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Seeing Her For The Last Time

Today I saw my aunt Ann for the first time in seven years. Last time I saw her, she cooked lunch at her house. She was always a bit of a marvel in the kitchen, and the meal was delicious. We ate good food, drank good wine, and shared tears and laughter as we reminisced about my Dad, whose funeral had been held two days previously.

Today, I stood in a funeral home looking down at Ann, lying in her casket. She looked bruised and swollen, and the injuries from the accident that took her life were very much in evidence. It was hard, so hard, to see her.

After we left the funeral home, we went to Ann’s house to have tea and cake, and to talk and find comfort in being together – me, my Mom, my aunt Mary (the wife of my late Uncle Philip who was Ann and my Mom’s brother) and two of my cousins. It was strange to be in Ann’s home without Ann.

I am still not sure what it will be like, trying to adjust to a world without Ann in it. I am not sure what thoughts will be going through my mind next week when we all gather to scatter Ann’s ashes.

The only thing I am sure of is this: even though Ann’s body looks bruised and broken, she will always be beautiful to me.

May she rest in peace.

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Airline Security For The Uninitiated

When I first flew to Canada almost twelve years ago, travel was relatively easy. You checked your bag and got your boarding pass from a pretty woman with a big smile and insanely white teeth, and then you headed over to the gate, where your carry-on bag went through an X-ray machine. As long as you didn’t have something in there that could bring down Fort Knox, you were good to go.

Even in the wake of 9/11, there wasn’t really anything to travelling. The same procedures were followed, albeit more thoroughly. Lineups were longer, more questions were asked, and from time to time, your stuff was checked for anthrax.

Now that I am in the midst of my first long-haul journey in seven years, I find that air travel is a whole different ballgame to what it used to be. All the rules have changed, and when I went through the security screening at Toronto’s Pearson International Airport, I had no idea what to expect.

I had already quizzed one of my co-workers, a recent traveller, on the legalities of bringing a small tube of toothpaste onto the plane with me. For some reason I thought that if I knew the answer to that, I’d be home free.

But then I saw the guy in front of me sifting through his carry-on baggage, removing items and confidently putting them in plastic trays. He whipped off his jacket and put it into another tray. He and his belongings went through the various machines and off he went. And I was left standing there, wondering what I was supposed to be putting into the plastic trays.

I took out my sad tube of toothpaste in its Ziploc bag and put it into a tray, along with my phone and my laptop. And because I had seen the guy in front of me remove his jacket, I did the same.  I tentatively shoved all of my stuff onto the conveyer belt and wondered about my shoes.

Some people were removing their shoes and others weren’t. Everyone appeared to know as if by magic whether their footwear could stay on their feet. I had to expose myself as the no-longer-experienced traveller that I am and call out to a security guy, who assured me that my shoes looked fine and could stay on.

Although it took no longer than three minutes for me to pass through the security checkpoint, I found the whole process to be a little daunting. Then again, this entire trip is daunting when you consider the circumstances behind it.

At least when I passed through the checkpoint at Heathrow Airport, I kind of knew what I had to do. I even knew the exact pose to strike when the machine beeped at me as I walked through and I had to be searched.

I really hope they don’t change the rules again during my stay in South Africa. It would be a shame, now that I’m just starting to get the hang of it again.

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Why I’m Not Wearing Mascara

“You look tired,” said my mother-in-law gently. “Why don’t you put a bit of makeup on you?”

She meant well – of course she did – but what she had way of knowing is that I never wear mascara to airports. Because no matter how I try to talk myself up as this brave, strong person, at airports I turn into a blubbery crybaby.

The plan this evening was that I would check in for my flight, and then spend time hanging out with my family. But we all knew, with George’s autism being what it is, that this might not happen. Even at relatively quiet times like this, airports are loud, busy places with lots of people and bright fluorescent lights. Airports are a recipe for sensory overload for a child with autism who’s already bewildered by the idea that his Mommy is going away.

