Guest Posts Archives - Page 2 of 3

Teen Series Part 1: “We’re Not So Different Than You”

October 15, 2012 By Kirsten

As a parent, I spend a lot of time trying to get inside my kids’ heads. I try to see things from their point of view in order to understand their motivations, and hopefully parent them in a positive manner. As they grow older, though, it becomes more complicated. Kids develop more of a sense of individuality and they strive to find their way in this world. Our children become teens who feel misunderstood and unrecognized. They have a sense that no-one is really listening to them, and hearing what they want and need.

And so I invited teens to send me their thoughts. I am genuinely interested in hearing what they have to say. These people are a crucial element in society. They are our next generation of educators, police officers, medical professionals, tradesmen and government representatives. They are the ones who will be parenting our grandchildren and steering the direction of society. We have to hear what they say. We have to try and understand them so that we can help them reach their greatest potential.

Today, I am thrilled to introduce you to Alex Zeeman, a South African teen. Here are her words, unedited and uncut.

My name is Alex Elizabeth Zeeman I am 15 years old turning 16 in October. I live in Cape Town South Africa. I love to read, I love
animals, school (I know weird right? 😛 ), playing pc games, watching movies, anime, manga and of course hanging out with my friends.

You asked us to write what we as teens feel or fear, basically you asked us to help you as adults to understand us, but in truth we’re
not so different from you. We think worry and fear the future. We get scared, make mistakes and yes sometimes what we do is quite stupid, sometimes what we say is quite stupid and yes sometimes what we think or how we act is quite, well simply, stupid. But we are teens. I know that’s not an excuse, but it’s as close to one as I can give.

Being a teenager, I personally think, is one of the hardest stages in a persons life. Teens get all the reality checks and “hard lessons”
that shape us into the adults that we will become. Teens experience a thousand heartaches and heartbreaks in 7 short years. We cry a lot, we shout a lot, and occasionally we hang out with the wrong crowd.

Teens are basically hormone driven destruction machines. Everywhere we go we bring some sort of grief. It’s not like we try to, it’s just
what happens when you have a hormone filled adolescent in a confined space for an extended period of time. I know what I’m saying may not be all that helpful but I’m not a teen that has experienced even a fraction of the pain that some teens have. I haven’t gotten so low that I’ve given up. I haven’t been given up on. I haven’t been abused or wronged. I haven’t been hurt, well I have, but not irrevocably.

But yes adults sometimes don’t get what teens go through every single day. How hard it is to get up in the morning to go to school.
Sometimes the very thought of looking into the same judging eyes can be quite tiring, quite scary. For me the bravest people on this planet are teens. We face so much, and yet we are treated as children, we’re thought as being children but we’re not. We don’t think like children, we don’t act like children. Teens grow up much, much, much faster than children. And sometimes yes we are a tad immature and sometimes yes we do do incredibly stupid things but more often than not we want some kind of recognition. We want to be seen, we want to be heard. My happiest moments are when my parent say that they are proud of me. I love making people proud of me. But for some teens the only way that they can be seen, or heard is by doing incredibly stupid things, by acting incredibly stupid.

I’m not an expert, I’m not a shrink, I am simply your average teenager.

I cry, I laugh, I get angry and frustrated and stressed. I love and I hate. I’m not a bad person but teens aren’t. More often than not we’re
simply misunderstood.

These aren’t anybody else’s thoughts, these are mine. These are my views and this is what I think, if it helped I’m glad, if it didn’t
well at least I tried.

(Photo credit: Ava Weintraub Photography. This picture has a creative commons attribution license.)

Filed Under: Guest Posts, Teenage Years, Understanding Tagged With: children, fear the future, hormones, mistakes, misunderstood, proud, reality checks, stupid

Calling All Teens: Please Share Your Story

September 6, 2012 By Kirsten

If you’re a parent of teens, how many times have you heard your kids say that you don’t understand them? If you’re a teen, how many times have you said those words yourself?

It may sound like a teenage cliché, but perhaps there is some truth to it. Teens and adults – particularly adults of my age, who are 20 or 30 years older than them – inhabit different worlds. I am concerned about things like job security, paying the bills and whether my kids are being bullied at school. When I was a teen I cared about fitting in and the fact that I didn’t have a boyfriend when everyone else did.

I have heard adults refer to the concerns of teens as “petty” in the grand scheme of things. I understand what they’re getting at – after all, from my perspective, not having a boyfriend pales in comparison to the idea of not having enough money to feed your kids. But to a teen, those concerns are very real and very valid. Why should they worry about the same stuff we do when we’re 40 or 50 years old? They are kids, discovering life, and navigating those years with the backdrop of the hormonal changes of adolescence can be very daunting.

Do I understand teens?

It would be so easy for me to say that I remember what it was like to be a teen, so yes, I understand. But the truth is, I understand what it was like to be a teen 30 years ago, in the 1980’s. The world and its challenges have changed so much since then. Are teens today concerned about the same things I was back then? Do they go through the same stuff and have the same difficulties?

Maybe. But I don’t really know.

So teens, here’s what I want to do. For a period of one week, I want to give my blog over to you. I invite you to submit guest posts about whatever you want to share. Do you have some aspirations for the future? Some fears about the future? Going through a rough patch in your life? Is there something you wish your parents and other adults knew about you?

