autism Archives - Page 10 of 17 - Running for Autism

Autism And Adolescence: Preparing For The Storm

August 1, 2011 By Kirsten

I was educated in the 80’s at a girls-only Catholic school that was run by nuns. The school was high on academic excellence, and a high percentage of its graduates went on to achieve some pretty impressive things. At the same time, though, the school fell flat where it came to life skills training, and many of those people who wound up in noteworthy careers also struggled in various areas of their personal lives.

Throughout high school, I frequently found myself being summonsed to the principal’s office. The principal was a mean old nun named Sister Elizabeth, and she hated me simply because I was not a clone of my cousin, who she had taught at a different school several years previously. Every visit to her office was the same, regardless of what alleged infraction had sent me there. First, Sister Elizabeth would ask me why I couldn’t be like my cousin, and then she would put on a grave face and say, “Whether you throw a teaspoonful of mud or a bucketful of mud, you’re still throwing mud.”

What the hell was that supposed to mean?

I mean, I was the shy, socially awkward kid in my peer group. I wasn’t exactly a trouble-maker, and when I did hit a difficult patch in eleventh grade, my troubles were directed towards myself, and barely caused a ripple beyond my immediate group of peers. I was never caught smoking under the bleachers, I never swore at a teacher, and I never had a pack of condoms fall out of my pocket while running down the hall. Interestingly enough, the person who all of this did happen to was never, to my knowledge, sent to see the dreaded Sister Elizabeth.

What the school laughably called “sex education” happened in the form of a couple of talks given to us by outside counselors when I was somewhere around tenth grade. The talks had the following central theme: if you have sex before marriage, you will undoubtedly go through teen pregnancy and a life of poverty and deprivation, and your child will be a juvenile delinquent addicted to drugs, and when you die you will go to hell.

We were given some very basic information about the different forms of contraception, and then told not to use any of them on the grounds that they were a sin. The only acceptable forms of birth control, we were told, were abstinence and the Rhythm Method (which, of course, was reserved strictly for marriage, because of the whole going-to-hell thing associated with sex).

In retrospect, the timing and the subject matter of these sex education talks was kind of funny. By the time we had to listen to them, most of my peers had been sexually active for at least a year and probably knew more about contraception than the people delivering the talks. To my knowledge, there was only one teen pregnancy in my peer group, and it happened after we had all graduated high school.

Things today are very different. Kids are maturing physically at a younger age than my generation did, and for the most part, society seems to have let go of the notion that teens just shouldn’t have sex. There is an acceptance that they are going to do it anyway, so we may as well equip them with the tools and knowledge to do it safely. I am all for that, although I certainly wouldn’t want my boys to be experimenting with sex until they have reached a certain level of emotional maturity.

The question that is plaguing me is this: how do I deal with this topic where my son with autism is concerned? He may only be turning eight in September, but time flies, and before we know it he will be entering the world of pre-adolescence. His physical maturation will far outpace his social development, and I worry about the time when he will have physical drives that he will not be emotionally equipped to deal with.

And so I have decided to start seeking out resources and advice on this topic now.

That way, when the storm of adolescence hits, I may have a fighting chance of helping my son navigate his way through it all.

(Photo credit: http://www.flickr.com/photos/alamosbasement/3661120171)

Filed Under: Adolescence, autism, High School, life, parenting, School, Sex, Sex Education, Social Development, Teenage Years Tagged With: abstinence, adolescence, autism, contraception, high school, life, parenting, postaweek2011, principals office, rhythm method, sex, sex education, sexual development, sexual development in child with autism, teen pregnancy, teenage years

Why Autism?

July 19, 2011 By Kirsten

“Why do you think he has autism?”

This question is posed to me quite a lot by friends and strangers alike, people who for the most part intend no malice, but are genuinely curious about the origins of George’s autism.

That they are asking the question at all is something that I see as a positive sign. It tells me that increasingly, people are wanting to be educated about autism instead of blindly believing every tidbit of information – right or wrong – that is thrown their way.

Over the years, I have done research on a variety of theories.