And so I checked in, and then George tolerated a few minutes of looking at the planes before they had to go. I hugged my mother-in-law, and then clutched onto my children without wanting to ever let them go. A hug and kiss for my husband, and then they were off.

I stood in the middle of the wide terminal and watched them go. I didn’t move until long after they were out of sight. I savoured every glimpse of them that I could get, trying to get enough to last me for the next twelve days.

And then, just as my eyes were starting to overflow, I bolted into the Ladies Room and hid myself in a stall. When the flow of tears had subsided, I washed my face, surveyed my worn-out looking self in the mirror, and remembered just why it is that I never wear mascara to airports.

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Toronto Women’s Half-Marathon: Training Week 1

Monday

It’s a good thing each training week starts with a rest day, because there’s no way I would have been able to run today. I was struck down by a vicious stomach bug for all of yesterday and into today. The last time I felt this sick was when I had a listeria infection four years ago.

 

Tuesday

I was supposed to do a 5km tempo run today, but could not manage it. For a start, I still wasn’t really well enough, and secondly, there was a crisis in the office that had me working through lunch. By the time I left for the day, I felt like throwing up again. So much for starting my training program with a bang.

 

Wednesday

I took running clothes to work with me today, and went to the gym at lunchtime. I still wasn’t feeling all that well, but I had no choice. Anxiety has been eating me alive this week, so I had a choice between running it off or letting my head implode. So I hopped on the treadmill and did a tempo run at the target pace. It went really well – better than I had expected – but I couldn’t manage the full 5km. I flaked out after about 4km. Considering how sick I’ve been, I felt OK about that.

Thursday

The run I had planned for today evaporated with the phone call I received in the early hours of the morning, informing me that my beloved aunt in South Africa had very unexpectedly died. I couldn’t go back to sleep, so I was like the walking dead. I ended up staying home, as did my older son who was sick.

Friday

Despite my body screaming at me in protest, I got up early this morning and went out for a 6km run. It was perfect. It felt so good to be out there, running on the open road. I may have been sick earlier this week, but you’d never have known it today. I think my two-week lead-up to my training made a real difference.

Saturday

I thought of doing my scheduled Saturday run today, but chose not to. I don’t want to miss out on tomorrow’s long run, and since I ran yesterday, I’m worried about overdoing it this early in my program. Besides, I had tons to do. I am flying out to South Africa on Tuesday, and there’s a lot that needs to be done before I leave.

Sunday

I came this close to bailing on my long run early this morning. I started telling myself that I didn’t have to get up early – I could just go running later on. But I squashed that talk, laced up my shoes and headed out the door. And I am so glad I did. I ran 12km and enjoyed every single one of them. I wasn’t exactly a speed demon, but on these long runs, I’m not supposed to be. This was as perfect as a 12km run can possibly be.

Conclusion

My first week of training did not exactly go as planned. I missed one run and both of my strength training days. But considering all that was going on this week, I feel good about what I did accomplish. Finishing off the week on a high training note was fantastic, and I deem this week to be a success.

The next two weeks will be challenging because of my upcoming trip to South Africa. My friend and coach Phaedra assures me that because it’s so early in the program, this disruption will be easy to work around.

Now, it’s time for me to finish my packing. I will be taking my running gear with me across the Atlantic.

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Goodbye To A Lady

To my beautiful Aunt Ann,

For months, I have been telling myself that I would write you a letter. The Internet never made its way to the charming old farmhouse that has been home to you for your whole life. Since I moved to Canada eleven years ago, we have kept up with each other’s lives through my Mom, the occasional phone call, my two visits home, and the odd piece of snail mail.

When I got married last year, you painted me a picture. A bright, beautiful picture of flowers. It brightens up my mantle and I think of you every time I look at it. And although I sent you a card to say thank you, I promised myself that I would write you a proper letter, full of news and anecdotes. Maybe I would put in some pictures of my boys, the great-nephews who filled you with joy even though you never met them.

Now you are gone, tragically taken from us while the letter in my head remains forever unwritten.