Some guidelines:

There are no length restrictions on posts. It can be as short or as long as you like. I don’t believe in curtailing people’s self-expression.
I cannot accept posts that promote hatred based on race, gender, sexual preference, country of origin, or anything like that.
I will accept posts containing profanity as long as you’re swearing to make a point, instead of swearing just for the sake of it. Sometimes the only way to really get a point across is by emphatic use of the F word. I may replace some letters of profanities with special characters.
Anonymous submissions are welcome. I would like to know your real name, just to satisfy myself that you’re really a teen and not an adult looking to cause trouble. But if you want the post published under a pseudonym, I will totally respect that.
Photographs are encouraged. If you submit a picture, please be sure that it’s one you’re allowed to use. I don’t want to inadvertently breach copyright.
If you have a personal blog that you would like to link to, feel free to include that in your post.
Include a blurb about yourself. Your name (if you’re willing to share it), your age, your location, your interests – anything you want the world to know about you.

Posts can be submitted either as an attachment or in the body of an email, and sent to kirsten@runningforautism.com. They will be scheduled for the last week of October, and I will let you know when your post is going to run.

I look forward to hearing from you!

(Photo credit: Sheila Tostes. This picture has a creative commons attribution license.)

Filed Under: blogging, Challenges, Guest Posts, Teens, Understanding Tagged With: a different world, concerns, guest post, guidelines, share your story, teens, worries

GUEST POST: Talking About Bulbs

June 8, 2012 By Kirsten

Today we wrap up what’s been a great week of guest posts. So far we have heard from an autism parent, a woman embarking on a weight-loss journey, a mom who suffers from mental illness, and an Asperger mom who runs. Today’s post comes to us all the way from Spain. Gati Presumida, like my guest writer yesterday, participated in the Health Activist Writers Month challenge. She has Lupus – a condition I knew nothing about until I started reading her blog. She’s not talking about her Lupus today, though. She is talking about her father’s battle with dementia.

Yes, bulbs.

Light bulbs.

You are not crazy. You read that.

I am not crazy. I wrote that.

And, as per mental health, no one is ever crazy.

Because, as crazy as it may sound, talking about bulbs for an hour was the thing that made my yesterday complete.

By the time you finish reading these lines I only hope you can agree with me on this: talking about bulbs can be the greatest thing ever.

My dad suffers a condition called Frontotemporal Dementia. Although God only knows when it started, he was diagnosed 4 years ago, when it was too late for many things.

Dementia has altered our life in such ways that you cannot imagine. However I am not going to tell you another of my “soap operas” today.

I would like you to see what I see. I would love to give you the key of perspective so that you can see how talking about bulbs can make your day.

My dad’s dementia has forced him retire 10 years earlier than what he planned. He is not allowed to have any money nor credit cards or bank accounts and whenever he goes out he gets 1000 questions afterwards so that my mum can be sure he hasn’t done any “crazy” thing like buying a new car or getting a loan on my behalf.

Although my dad can walk he feels under so much control that he feels house bound.

He gets told off whenever he tries to help and does something. He feels useless and that’s unfair because he may have dementia, but dementia does not have him… yet.

Maybe next year things are different. But nowadays he can do so many good things! And he, nor anyone, should never feel useless.

You see my dad and see a “crazy” person you should not trust. But I see a person that is trying to fight. He knows dementia is meant to have him, but he knows it is up to him to slow the process down.

I know he can do it. That is why I bought him a e-book so that he can train his mind by reading. I ask him for help whenever I need. Not because I pity him, but because I really think he can help me. He is so wise and so capable of doing things and everything. He is worth more than anything to me.

Yesterday I sent him an e-mail asking for help. Do you want to know what he replied? “It comforts me that you think I am capable of doing anything”. It breaks my heart.

He would tell me things like “I am glad you don’t think I am crazy” every time we have a chat.

If I had an idol that would be my dad. Only because I know I would not be able to cope with dementia in the way he does.

Although he sometimes has moments in which he forget things or he does things he should not do without realizing (like buying a car), most of the time he is fully aware of his situation. He knows he is doomed to be defeated by dementia and yet he is fighting. To be honest, had I been in that situation, I would have never tried to fight. And he does. Every single day.

He fights dementia. He fights to show people he can do so many things, and that he can do them right. He really fights to show the world he is still capable of doing things.

People say my dad is crazy. That Dementia is getting worse… Just because somehow he bought a new car. While others see this as an act of dementia I see a gesture of guilt and gratitude. Because he buys that car for my brother as a way to say “thank you for giving up your life, your family, your job and everything to help me out”. I now guilt can be stronger than anything.

I constantly hear “your dad has one of those bad days” just because he forget things. I forget things all the time! Oh, so he is worse today because he doesn’t know which day it is? I rarely know what day is today! What for? My everyday is the same, so why should I bother about what day it is? I am happy being clueless about if it is Monday or Friday because whenever I got something important coming up I set an alarm to not forget. My dad does the same.

My dad’s dementia has got worse because he rumbled about bulbs for like an hour yesterday.

Really? Have you thought about his life?

He has no job, he is not allowed to do anything on his own… He feels house bound like I am.

To tell you the truth, I have one million Ph.D on stupid things. It is what you do when you have nothing to do and the internet is your only window to freedom. So, yes, if that day you need to look for an energy equivalence table in order to get a new bulb, you may take the chance and “surf” a bit deeper into the matter. Well, do you have anything better to do that day?

