Archives for February 2014

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Autism Parenting: The End Of An Era

2012-09-24 23.02.15

Three nights ago, I made the excruciating decision to kick my children out of bed. My bed, that is.

To give a bit of background, my kids have always had full and free access to me, at any time of the day or night. When they have woken up in the middle of the night having had a bad dream, or feeling sick or lonely, they have been allowed to get into bed with me and snuggle up. It’s not always comfortable, being squished on both sides by children, but I have always loved it. Because what is better than hugs from your children?

As much as I love it, though, there are downsides. For one thing, my children take up an inordinate amount of space in the bed for such small people. It’s like they morph into starfish at night, and there are arms and legs everywhere, squashing my face and poking into my spine. For another thing, these little people are getting less little. George, who is ten, has reached the same height as my mother-in-law (OK, so she’s a little old lady, but still), and eight-year-old James is getting there as well.

What this means is that these nocturnal cuddles are costing me an enormous amount of sleep, and that makes it difficult for me to both function and be a human being that other people want to be around. In addition to that, George has started showing signs of puberty, and my husband and I have been feeling the need to carve out more time with each other.

We have reluctantly agreed that it is time for the kids to stay in their own beds at night.

James has accepted this with ease, but for George it is a massive change. Kids with autism do not appreciate it when the boat is rocked, and this particular change represents a tidal wave for him. It has been difficult for him, and by extension, difficult for us.

For the first two nights, James was the only person who got any sleep. My husband and I would lie helplessly in our bed, listening to George’s plaintive pleadings. He kept wandering into our room, and I kept taking him back to his own bed. I would get him settled, tuck him in and give him a kiss, and then go back to bed. And then I would do it again. And again, and again, and again.

While all of this was going on, George was whimpering, “I want Mommy. Lie down with Mommy in the bed.” And then, as he got sadder and sadder, he was simply calling my name.

I so badly wanted to cave. I so badly wanted to go to him, lie down with him and wrap my arms around him. But I knew that I couldn’t. In order to make this change, we would have to be persistent and patient, gentle and firm. We would have to just lie in bed and listen to our child being sad.

Sigh.

Last night – the third night – we caught a break. George went to sleep in his own bed, and he stayed there for the whole night. There was not so much as a whimper, not the slightest bit of movement. As much as I like to think that this represented an acceptance of the changes, I am realistic enough to know that the poor child was probably just too exhausted to protest. We may be in for another few nights of sleeplessness, and we will deal with it for as long as we need to.

As parents, it is our responsibility to guide our children towards independence, and this is an important step in that direction, even if, at the end of the day, it is harder for me than it is for them.

This is an original post by Kirsten Doyle. Photo credit to the author.

 

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An Athlete’s Lesson In Self-Talk

 

It looks pretty, but it's not great to run in!

It looks pretty, but it’s not great to run in!

I have been struggling a great deal with my running lately. I had such high hopes, at the beginning of this year, that I would be able to stick to the training schedule I had set for myself – a schedule that was demanding but certainly within my capability.

I tell myself that the main reason for my struggling of late has been the weather, and it is true that Mother Nature has not been on my side. Temperatures of -30 degrees Celsius, snow and ice have combined to make running conditions very difficult. I have gotten around it to an extent by going to the gym and running on the treadmill. Like most runners, I intensely dislike the treadmill, but it is better than nothing.

Still, I have to be honest with myself and ask the question: to what extent have I been using the weather as an excuse? Yes, it’s been hard and I am sick to death of the treadmill. To my credit, I have not missed any of my speed training sessions. But I have missed two of my long runs, in two consecutive weeks. On both occasions, I had the opportunity to make up the run the following day, and I didn’t. Out of the four days – two Sundays and two Mondays – I can only claim prohibitively bad weather on one of them.

The truth is that in recent weeks, I have been walloped with depression. Along with depression comes low self-esteem and inevitably, negative self-talk. I’ve been telling myself that I’m just not good at anything, and I’ve been fulfilling my own words. This negativity has touched every area of my life, without me even realising it.

I got a bit of a wake-up call yesterday. I decided that, snow be damned, I was going out for my long run. I was quite excited as I dug out my winter running gear and put it on: it felt good to be doing something positive instead of making excuses.

Before I’d even run a block, I knew I was in trouble. My breathing was laboured and I was struggling to find any kind of rhythm. To be fair, the conditions weren’t great. It was snowing, and the ground felt all sludgy. Telling myself that this was just a part of winter running in Canada, I trudged on gamely.

I managed about three kilometres before giving up. I kept slipping in the snow, and I just didn’t feel that I was in good enough shape to last for 18K. Bailing on the run was the right thing to do from a safety point of view. If I had continued, there was an excellent chance that I would have turned an ankle. Knowing that didn’t make me feel better, though. I felt that I was failing as a runner.

