Kirsten, Author at Running for Autism

Out Of The Darkness: Overcoming Post-Partum Depression

July 4, 2011 By Kirsten

This post was a hard one to write, even though the events described happened several years ago. It took me a number of days to get this all down, and it has taken another few days to actually decide whether or not to publish it. My hope in publishing this is that it will make a difference to somebody. Maybe you’re a new mom who is going through post-partum depression. Or perhaps you know a new mom who seems to be retreating into herself. If your life is touched in any way by post-partum depression, know that there are things that can be done. Talk to your friends and family, seek help from medical professionals. And whatever you do, don’t lose hope.

My younger son James was born at a tumultuous time in my life. I had lost my dad to cancer a year previously, and me and my husband were going through some challenging times in our life together. At around that time, we were also starting to realize that there was something wrong with George and we had started to experience the frustration of wrangling a referral out of our family doctor.

I sometimes wonder, when I look back, whether all of these factors led to the post-partum depression I went through. Or perhaps it would have happened anyway. This is an illness that can strike the most unlikely of victims.

I knew within a couple of days after giving birth that the utter bleakness I was feeling was more than a case of “baby blues”. What I had experienced with George two years previously – the mild sadness, the anxiety, the tendency to be emotionally weird – that was baby blues. What I was going through now was completely different.

On New Years Eve that year, when James was six days old, I was sitting in front of the TV nursing my newborn while I watched CNN coverage of festivities around the world. At about five to midnight, Gerard brought me a cup of tea, and as he set it down beside me, he asked in surprise, “Why are you crying?”

I was just as surprised as he was. I had not even noticed the floods of tears rolling silently down my cheeks.

Even though I was filled with this feeling of terrifying – emptiness – I did not initially label what I was experiencing with any name. The first time I thought of the term post-partum depression in relation to myself, James was about two months old. A replay of an old Oprah episode was on – the episode where Tom Cruise spouted forth about how there was no such thing as post-partum depression, and how all new moms could solve all of their problems by eating right and exercising.

What an idiot, I remember thinking. This thought was followed by the sudden light-bulb moment in which I realized that I was suffering from post-partum depression.

There was a good news and a bad news aspect to this discovery.

The good news was that I now had a name for what I was going through. I had something to Google, and sure enough, on every checklist I found, I was able to put checkmarks beside all but one or two of the signs and symptoms. I had a basis for research, and I felt some validation that I wasn’t simply going mad.

The bad news was that I too far down the path of post-partum depression to be able to actually do anything about it. Talking to someone – my doctor, my friends, or even my husband – would have taken energy. And that was something that I had in very short supply. Just getting through the day was an accomplishment. Once I had attended to the basic needs of my kids – feeding, diapering, bathing, dressing – there was nothing left over. No reserves of energy whatsoever.

And because I didn’t do anything about it, my illness got steadily worse and worse. I didn’t talk to anyone about it, and no-one recognized the signs. My friends and family saw me retreating further and further into myself, but they did not know why. They saw that the kids were obviously being taken care of, so they didn’t realize that there was anything to be concerned about.

Even when my depression was at its very worst, I was not suicidal in the sense of wanting to actively go out and kill myself (again, that would have taken energy that I just didn’t have), and I was never in danger of harming the kids. Their health, safety and happiness were my top priorities – my only priorities.

I did start to think about dying, though. I fantasized about what it would be like to die in a car accident, or to have a sudden heart attack, or to be shot during a bank robbery. I thought about being on a plane that had a bomb on it. What if I had some undiagnosed condition, and simply went to sleep one night and didn’t wake up?

My depression went untreated for over a year, and by then I honestly thought that I was lost forever. Right after George was diagosed with autism, I went to see my family doctor, who had received a copy of the diagnostic report. I was seeing the doctor about something unrelated – an old ankle injury was acting up – but he immediately picked up that there was something seriously wrong.