Oh, so you think you do? Maybe, if it is only one house bound day. But when you are in that cage for 4 years… What now?

Well, there you have it. Bulbs are great thing to get a Ph.D on. It is just a matter of perspective.

Dementia has given my family many reasons to be sad and worried about, but every time we have a family get together you only hear laughter, jokes and that funny teasing that my family knows to do so well. I love that. I treasure each one of those moments.

Maybe during those family get together you see my dad’s upset face at some point. You would probably think it is one of his dementia black-out moments.

I don’t see that. I see guilt and sorrow for having destroyed so many things, for having taken his kid’s lifes away without realizing. I know he wonders how he could not see all that coming…

My dad gets to my mums nerves if he talks about bulbs for an hour. Don’t judge her because we may not know what it is like to be 24/7 with a person like my dad. Like many parents that lose their nerve and smack their kids with apparently no reason, my mum probable loses her nerve. Dementia has altered her whole life, so I guess she deserves the right to lose her patience from time to time.

Light bulbs are not a crazy thing to talk about. I love, I treasure, each one of those “crazy” conversations. Firstly, because I don’t think it’s crazy. I understand my dad and each one of his sudden interests.

I love talking bout bulbs because it is my dad I am having that conversation with.

I will always be up for another bulb chat because I don’t know when that will finish and when dementia will have my dad. Because today he knows who I am, but I don’t know when that will come to an end. So, yes, I am number 1 fan of bulb chats.

You may think that my dad is crazy. I don’t. I see it from another point of view. I only wish people did the same. Not only for my dad, but with many other people that, alike him, have a mental issue.

As you see, Mental Health, from my point of view, is a matter of perspective. So why don’t you give it a go? I am sure you will get surprised by how things can change just with a tiny bit of perspective.

Don’t let yourself get carried away by words like dementia, bipolar or depression. Don’t focus on the wording but on the person you are talking to.

From a different perspective I am sure you will see so many things that were hidden behind those names.

Take this key of perspective I am handling to you today and I am sure you will also tell others how an hour bulb chat made your day.

To learn more about Gati Presumida, check out her website!

(Photo credit: http://www.flickr.com/photos/born2bmild/5158015580/. This picture has a creative commons attribution license.)

Filed Under: Attitude, Dementia, Determination, Father, Fighting, Gati Presumida, Guest Posts, Independence, Lupus Tagged With: daughter, dementia, father, feeling needed, independence, lupus, train his mind

GUEST POST: Back Into The Stride

June 7, 2012 By Kirsten

In March, I received an email inviting me to participate in the Health Activist Writers Month Challenge hosted by WEGO Health. “In for a penny, in for a pound,” I thought, and signed up. I had never participated in a month-long blogging challenge before and didn’t really know what to expect. I thought that maybe my readership would increase slightly. Perhaps I would come across a couple of blogs that interested me.

I didn’t anticipate becoming immersed in an entirely new (to me) community of bloggers. During the challenge I read many blog posts that were humourous, surprising, heart-wrenching, thought-provoking, informative, or just downright good. I have been fortunate enough to keep in touch with some of the writers, and I remain an active participant in the goings-on at WEGO Health.

One of the writers I “met” during the challenge is a woman who has much in common with me. She is the parent of an individual with special needs. She is also a runner, and therefore totally gets why the highlight of my weekend was going out to buy a new pair of running shoes.

Today, Gretchen Stahlman tells us about her train of thought as she returns to running after a break.

I hadn’t run in about a month, the longest stretch since I started running distance six years ago. I normally run three or four times a week, depending on what I’m training for. Last December I started training hard for the half-marathons I ran in the spring. I had a good base from running the NYC marathon in November and I wanted to capitalize on that, plus I wanted to keep myself motivated through the dark, cold winter months. And it worked: I had a PR at my half in March, and I felt like I was really coming into my own in running. But by the end of April when I ran my last half, my body and my mind were too tired to do what I wanted them to do.

Soon enough I’ll start training for the Chicago marathon, so the month of May was a good time to rest and recover and finally address that twangy right hamstring. When I traveled to Denver on business, I purposefully didn’t take my running gear so I’d be forced to take the time off. As it turns out, I liked resting. And I’m pretty good at it (better at it than running). So I took another week off. I stretched my hamstring and, amazingly, it got better when I wasn’t running on it. So I took another week off. I decided that I would run again when I felt like it. Day after day, I didn’t feel like it.

Then last week, my mind got stuck while working on a new essay. In writing, there is the required butt-to-chair time when the words manifest themselves on the page, but for me, I also need running time that frees my mind to go where it will while my body churns away at the miles.

I made my triumphant return to running last Saturday. Just three miles and I knew it would be hard, making me wonder how I had ever run 26.2 miles before and how I would ever do it again. I ran with a new friend on a route I like a lot, one that takes us on the canal path where there are always other runners, owners walking dogs, couples strolling with cups of coffee. We ran smoothly over the brick sidewalk, saying good morning to those who came our way.

A white haired man in old-school running gear came our direction, not terribly fast and with a little lurch in his stride. His left hand held his right arm to his chest as he ran, and when we drew closer, I could see that it was shriveled to half the density of his left. I said Good morning as we passed, and then Wow to my friend when the man was out of earshot. Wow, she said back.

