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Taking Off The Parenting Hat To Go On A Date

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

The last time I saw a movie with my husband – a real movie, in a movie theatre, with a giant bucket of popcorn to share – my firstborn son was about a year old. Because we just had the one child back then, and because one-year-olds who aren’t yet fully mobile are easier to manage than hyperactive eight-year-olds, my ageing mother-in-law was able to babysit.

We have gone out on other occasions, of course. We are regular patrons of a nearby dinner theatre that’s run in a barn – if once or twice a year can be considered “regular”. We go to the annual Christmas gala organized by my employers, and on the odd occasion, we’ll go to a party or a wedding.

For the most part, though, our outings include the kids. We frequent parks with slides and swings, and we go to restaurants where the waitstaff bring paper cups filled with crayons along with menus that the kids are allowed to draw on.

I am always hearing and reading about the importance of a couple going out on their own to spend time just with each other. I fully subscribe to that idea, and from time to time my husband and I make a commitment to have a date night once a month. But the logistics are so difficult.

People often assume that living with my mother-in-law gives us a built-in babysitter whenever we need it, and while that may have been true to an extent at one time, it’s not anymore. My mother-in-law is almost eight years older now than she was when we went to the movie that time, and instead of having one one-year-old, we have a six-year-old and an almost nine-year-old.

Finding a trustworthy babysitter is hard enough for any parent. There’s something very frightening about entrusting the most valuable things in our lives to people who usually aren’t old enough to vote. And when one of those valuable things is a vulnerable special needs child, the angst about it increases ten-fold.

Most babysitters do not know how to handle a special needs child. We have to find people who have some understanding of autism, are quick on their feet, and have the physical strength and presence of mind to restrain a child for his own safety. If it’s someone who can take the time to actually get to know the child while I am home, so much the better.

Usually, it’s just easier for us to not go anywhere by ourselves at all. But then our relationship definitely starts to take strain, because we are not paying enough attention to nurturing our relationship. Eventually, because of our increasing levels of stress, it starts to take some kind of toll on our parenting, in spite of all our efforts to the contrary.

Last night, we had the opportunity to go out to a concert – meaning that my husband had free tickets – and we had to scramble for a babysitter. The free tickets had come about unexpectedly, so we hadn’t exactly planned for an evening out. I desperately said to my husband that I didn’t even know who to ask.

My husband came up with the perfect solution. He asked M, one of the guys who works for him, if he would be willing to watch the kids for the evening, and M willingly accepted. M has kind of become a friend of the family. We invite him to the kids’ birthday parties, he came over for Easter dinner, and we eat out with him from time to time.

We completely trust M with the kids. He is so used to George’s autism that he doesn’t bat an eyelid when autism-related things happen. George knows him and likes him. James downright hero-worships him, and when we told him that M was babysitting, he practically pushed us out the door so he could hang out with his idol.

Safe in the knowledge that our kids were safe and happy, and that they might or might not tie M to a totem pole by the end of the evening, my husband and I headed into the city to see a live performance by Paul Weller, former member of The Jam and Style Council.

The music was every bit as good as we had hoped it would be, and my husband and I felt that buzz of happiness that you get simply from being with someone you love. M didn’t get tied to a totem pole. The kids behaved like model children. They were like the kids on those reality TV shows after the Super Nanny has whipped the family into shape. M said he would babysit for us again anytime we needed him to.

Last night, my husband and I renewed our intention to have regular dates nights to connect with one another, enjoy each other’s company, and just be.

How important do you think it is for couples to spend time together away from the kids? Is it something you manage to do regularly?

(Photo credit: Kirsten Doyle)

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Running With Purpose: A Photographic Record

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

I am currently reading a running book that has a lot of great advice in it. Since I will be posting a review of the book in the near future, I will not give away too much about it now, but one thing it says is that every run should have a a purpose. You shouldn’t just go out for a run for the sake of putting miles onto your running shoes. You should have a specific goal to improve endurance, train for hills, work on form, and so on.

It’s really too bad that I got this book so late in my training for next weekend’s half-marathon. I confess that my purpose on many of my long runs has been to simply get through the 18km or 20km without dying.