My doctor, who had been absolutely dismal at detecting signs of early developmental delay in George, was able to tell right away that I was going through a major depression. He put me on medication and insisted on seeing me once a week until I was out of the woods.

The pills were both good and bad for me. The bad part was that they made me feel angry. While I was taking them, I was mad at everyone and everything. Back then, I didn’t even have running as a stress coping mechanism, so the anger just sat there and frightened the living daylights out of me.

The good thing, though, was that the pills helped with the depression. I started feeling some energy again – even though the energy itself was negative, it was a start. Negative energy was better than the absolute empiness and desolation that I had been feeling for so long now.

And so gradually, I started finding my way back. With time, I rekindled my relationship with my husband, and I discovered the true joy of parenting. I went back to work and started to find my own identity again. I started running. Little buds of hope started to grow within me.

I found my way out of the darkness, and into love and light.

Filed Under: Help, Illness, Medical, parenting, Post-Partum Depression Tagged With: autism, bleakness, children, depression, doctor, emptiness, George, help, hope, illness, James, medical, medication, newborn, parenting, post-partum depression, postaweek2011, thoughts of death

Why I Don’t Eat Lentils, And Other Stories

July 2, 2011 By Kirsten

My grandmother

It is the mid-1980’s. I am fourteen years old, in ninth grade, and I am sleeping soundly. In the early hours of the morning, I suddenly wake up with a jolt. Somehow, I just know that my grandmother has died. I know this with the same certainty that I know the sun rises in the east. Granny has had a cold, but her health has been as good as can be expected for a woman in her 80’s. There has certainly been nothing to indicate her impending death. And yet, as I wake up, I know for a fact that she is gone, but I don’t have a clue as to how this knowledge has come to me.

As I lie in bed wondering what to do with this knowledge, I hear the phone ring. I listen to the sounds of feet running to answer the phone, followed by the muted tones of conversation. My door opens and Mom comes into the room. She seems surprised to find me awake so early.

“Granny has died,” Mom tells me.

“I know,” I say. Mom looks at me a little oddly, but lets my remark go, probably putting it down to just-woken-up bleariness. I sit up in my bed and Mom and I hug one another. She has lost her mother and now has no surviving parents. I have lost my grandmother, a woman I had loved dearly.

This loss is going to be hard on both of us.

One of the earliest memories I have of my grandmother is her lentil soup. The woman was a marvel in the kitchen – not so much because of the quality of her cooking, but because of her uncanny ability to create full meals with virtually no ingredients. She had raised three kids on her own while my grandfather was fighting in World War II, and lack of both supplies and money had made her very inventive and resourceful.

She used a lot of lentils. Lentils were cheap and nutritious, and there was apparently no problem getting hold of them during the war. Old habits die hard, I suppose, so thirty years after the war had ended, when supplies were plentiful and the economy was strong, my grandmother was still making her lentil soup.

It was, without any doubt whatsoever, the worst lentil soup. Ever. Granny would dish out these bowls of the stuff for her seven grandchildren, and make us sit at the table until we had finished it all. I mean, I know it was good for us and everything, but it just tasted so – horrible.

To this day, my friends, I cannot eat lentils. Not in soup, not in salad, not in anything. Those dark days of lentil soup tyranny ruined me for lentils forever.

Fortunately, there was a flip side to the lentil soup. My grandmother made the BEST banana fritters in the whole world. Let me tell you how good these things were. I don’t like bananas. I hate the taste, and I hate the texture, and I’d rather set my face on fire than eat them. But Granny’s banana fritters? I could eat those things until the cows came home. And she was the only one who could make them. She did give me the recipe, and I tried, but she just had that magic touch. When she died, so did the fritters.

I was quite an accomplished pianist in those days. I was very serious about it, and every year I would do practical piano exams to advance another level. I was always allowed to take the whole day off school on music exam days, and when the exam was done, my mom would drive me straight over to my grandmother’s place, where there would be some freshly made banana fritters waiting for me, made in honour of that day’s accomplishment.