When my friend slowed to walk, I ran on by myself. Now free of conversation, my thoughts drifted to my son who is 22 and only recently diagnosed with Asperger’s although he’s been this way his entire life. He hit a dark skid last fall where he stayed in bed all day, didn’t shower unless told to, didn’t go out, shrank back from the difficulties of the world. That’s when we sought professional help, that’s when the diagnosis came, and now he’s getting out of bed and doing a few things on his own, more each week, a slow stuttering rise to a new life. The social interactions are hard for him, going new places, doing new things, but equally hard to go old places and see people he already knows. But he’s doing it. He’s putting himself out there, making the effort, like the old man who has found his own way to run, holding himself together, not letting what he can’t do prevent him from doing the things that he can.

The route I ran turned down a dirt road and then along a short stretch of trail. The wet of the morning grass come through my running shoes. The trees arched over the path, dimming the sun, muting the world. When I picked up my right foot to clear the rocks and roots, that old achy hamstring sang out like an old friend. The path ended and I turned onto the road, the one that lead me back to where I started. My first run was done, not as hard as I thought it would be. It felt good to be back, in both mind and body, ready to begin my own arduous climb to the marathon.

To learn more about Gretchen Stahlman, check out her website!

(Photo credit: Gretchen Stahlman)

Filed Under: Aspergers Syndrome, Gretchen Stahlman, Guest Posts, Injury, running, Special Needs, WEGO Health, Writing Tagged With: Aspergers, break, freedom, injury, marathon, running, train of thought, training, writing

GUEST POST: Fighting With My Shame

June 6, 2012 By Kirsten

Kerry White has a few things in common with me. She was also born in South Africa, and she also lives in North America (Texas, to be exact). Like me, she knows what it’s like to parent a small energetic boy. And like me, she knows what it’s like to live with mental illness, including depression and social anxiety.

I first got to know Kerry through a now mostly-defunct Yahoo group called Homesick South Africans. During its heyday, this group was the venue of some lively discussions – a few of them controversial, many of them humourous, almost all of them supportive. Several friendships that formed during the group’s active existence have continued through social media. I am so grateful to the Internet for existing, because without it, my friendship with Kerry would not have evolved in the way it has. This is a woman for whom I have a great deal of admiration and respect.

As I strive to talk about my own struggles with mental illness, I am immensely grateful to Kerry for this post, in which she frankly and courageously shares her own journey.

So I think I’m crazy. Absolutely strait-jacket-heavily-medicate-me-and-lock-me-up crazy! I have felt this way for a very long time, probably since I was about ten years old and reading my first Stephen King books. I recognized the signs of madness in my mind from the characters in some of his books.

As a much more jaded adult, I now recognize myself for what and who I am. I have severe depression, social anxiety, obsessive compulsive disorder, and it all comes bursting forth in the less than neat and tidy package of major panic attacks. I live with mental illness, and I am terribly ashamed of it. I feel broken, less of a person, less of a woman, and worst of all I feel like a terrible mother because of it.

Growing up in South Africa in the 80s, my mental illness was not recognized for what it was. My anxiety, and shyness, and my odd acting out behaviors gave the impression that I was a difficult child; not that I was a child in dire need of some thought of help.

Don’t get me wrong, my childhood was not unpleasant at all. My parents were hard-working and loving individuals who did the best they could for us during rocky financial times. But there was no such thing as depression, anxiety, panic attack, mental illness. There was just doing what needs to be done, threatening electroshock therapy when I refused to communicate about an assault when I was a teenager, and threatening to send me away to a mental institution. At 16 I was admitted to a psychiatric hospital for teenagers who are in crisis. I felt normal! I felt accepted! I felt safe! I was there for two weeks and then released, but promptly tried to kill myself because I didn’t get the support I needed at home. I spent another several weeks in there, but soon learned that I was better off shutting the part of myself I thought to be crazy away. I was never going to get support outside of the walls of that mental health hospital. I was always going to be told to just suck it up and get over it. Because that was just the way things were handled.

I have spent the better part of my adult life trying to just get over it, trying to avoid the idea that I have a problem that no amount of “getting over” will fix. I have tolerated abusive partners, abusive bosses, and abusive coworkers; because I felt I wasn’t worth more.

When I had my son, my depression and anxiety kicked into high gear – but I expected it to. I refused to take the prescribed antidepressants, in case they made me worse (as others have done in the past), or someone saw me as too weak to raise this child. But I do recognize now that I should have not only taken the medication but sought out help. Help wasn’t offered for my “baby blues” and I didn’t go find it. It got to the point, several times, where I wanted to end my life because I was so miserable and felt like such a failure.

I’ve found myself mentally standing on a ledge, with nothing behind me, not even one hand to reach out and pull me to safety. But then the knowledge of the small body pressing against me, raising out a hand and calling out for “mommy” reminds me that if I jump off of this mental ledge then he loses himself, too.

As my son’s needs have changed, so has my mental illness. It has to. I have to get us dressed and get him to daycare so that I can work. I work at home, which just encourages my social anxiety. We need to go to the store and get milk and the occasional toy car, so I steel myself and leave the house. For him.

I’ve made myself get on a plane to visit family; I’ve made myself go visit friends. But it is hard. I have to find a way to change this, for my son.