In general, though, my training has been a lot more focused than it was last season. I have incorporated hills and speed training. My long runs have included race pace segments, and in a couple of cases, actual races. I have done some strength training, although I have not been as consistent with it as I’d like to be. Since I started reading this book, I have been paying more attention to form, and in fact, one of my runs last week was entirely devoted to practicing my form.

Today was my last longish run before the half-marathon. At this point, my training is done. I’m either ready to race 21.1km or I’m not. Apart from keeping my limbs loose and relaxed, no running I do over the next seven days will improve my chances for a good race.

Therefore, my purpose for today’s run was simply to enjoy myself. And to take pictures.

A beautiful day is a welcome sight for a runner heading out of the front door

A perfect day for a run in the Rouge Valley

Beautiful reflections in the Rouge River

Lake Ontario in all of its springtime glory

A family of Canada geese enjoying the sunshine

Waving to my American friends on the other side of the lake

My favourite graffiti

Aerial view of the river I ran along earlier in the run

(Photo credit for all pictures: Kirsten Doyle)
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A Kind Of Magic

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

When James was about four, he got himself an imaginary friend. The friend’s name is Albert and his age varies from 3 to 12, depending on the day. According to James’ descriptions, Albert is a yellow monster with tall hair. He stays at home and sleeps while James is at school, and he is responsible for every single mess or piece of mischief-making that we blame on James.

Although Albert the monster features less in James’ incessant chatter these days, he still makes the occasional appearance – inasmuch as an invisible, imaginary monster can make an appearance.

I have come to recognize that Albert has served an important dual purpose in James’ life. First, James talks to him when he’s lying in bed at night, using him to process the events of his day and work through any conflicts he might be experiencing. And second, the monster fuels his imagination. James makes up a staggering variety of monster stories, and it is enormous fun to see where his mind takes him.

Monster hasn’t been around for a few days, but yesterday, someone else showed up.

I was industriously working wasting time on the Internet, and James was dancing around, chattering away to someone or something that only he could see. All of a sudden, he was by my side, telling me about a giant pink rabbit that was bouncing around in the kitchen.

“You should see it, Mommy!” said James, quivering with excitement. “Come on, look at it!”

“But I can’t see it,” I said to him, raising my hands palm-side-up in anI-don’t-know gesture.

Without missing a beat, James said, “Close your eyes and you’ll see it.”

His words instantly infused me with a sense of that childlike magic unique to six-year-olds who still know the true meaning of imagination.

As adults, we only see with our eyes. Most of us don’t take the time to look beyond what is literally in front of us. Children know how to see things with their minds. They can see possibilities of magic where most of us don’t even know there’s anything there. They are the ones who truly have vision.

I did what James suggested. I closed my eyes and really tried to look. And sure enough, there was that giant pink rabbit, dancing around my kitchen.

(Photo credit: http://www.flickr.com/photos/sebilden/3984605154/. This picture has a creative commons attribution license.)

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I Survived A Stressful Week Without Going Completely Insane

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

This last week has been fraught with stress. Along with almost everybody in my department, I spent the first half of the week waiting to hear whether I still had a job. I work for a large corporation, and they do these organizational shuffles from time to time, and invariably not everyone survives these. While we knew that this reorganization was underway, no-one was telling us anything. Throughout Monday and Tuesday, several familiar faces quietly disappeared. And those of us who remained were wondering who would be next.

On Wednesday, the new organizational charts were finally released. I had a brief moment of panic when I couldn’t immediately find my name, but located it under a new manager. I was not thrilled about that – I loved my previous manager – but at least I was there, doing more or less the same work I’ve been doing.

On the same day, I received notification that I had been accepted into the Professional Writers Association of Canada as an associate member. This was big news indeed: it gives me access to all kinds of tools and people that could help me in my quest to get a foothold in the freelance writing business.

While all of this has been going on, I have been trying to resolve some technical issues that have been preventing the upload of my new website. Last night I had to log onto a couple of sites, and click a couple of buttons that would finalize the transfer of my domain name to a new registrar.

My website broke.