Every summer, I spent a week or so with my grandmother. She lived on a large property off the beaten track, and there were acres of open space to play in. She had loads of dogs (including an ancient fox terrier named Chaka Charlie who always made me feel a little freaked out), and a coop full of pigeons. My cousins lived just down the road, and together we would play elaborate adventure games in Granny’s massive yard.

And in the evenings, after dinner, Granny and I would spend hours playing checkers. We would drink our tea and eat chocolate-dipped shortbread made by my aunt, who lived with my grandmother and still lives in the house today. And we would play endless games of checkers. Granny was a master at the game, and although I did win from time to time, this was very, very rare.

The last time I stayed over at my grandmother’s place, she asked me if I would teach her to play chess. Immediately, I agreed. This would be fun. My grandmother definitely had the mind for chess. She would have been fantastic at it.

As it happened, though, I woke up one morning when I was fourteen, and before the phone had even rung, I knew that my grandmother was no longer with us. I never got to teach her how to play chess.

I’ll always have the memories, though.

I just wish I could figure out how to make those banana fritters.

Filed Under: Childhood, family, Grandmother Tagged With: banana fritters, checkers, chess, childhood, death, family, grandmother, lentil soup, memories, music, postaweek2011, World War II

Graduation Day

June 28, 2011 By Kirsten

My Kindergarten Graduate

On Friday morning we all woke up with a sense of occasion. Especially James, my five-year-old son for whom this day was happening. He had been looking forward to it all week, and now that it was here, he could barely contain himself.

In honour of the occasion, I walked him to school myself instead of dropping him off at the daycare. Once we got to the school, he ran ahead of me to join his peers, and I joined the group of parents walking towards the gymnasium where the event of the day was being held. I secured two seats in the front row, and hoped that my husband, who was taking George to school, would arrive before the excitement started.

As I waited, there was a lot of scuffling and whispering and shhhh-ing coming from behind the curtain on the stage, as the kids were obviously brought in through an unseen entrance and put into their positions. With just moments to spare, Gerard scooted in and sat beside me.

And then it began…

The curtain opened to reveal a sight that made the audience go Awwwwwwwww in unison: a class of graduating Kindergartners, all wearing oversized white mens’ shirts that had been put on backwards, and personalized graduation hats made of construction paper.

I have to tell you, they looked cute. Especially when music was cued and the kids started singing a song to the tune of Frank Sinatra’s New York, New York (instead of singing about New York, New York the kids were singing about Grade One, Grade One). And the cuteness just about exploded near the end of the song when the kids started doing that leg-kicky dance routine. They were very enthusiastic about it, too.

The music segued into I Gotta Feeling by Black Eyed Peas. This time the kids weren’t singing, but they were dancing. Even though it was supposed to be a choreographed dance, it somehow didn’t matter that at no point during the song did any of the kids have matching dance moves. Their energy and enthusiasm – and the fact that my child was part of it – made it the best dance I’ve ever seen.

When the music faded out, it was time for the big moment. The children were called one by one to receive their Kindergarten certificates, which were rolled up into little scrolls and tied with ribbons. When it was James’ turn, he solemnly received his certificate and then posed for the pictures as if it was an occasion in the White House. He had taken this graduation concept very seriously all week, even telling me at one point that “graduation is no laughing matter”.

So far, I was doing OK. I hadn’t cried yet. I hadn’t even needed to reach into my bag for a tissue.

The kids were brought down from the stage and they were ushered to pre-assigned seats in the auditorium. A projector screen appeared from nowhere on the stage, and in a slightly alarming move, one of the teachers started handing out Kleenexes to the assembled parents. “You might need these,” we were told.

The lights were dimmed and the show began…

It was a photo montage of the kids’ school year, and it was absolutely beautiful. The pictures of James showed a kid who was happy, social, and doing really well. My heart burst with pride.