Was it vaccines? No, I don’t believe it was. Deep down, I knew from the time George was a tiny baby that he was not on the trajectory of “typical” development. I don’t buy into the dietary theory either, for the same reason. George was exclusively breast-fed for four months, and by then I was seeing some little signs that something was not quite right.

No, whatever happened within George’s brain to result in his autism, it was a done deal by the time he came out of the womb.

Even with that knowledge, the title of Primary Cause is wide open. I have read a couple of recent studies suggesting that environmental factors in utero could have more of an effect than previously believed. As if moms of children with autism didn’t have enough guilt on their shoulders already. But that is neither here nor there.

When I was expecting George, I did everything that was considered by pregnancy gurus to be “right”. I ate lots of leafy greens and took my prenatal vitamins every day. I ate lean protein and avoided foods with a high fat content. Accustomed to eggs “over easy”, I ensured that my eggs were fully cooked, and I did not touch deli meat or anything else that could be a potential listeria risk. I did not touch a drop of alcohol, I stayed away from places where I might be exposed to second-hand smoke, and my body pretty much bullied me (through the magic of the laughably known “morning sickness”) into kicking caffeine to the kerb. I went to all of my OB/GYN appointments and followed the advice of my doctor. I did not take so much as a headache pill through my entire pregnancy. The only tablets going into my mouth were vitamins and Tums.

I don’t think I could have created a better environment for my baby if you had paid me a million bucks. Of course, there is the possibility that fifty years from now, someone will prove that some obscure enzyme in, say, oranges, has been linked to autism. But I think it is safe to say that the prenatal environment is an unlikely candidate for the cause of George’s autism.

Leaving aside other environmental factors like air pollution, there are two other possibilities: genetics, or the circumstances surrounding the birth itself. Or maybe a combination of the two.

When I was a child, I was developmentally delayed. I didn’t talk until I was five, and I had some motor skill delays. My body was physically capable of doing anything my peers could do, but the communication between my brain and my muscles was out of synch. It was clear – especially in the early years – that I had some kind of learning disability, although I was never formally diagnosed with anything. As I navigated my way through childhood and adolescence, I was able to compensate for my learning difficulties by simply thinking in a different way and leveraging areas that I was strong in. But as my academic performance got better and better, my social awkwardness and anxiety among people became more and more apparent.

To this day, I suffer from social anxiety, although in general, I have found ways to adapt and mask it so that people don’t really notice. I’m not so much a stickler for routine, but once plans are made I get very uncomfortable – almost panicky and kind of, well, spectrummy – if they are changed. Although I am now fully verbal – sometimes, downright talkative – there are times, usually when I’m stressed – when I lose the ability to communicate through speech. It’s as if the words get lost somewhere between my brain and my mouth.

Am I on the autism spectrum? I don’t know. I have never been for screening, and frankly, I don’t really see the point. But if I were to learn that I have Aspergers, I would not a bit surprised. When I look at the way George has evolved through his early childhood, and the way he is at this point in his life, I do see a lot of parallels with my own early years. So, genetics? It’s a strong possibility.

The other possibility is that something happened to George’s brain while he was being born. For the most part, my labour was pretty standard. Everything happened more or less when the Medicals said it would. When I was in the thick of contractions, I heard someone use the word “textbook”. When the time came to push, though, the going suddenly got a lot tougher. Even though the baby was perfectly positioned for birth, no matter how hard I pushed, nothing budged. The Medicals kept telling me to push harder, push harder, but I just couldn’t do it. After what felt like an eternity but was probably only a couple of minutes, the Medicals gave me an episiotomy (if you don’t know what that is, look it up, because I ain’t describing it here). Once that was done, I gave one more almighty push, and an eternal second later, I was rewarded by the sound of a baby crying.

Here’s the thing, though. While I was pushing to no avail, the baby’s heartbeat – usually in a range of 130-150 beats per minute – dipped to below 40 beats per minute. Only for a couple of seconds, mind. Like a momentary blip in the radar. But could those couple of seconds have been enough to alter the wiring in my baby’s brain?

In the end, I suppose it doesn’t really matter. George has autism, and knowing the cause with crystal clarity would not change that.