I went into emergency fix mode, calling customer support lines and harassing my long-suffering website developer. I was able to put in place a band-aid fix, which will work just fine until my new website is uploaded after the weekend.

Then my email broke – the email that’s associated with the domain name.

It didn’t take me long to figure out what needed to be done. I had to kill off the email address in one place and recreate it in another. Which meant that I first had to sift through the emails in the old place to figure out which ones I wanted to keep. And we all know that nobody keeps their inboxes nice and tidy, right?

Sheesh.

I got the email address set up in one place, but now it would appear that I didn’t succeed in fully killing it off in the old place. So the Internet thinks the email address exists in two places. While I’m getting most mail in the new place and none at all in the old place, there is the odd message that simply doesn’t get delivered. Kind of like lost snail mail.

I am trying to muddle through and sort all of this out while coming down from a week of stress.

And deal with an autism meltdown that happened this morning when George couldn’t find his box of DVDs.

All of this is happening as I go a bit mental leading into the final week before my half-marathon.

At least everything that’s happening is, in some way, a step in the right direction. I still have a job. My writing career took a big leap. The infrastructure is in place for my new website, and I can always change my email address.

Even George’s meltdown was a positive thing, because he was able to communicate what the trigger was.

I am ready for a relaxing weekend, and I hope that anyone reading will relax right along with me.

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5 Tips For Moms Who Want To Run

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Today’s post is also a part of the 2012 Fitness & Health Bloggers Conference Blogger Challenge, in which bloggers are invited to write about an aspect of women’s health.

James and I taking part in the Whitby Waterfront Races

At the time my older son was conceived, I was an active runner. I wasn’t as into racing as I am now, but I was in good shape and I hit the road regularly. Running was logistically easier in those pre-baby days, when I didn’t have to worry about whether I’d had enough sleep and who was going to watch the kids.

I had intended to continue running throughout my pregnancy, but my body had other plans for me. Pregnancy wreaked havoc with the fluid in my inner ear, so I developed the inconvenient tendency to simply fall over without warning. This obviously meant that running would be too much of a risk, especially during the tail-end of winter when there was still a lot of ice on the ground.

After my son was born, I started running again, but only for a few months before I got injured. That was when my six-year break from running started. There was always something that kept me out of it – injury, illness, post-partum depression, plain old garden-variety depression – before I finally found the right motivation to start running again in earnest three years ago.

Combining motherhood with running can be a tricky endeavour, especially when you add a full-time job and special needs parenting into the mix. But with a bit of practice and planning, it is possible to strike the right balance, and it is very worthwhile.

Today, I offer you some tips on how you can successfully combine running with being a mom. These tips do not come from any books or websites. They come from my own experiences.

1.       Lose any preconceived notions of what a female runner “should” look like.

Pregnancy and childbirth can really do a number on a woman’s body image. Our post-baby bodies include new wobbly bits (unless you are blessed with spectacular genetic material), larger-than-before breasts that now serve a practical purpose, and stretch marks that make our bellies look like a railway network. Some of us are self-conscious about the way our bodies look, and we are reluctant to go out in public wearing shorts and tank tops.

We tend to have this idea that in order to run, women have to be skinny and flat-chested. I get a lot of women telling me that they would love to run, but cannot because they are not built for it, or because their breasts are too big. From experience, I can tell you that those are not good reasons not to run. I am not skinny by any stretch of the imagination, and I am definitely not flat-chested. Barring any serious medical conditions, anyone who wants to run can run, no matter what size or shape they are.

Yes, it is true that the women who win the Olympic marathons are skinny and flat-chested, but you’re not trying to win the Olympic marathon. You are doing this for yourself. And if you have a post-baby body to contend with, wear it with pride. It serves as a reminder of the life you have borne.

2.       Remember that women have unique nutritional needs.

Women have to deal with all kinds of stuff that men never have to think about. Our bones start to degenerate after a certain age, and this increases our calcium needs. We have periods every month that deplete our iron stores and can throw our entire bodies temporarily out of synch. For the time we are nursing babies, our bodies are directing all of the good nutrients to our breast milk, leaving us with just the leftovers to live on.