So what is my next step then? I have more anxiety than will allow me to even see a therapist. What if they deem me to be as unfit of a mother as I feel some nights when sobbing over a panic attack or crying in my office when he is at school? I can’t just “suck it up and get over it.” I have tried. Believe me, I have tried.

I feel crazy. Insane. Broken. But this is my normal. I just wish I didn’t feel so much shame and fear along with it. How do I find the inner strength I need to get help and not feel so broken? Help that will not judge me as being weak or unfit as a single parent?

My heart breaks for others who feel like I do, and I do my utmost to help them. I even write helpful blogs and books for a counselor who helps women like me!

Why then can’t I find what I need in order to help myself work through this? At what point will my son notice that his mommy isn’t like other mommies? I do not want to continue trying to bury my mental illness, but I do not know any other way to function. I am not strong, I am doing what I need to do in order to provide for this boy that the universe has seen fit to place in my care.

To find out more about Kerry and the children’s books she is writing, visit her website!

(Photo credit: Kerry White)

Filed Under: anxiety, Depression, Guest Posts, Kerry White, Mental Illness, OCD, parenting Tagged With: attempted suicide, depression, for my son, getting help, hospitalization, madness, mental illness, OCD, social anxiety, stephen king, therapy

GUEST POST: A New Journey Begins

June 5, 2012 By Kirsten

This weekend, I decided that I had had enough of not being as healthy as I need to be. I catch too many colds and take too long to get rid of them. I am always tired and run-down. I don’t run as fast as I know I’m able to, and in spite of having lost a lot of weight, I’m still about twenty pounds overweight.

Since I was a teen, I’ve had a one-extreme-or-the-other approach to eating. Either I consume calories as if they’re going extinct, or I live on the smell of an oilrag. That I have psychological issues with food is without question. Part of my problem, though, is good old-fashioned lack of discipline.

My nutrition habits suck because I haven’t tried hard enough to fix them. This weekend I decided that I was going to turn over that particular leaf. Right after I made this resolve, I went to see if anything interesting was happening on Facebook. And there, right on top of my newsfeed, was a status update from my good friend Mimi, who had made a very similar resolve.

I emailed her excitedly, and we decided that as we strive to improve ourselves, we will swap guest posts once a month, to tell each other’s readers how we are doing in our quests.

Mimi is a special needs mom like me, only with way more special needs kids. She is patient and kind, and she knows the true meaning of friendship. I recently did the 2012 Blogathon alongside her, and I am so thrilled to be embarking on another challenge with her – albeit a challenge of a different nature.

Today, Mimi tells us what her goals are. I am delighted that she is sharing her journey with us.

When I look back, I can see myself at various weights. Some bother me and others make me wish I was back there again. Before I had my first daughter at age 19, I weighed in at a whopping 97 pounds soaking wet. I had no shape to my body whatsoever, but as soon as I got pregnant, through those 10 months of pregnancy (yes, my daughter was 28 days late!) I gained 91 pounds! That was a whole me that I put on! I worked very hard to get the weight off, and I managed to get most of it off, I got myself down to 120 pounds and was happy there, but then I got pregnant again and up went the scale. This time I went up to 150 pounds with my daughter and after her birth, I managed to get myself to GAIN an additional 10 pounds. See, my daughter was born with Down Syndrome, so I was more concerned with her health, than mine at the time.

I got married in 1994 and my weight was 160 pounds, which I was technically happy with. I had a little pudge on me, but nothing that I was embarrassed about. But then I had our next daughter and I immediately put on the weight again, and this time with each pregnancy I had, the weight just kept piling on, I couldn’t get back down to 160 no matter how hard I tried.

I remember the day that I was at the doctors office and I stepped on the scale and it said “200” in big bright orange numbers. I about died right there on the spot! It affected me so badly that I started eating my emotions, and my favorites are carbs.

I have since given birth a total of 6 times and am currently sitting at 225 pounds. Just in March I was 216, but I’m stressed, there’s no doubt about it, but to pack on 9 pounds in just a little over a month, that’s a problem to me.

So I decided that now at my age (44) I need to fix this problem for once and for all. My doctor has promised to take me off of my diabetes medications if I can get down to 175, but I want to do better than that… My goal is 160 pounds, like I was 17 years ago when I married the love of my life.

I want to lose the weight not only for me, but for my family. If I can do it, then it will show them that they too can do it. My hubby is over-weight as well and I think this weight loss program that I started would be great for him too. He had one knee replaced last year, and is going to have the other one done this summer, so if he could take some of the extra weight off his knees, they will last longer.

But really, I’m just tired of looking at myself in the mirror and looking pregnant. I’m not fat anywhere else except in the stomach, butt and hip area, which is of course where all of women’s weight tends to go.

The program that I am doing is the CTS300 which is sold at Complete Nutrition. I’m really excited about doing this program because I’ve seen the pictures of the locals who have lost the weight and I am more determined now than I ever have been before. I’ve tried Weight Watchers, that didn’t’ work for me… So I’m hoping that this program does.

I have an exercise routine that I do two times a day, I walk the treadmill at various inclines for 20 minutes, 2 times a day and I carry two 5 pound dumbbells with me as I’m walking. By the time I’m done, I’m glistening like a diamond ring – because women don’t sweat! My thighs are usually on fire by the time I’m done on the treadmill, but that just means I had a good workout, which is what I’m looking for.