Yes, I cried. So did all of the other parents. The person who was probably crying the hardest at the end of it, though, was the teacher. She clearly cares about every child she teaches. And that shows in how well the kids have done, and in how excited they are to be in Grade One.

The day could not have been more perfect. So what if the singing wasn’t exactly in tune? And so what if the kids chose, on the day, to dance to the choreography inside their own heads? We, the parents, had the privilege of seeing our kids being the wonderful, spontaneous human beings they are.

We saw them being themselves, and it was the best thing ever.

Filed Under: Children, Graduation, Kindergarten, School Tagged With: children, cuteness, dancing, graduation, James, Kindergarten, parents, school, singing, teacher

Running Through The Fields On A Summers Day

June 20, 2011 By Kirsten

My next half-marathon, which takes place a month from now, will involve a variety of running surfaces. The route will take runners along trails, on the streets, through a tunnel going under the highway, and through a number of fields in the farming community hosting the run.

Training for this event is proving to be interesting. For one thing, I have to do my training runs on a mix of terrains – easier said than done, for someone who lives in a definitively urban area. But still, there are ways and means, and I’ve been trying to incorporate the trails in our local parks into my routes.

The bigger challenge for me is the fact that this race is happening on July 17th, in other words, slap-bang in the middle of summer. Although I hail from sunny climes, and probably have more endurance for hot-weather running than most North American runners, I’m not a complete masochist, and still opt to run in cooler conditions where possible.

But this race, taking place at a time of year when the mercury is already hitting 30° Celsius by eight in the morning, is forcing me to change my usual training strategy. Because where I would usually go running at 5:00 a.m., I am now looking for opportunities to run later in the day, when it’s warmer. It’s all about acclimatization. When race day rolls around, I don’t want to be the weasel who cannot handle running in the heat. I want to be the one who runs strongly throughout.

And that is why I voluntarily headed out for a 16km run shortly after lunchtime on Saturday. It was hot. Blisteringly. Although the actual temperature was only 19° Celsius, the humidity reading was pushing it up to the mid-thirties. Although this would never have potential to be a run I would describe as “pleasant”, the heat in itself was not the whole problem. I had not fueled myself properly for the run. More importantly, I had not hydrated myself. So not only was I hot, I was intensely thirsty as well, and I just didn’t have the energy stores I needed.

After 6km I gave up, and decided to do the long run the following morning when it was cooler. Usually I would hate the idea of cutting a run short, but since I had initially intended to run on Sunday anyway, I felt OK about it. I just chalked this up as a bonus 6km run.

When I got home I looked at my training schedule and saw that I wasn’t even supposed to do 16km this weekend. I was only supposed to do 10km. If I’d realized that I would have stuck out my Saturday run for the full 10km.

Maybe next time I will consult my training schedule before I hit the road.

(Photo credit: http://www.flickr.com/photos/stamargo/4894061863/)

Filed Under: running, Summer, Uncategorized, Weather Tagged With: distance running, half-marathon, postaweek2011, race, running, summer, training, weather

If He Can Do It, So Can I

June 15, 2011 By Kirsten

Last night, my son George was upset. He was distressed for the entire evening, crying and looking at us sadly with tears escaping from his beautiful big blue eyes. I could tell that this wasn’t just a case of a kid being in a bad mood. Something specific was bugging him. I just didn’t know what it was.

It was heartbreaking. There was this child, my beautiful boy, clearly wanting or needing something, and he was not able to communicate what it was. It was not for lack of trying. He was making supreme efforts to find the words and get them out, but no matter how much I tried, I just couldn’t understand.

In the end, George was just looking at me with an expression that told me he didn’t blame me for not getting it, that although he was sad, he was used to not being able to express himself, used to not being understood.

It was that look, the expression of resignation, that broke my heart. The idea that my child is already, at the age of 7, getting used to a life of hardship, just kills me. I guess this kind of acceptance has to happen sometime, because George’s life is never going to be the same as most other people’s, but still. It’s a difficult pill for a parent to swallow.