There are scores of books out there that talk in general terms about what runners are supposed to eat and when. The material you read can be confusing and downright contradictory. I have come to the conclusion that different things work for different people. Whatever eating plan you end up adopting, you need to ensure that the nutritional needs unique to women are taken care of.

Here are a few basics:

  • Eat foods rich in iron and folic acid, particularly during your menstrual cycles.
  • Increase your consumption of Vitamin C: this has been shown to improve the body’s efficiency in absorbing iron.
  • As you get into your 40’s, start taking calcium supplements to compensate for the hit that your bones start to take in middle age.
  • If you are nursing, you need anywhere from 500-1500 extra calories per day, and that’s before you take into account the calories you burn while running. Make sure you are well fed on nutritional stuff, and take along an energy bar when you go running.

3.       Get the right support structure.

Whether you are small- or large-breasted, or somewhere in the middle, a good sports bra is essential. The last thing you want to deal with while you’re running is your boobs bouncing around like ping-pong balls. It is not only uncomfortable, it is downright painful. Although I speak from the standpoint of someone with large breasts, I have spoken to women who made the mistake of thinking that their breasts were small enough for them to do without a sports bra. With a couple of exceptions, they have bitterly regretted it.

If you are small-breasted, you can probably get away with getting your bra from a sporting goods retailer. Larger-breasted women could benefit greatly from being professionally fitted at a specialist bra shop that carries sports bras. No matter where you get your bra from, it is important to ensure a good fit. Not only can ill-fitting sports bras add to the bounce, they can lead to very painful chafing.

If you have just had a baby, be aware that the size of your breasts probably changed during your pregnancy. Don’t assume that what fitted you before will still fit you now. The same applies to moms whose babies have recently been weaned from the breast. As your body’s production of milk slows down, the size and shape of your breasts may alter.

Nursing mothers who want to wear breast pads should take precautions to ensure that they don’t shift during the run. When I ran as a new mother, I secured my breast pads with surgical tape and that worked well enough.

4.       Make it a family thing.

You don’t have to force your husband and children to go running with you, but at least enlist their support. Tell your significant other about your intentions to run, and let him or her be a part of the planning. You will need someone to watch the kids while you are out, and if that same someone massages your aching feet at the end of the day, so much the better! Most running moms I’ve spoken to report having supportive partners, and that makes all the difference.

For those with young babies, running can be logistically very easy. All you need, apart from your running gear, is a baby jogger – a three-wheeled stroller designed for motion. Look for a baby jogger that can be adjusted to have the baby forward-facing or rear-facing. These strollers do not have wheels like regular strollers, they have tires that look almost like bicycle tires. That makes them suitable for a variety of terrains and weather conditions. Not only is this a fun way to bond with your baby, pushing the extra pounds as you run is a great booster of upper body strength!

Running with older children can be immensely enjoyable as well. My younger son, now six, is showing an interest in running. He ran his first kiddie’s race last year, and he plans to more. I often take him out with me on a Sunday, just for a kilometre or two, and then I drop him off at home with my husband before heading out for my longer run

5.       Enjoy the me-time

People run for different reasons. Some runners are competitive, and are in it to win the races. Others want to get fit, or lose weight, or address some specific health issue. Some people simply run because they like it. Whatever your primary reason for running is, use it as an opportunity to switch off from the day-to-day business of parenting. Allow your mind to wander a little – bearing safety in mind, of course. Get an iPod and listen to some music. For a busy mom, it can be incredibly liberating to pound the pavement for a few miles. It is a great stress-reliever, it loosens the joints, and it refreshes the mind. When you get back home after your run, you will feel ready – and eager – to step back into role of Mom.

Disclaimer: The information given in this blog post, or anywhere on this website, is not intended to replace the advice of a medical professional.

(Photo credit: Kirsten Doyle)

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Autism And The Art Of Conversation

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Every night, I give my older son George a piggy-back ride to bed. These days are numbered, of course. George is almost nine and he’s all arms and legs. Someday soon, he will too tall and heavy for me to cart around on my back. For now, though, I treasure these last days of being able to pick up my son.