So I’m not looking at this as a “diet”, but more as a lifestyle change. I’m changing the way I look at food now, and I think before I go reaching for something to put in my mouth.

Check out Mimi’s blog at Wife… Mom… Writer… All Blessings!

Filed Under: Eating, Food, goals, Guest Posts, Mimi, Nutrition Tagged With: body image, complete nutrition, CTS300, eating, food, mimi, pregnancy, special needs parent, weight, weight gain

GUEST POST: It’s A Marathon, Not A Race

June 4, 2012 By Kirsten

The first time I met Jennifer Krumins, she was having a fight with her laptop. She was slated to give a parent education presentation at George’s autism therapy centre, and she couldn’t get her technology to work. She endured some good-natured heckling from the front row (read: from my husband), got her PowerPoints to work, and went on to deliver a riveting presentation.

Jennifer is an autism parent, educator and author. She willingly shares her hard-earned wisdom for the benefit of parents who may be feeling a little overwhelmed by the whole special needs gig. Thanks to what I have learned from her, I have become somewhat good at advocating for my son in the school system without alienating anyone along the way. Whenever I start getting my annual IEP-related panic, I start posting stuff about it on Facebook in hopes that Jenn will respond with a gem of wisdom, and she always does.

Since the first time I met Jenn, I have attended more of her presentations and roped my mom into filling out a questionnaire for her book entitled Autism and the Grandparent Connection (which you really should read, even if you’re not a grandparent). We have become friends and we’re looking forward to having a drink together at this year’s autism symposium that Jenn will be presenting at.

Today, she tells us about her journey as an autism parent, and offers us some advice to help us along the way.

I don’t run marathons. I really admire people who do. I have some friends that train faithfully and test their endurance over the course of a few hours…by choice!

I am the parent of a sixteen year old boy with autism. Biggest marathon of my life. Yes, raising a child with autism is perhaps the supreme test of endurance. And yet, like many of my running friends, I would sign up to do it again because in my memory, the moments of success were far more remarkable than the moments of pain, exhaustion and heartbreak.

So what are the secrets of our successful marathon? Is it a medicated state of euphoria that I am experiencing….only to be rudely awakened by reality when the meds wear off?

No. I can honestly say that while the road has been long, harrowing at times and I have fallen on my butt on many an occasion…the journey has delivered far more emotional, intellectual, spiritual and social growth than our family could have dreamed.

The secrets have been revealed to me through fellow “autism marathoners,” trial and error, and most of all through the wisdom of children with autism (my own son and those students whom I have had the privilege to teach). I have learned some valuable tips to enrich the journey and increase endurance:

1. Instead of carb loading…try optimism loading. It’s very good for you and your child! Optimism is a way of looking at life and its inherent stresses. Being an optimistic person does not mean that one is always happy and peppy… it is that you choose to look for opportunity in the middle of adversity. Feed your brain with daily/hourly reminders that adversity is temporary, and that your child is making progress (even if it’s tiny steps). “Children learn what they live,” and as the adults in a child’s life it is our responsibility to model an attitude of positive persistence and hope. We can choose to believe that there is hope, meaning and joy within any given moment.

2. Take a long term approach to training. You would not be able to run your first marathon immediately after deciding to do so. You need to train. It’s the same thing with raising your child. Too often, we get stuck on a panic button in the early years. We may feel like we have to do it all right now in order to win the race against autism. It doesn’t work that way. Live in the present but plan for the future. Each day, each hour that you invest in being the kind of parent you want to be has a cumulative effect. In the long run, it is the lessons of perseverance, self- advocacy, and hope that will develop your child’s ability to be resilient and to ignite a sense of self- worth and self -confidence. Children learn by doing….by failing and trying again. They do not gain self- confidence when we tell them they can do it….and then we do it for them. The values you live by will be the greatest gift you give your child with autism….more than any treatment/intervention.

3. Visualize and rehearse the route. What are your long-term goals for your child? What do you envision for your child in the future? Design your plan so that you not at the mercy of someone’s map. Take the time to write down your thoughts on the following: What are my child’s strengths, skills, interests, challenges and limitations? What about my child gives me the most joy? What are my biggest fears or worries? What goals do I value for my child’s development? What specific behaviours, or other problems, have I observed? How did I react? What did I do in the situation? What could I do better next time, if anything? Have I recently noticed any changes in behaviour or ability? Be prepared to share what you know with those who are on the journey with you (even if you don’t like them). But remember, your plan must be in writing.

4. Talk with folks along the way, enjoy the course, smile often. The autism marathon is a social event. Too often we try to do it alone and we burn out. We need each other. We even need the people that drive us nuts because they keep us running; trying to learn more, be more and advocate more. Choose not to allow bitterness, resentment and hatred ruin the journey. We are the ones who suffer (as do our children) when we allow destructive feelings to shape us. Advocate one step at a time, one person at a time with patience and humility. The journey is much richer when we allow others to help. It is a sign of strength and selflessness to say, “Yes, I could use your help.”

5. Set goals. Work to achieve them and stay focused on the things you want. Your life does not wait until you “fix” the autism. This is it. Treat your life as the gift it is. The time is now to take figure out what you will be living in the next five years (ten and twenty). Start with small steps towards those goals. Catch yourself if you are waiting to live your life. Perhaps, autism is in some way a vehicle for achieving those goals. Seize the time and model for your child what it looks like to live a goal directed life.