No matter what the cause, George has autism, and I love every inch of him for who he is.

(Photo credit: http://www.flickr.com/photos/macbeck/4146730230/)

Filed Under: Aspergers Syndrome, autism, Autism Spectrum, Causes of Autism, Childhood, Developmental Delay, Environment, Genetics, Learning Disability, Social Anxiety, Speech Delay, Vaccines Tagged With: Aspergers, autism, birth, developmental delay, early childhood development, environment, genetics, George, learning disability, postaweek2011, pregnancy, social anxiety, special needs, spectrum, speech delay

The Cow Whisperer

July 15, 2011 By Kirsten

It was a beautiful summer’s day in 2007. George, who was three months shy of his 4^th birthday, had recently been diagnosed with autism, and James was 18 months old. Our world, which had been so badly rocked by the reality of having a son with a lifelong disability, was starting to stabilize a little, but at that point, we really didn’t know how much hope we should have.

The diagnosing doctor had emphatically – kindly, but emphatically – told us not to expect too much, ever. He had not given us a good prognosis.

On this particular Saturday, we packed the kids into the car with a picnic, and we went for a drive. We went in the general direction of some lakes to the north of us, but we had no fixed destination. We picked our route at random, taking whatever country roads we liked the look of. The kids were happy enough: we are fortunate to have been blessed with two fantastic car travelers.

All of a sudden, we heard George’s voice piping up from the back seat: “Cow!”

The van shuddered a little as we screeched to a halt. Back then, hearing George say anything at all was a cause for celebration. We turned around and looked at him, sitting there in his booster seat.

“What did you say?” I asked, trying to sound nonchalant.

“Cow!” he said again, his eyes gleaming with excitement.

I turned to Gerard. “I guess George saw a cow,” I told him.

Without hesitation, Gerard did a three-point turn on the narrow country road, and we slowly headed back in the direction from whence we had come.

It took less than a minute for us to see them: a field full of cows, lazily flicking their tails as they chewed on the long grass.

“Cow! Cow!” yelled George. The kid was practically levitating, he was so excited.

We parked on the side of the road and got out of the car so George could see the cows. The kids ran ahead of us to the fence, James tottering slightly on his chubby little toddler legs. We all stood at the fence together, silently watching the cows, who looked back at us with apparent disinterest.

Thinking that this would make a nice picture of Gerard and the two boys, I dug in my bag for my camera. The confounded thing had fallen right to the bottom of my bag, so I had to put in about two minutes of dedicated scrabbling. When I looked up again, I was confronted with the most remarkable sight.

There was Gerard standing slightly in front of the fence holding James’ hand. There was George, a little way further down the fence. And there were the cows – all thirty or so of them – flocked right up close to the fence where George was. They were showing zero interest in the rest of us, but they were utterly enthralled with George. He was fearlessly sticking his hands through the fence, and they were gently nuzzling him and softly mooing at him. In turn, he was smiling tenderly at them, with a look of absolute wonder in his eyes.

It looked like my son had some kind of cult following of cows. Like he was their god or something.

I wasn’t merely witnessing a little boy stroking a bunch of cows. I was witnessing this incredible moment of communication between boy and beast, a moment that was so incredibly powerful and beautiful.

George, like most people with autism, has trouble interacting with the rest of the world. But at that moment, he was in perfect harmony with the world, in a way that I can only dream of.

(Photo credit: http://www.flickr.com/photos/roymontgomery/3993908201)

Filed Under: Animals, autism, Communication, Special Moment Tagged With: animals, autism, communication, communication with animals, cows, excitement, fence, George, postaweek2011, wonder

95 Days And 6 Hours

July 13, 2011 By Kirsten

95 days and 6 hours to go…

In 95 days and 6 hours, my heart will be racing and my adrenaline will be pumping. I will be filled with nervous energy, and all of my senses will be on high alert, even though I probably will not have slept for a week.

In 95 days and 6 hours, I will be one of 20,000 runners waiting for the starters gun to go off, signalling the beginning of the Scotiabank Toronto Waterfront Marathon and Half-Marathon.