We get to his room, where I dump him unceremoniously on his bed. He tucks himself in while I turn off the light, and then I lie down beside him. For the next few minutes, it’s just him and me, alone in the entire world.

We talk. I ask him questions. He answers them.

Who does Mommy love? She loves George.
Who does George love? He loves Mommy.
How do you feel? Happy.
Did you have a nice day? Yes.
Where did you go? School.
What did you do there? Math.

Always the same questions. Always the same answers.

I follow this ritual for the sense of closeness between me and my son, because it’s a comforting part of our time together. I also do it to help him practice the art of conversation. His verbal communication skills are worlds behind those of typical kids his age. He knows how to talk, how to make requests and the occasional joke. He is starting to make the odd remark for social purposes, and not just when he needs something.

But he does not know how to have a conversation. So I am teaching him.

When George was first diagnosed with autism, he did not know how to point. Over a period of eleven painstaking months, during which I followed the same routine every single night, no matter how futile it seemed, I taught him how to point. I still cry when I think of the first time I was rewarded with him pointing independently.

If I could teach him how to point, surely I can teach him how to have a conversation. After all, they are both forms of communication, right?

From time to time, I switch up the questions during our nightly routine, and ask him something else. When I do that, he never answers the question I ask. He gives an answer to the question he was expecting. I don’t mind. It just shows that he’s not yet ready to move to the next level. There’s no rush. I can wait. It will happen when he’s ready for it to happen.

It’s OK that he has memorized the sequence of questions and answers. Children learn to read in much the same way, rote-repeating sentences that they have heard many times, before making the connection with the printed text. There is every reason to believe that George’s relationship with conversation could evolve in much the same way.

While I’m helping him learn a skill that will be of value to him for his whole life, I am treasuring those nightly moments we spend together.

(Photo credit: Kirsten Doyle)

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The Truth About Postpartum Depression

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

I am also part of a Mental Health Month blog party that’s happening today.

When I landed in Canada almost twelve years ago, the news waves were buzzing with an unfolding tragedy. A young woman, caught in the grip of postpartum depression, had launched herself into the path of an oncoming subway train while holding her weeks-old baby daughter. The baby had died instantly, while the mother hung on in hospital, never regaining consciousness, before she died several weeks later.

The public, including, I confess, myself, practically fell over themselves in their haste to judge this woman for killing an innocent child. Like many people, I was operating under the smug self-righteousness of someone who’s “never been there”. I didn’t have children at that time, therefore I had never experienced postpartum depression. Although I was very familiar with regular depression, and had frequently thought self-destructive thoughts, it had never stretched to me being at risk of hurting another person.

As much as people wanted to be judgmental, there was one particular element of this story that bothered me a great deal. The woman had sought help for postpartum depression and not received it. She had reached out, hoping someone would grab her hand and save her from drowning. In the aftermath of the tragedy, no-one was saying, “If only I had known,” but a number of people were saying, “If only I had helped.”

Back then, postpartum depression was not really taken seriously. People associated it with mothers who killed their children, mothers who were dubbed as “monsters”.

I got hit with a hefty dose of reality when postpartum depression settled over me like a heavy, oppressive blanket after the birth of my second child. I realized that I had been so wrong about this condition, and that its manifestations are as unique and varied as the individuals who suffer from it.

The media, being the media, tends to sensationalize tragedy, and tragedy resulting from postpartum depression is no exception. In the absence of other information, other sources of awareness, is it any wonder that the unknowing public would associate postpartum depression with the killing of babies? That’s what the media has taught society, and it’s not exactly a subject that the average person is going to go and Google.

Media treatment of postpartum depression, along with the resulting generalizations that people make about it, are largely responsible for the fact that many women are too ashamed and scared to seek the help they need. I myself did not seek help, and in fact I would never have been treated had my doctor not noticed that something was way off during a visit for a foot complaint.

There is a great deal of stigma surrounding mental illness in general, and postpartum depression in particular takes a big hit of it. The women who fall victim to it are dealing with so much more than depression. They are also feeling intense guilt and the sense of being “abnormal”. I mean, you have this gorgeous new baby who is supposed be a source of great joy and immeasurable love, and the whole thing has turned into a pear-shaped nightmare. The moms also feel fear that is beyond words. They are terrified that during some moment of insanity, they will hurt their children. They want to die just to save their babies from being raised by terrible mothers.