Moments like this strengthen my resolve where my running is concerned. On Sunday evening, I ran 14km on the treadmill. That’s a long way to run on a lab-rat machine, but really, I didn’t have any choice. Circumstances were such that it was the treadmill or nothing. And because I have a half-marathon a month from, now, I had to put in the distance.

Just because I deemed it necessary to run for 90 minutes on the treadmill, that doesn’t mean I liked it. It was very hard. The running part was OK. It was the mental resolve part that got me. Treadmill running is mind-numbingly dull, no matter what you do to try and distract yourself, and it took all of my self-discipline to keep going for the full distance.

Many of my long runs – even the ones I do on the open road – are tests more of my mental fortitude than my physical abilities. I know that I can run the distance. I have the base of physical fitness, and I have developed a running form that works for me. The mechanics of my body work just fine. The trouble is that my mind keeps trying to tell me that I’ve been running for a long time, and really, I should be getting tired by now. I have developed techniques to keep myself mentally strong during my runs. Playing music, thinking of things that are not running related, focusing on my body and how it feels as I run. The most effective technique I have, though, is this: all I have to do to keep going is think of the reason I’m doing it.

Every step I take, every aching muscle I endure, every toenail that I lose – it’s all for George. All of this training takes me closer to my Run For Autism, the event I use to raise funds for autism services to benefit my son and other people like him. Running for my child – what better motivation could there possibly be?

People sometimes ask me how I do it, how I go for all of those long runs and then, at the end of it, go out and race for thirteen miles.

For me, it’s easy. All I do is think of my boy. If he can live every day of his life with the challenges he faces, surely I can manage a two-hour run.

If he can do it, so can I. And he is my inspiration.

For details about my Run For Autism and how to support the cause, please visit my race page.

Filed Under: autism, fundraising, life, running, Running for Autism Tagged With: communication, difficulty with expression, heartbreak, life, parenting, postaweek2011, race, resignation, running, scotiabank toronto waterfront marathon, training, treadmill

Why I Can’t Eat Mangoes Even Though They’re Yummy

June 14, 2011 By Kirsten

Whenever I’m at the grocery store with George, the first thing we have to do is get a pineapple. In the earlier days of the pineapple obsession, he would take the pineapple home and stick Mr. Potato Head parts into it. He doesn’t do that anymore. He just likes having a pineapple to carry around.

Weird, I know, Other people’s kids carry cuddly teddy-bears around. My son carts around a piece of fruit that could take someone’s eye out.

Anyway, a couple of days ago when we went shopping, I allowed him to pick up the obligatory pineapple. And because fair is fair, I had to allow James to select some fruit as well.

“I want a big, juicy mango,” said James.

No, no, no, no, NOOOOOOOO.

Much to James’ chagrin, I cannot let mangoes into my house. I’m afraid of them. I won’t even walk past them in the grocery store.

“Anything but mangoes,” I said to James, who sulkily selected some pears instead.

I was never really exposed to mangoes until I went to Israel in the early 1990’s. When I had been in Israel for almost a year, I found myself working for a farmer in the Golan Heights, right in the north. For several months, I was a real farm-girl, doing real farm work. I would be up and in the fields by four in the morning, driving my tractor, spraying crops with pesticide, repairing irrigation systems, hanging bananas, you name it.

The pay wasn’t great and the hours were long, but my employer treated me and his other farmhand well, kept us stocked with beer, and allowed us to knock off at lunchtime on Fridays. Best of all, he allowed us free rein to eat the crops we farmed whenever we liked. As a result, most of our breaks were taken under the trees with mango juice dripping from our fingers as we consumed the delicious fruit.

Let me pause for a moment to say that Israel produces fantastic mangoes. They are big and juicy, and oh-so-sweet-and-delicious.