When Mom called in the early hours of this morning to give me the news, I could not believe it. You have always been such a big, influential part of my life, and I cannot help wondering if my world will ever be able to adjust to your absence.

You were, to me, the epitome of a lady. Stylish and elegant, you were utterly beautiful inside and out. The many wonderful qualities about you will never be forgotten: your warmth and kindness, your generosity, your patience, and of course, your second-to-none baking skills.

Memories of you are playing in my head like a slideshow.

…the countless times you helped me prepare for my piano exams, showing me with infinite patience where I was going wrong and applauding what I was doing right.

…the times I walked around your large property with you and your dogs, helping you feed the pigeons.

…the times I played checkers with Granny when she was still alive, while you tried out a sewing experiment at the other end of the table.

…the way I admired the garden that you put so much love and care into.

…the lazy summer days I whiled away on the hammock in your front yard while you happily pruned roses nearby.

…the times I ate the shortbread that only you could make just right, that you dipped into melted chocolate.

…the little “Happy Birthday” music box you had, that you would play over the phone to whoever was celebrating a birthday.

…the time you took me and two of my cousins to the lion park.

…the time you tried to firmly but lovingly talk sense into me when I made a stupid decision that would have far-reaching effects.

…your home renovation escapades that made the rest of the family alternately despair and laugh.

…the way you folded me in your warm, loving embrace when my Dad died, comforting me even while you grieved the loss of one of your best friends.

…the day, shortly after Dad’s funeral, when you and I broke the corkscrew while it was still in the cork and we ended up having to strain the wine, and we agreed that Dad was messing with us.

…your absolute delight when we welcomed my firstborn child into the world the day before your birthday.

At the beginning of this week, I was gripped with inexplicable intense anxiety that wouldn’t go away. For three days I was living with the iron first of dread, and I didn’t know why. Little did I know that my universe was bracing itself for your sudden departure.

It is surreal to think that you left your house expecting to be gone for a short time – just long enough to walk your dogs down the road and back. You probably thought you would return home, have a cup of tea and maybe a sandwich for your lunch, and spend the rest of the day relaxing in your garden with your dogs.

I wonder if you had any sense of what was to come as the car approached, starting off the chain of events that would lead to your death. I hope you went quickly, without feeling any pain.

I love you, and I always have. I am going to miss you more than words can possibly express. And I am grateful that I had the honour of being your niece, that you were such a big part of my life, and that you helped shape me into the person I am today.

I know that you will be worrying about Mom. She is devastated. You were her best friend and she will miss you so much. But we will take care of her. We will make sure she is OK.

Rest in peace, beautiful lady. Someday, I’ll see you on the other side.

Kirsten

KCJ0001

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Better Running Starts With A Kitchen Makeover

My 2010 Run For Autism

Two days from now, my 2012 training season officially begins. Over the last couple of weeks, I have gone running a few times and learned how to do the strength training exercises that have been prescribed for me. I have been reading through the plethora of material provided in my Precision Nutrition kit. I have been trying to prepare myself for this season, mentally and physically.

This weekend sees the final push, the last preparations before I start my training program. It’s kind of like preparing for a trip. You spend weeks or months figuring out where you want to go and how you plan to get there. You sort out details like visas and passports, you make lists of what you want to take, you sort out someone to take care of the dog. And then, for two or three days prior to your departure, you rush around in a frenzy of activity, packing your bags and confirming all of the details.

To follow the analogy, I am now in the process of packing for the trip and doing all of that stuff that brings all of the prior planning together and ties it up in a neat bundle.

