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Autism Is No Excuse

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A few weeks ago, there was a story in our local community newspaper about a boy with autism who had been asked to leave a restaurant, along with his mother. When I first read the headline – Autistic boy booted from restaurant – I felt outrage on behalf of the mother and child. But when I read the story, I found my sympathies shifting to the restaurant manager.

What happened was that a mother and her son with autism were eating at a fast food restaurant, and the child started melting down over something. He was shrieking and banging on the table, and at one point he grabbed a fistful of fries and threw them. The mother made little effort to soothe the child, saying, “He has autism. There’s nothing I can do.” When the manager politely asked her to leave, she complied, but in the aftermath she made a big deal of the fact that her son had been discriminated against because of his autism. The manager made a big deal of the fact that the child had been acting in a manner that was disruptive to other diners.

Anyone who’s been reading this blog for any length of time will know that I’ve dealt with my share of autism meltdowns. I’ve been that mother whose child kicks and screams in public places. I’ve been on the receiving end of the stares and comments, and on two occasions, I have had to offer to pay grocery stores for goods that have been damaged as a result of my son’s outbursts.

But my son’s autism does not entitle him to create a situation that disrupts the activities or enjoyment of other people. When he acts out in public, it’s for one of two reasons: either he is having an autism meltdown, or he’s acting like typical bratty kid. If he’s having an autism meltdown, it’s up to me to try and soothe him, either by removing him from the situation or by finding a way to divert his attention to something else. If he’s acting like a typical bratty kid, it’s up to me to discipline him and make it clear to him that bad behaviour is not acceptable.

Either way, it’s never OK for me to use my child’s disability as an excuse to let him behave in a way that impacts other people. He may have autism, but he still has to be held to a certain standard of behaviour, just like the rest of us. That restaurant manager was not reacting to the fact that the boy had autism. He was reacting to the child’s disruptive actions and the mother’s failure to do anything.

There was a story in the news a few years back about a child with autism who was removed from a plane under similar circumstances. He was lying in the aisle having a meltdown while the flight attendants and other passengers were trying to step over and around him. All attempts to get him settled in his seat were failing, and eventually the boy and his father were taken off the plane. My Facebook feed erupted in outrage as people accused the airline of discriminating against the boy with autism.

But really, what was the airline supposed to do? Delay the flight until the meltdown was over, which could have taken hours? Take off with a boy kicking and screaming in the aisle? Allow the behaviour to continue without regard for the safety of the flight attendants or passengers? My view was very unpopular, but I believe that the airline took the only action they really could. They would have done what they did whether the child had autism or not. In fact, from what I could glean from the story, the airline actually delayed their decision to remove the child because they had been made aware of his autism.

This subject reminds me of a conversation I had many years ago, when I was still in South Africa. I was talking to a co-worker about a high-profile murder case in which the accused had been convicted and sentenced to life in prison. Evidence against this individual had been overwhelming, in terms of forensics and witness accounts. My co-worker, a black man, told me that this man had been sent to prison just because he was black. I disagreed.

“No,” I said. “He’s been sent to prison because he killed four people.”

My co-worker did not dispute the fact that the man was guilty, but he was stuck on this idea that the outcome of the trial was symptomatic of racial discrimination. But what was the alternative? Should the judge have let the criminal walk free just to prove that he – the judge – wasn’t a racist?

Should flight attendants, restaurant managers and other people endure a child screaming and throwing things in public just to prove that they don’t discriminate against people with autism?

Discrimination in any way, shape or form is wrong. I do not condone racism, gender discrimination, homophobia or any kind of bias against people with disabilities. I am big on human rights and equality. I believe that accommodations should be made for members of minorities and people with disabilities where possible – like wheelchair accessible buildings, government services in multiple languages and alternative screening processes for job applicants with autism. But I also believe that everyone has a responsibility to be considerate to those around them.

This is an original post by Kirsten Doyle. Photo credit: Dmitry Kalinin. This picture has a creative commons attribution license.

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The Flea In The Bottle

George and his dad, enjoying the concert

George and his dad, enjoying the concert

A long time ago, I heard a story about a flea that was put into a bottle. Since fleas are capable of jumping something like 30 times their own body length, the lid had to be put onto the bottle in order to contain the flea. Whenever the flea jumped, it dinged itself on the bottom of the lid, and eventually it figured out how to jump to a level just below the lid. After a period of time, the lid was removed, and the flea was free to go. But by now, it could no longer jump high enough to escape from the bottle. The physical capability was there, but the flea had the expectation that if jumped any higher, it would get hurt.

The story is a metaphor, of course. It’s supposed to illustrate the idea that we perform not according to our abilities, but according to the expectations we have, that are put there by ourselves or by someone else.

When George was diagnosed with autism seven years ago, I promised myself that I would never put a lid on my expectations of him. I would ensure that he had whatever opportunities he needed to learn and grow, and to discover what he might be capable of.

This strategy has not always been easy to follow, but it appears to have been reasonably successful. Over the years, periods of rapid progress have alternated with disheartening plateaus. Lately we have been experiencing the latter, and my husband and I have been having some depressing conversations about George’s limitations.

In the midst of all of this, my other son James has been preparing for his school’s spring concert, which happened this evening. In the past, we have left George at home with his grandma on occasions like this. Sometimes crowds and excitement overwhelm him, and we don’t want to stress him out or wreck things for James. Tonight, however, Grandma was unable to watch George, so we had to bring him with us.

While we were standing outside the school waiting for the doors to open, George was already getting antsy. My husband and I spoke about which one of us would leave with him, and which one would stay behind to watch James. In the end, we decided to see how long George would last for, so we went in and took a seat.

The concert started with the 8th Grade band. As soon as the music started, a huge smile appeared on George’s face, and he started swaying in time to the beat. He briefly clapped his hands over his ears when the drumming started, but for the most part he stayed calm. He even started singing along when the band played We Will Rock You.

The folk-dancing act that James was participating in was quite late in the program, and throughout the whole concert, George was sitting calmly, listening to the music and clearly enjoying himself. From time to time he would bop up and down in time to the music.

When James and the rest of the folk dancers came out, I scooted to the other side of the auditorium to get a clear shot with my phone’s video camera. While the dancing was going on, I turned my head to see how George was doing. To my astonishment, he was standing beside his seat, trying to imitate the moves of the dancers. As his hat-bedecked head bopped and jived in time to the music, my husband caught my eye and gave me a thumbs-up. For a few moments, I swung the camera around to capture some of his dancing.

We left soon after James was done with his performance. George was brimming with happiness, but we could tell that he was ready to leave. We took the boys to McDonalds to reward both of them for a job well done.

Now, as they settle into bed for the night, I cannot help reflecting on the fact that if my mother-in-law hadn’t had a prior appointment, George would have stayed home and we would have missed the opportunity to see him having such a wonderful time. This has renewed my resolve to keep testing his limits and pushing him beyond his boundaries. I don’t want to put a lid on my expectations of him, or his expectations of himself. I don’t want him to be that flea that is conditioned into lowering its potential.

I want George to dream big, and to fly as high and as far as he dares to go.

This is an original post by Kirsten Doyle. Photo credit to the author.