Draft sunglasses was provided to me in exchange for an honest review. All opinions expressed in this post are my own. Photo credit for all images: Kirsten Doyle

 

Filed Under: Guideline Eyewear Draft, Product Review, running, Sunglasses Tagged With: , , , , , ,
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Easy Breezy Autism Covergirl?

November 13, 2013 By

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Being an autism parent comes with many challenges. One of them is society’s tendency to sensationalise people with autism who have any kind of talent. Temple Grandin, for instance, is frequently held up as a shining example of what autistic individuals might be able to accomplish. So, bizarrely, is Rain Man, who isn’t even real.

One of the latest autism whiz kids is a young woman by the name of Carly Fleischmann. She is non-verbal, and at a young age doctors predicted that her cognitive development would be limited. She had a breakthrough when she typed a message on a computer, and since then the world of communication has opened up to her. With the help of her father, she has written a book, Carly’s Voice, giving an insider’s view of autism.

My reaction to Carly’s story is a mixture of admiration and skepticism. Admiration because this girl has clearly achieved more than anyone thought she would. She has found a way to communicate, she has co-authored a book, and by all accounts she is now attending college. Good for her. And I don’t say that in a snarky, sarcastic way. I say it with all sincerity.

The skepticism arises from her reaction at being rejected as a Cover Girl model. She seems to be of the opinion that (a) Cover Girl rejected her because she has autism, and that (b) the reason Cover Girl should have accepted her is because she has autism.

Let me pause for a moment to say that I’m not intending to start a big debate about media portrayals of beauty. Yes, I know that the models we see on magazine covers have been Photoshopped to Kingdom Come. Yes, I’m aware that real people don’t look like that in real life.

I also know that physical beauty has nothing whatsoever to do with the presence or absence of autism. There are ordinary-looking people with and without autism, and there are absolutely show-stoppingly gorgeous people with and without autism. As the parent of a child with autism, I have heard many insults and unfair stereotypes aimed at people who are on the spectrum. But I have never heard anyone claim that people with autism are ugly.

This leads me to the following question: should Carly Fleischmann be granted a Cover Girl contract in spite of not meeting their physical standards, just because she has autism? I’m no oil painting myself, but I would venture to say that I have just as much inner beauty as Carly does. Why, then, should she have more entitlement to be a Cover Girl model than me? I’ve also overcome challenges and accomplished great things.

My son George is ten. He is described as “functionally verbal”, which means he has enough verbal communication to meet his needs. He has enough words to make requests and get by, but he cannot have a conversation. He has good academic skills, but lacks the ability to apply the academic concepts to real life. He can independently get dressed and use the washroom, and he can make himself a sandwich or pour himself a glass of milk. But he would not look at the colour of a traffic light before crossing the road, and if you gave him $10 and put him in a store, he wouldn’t know what to do.

I am big on accommodations for kids with autism. My child needs plenty of them, and if I’m to be realistic, he’ll more than likely need accommodations well into adulthood. He’ll probably be able to hold down a career – maybe he’ll even get to go to college – but he will almost definitely need to have his environment adapted in a way that enables him to succeed.

But.

I would not want my son to be on the cover of some magazine just because he has autism – unless it was a magazine about autism, or at least a magazine featuring a story about autism.

Look, if my son turns out to be the fastest athlete in the province but is denied a place on the Olympic team just because of his autism, I will turn into the world’s biggest autism advocate warrior mom. But if he misses the Olympic qualifying standards, would I want him to be given a place on the team anyway, just because he has autism? Hell, no.

I want my son to come by his accomplishments and accolades honestly, by earning them. I don’t want people to say that he got this job or won that award “just because he has autism”.

What do you think? Is Carly Fleischmann right to be upset over not being accepted as a Cover Girl model? Am I short-changing my son by wanting him to be judged by the same standards as other people?

This is an original post by Kirsten Doyle. Photo credit: mhs.journalism. This picture has a creative commons attribution license.

 

Filed Under: autism, Carly Fleischmann, Cover Girl Tagged With: , , , , , , , ,
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9 Things I’m Tired Of Seeing On Facebook

November 6, 2013 By

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The first thing I do every morning, while the rest of the family are still somewhere in Dreamland, is sit down with a cup of coffee and see what’s been going on in Facebookland while I’ve been sleeping. Within the first minute or so, as I’m scrolling down my newsfeed, I usually see about half a dozen things that annoy me. What’s worse is that I tend to get annoyed by the same things that annoyed me the previous day.