Here’s what my weekend has in store for me:

  • Today, my kitchen is getting a makeover. I am emptying out the cupboards and repacking them. I will finally throw away the baby bottles that have been lurking unused at the back of the top shelf for the last five years. Now that I have decent pots and pans, I can get rid of the old dented ones with chipped handles and thereby add valuable space to my tiny kitchen. The fridge will be organized in preparation for tomorrow’s grocery shopping trip.
  • Meals for the next two weeks will be planned.
  • I will make a list for said grocery shopping trip. I will buy what’s on the list, and only what’s on the list. The husband will not be permitted to add unauthorized items to the cart.
  • I will go through the training program that my friend and coach Phaedra has given me, and I will add all of my runs to my wall calendar. I will also schedule them on my Outlook calendar. Once they’re scheduled, they have to happen, right?
  • I will get my home workspace organized in a way that it will stay organized. This will make it easier for me to get things done in less time. When my space is cluttered, my mind is cluttered and that doesn’t help anyone.
  • I will finally put away the mountains of clean and folded laundry that I have everywhere. I spend ridiculous amounts of time digging around for clothing that I could find in five seconds if I was organized.

This is a lot to get through in one weekend, but I am excited about doing it. I even have an incentive: if I do all of these things, on Monday I will reward myself with a new pair of sports headphones I’ve had my eye on, and this will give me a wonderful musical experience when I’m running.

I am looking forward to making new starts in my life. I am looking to creating some desperately needed balance, and doing things for myself that will make me happier and healthier. I have been languishing for too long in this feeling of being overwhelmed by my life. It feels good to be taking action and making plans.

I intend to post weekly updates on my progress, every Saturday. Come with me as I embark on this journey. It may not always be easy, and I’ll need cheerleaders along the way!

 

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The Man On The Train

By the time I got onto the train I was exhausted. I’d been up until almost midnight finishing my packing, and when I’d woken up I’d forgotten where I’d packed my passport. The cab had been late and there had been an accident on the highway. I had made it to the train station with seconds to spare.

I  was so tired it hurt. As the train started pulling out of the station I relaxed gratefully into my seat and closed my eyes. I was almost asleep when I became aware of movement near me. I opened my eyes to see an old man sitting down opposite me. He was tall and skinny with long white hair and the bluest eyes I had ever seen. As I said good morning to him, he stared at me in a disconcerting way. I closed my eyes again.

A couple of minutes later I opened my eyes to see the old man still staring at me.

“Can I help you?” I asked, feeling distinctly uncomfortable.

He kept staring at me in silence – the kind of silence that gets louder and louder with each passing second.

All of a sudden, he spoke in a deep Southern accent that I really had concentrate on to understand him. What he said took me completely by surprise.

“My maw was making gravy for the chicken when my paw died.”

“Oh,” I said hesitantly. Then, because I felt that I had to, I asked, “What happened?”

“Well,” he said, in his peculiar gravelly voice. “I was just a boy then. I just come in from the fields with Paw. The chicken and the potatoes and all was already done, and Maw had the gravy in this jug, beatin’ it with a wooden spoon like she was trying to punish it.

“All’s a sudden, the dog barks outside, right outside the window. Maw gets a fright and drops the jug. The jug bounces on the counter, and gravy goes everywhere. Some of it splatters on the cat that’s sittin’ on top of the ’fridgerator. The cat gets a fright and jumps right onto Paw’s back. And Paw is spinning round and around, tryin’ to get the cat off his back. He loses his footin’, topples over and hits his head on the corner of the stove – one of them old cast-iron stoves. By the time he hit the floor he was a goner.”

As he finished the story, the old man buried his face in his hands. I felt a stab of compassion for him. What a terrible thing for a young boy to witness. But then the old man looked up again and I realized he was laughing.

“It was the most ridic’lous sight,” he said, slapping his knee with mirth. “My old man, drunk as a lord, spinning around with a cat on his back. Butt-ugly cat it was too!”

The old man was laughing so hard that he was choking and wheezing, and tears were streaming from his bright blue eyes.

“Wow,” I said, genuinely taken with the story. And then, because I’d been watching Murder Mysteries while packing the previous night, I asked, “What did the police say when they came? Did they believe you and your Mom when you told them what happened?”

“Well now,” the old man whispered conspiratorially as he leaned forward. “We never actually called the ’thorities. We couldn’t, you see. Far as everyone in town was concerned, Paw had already been dead for years.