As I spent the afternoon brooding over how hard it had been for me to run those three kilometres, I thought of how poor my diet has been lately. I have been doing what I usually do when depressed: eating very little, and eating absolute junk on the occasions when I do eat. It’s no wonder that running has been such a challenge, that yesterday’s short distance proved to be too much for me. I haven’t exactly been fueling my body properly.

These thoughts were swilling around my head throughout the afternoon. I told myself that of course nutrition has been a problem. I’m a person who has been going through depression, and I have a messed-up relationship with food at the best of times.

You’re an athlete, piped up a little voice in my head, out of nowhere. Eat like one.

Well. That shut the negative part of me up. It derailed a train of thought that badly needed to be derailed. It’s been a long time since I’ve heard that little voice, the one that has confidence in what I can do. That little voice, in addition to reminding me that I am, in fact, an athlete, made me realise just how unkind I’ve been to myself lately.

In a sudden flurry of activity, I attacked my fridge, throwing out junk and old leftovers, getting rid of vegetables that I had bought and let go bad. And then, armed with a shopping list containing healthy foods, I corralled my family and dragged them to the grocery store with me.

Last night I cooked a healthy meal with a touch of carbo-loading. I ate it and went to bed feeling better than I have in ages. When I woke up this morning, I had peanut butter toast instead of breakfasting solely on endless cups of coffee. And then, once I had packed the kids and the husband off to school and work, I went for a run.

It was hard going. For about ninety percent of the time, I was running on snowy sidewalks and streets that hadn’t been shoveled or plowed. In addition to running, I had to work hard to keep my balance, and I had to push off from a slippery, slushy surface. I worked muscles that I didn’t even know I had, and the last couple of kilometres were excruciatingly difficult.

But I did it. I finished 18K.

Because I am an athlete.

This is an original post by Kirsten Doyle. Photo credit to the author.

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Untouchable Moments

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My son George has a thing about hair – specifically, my hair or, if I’m not available, hair that is similar to mine. For a while, whenever we went anywhere, we would have to deal with the problem of him going up to random strangers with long dark hair, and stroking them on the head. We saw the need to nip this in the bud as quickly as possible: it was cute when he was seven or eight, if it was still happening by the time he got to twelve or thirteen, it would be downright creepy.

We have more or less gotten that impulse under control. When we are out, George leaves strangers and their hair alone. But it is still a big problem at home. He obsessively touches my hair, kisses it, and nuzzles his face into it so he can smell it. And it’s – you know – quite a heavy-duty invasion of my personal space.

It’s a tricky problem to solve. My kids love physical contact, and my husband and I are happy to oblige them. We are generous with hugs and snuggles, we chase the kids and play wrestling games with them, and when the weather is nice we go into the back yard and play games like tag. And lately, because George seems to be incapable of touching me without touching my hair, I have caught myself avoiding physical contact with him, either by retreating to places where he cannot get me, or by gently pushing him away.

For a mom like me who’s always been into the hugs and cuddles, it’s a terrible feeling, not wanting my child to touch me. I feel guilty and sad. I want to hug my boy, but I don’t want the accompanying hair-stroking and sniffing that goes with it. Today I’m feeling particularly rough, because George was awake all night, and he was at my hair. All night long. And today, every nerve ending in my body feels on edge. I feel like I will scream if George or anyone else touches me. And I feel like a truly awful mother for declining hugs and insisting on doing things by myself.

I recognise that my hair fulfills some sensory need in George – some complex need that I don’t understand and that he, with his autism, finds it impossible to explain. I sometimes snap at him for being all over my hair all the time, and then I feel bad, because it’s not his fault. It’s not something he can help, and until we can figure out some other way for him to satisfy that sensory need, it’s not really something I can help either.

The obvious solution – one that has been suggested to me several times – would be for me to simply cut my hair. But I am loath to do that, for a number of reasons. Long hair is easy to maintain. Short hair requires styling, and I don’t have the money or the inclination to keep going to the hairdresser in order to look respectable. In addition, when it’s time for me to go running, it’s really easy for me to tie it all back in a ponytail. But all of this is beside the point: I just don’t know that cutting my hair would solve the problem.

I’m sure – or I hope – that this is one of those problems that we will solve, that we will look back on as a memory at some point in the future. For now, I seem to be stuck with my permanently aching scalp and what I hope is a reversible aversion to physical contact. I am hopeful that sooner rather than later, I will be able to fully enjoy hugging my beautiful boy again.

This is an original post by Kirsten Doyle. Photo credit to the author.