In 95 days and 6 hours, I will start my Run for Autism – the race that I do for my son George, who is my inspiration and my reason for running. My son, who has taught me so much about myself, about life, about the things that really matter. My son, who I love so much that I sometimes think my heart will explode.

Up until now, I have had a poor season of training. A variety of illnesses, extreme weather conditions and family emergencies has conspired against me. Not to mention the not-so-small matter of getting married. I did succeed in running an 8km race in the Spring, but I have had to blow off not one but two half-marathons since then, because I have just not been ready for them. I have tried to follow some kind of regular training regimen, and I have been running just enough to keep up some kind of conditioning, but my training has been very much a stop-start kind of thing.

Until now.

Over the weekend, I gathered together pen and paper, the list of races I am registered for between now and my Autism Run, and my calendar. Thus armed, I plotted out a training program, a path to get me from here to there. It is a program that will work. By the time I’m done, I will be able to run the distance and run it well, as long as I stick with it.

My impediment is not lack of discipline. If I have a run scheduled, there are very few things that will deter me. From time to time I may have to shift a run to another time, or even to the following day, but if my schedule tells me to run, then I will run.

The only thing stopping me – barring unforeseen emergencies – is my health. It hasn’t been so great lately. I have been tired, run down, and prone to getting sick. Conventional running wisdom dictates that it is safe to run with a cold as long as all symptoms are above the neck, but practical experience has taught me that it is not a good idea. It might be perfectly safe, but it knocks my immune system down a few notches so that it takes me longer to recover.

So the way I see it, the one thing standing between me and my ability to totally rock this year’s race is my health. If my health is good, my training will take care of itself.

With that in mind, I have a plan. This is all stuff that I really should be doing anyway, but if planning it is what it will take, then so be it.

Here are some promises that I am making to myself (and we all know that it’s wrong to break a promise, regardless of who it’s made to):

I promise that I will hydrate myself properly, and not only during my training runs. And not only with coffee.

I promise that I will take my vitamins every day, because I definitely feel healthier when I do.

I promise that I will see a nutritionist, because my diet is one area where my self-control goes to the birds.

I promise that I will try harder (and “try” is the best I can do at this point) to get more sleep so that I am not literally running on the smell of an oil rag.

Four promises. Anyone can keep four promises, right? And they’re not even hard promises, with the possible exception of the last one.

I can do this. I can totally do this.

In 95 days and 6 hours, I will be ready.

Filed Under: autism, Countdown, health, life, running, Running for Autism, Training Tagged With: autism, distance running, George, half-marathon, hydration, illness, keeping promises, life, nutrition, postaweek2011, promises, race, running, running for autism, scotiabank toronto waterfront marathon, sleep, vitamins

Lucky Number Six

July 12, 2011 By Kirsten

Being a parent is hard. You have to deal with conflicts, challenges, lack of sleep, lack of privacy, loss of self-identity, turmoil, guilt, worry, heartache, tears, and the reality of never being able to eat a full meal without interruption. And that’s just with a regular kid.

When you add autism into the mix, you also add the sensory challenges, meltdowns, communication issues, various other autism-related challenges, guilt piled on you by the media and other parents because you chose to vaccinate your child, and uncomfortable stares and rude comments from strangers in grocery stores.

All parents need a break sometimes. Especially parents of children with autism or other special needs. We love our kids, and recognize that in order to be better for them, we need to take care of ourselves.

This is why God created respite workers, and for some lucky parents, the funding to pay for them.

Our respite worker adventures are in their fourth year. In that time, we have gone through five workers, and we have just started on our sixth.

Our first worker was fantastic. We found her at the daycare George went to. She was his favourite teacher there. And so, when she left the daycare and asked us if we would like her to do respite work with George, we jumped at it. Both of the kids loved her, and George eagerly anticipated his times with her. After two years with us, she called me with the news that she had suffered a relapse of breast cancer and needed to take time out to focus on her health. We were sad to see her go, but we completely understood.