One frightening day, however, my mango-eating heyday had to come to a screeching halt.

On the morning of that fateful day, I noticed a strange-looking mark on my wrist. It was roughly oblong, and looked a bit like a railway track. It was as itchy as hell. I didn’t think anything of it: me and my fellow farmhand, Alan, were always getting cuts and scrapes without really noticing. So I ignored the mark and went on my merry, crop-spraying, mango-eating way.

That night I felt a little under the weather – that feeling you get when you’re coming down with a cold. Assuming that I was, indeed, coming down with a cold, I took some headache pills and went to bed early.

I woke up with a jolt at about midnight, with the nagging feeling that something wasn’t quite right. It didn’t take me long to figure out the problem: I wasn’t breathing. No matter how I tried to expand my lungs, I just couldn’t get any air past my larynx. And so, perhaps understandably, I started to panic.

I realized that somehow, I had to get the attention of Alan, my coworker and room-mate. I would have screamed, only this would have required me to draw breath and that was a problem. So I did the only thing I could think of: I raised my fist and pounded on the wall.

I was aware of Alan stirring and groggily using some colourful language. My persistent banging forced him to get up, though, and he only had to look at me once to realize that something was seriously wrong.

What happened next is a blur, but I know involved a lot of frantic rushing around and a trip to the hospital, where I was diagnosed with a serious and potentially life-threatening allergy to mangoes. I was treated and released the following day, and given a life-long ban on anything to do with mangoes.

I cannot eat them. I cannot touch them – those marks on my skin turned out to be burn marks from mango juice. I cannot even inhabit the same airspace as them, because inhaling their scent can be as bad for me as actually eating them.

Giving up mangoes was tough. Not only the fruit, but the fields. All of a sudden, I was deprived of the fields full of mango trees, with their mixture of hot sunshine and cool shade and of course, the fruits themselves. And I was banished to the banana plantations, with the oppressive overhead leaf coverage, the scorpions hiding in the bunches of bananas, and the fact that the bananas weren’t ripe.

And the fact that twenty years later, I would have to deal with a whining child who couldn’t get a mango in a grocery store.

(Photo credit: http://www.flickr.com/photos/digital1/3060425819)

Filed Under: Farming, hospital, Israel, Mangoes, Uncategorized Tagged With: allergy, Crops, Farming, Fruit, hospital, Israel, Mangoes, postaweek2011

The Princess And The Dragon

June 8, 2011 By Kirsten

A few days ago, I was play-wrestling with my kids in the living room. They were beating me hands-downs. I mean, it’s hardly a fair contest, is it? There are two of them and one of me, so I was at a mathematical disadvantage right from the outset.

So anyway, there we were, rolling around on the floor. I was lying face-down trying not to choke on bits of carpet. James was sitting on my legs poking his very pointy elbows into my back. And George was trying to pull my head off my neck. All of a sudden, James lost his balance, rolled off me, and bumped his head lightly on the table.

Instantly, the wrestling came to an end (much to my relief, it must be said) and James started screaming in outrage, underscoring the theory that he was born with the drama queen gene that runs in my husband’s family. When I had managed to calm him down and convince him that not only was he not bleeding to death, he hadn’t even broken the skin, he said to me, “Do you know how much that hurt?”

“How much did that hurt?” I obligingly asked him.

He replied, “That hurt more than a pickle falling on my eyeball.”

James’ use of words is just incredible. His extensive vocabulary coupled with a colourful imagination results in word pictures unlike anything I’d be able to come up with. I mean, a pickle falling on your eyeball? How do you even think of that?

It beats the time we asked him to tell us a story, and he said, “Once upon a time there was a poo. The end.”

His imagination clearly wasn’t firing on all cylinders that day, although for a week after that, I couldn’t get the South Park song “ Mr. Hanky The Christmas Poo” out of my head.

More often than not, though, James does come up with really creative stories. It used to be that he would provide the plot and I would turn it into a coherent story, but now he doesn’t even need me to do that.