I could quote numbers at you. I could tell you how many women suffer from postpartum depression in Canada, the United States, and internationally. But whatever numbers I gave you would be completely meaningless. They would not include the scores of women who do not seek help, receive a diagnosis, or get treated.

If I was in charge, postpartum depression information would be included in the education packages that are given to new mothers, whether they are having their first, second or tenth child. When the hospitals handed out their leaflets about breastfeeding and developmental milestones, they would also be handing out information sheets about postpartum depression, along with fridge magnets printed with the telephone number of a crisis line.

The new mother’s partner, or some other designated support person, would be educated on the signs of postpartum depression. They would be taught what warning signs to look for, and what to do if they saw them.

If I was in charge, mothers would be regularly screened for postpartum depression for up to two years following the births of their babies – because it can take that long to strike.

There would be public awareness campaigns. The media would devote more attention to postpartum depression as a genuine medical issue to be handled with caring and compassion. They would stop the practice of only giving this condition the time of day in the wake of tragedies.

In my perfect world, women are not blamed for having this debilitating and often life-threatening condition.

They are helped through their times of terrible darkness, and they emerge bright and beautiful, like butterflies from a cocoon, and they enjoy rich, fulfilling lives filled with the laughter of their children.

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Guest Post: Animals And Autism

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Guest post exchange day was yesterday, but really, with so many phenomenal bloggers in the same challenge, how could I pick just one? Today’s guest blogger, Sarah, focuses on an area very close to my heart: animals, their relationships with people, and how they can facilitate healing. She just finished her first year of the Doctorate of Physical Therapy program at LSU-New Orleans. She is  passionate about animals and children and plans on integrating animals into her physical therapy practice after she graduates.

As a lifelong animal lover myself, I am drawn to Sarah’s blog like a magnet, and am thrilled that she agreed to write for me. Today, she shares with us how animals and children with autism can have a very special bond.

When people envision their perfect life with 2.5 kids and a white picket fence they also usually include a pet in the picture. After parents hear their child given the diagnosis of “autism”, often the idea of having a pet is questioned. In general, animals definitely provide many benefits to their owners, but as Kirsten recently reminded me “If you’ve met one person with autism, you’ve met one person with autism.” So what works for one child or family may not work with another.

The cool thing is that there have been several groups that have seen a lot of positive effects in children with autism after interacting with animals.

Max is one of Austin Dog Alliance’s “special dogs” available for adoption.

Austin Dog Alliance has group social skill classes where they use dogs to teach children with autism and Asperger’s. Some of the topics touched on in these classes include verbal and motor skills, interacting with and empathy for others, and appropriate behaviors both in and out of the classroom. These same skills can be achieved with a pet at home. The child can practice speaking to the dog and learn to recognize and understand the animal’s non-verbal cues. In doing this they are maintaining eye contact, which some people with autism struggle with. They can also learn to care about and for another living creature. This lesson can then translate to their interactions with other people.

Horse Boy Foundation brings kids in contact with horses to help them through what they call a “simple 6 stage process”. They’ve found that allowing kids to lie down on a horse’s back cuts down on their stimming (a repetitive movement that self stimulates the senses). Interacting with the horse is good overall sensory work while the actual horseback riding can be soothing because of the rocking motion. Again, giving commands allows the child to work on verbalization. I know that for most people owning a horse is out of the question, but there are several places that have horseback riding lessons where your child could get some of the same benefits.

http://www.youtube.com/watch?v=V11E-N2pK_o (it’s a youtube video about the Horse Boy Method)

Lois Brady found that a potbellied pig named Buttercup works wonders with the children. She’s a speech language pathologist, so of course her focus is getting the children to talk. But she has found that her pig is great for sensory work because he has different textures in different places on his body. The best thing about him is that people don’t have preconceived fears about pigs, like they might with a dog or even a horse.