Maybe I’m getting old and jaded.

Or maybe people just keep posting the same annoying stuff, day in and day out.

Whatever the case may be, I want to vent about it a little bit. Here is my list of annoying things that I’m tired of hearing about.

1) The US Supreme Court has acknowledged that vaccines cause autism. The US Supreme Court has acknowledged no such thing. Here’s some intelligent, informed reading about that particular annoying topic. And just for the record, people who choose to vaccinate their children are not “sheeple”. The autism community, which already has enough problems, can do without that kind of name-calling.

2) Americans should be very afraid of the fact that the government can’t even put together a functional website, and yet they’re taking control of the health care system. Look, I’m not going to offer my opinions about Obamacare, simply because I don’t know enough about it. Maybe it’s the best thing since sliced bread. Maybe it will be an unmitigated disaster. I don’t know. What I do know is this: the fact that the website doesn’t work is not a predictor of the eventual success or failure of Obamacare. All it means is that the website sucks. This annoying thing is annoying because it’s yet another example of people linking two things that have little or nothing to do with each other.

3) Everything in your fridge is poisoning your family. Every day, I see endless posts claiming that this food is soaked in bleach or that food is really made of mushed-up alien brain. OK, not that last one, but you get the picture. There is so much food-related fear-mongering going on, and I’m just tired of hearing it. I always appreciate information that is valid, informed and balanced. I do not like quote-unquote “information” that serves no purpose but to scare people.

4. The only thing that will stop a bad guy with a gun is a good guy with a gun. I will never understand why we can’t just do what we can to stop the bad guy from getting the gun in the first place. Yes, I know that no system will ever be 100% guaranteed, but should that stop us from trying? Besides, you know what can stop a good guy, whether he has a gun or not? A bad guy with a gun.

5. When a celebrity dies it’s all over Facebook, but when a soldier dies no-one cares. First of all, there’s nothing wrong with people talking about celebrity deaths. Celebrities are a part of our culture. It’s OK for us to feel sad when they die. Secondly, I find that people are very respectful about the military, and fallen soldiers do get extensively recognised.

6. 97% of people won’t share this lame post that completely fails to raise awareness about cancer, child abuse or mental illness. I care about all of these things, but I don’t feel the need to prove it by annoying all of my Facebook friends. Anyway, where does that statistic even come from?

7. Asking your friends to change the settings on posts they see in their timeline will prevent Facebook from sharing your entire life with everyone in the world. As annoyances go, this is a pretty big one. The only person who can control who sees your posts is you. Not your friends. If you don’t want the public to see your posts, go and check your privacy settings. But if your friends make the change you’re asking them to make (which usually comes with a threat to unfriend anyone who doesn’t comply), all that will happen is that they will stop seeing your posts. Am I the only one who sees the irony in that?

8. Because cigarette packaging has gruesome images on it, fast food should come with pictures of obese children, and alcohol should have pictures from the scenes of drunk driving accidents. Here’s the thing. If you eat a burger, I’m not going to get fat. Your consumption of fast food has no impact on me. It is true that when people get drunk and then drive, other people can die. But drinking and driving is against the law. Cigarettes can kill people who are not smoking them when used exactly as intended, in accordance with the law.

9. It doesn’t matter that this heartwarming story is fake. It’s still inspiring. No, it’s NOT. It’s fake! Maybe – like I said earlier – I’m getting old and jaded, but I just don’t get how something that’s not true can be inspiring. If you want to inspire me, tell me a heartwarming story that actually happened. Like this one.

And yes, that story is true. I checked it myself on Google Maps, and on a site that everyone should bookmark for those occasions when they just have to share something they’ve seen on Facebook: Snopes.

What annoyances do you see in your social media feeds?

This is an original post by Kirsten Doyle. Photo credit: marksmotos. This picture has a creative commons attribution license.

 

 

Filed Under: Annoyance, Facebook, Hoaxes, Myths Tagged With: , , , , , , , , , , ,