Yesterday evening, while I was cooking dinner, James was sitting at my desk busily working away with a piece of paper and a pencil. When he was done drawing, he joined me in the kitchen, showed me his picture, which depicted a girl standing at the window of a castle and a dragon flying by, and solemnly said, “I am going to tell you a story about this picture.”

I sat down with my boy and listened as he spun a wonderful tale…

Once upon a time, there was a beautiful princess who lived in a castle. She had long black hair and the prettiest dresses in the whole wide world. One day, Dragon came to visit the princess. She wasn’t scared, because this was a friendly dragon and she knew he wouldn’t hurt her. She took him to the back yard, and gave him tea and cookies.

The dragon told the princess that he wanted her to give him one of her pretty dresses. The princess asked why he wanted a dress, and he told her it was a surprise.

The princess had lots and lots of dresses, so she gave one to the dragon. He finished his tea, played in the sandpit, and then left with the dress in a plastic bag.

The next day, the dragon came back, and he had the handsomest prince in the world with him. The dragon said, “You were lonely so I made you a prince to marry. And my granny turned your pretty dress into a wedding dress.”

The prince and the princess loved each other, and the princess put on the pretty wedding dress, and they got married.

The end.

Personally, I think the princess was kind of slutty to get married to someone she didn’t know, but I still think it’s a lovely story.

(Photo credit: http://www.flickr.com/photos/pathfinderlinden/3118654532/)

Filed Under: Imagination, Storytelling Tagged With: dragon, imagination, James, language, postaweek2011, princess, storytelling

2011 Run For Autism – The Countdown Begins

June 3, 2011 By Kirsten

I’m feeling fantastic today!

Actually, that’s not strictly true. I was awake all night with a sick child, who at some point during the process very generously shared his bug with me, as a result of which I am bone-tired and tossing my cookies. So in reality, I feel really, really rough. I feel like a hedgehog that just got dragged backwards through the business end of a lawnmower.

But despite my less than stellar physical condition, I am feeling good about some things that have happened this week.

First, I resumed early morning running. I’ve been a little out of it for a while, and a lot of my running has been done on the treadmill. But two days ago, I dragged myself out of bed and went for a run before work. It was great. I felt the way I always do when go for early morning runs: alive, invigorated, positive about starting the day with an accomplishment. And since my route involves me running east over the Rouge Valley bridge, I get treated to the most spectacular sunrises. I mean, what’s not to love about all this?

Later that same day, I got a series of emails informing me that I am now officially registered for the Scotiabank Toronto Waterfront Half-Marathon. Which means that everything I do between now and then (everything running-related, anyway) is in preparation for that race. It is my annual Autism Run – the reason I got back into running two years ago. This will be my third year doing the run. In 2009, I finished in about 2 hours and 28 minutes. In 2010, I improved that time to 2:22:38, knocking more than six minutes off my time from the previous year. This year I want to do something even more spectacular, and break 2 hours.

That will be a tall order. Taking 22 minutes off a time over a distance of 13.1 miles? It’ll be tough. But that’s not going to stop me from trying.

The other thing this all means is that I am now officially fundraising, enlisting people to sponsor me for the run, trying to gather together as much money as I can that will all go towards providing services for children and youth with autism.

I cannot stress how important this is. George’s progress since diagnosis has been off the charts, but this is no accident. It has taken many hours of hard work, buckets of tears, patience, IBI therapy, parent training, information sessions, and advice. George would not be where he is today if it weren’t for the Geneva Centre for Autism, who have provided services and training and all kinds of other resources.

I cannot help but think that if George continues to get services that evolve with his needs as he grows up, the sky will be the limit for him. This child is so loaded with potential, but he does need help and support to realize it. If funding dries up, so does my child’s future.

So I spent some time yesterday setting up my fundraising page. I have set my initial target at $500, but I am really hoping to surpass that and raise the target. Preferably more than once.