The marathon continues. There are more times of peace now…but never for too long. Struggle creates a rich environment for personal growth. Just set your eyes and heart on the target and keep putting one foot in front of the other.

To learn more about Jennifer and the books that she has written, check out Autism Aspirations.

(Photo credit: Jennifer Krumins)

Filed Under: autism, Coping Skills, Guest Posts, Jennifer Krumins, parenting, Special Needs Tagged With: attitude, author, autism, educator, goal-setting, learn, long-term approach, marathon, pacing, parent, rehearse the route, talk to others

Writing: Beyond The Challenges

June 1, 2012 By Kirsten

2012 is shaping up to be a busy year. In the last five months, I have taken an emergency trip to South Africa, run three races, and had my website revamped. I have also participated in two consecutive month-long blogging challenges, ending yesterday.

Today I am publishing a post for the 62^nd day in a row. While I have thoroughly enjoyed these opportunities to indulge my passion for writing, I am ready to change the pace for a brief period of time. Blogging every day in addition to holding down a full-time job, parenting two young kids, and training for a half-marathon – well, it can be tiring.

I’m not planning on fading away into the sunset (particularly today, since it’s raining and there will be no sunset). Instead, I am going to work on other parts of my website that I have not had the time to get to yet.

I will be putting together a blogroll (if you would like your blog to be included, send me an email). I will be creating resources pages for the autism and running communities, and once I have made up my mind about the rest of the racing season, I will be updating my list of races.

My actual blogging will take a backseat for the next week or two, but I have lined up some guest writers to take care of that. I am truly excited to bring you some great stories from different walks of life, starting on Monday.

Before I quietly slip out through the side door to get more coffee, I will leave you with some highlights of the last two months of blogging. The posts mentioned below are the ones that have attracted the most views.

Highlights of the Health Activist Writers Month Challenge in April:

In Week 1, I described a conversation I had with my younger son about his understanding of his brother’s autism.

In Week 2, I wrote a letter to my 16-year-old self offering some words of hard-earned wisdom – not that she would listen to an old fogie like me.

Do you ever get stressed out about little things that really don’t matter? In Week 3, I gave myself a bit of advice, the gist of which was to just chill out.

I ran my second race of the season in Week 4, and wrote about how I found the zone.

Highlights of the 2012 Wordcount Blogathon in May:

I keep hearing people talk about how kids with autism are incapable of affection or empathy. In Week 1 of the Blogathon, I decided to try and bust that myth.

In Week 2, my younger son lost his first tooth, in more ways than one. We had to get the tooth fairy to come, even though we didn’t have the actual tooth.

May was Mental Health Awareness Month, and during Week 3 of the Blogathon, there was a Mental Health Blog Party. I wrote about postpartum depression, in hopes that sharing my experiences would help someone.

In Week 4 I wrote about the most precious of gems: those little moments with my family that make me feel like the richest person in the world.

I was feeling introspective for much of Week 5, and wrote about how I made peace with a decision that parents all over the world wrestle with.

The blogging challenges are done – at least for now. But the writing continues, because I will never run out of words.

Filed Under: 2012 Wordcount Blogathon, blogging, Challenges, Guest Posts, Health Activist Writers Month Challenge, website, Writing Tagged With: advice, autism, blogging, blogging challenges, choices, higlights, moments, post-partum depression, running, stress, tooth fairy, writing

Guest Post: Animals And Autism

May 15, 2012 By Kirsten

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Guest post exchange day was yesterday, but really, with so many phenomenal bloggers in the same challenge, how could I pick just one? Today’s guest blogger, Sarah, focuses on an area very close to my heart: animals, their relationships with people, and how they can facilitate healing. She just finished her first year of the Doctorate of Physical Therapy program at LSU-New Orleans. She is passionate about animals and children and plans on integrating animals into her physical therapy practice after she graduates.

As a lifelong animal lover myself, I am drawn to Sarah’s blog like a magnet, and am thrilled that she agreed to write for me. Today, she shares with us how animals and children with autism can have a very special bond.

When people envision their perfect life with 2.5 kids and a white picket fence they also usually include a pet in the picture. After parents hear their child given the diagnosis of “autism”, often the idea of having a pet is questioned. In general, animals definitely provide many benefits to their owners, but as Kirsten recently reminded me “If you’ve met one person with autism, you’ve met one person with autism.” So what works for one child or family may not work with another.

The cool thing is that there have been several groups that have seen a lot of positive effects in children with autism after interacting with animals.

Max is one of Austin Dog Alliance’s “special dogs” available for adoption.

Austin Dog Alliance has group social skill classes where they use dogs to teach children with autism and Asperger’s. Some of the topics touched on in these classes include verbal and motor skills, interacting with and empathy for others, and appropriate behaviors both in and out of the classroom. These same skills can be achieved with a pet at home. The child can practice speaking to the dog and learn to recognize and understand the animal’s non-verbal cues. In doing this they are maintaining eye contact, which some people with autism struggle with. They can also learn to care about and for another living creature. This lesson can then translate to their interactions with other people.