(Photo from: http://www.prweb.com/releases/animal_assisted_therapy/continuing_education/prweb9261001.htm)

Buttercup is a great example that really any kind of pet can be used to help with things like speaking, motor skills, empathy and self-confidence. Some people prefer to have an animal specifically trained as a service animal and that has its benefits as well. You can read my post about autism service dogs to learn more about them. The most important thing is to decide what animal (if any) will be a good fit for your family.

Check out more great posts from Sarah Allen on her blog, Animals Help Heal. You can follow her on Twitter @AnimalsHelpHeal.

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A House Full Of Love

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Today is Guest Post Exchange Day! I am honoured to introduce you to a fellow special needs mom, who is not only an awesome blogger, but also an awesome friend. Mimi has not one, not two, but five children with special needs. That would sound daunting to anyone, but Mimi wouldn’t change her life for anything.

Hi!  I’m Mimi, mom to 5 great kids, all with special needs, but we don’t focus on that.  We focus on their achievements, their triumphs and the love that they have for each other.  Sure, they fight just like any other siblings would fight but at the end of the day the love is still there for each other.  My oldest daughter is 24 and diagnosed with PDD-NOS (a form of autism) and is an unmedicated bipolar by her choice.  My next daughter is 22 and was born with Down Syndrome, hydrocephalus, PDD-NOS and acanthosis nigricans, she’s my spit-fire child.  Next is my soon to be 16 year old daughter who was born with spastic diaparesis cerebral palsy, she also has Asperger’s Syndrome, bipolar with psychosis, anxiety disorder and an eating disorder.  Next are my two boys, my first son is 10 (11 in June) and for some unknown reason he is cognitively impaired, he too has PDD-NOS and a mood disorder.  My youngest son is 9 (10 in June) and he was born with Fetal Valproate Syndrome, static encephalopathy (due to a traumatic birth), he has PDD-NOS and a mood disorder.

Raising special needs children has its ups and downs, but I wouldn’t trade my life for anything the world has to offer me.  My children are the reason my world rotates on its axis.  Some people call me a mother polar bear because I am so protective of my children, but who else is going to protect them besides me?

My boys are the best of friends, they are great playmates for each other and I hope and pray that the bond between them stays forever.  It’s similar to the bond between my 2 oldest daughters.  They are close because when they were young girls, I was a single parent by my choice, so it was just us 3 girls against the world.  Until I met my husband in 1994, Bethany was 6 and Lauryn was 4 and Jon has been their daddy ever since.

What entertains my kids?  Different things…  My boys are video gamers with their dad, they each have either their PSP’s or PSP Go’s or in Jons case his PSP Vita, but they all three will gang up on the bed and be gaming, ignoring everything else that’s going on, whereas Maurra my (almost) 16 yr old loves doing research on various things, which is very common for children diagnosed with Asperger’s Syndrome, right now she’s focusing on historical events.  Lauryn is crazy for Justin Bieber and loves to watch horror shows in her bedroom.  Bethany is my crazy football fan – well I’m pretty crazy for our Green Bay Packers also, so we tend to watch football together and we DVR the games so we can watch them through the week.

Our social outings look a little different than most.  First of all, my 3 youngest kids can’t handle car rides very well, so our trips have to be short in nature, and there has to be a reward at the end of the trip.  Lauryn enjoys going to her adult day program 4 days a week, but that’s about the extent of her traveling comfort.  She loves to dance in the truck which is fun and the cars around us seem to be her audience.  Bethany (my oldest) and I tend to do mother-daughter outings or she will go with me if I have to run errands.  It’s hard to break things up so the kids can handle everything, but in the end it’s for the best for them.

The boys are getting ready to start their 3rd year playing Miracle League baseball, which is baseball strictly for children who are disabled.  I volunteer my time with the league as the team coordinator and absolutely love watching all of the kids play the game.

Like I said before, I love having special needs children, and now we are looking into adopting a special needs child because there is more room in my heart for more children, but I can’t have them myself anymore.  So we are looking into a special needs adoption.  I hope it all works out for the best.

Well, thank you for letting me share my family with you.  Have a great day!

And thank you, Mimi, for sharing your family with us!