My call to action is this: if you have the financial means, please consider sponsoring me for my run. If you cannot afford it (and I totally get that – life ain’t easy for many people right now), then please spread awareness about autism. Help spread the word that people with autism are a valuable part of our society.

And if you circulate the link to my fundraising page, that will be an added bonus as well.

I am excited about getting this show off the road and doing the best I can for my George, which means doing the best I can for my family, and for the community of autism.

Filed Under: autism, Children, fundraising, running, Running for Autism Tagged With: autism, autism services, children, fundraising, geneva centre, George, half-marathon, James, postaday2011, potential, running, scotiabank toronto waterfront marathon, sponsorship

The Beauty Of Autism

May 31, 2011 By Kirsten

"Peep And The Big Wide World" by George

It was a beautiful moment. One of those moments that autism parents celebrate, that parents of neurotypical children completely fail to notice.

I got home after a long, hard day at work, feeling tired and cranky. As I trudged my way up the driveway, all I wanted to do was grab a glass of wine, collapse into a chair, and never get up again. I didn’t just feel lethargy. At that moment, I was lethargy.

I opened the front door and stepped into the house. Moments later, I heard a pair of feet thundering up the stairs from the basement, and a seven-year-old whirlwind launched itself at me, almost knocking me to my feet. After giving me a ferocious hug, George said, in his sweet sing-song voice, “Hi, Mommy!”

Without me saying hi to him first.

Without me or anyone else prompting him.

This was a social exchange that was initiated completely, 100%, by my child with autism – my child who has, as one of his biggest challenges, social communication difficulties.

Instantly, my energy was back and I was ready to laugh and play with my family, with this amazing child who always seems to give me surprises of wonder.

As a special needs mom, I find that my life is punctuated with moments like this. I remember firsts that I probably wouldn’t even notice if I didn’t have a child with autism.

Like the first time he pointed. What a joyous occasion that was, coming as it did after almost a full year of me teaching him how to point. I blubbed my eyes out that night, all over the Bob the Builder book that had been the vehicle for this accomplishment.

Then there was the first time he made a request using a full sentence. It didn’t matter to me that the sentence was only three words long. This child who said, “I want juice” was streets ahead of the child who, just a few months before, had indicated his need by grabbing my hand and thrusting it in the general direction of the juice boxes.

And what about the first time he pretend-played? It was a simple game that consisted of George crouching down on the ground, and crawling around with his back arched skyward while repeatedly saying, “Turtle.” So what if it was unsophisticated play that included only himself? He was pretending – something he had never done before.

More recently, we celebrated him drawing his first picture. He’d made lots of scribbly-type drawings in the past, of course (and I have kept every single one of them), but this was his first picture depicting an actual scene. That it was an instantly recognizable scene from his favourite kids’ show, Peep And The Big Wide World, makes it even more special.

We have seen the advent of humour, and this is all kinds of significant. Humour is a complicated intellectual process, and George gets it. And let me tell you, he is funny.

All of these moments, when strung together, tell a story of a very special little boy who is making a journey through life that is somewhat different to the way other kids do it. But the point is that he is making the journey and having all kinds of adventures. He may be taking the scenic route, but ultimately, he does pass through the same places that other kids do. He achieves many of the same things, but it takes a little longer and is accomplished in unconventional ways.

I believe that having a child with autism makes me a better parent than I would be otherwise.

It has given me the ability to spot a single flower in a sea of long grass, and more importantly, the power to stop and smell every single flower that I pass on this journey through my kids’ childhoods.

Filed Under: Accomplishments, autism, Children, family, life, Milestones, parenting, Special Moment Tagged With: accomplishments, autism, Bob the Builder, children, drawing, family, George, humour, life, milestones, parenting, Peep And The Big Wide World, pointing, postaday2011, pretend play, scenic route, social communication in child with autism, special moments, special needs