“You see, he had one of them fancy life insurance things. So when we was down on our luck one year, he burned out his tractor and Maw reported him missing. Last seen drivin’ off in the tractor, that’s what she told the sheriff. They didn’t have no fancy ways to prove nothin’ back then, so they just assumed he was dead. Maw got a pile of cash and Paw just stayed hidden. No-one ever came to see us, so as long as Paw was in the house or on his fields, we was OK.”

“So when he died, what did you do with – um – you know, him?” I asked. This story was unreal.

“Down past the apple trees, there was a big clump of dogwood trees, belonging to the neighbours. There was all kinds of bushes and plants growing under the trees. The bush was so thick under there, it was like a jungle. When I needed someplace to hide as a boy, I’d go there. No grown person could get in through all of those bushes and trees and stuff.

“We waited until nightfall, then Maw helped me put Paw on the wheelbarrow. He kept fallin’ off, but finally we got him to that clump of bushes and trees. We got Paw off that wheelbarrow, and I climbed in under them bushes.  Maw pushed, I pulled, and we got him in there. No-one would ever find him there.”

The old man paused. He seemed to be immensely proud of his story. Clearly, his conscience was not bothered by things like insurance fraud and the concealment of human remains.

“But what if your neighbours decided to cut down the trees?” I blurted out, suddenly worried on behalf of the small boy from long ago.

“Why would they do that?” asked the old man, incredulously. “If they cut down all the dogwood trees, where will the raptors live?”

For the IndieInk Writing Challenge this week, pamela challenged me with "If they cut down all the dogwood trees, where will the raptors live?" and I challenged Seeking Elevation with "In the Canadian city of Toronto, it is illegal to drag a dead horse down the street before midnight. Tell a story – real or fictional – about how this law came to be."

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In Defence Of Runners: Five Running Myths Dispelled

I have noticed a very strange phenomenon. When I tell people that I am a runner, many of them – all non-runners, of course – go to great lengths to tell me how bad running is for me. I’m never too sure why this is. The subject usually comes up in the course of natural conversation. It’s not like I walk into a room full of strangers and blurt out, “Hey, guess what, everyone? I run!!!” I make it a point not be all preachy about it, and I never criticize the lifestyle choices of other people. There’s no reason for anyone to get defensive about their choice not to run. So why do many non-runners feel the need to try and get me to give up my evil running ways?

There is a lot of misinformation out there where running is concerned. Today I want to dust off my soapbox and hop on, if not to convince more people to at least give running a try, then at least to set the record straight.

Myth #1: Running is bad for your heart.
This myth is undoubtedly fuelled by the tragic and widely publicized deaths of runners participating in marathons and half-marathons. In the last half-marathon I ran, a 26-year-old man in apparent good health collapsed and died on the home stretch to the finish line. It is beyond sad, and these incidents can be alarming. But one only has to take a look at the numbers to know that the risk is very low. Out of almost eleven million marathon and half-marathon participants in the United States from 2000 to 2010, there were 42 fatal heart attacks. This translates to one death for every 259,000 runners – about half of the death rate from heart attacks in the general population. In other words, from a purely statistical standpoint, people who run are less likely to suffer cardiac arrest than people who don’t.

Myth #2: Running is bad for your knees.
Arguments in favour of this myth seem solid. When you consider the fact that the knees take a force of about eight times a runners’ bodyweight with each strike of the foot, it seems reasonable to conclude that wear and tear would ultimately win out. However, a number of recent studies suggest that not only does running not harm the joints, it may in fact help them. A person’s chances of developing arthritis or some other problem with their joints does not appear to be connected with whether or not they have run. I know many people who are still running well beyond their 70th birthdays with no ill effects to their knees, and I know people who have never run who have had knee problems.

Myth #3: Running doesn’t actually help you lose weight.
This myth is driven by some scientific algorithm I don’t understand that dictates what intensity of exercise makes you burn fat and what doesn’t. Whenever I try to read the theories surrounding this, my eyes glaze over, so all I can really go by is my own experience. When I took up running again after a break of about seven years, I was tipping the scales at almost 200 pounds. I was heavier than I had ever been in my entire life – and that included either of my two pregnancies. From the time I started running again until the time I ran my first half-marathon for autism – a period of about six months – I managed to shed about fifty pounds. My diet did not change significantly during that time – it was all down to the running.