Mimi has a great blog at Wife… Mom… Writer… All Blessings. She can also be found on Twitter @Gigi_S.

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Let Go Of The Guilt For Mothers Day

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

I have a tendency to take on too much. In this regard I am very much like most moms. Whether it’s genetic wiring or just a normal part of motherhood, trying to do everything for everybody is just what we do.

From time to time, we get challenged on this by well-meaning people who say things like, “You have so much on your plate. You really need to learn how to say no.”

Yeah, like that’s going to happen. We can’t possibly say no, because, you know, we’re doing it for the children. All of the late nights, and the hours spent doing laundry, and the long commutes to full-time jobs – we do it all for the children.

While this is perfectly legitimate most of the time, there are times when we use the “for the children” line simply because we cannot process the idea that it’s OK to actually do something for ourselves once in a while.

For instance, when people ask me why I run, I tell them that it’s for my son, to raise funds for autism. It is true that this is what got me back into running after a long break, and it is also true that it helps a great deal with my motivation. But let’s be honest – there are other ways to raise funds for autism that don’t involve entire Sunday mornings spent running instead of with my family. When it comes down to it, I run because it makes me happy , but I’m darned if I’ll actually say that out loud.

My husband has this computer game that he plays most evenings. It’s one of those war games where tanks blow up other tanks – a guy game that I, as a woman, don’t really get. He says he plays this game to unwind and release some stress, and I completely understand that. He works hard and he does have a lot of stress to deal with. It’s perfectly reasonable that he would need an outlet. But when I play my computer games at the end of a long, stressful day, it is under the cloak of intense guilt. I feel that the time I’m spending actually enjoying myself should instead be spent doing something for somebody else.

I know I’m not alone in this. I ran an informal poll on my social media feeds asking fellow moms for their views. Here’s some of what they had to say:

Kerry says that she feels guilty when she does things for herself or buys herself anything. “Can’t get a hair cut, the child needs one first. Can’t buy a new pair of shoes. Too much guilt!”

Tammy had a one-word answer to the question of whether she feels the guilt: “YYYYEEESSSSSSSS”

Hollie poignantly said she doesn’t feel the guilt, “because it’s very rare that I do anything for myself.” This is in a similar vein to Ruth, who says that she doesn’t feel guilty as such, but she’s simply lost the hang of doing things for herself.

Sara, a single mom of special needs kids who really needs a break, reports that she recently considered canceling a vacation so she could buy a car seat for her child, who doesn’t even need it yet. And Nicole said that the few times she doesn’t feel guilty, she starts to feel guilty about not feeling guilty!

I wonder why that is, just why we moms are able to turn guilt into even more of an art form than the Catholics. I mean, we are fully prepared to acknowledge when other people, like our husbands, deserve a break. Why can’t we do the same for ourselves?

If we got just a little bit better at slowing down once in a while, and unashamedly doing stuff we enjoy simply because we enjoy it, maybe we would feel less overwhelmed.

I have great admiration for the moms who strike more of a balance, the moms who take a stand for themselves and say, “You know what? I deserve this and I’m going to enjoy it without feeling guilty about it!”

Fellow mom Marci says she used to feel the guilt, but not anymore. “I found that doing *me* made me calmer and more available to my cherubs!!! Best thing I could’ve done for the family.”

Marci is one of several moms who have managed to make peace with the idea that they are as important as the people they take care of. As Jacquie says, ” If I don’t take care of ME, who’s going to take care of THEM?”

Randi agrees. “I realize that if I don’t take care of me, I’m going to be grumpy and not a good mom.”

Today is Mothers Day in most parts of the world. It is a day when, if we’re lucky, our families take the time to let us know they appreciate us. Why don’t we do that for ourselves as well, and for each other? Let’s give ourselves a much-deserved pat on the back and acknowledge all that we do.

And let’s make a decision to take care of ourselves and spoil ourselves once in a while, without feeling guilty, not just today but always.

Because we deserve it.

Happy Mothers Day.

(Photo credit: http://www.flickr.com/photos/sergemelki/3519265411/. This picture has a creative commons attribution license.)