Horse Boy Foundation brings kids in contact with horses to help them through what they call a “simple 6 stage process”. They’ve found that allowing kids to lie down on a horse’s back cuts down on their stimming (a repetitive movement that self stimulates the senses). Interacting with the horse is good overall sensory work while the actual horseback riding can be soothing because of the rocking motion. Again, giving commands allows the child to work on verbalization. I know that for most people owning a horse is out of the question, but there are several places that have horseback riding lessons where your child could get some of the same benefits.

http://www.youtube.com/watch?v=V11E-N2pK_o (it’s a youtube video about the Horse Boy Method)

Lois Brady found that a potbellied pig named Buttercup works wonders with the children. She’s a speech language pathologist, so of course her focus is getting the children to talk. But she has found that her pig is great for sensory work because he has different textures in different places on his body. The best thing about him is that people don’t have preconceived fears about pigs, like they might with a dog or even a horse.

(Photo from: http://www.prweb.com/releases/animal_assisted_therapy/continuing_education/prweb9261001.htm)

Buttercup is a great example that really any kind of pet can be used to help with things like speaking, motor skills, empathy and self-confidence. Some people prefer to have an animal specifically trained as a service animal and that has its benefits as well. You can read my post about autism service dogs to learn more about them. The most important thing is to decide what animal (if any) will be a good fit for your family.

Check out more great posts from Sarah Allen on her blog, Animals Help Heal. You can follow her on Twitter @AnimalsHelpHeal.

Filed Under: 2012 Wordcount Blogathon, Animals, autism, Guest Posts, Healing, Special Needs, Uncategorized Tagged With: animals, autism, dog, healing, pot-bellied pig, speech, therapy

A House Full Of Love

May 14, 2012 By Kirsten

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Today is Guest Post Exchange Day! I am honoured to introduce you to a fellow special needs mom, who is not only an awesome blogger, but also an awesome friend. Mimi has not one, not two, but five children with special needs. That would sound daunting to anyone, but Mimi wouldn’t change her life for anything.

Hi! I’m Mimi, mom to 5 great kids, all with special needs, but we don’t focus on that. We focus on their achievements, their triumphs and the love that they have for each other. Sure, they fight just like any other siblings would fight but at the end of the day the love is still there for each other. My oldest daughter is 24 and diagnosed with PDD-NOS (a form of autism) and is an unmedicated bipolar by her choice. My next daughter is 22 and was born with Down Syndrome, hydrocephalus, PDD-NOS and acanthosis nigricans, she’s my spit-fire child. Next is my soon to be 16 year old daughter who was born with spastic diaparesis cerebral palsy, she also has Asperger’s Syndrome, bipolar with psychosis, anxiety disorder and an eating disorder. Next are my two boys, my first son is 10 (11 in June) and for some unknown reason he is cognitively impaired, he too has PDD-NOS and a mood disorder. My youngest son is 9 (10 in June) and he was born with Fetal Valproate Syndrome, static encephalopathy (due to a traumatic birth), he has PDD-NOS and a mood disorder.

Raising special needs children has its ups and downs, but I wouldn’t trade my life for anything the world has to offer me. My children are the reason my world rotates on its axis. Some people call me a mother polar bear because I am so protective of my children, but who else is going to protect them besides me?

My boys are the best of friends, they are great playmates for each other and I hope and pray that the bond between them stays forever. It’s similar to the bond between my 2 oldest daughters. They are close because when they were young girls, I was a single parent by my choice, so it was just us 3 girls against the world. Until I met my husband in 1994, Bethany was 6 and Lauryn was 4 and Jon has been their daddy ever since.

What entertains my kids? Different things… My boys are video gamers with their dad, they each have either their PSP’s or PSP Go’s or in Jons case his PSP Vita, but they all three will gang up on the bed and be gaming, ignoring everything else that’s going on, whereas Maurra my (almost) 16 yr old loves doing research on various things, which is very common for children diagnosed with Asperger’s Syndrome, right now she’s focusing on historical events. Lauryn is crazy for Justin Bieber and loves to watch horror shows in her bedroom. Bethany is my crazy football fan – well I’m pretty crazy for our Green Bay Packers also, so we tend to watch football together and we DVR the games so we can watch them through the week.

Our social outings look a little different than most. First of all, my 3 youngest kids can’t handle car rides very well, so our trips have to be short in nature, and there has to be a reward at the end of the trip. Lauryn enjoys going to her adult day program 4 days a week, but that’s about the extent of her traveling comfort. She loves to dance in the truck which is fun and the cars around us seem to be her audience. Bethany (my oldest) and I tend to do mother-daughter outings or she will go with me if I have to run errands. It’s hard to break things up so the kids can handle everything, but in the end it’s for the best for them.

The boys are getting ready to start their 3^rd year playing Miracle League baseball, which is baseball strictly for children who are disabled. I volunteer my time with the league as the team coordinator and absolutely love watching all of the kids play the game.

Like I said before, I love having special needs children, and now we are looking into adopting a special needs child because there is more room in my heart for more children, but I can’t have them myself anymore. So we are looking into a special needs adoption. I hope it all works out for the best.

Well, thank you for letting me share my family with you. Have a great day!

And thank you, Mimi, for sharing your family with us!

Mimi has a great blog at Wife… Mom… Writer… All Blessings. She can also be found on Twitter @Gigi_S.

Filed Under: 2012 Wordcount Blogathon, family, Guest Posts, life, parenting, Special Needs Tagged With: Aspergers, autism, cerebral palsy, Cognitive impairment, Downs Syndrome, family, parenting, PDD-NOS, special needs