Myth #4: It’s not safe for a woman to run on her own.
This really depends on a number of factors, like location, time of day, time of year, and so on. It is true that runners – women and men – need to consider safety when they are running. This topic is broad enough to merit its own blog post, but there are things that runners can do to ensure their safety. Some basic precautions are: be aware of your surroundings, know the area you are running in, make sure someone knows what route you are taking, stick to the beaten track, and make sure you have a means of communication with you, whether it’s a cell phone or quarters for a phone booth.

Myth #5: Running is boring.
I suppose for some people it might be. For me – and I daresay for most dedicated runners – there is far too much going on for boredom to set in. There’s all the clichéd stuff about trees and birds and fresh air – and there is merit to that. Early morning running in particular can be spectacular from an at-one-with-nature point of view. I love the feeling of running before the rest of the world gets going, when it’s only me, the open road, and the sunrise to which I am invariably treated. The air is clean early in the morning, before the traffic comes along to muck it up, and the sounds of nature are pure and beautiful. And quite apart from all of that, when I run I can I focus on all that is going on with my body. My heart race, my pace, how my legs are feeling. I take stock, re-evaluate, re-strategize, decide whether to speed up or slow down or throw in a burst of sprinting. I can marvel at what the running is doing for my mental health – the endorphin rush that gives a natural high, the stress relief, the fact that unlike the times spent at home, when I’m running I can actually start a thought and see it through to completion.

Do you run? Do you have strong feelings about running, either for it or against it? Have you come across any other myths about running?

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Remembering A Captain

A year ago today, a baby named David got his angel wings. After tirelessly staying by his side during his five-month-stay in hospital, his Mom – so brave, so beautiful inside and out, and with a heart bursting with love – held him in her arms as he winged his way into the next world.

During his time on earth, David – known to many of us as Captain Snuggles – changed many lives. He inspired people to appreciate what they had and to live their lives better. Through him, people started donating blood. Because David was here with us, because he fought so bravely, lives have been saved, continue to be saved because of the people who continue to donate blood in his honour.

What an amazing legacy for an eight-month-old baby.

To Captain Snuggles: rest in peace, smile on the people who live because of you, and touch your family with love.

To David’s mom Amy, who fought so hard for her son’s life: I send you vibes of love, strength, and peace. I wish I could be close enough to hug you, but through the bonds of friendship, I am with you tonight. May you and your family find strength in being together, and may all of you feel the loving presence of the brave Cap’n.

 

 

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10 Useful Skills For Autism Parents

Autism parents frequently have to do things that other parents don’t. Our kids are so different, what with their limited communication skills, their sensory challenges, and at times, their superhuman physical strength. It is impossible to parent a child with autism in the same way you would parent a typical child (which means that when you have both an autie and a typical child you have to adopt two different parenting styles, but that’s another post for another day).

In the beginning, it’s hard, knowing what to do. And in a way, it never really gets any easier. But there are things I have learned from experience, that are now second nature. Here are ten of my favourites.

  1. Drywall repair. Many auties, my son included, are headbangers. They may bang their heads out of anger or frustration, or simply to get attention. And then they bang their heads, they don’t mess around. They give the wall a good solid WHUMP that’s enough to make the room shake. The drywall invariably takes some punishment. The inside of my house looks a bit like a pitted golf ball, and there are places where the impact of my son’s head has caused actual holes – big, gaping holes.
  2. Mixed Martial Arts. My husband likes to watch Ultimate Fighter on TV, and although I don’t watch it myself, I have absorbed some of it through osmosis. This has proved invaluable in times when my son has had a meltdown. When most kids have meltdowns, they simply lose their tempers. When auties have meltdowns, they thrash on the floor, bash their heads on the closest hard surface, and can risk hurting themselves quite badly. Even as they are kicking and screaming, they have to be kept safe. Hence the MMA skills. I have become quite the expert at using my bodyweight to restrain my son from hurting himself. The difference between me and the Ultimate Fighter guys, of course, is that I try to avoid causing pain, I don’t get paid big money for my efforts, and I have a mental age that’s higher than my shoe size.
  3. Dishwasher Racing. My son hates – and I mean hates – for the dishwasher to be open. Anytime I have to unload it and repack it, I have to deal with this kid repeatedly – and with increasing volume – telling me to close the dishwasher. He plants his bum on the kitchen floor, right in front of the sink, so I cannot get to the dishes. Sometimes I actually have to slide him out of the way. I have taken to setting the oven timer whenever I start doing dishwasher stuff, and the idea that he can visually see how long it will take does seem to soothe him. But God help me if the dishwasher is not packed, closed and switched on by the time the timer expires.
  4. Stealth Hair Cutting. My son, like many other kids, dislikes haircuts. But he doesn’t dislike haircuts in the same way most other kids dislike haircuts. He dislikes haircuts in the same way most people dislike having a kidney forcibly removed while fully conscious and able to feel pain. Rather than risk traumatizing my child, I give him haircuts while he is sleeping. This involves a lot of patience, as I have to wait until he is very asleep. If he’s not asleep enough, he will wake up as soon as I touch his hair and he will scream loudly enough to startle the llamas in Peru. I have to creep around in the dark like a burglar, and sometimes it takes several nights to get the job done.
  5. Mediation. OK, this is a skill that any parent with more than one child has to learn. But when one child has autism and the other doesn’t, you have to raise your mediation skills to a whole new level. It’s a bit like trying to sort out a dispute between one person who only speaks Zulu and another person who only speaks Icelandic, when you only speak Pig Latin.
  6. Jumping Through Hoops Of Fire That Are Constantly Moving. OK, that may be a slight exaggeration. But dealing with school boards can really feel that way when special needs concerns are brought into the mix. I am getting really good at making suggestions to teachers and therapists that are phrased in a way that makes it sound like it was their idea. If it gets what my son needs, I really don’t care who gets the credit for it.
  7. Improv. If I had a dollar for every time a random stranger made a stupid remark about my son needing “a good hiding” or “proper discipline”, I’d have enough for a five-star trip to New Zealand, including flights, hotels, meals, and a Lord Of The Rings tour. I have learned the art of the Quick Comeback. If someone is being rude and intrusive while my son is having a hard time, I am no longer shy about saying things like, “My child has autism – what’s your excuse?”
  8. Distraction. This is a concept that most autism parents are well aware of. Sometimes I can just tell that a meltdown is just around the corner, and I want to do everything in my power to head it off at the pass. I get favoured activities or treats within arms’ reach, try to stop or somehow control whatever is winding him up, talk to him, sing to him, throw out mental arithmetic problems at him (the kid’s like Baby Rain Man with numbers – what can I say?) I have about fifty-fifty success with my efforts – but I will take that over ninety-ten in favour of the meltdown.
  9. Planning for Change. If there’s one word that makes autism parents everywhere tremble with fear, it’s change. Our kids don’t do well with change. They like the same places, the same people, the same routines. When we go on vacations, we have to take most of our family’s belongings with us so that we can replicate our home environment as closely as possible. Every summer, we put together social stories in preparation for the new school year, that include pictures of the new teacher and classroom, and we take our son to the school so he can get used to – or stay used to – playing in the playground there. I contingency-planned my wedding like it was going out of style – and all of those efforts paid off.
  10. Appreciating the Little Things. Where an autism parent is concerned, there is no such thing as a small accomplishment. All achievements, ranging from new words added to the vocabulary to giant cognitive leaps, are causes for celebration. As the parent of a child with autism, I have really learned how to smell the roses. Life is full of challenges for me and my family. But every single day is a blessing, and every single night, when I kiss my children goodnight, I am grateful for the people they are. And no matter how hard the day has been, I feel like the richest person on the planet.