After a search of about three months, we found a new respite worker. George took to her right away. She was organized but creative, firm but kindly. She engaged George in a very positive way. She was a lovely, lovely person, and we could tell that she had a gift for working with special needs children. Unfortunately for us, one of the therapy centres recognized the same gift in her, and hired her full-time as an instructor/therapist. She gave us plenty of notice, so that we could find a replacement before she left.

Respite worker #3 was easy enough to find. On paper she looked great. Lots of experience with special needs kids, working towards an early childhood education qualification, and sister to someone with autism. We thought this woman had it all, right down to the personal experience with her own brother.

She turned out to be spiteful and vindictive. She lasted for precisely two sessions, one of which had been a handover session with Respite worker #2.

On to Respite worker #4. We found her through an ad we placed in a local newspaper. She came for an interview, and seemed to interact well with George. We liked her, we hired her, and she agreed to start the following week. Unbeknownst to us, though, she had been actively seeking full-time employment and got offered a job a couple of days before she was due to start with us.

At this point, I was ready to throw up my hands in despair. Good respite workers – the ones who are good at what they do, are nice people, and stick around for longer than it takes to make a cup of coffee – are like gold dust.

I placed another ad, and got a number of responses. We settled on a very nice, down-to-earth lady. When she came for the interview, she produced a binder containing her resume, police clearance, references, and various CPR and First Aid certificates. The details that impressed me on her resume were that she had been with one of her respite families for about ten years, and the other one for even longer. This woman had a history of staying with her families, and she even spoke about the benefits of building a long-term relationship with the child. We liked her, we hired her. She started the following week.

And then, as fate would have it, a close family member of hers was seriously injured in an accident, and another close family member had a heart attack and needed bypass surgery. Our new respite worker had to temporarily suspend work so she could take care of her family. After a break of a month or so, she came back, but that only lasted for two weeks. One of her family members relapsed, and she had to take time off again. She stopped replying to my texts and returning calls, and as nice and all as she was, I had to make the decision to cut her loose.

And now, as of yesterday, we have started with Respite worker #6. I am hesitant to make any sweeping statements at this point, but she seems to have been dropped into our laps by the smiling gods of fate. She has been a student volunteer in George’s classroom for the last two years. She knows him, and she seems to like him. He seems to like her.

I am really hoping she will be our Lucky Number Six.

Filed Under: autism, parenting, Uncategorized Tagged With: autism, finding the right person, George, interviews, parenting, postaweek2011, Respite Work, respite worker, special needs

Not Autistic Enough?

July 11, 2011 By Kirsten

Apparently, my son is not autistic enough to qualify for television documentary stardom.

Several months ago, we were approached by the producers of a television documentary series. They were planning a program about whether or not there was some kind of environmental link to autism, and they wanted to get footage of families living with autism. I exchanged a few emails with the producers, and eventually they came to our home to meet us and see George.

We were perfectly happy to be a part of this. We are strong on autism advocacy and awareness, and we take any opportunity we can to help spread the word about the realities of autism – both the challenges faced and the potential for achievement.

When the producers came to see us, something about their approach to the conversation raised a red flag to us. We got the sense that they were trying to push one side of a particular autism debate without giving any airtime to the other side. What the debate is and what side of the fence we fell on is not relevant. Our issue was with the integrity of the whole thing. It just seemed to us that the agenda behind this documentary was to sensationalize an aspect of autism.

But we kept an open mind. Maybe we were reading this wrong, and just needed more context. After the meeting, we sent the producers on their way and waited for them to get in touch with us.

About three weeks passed with no contact apart from a couple of basic “we’ll be in touch soon” emails. Eventually, I got a message from one of the producers, telling us that George was “not autistic enough” to be included in the program. Apparently, they were looking for a child with very severe autism – one who is completely non-verbal and very low-functioning – so that they could better “demonstrate the challenges of a typical autism family.”

Herein lies my issue: there is no such thing as a “typical autism family”. Autism manifests in so many different ways. There are kids who are fully verbal but go into meltdown when someone tries to touch them. Then there are kids – like my George – who hardly talk at all, but who love to be hugged and cuddled. Some kids are academically sound and socially weak, others have some social skills but do not perform academically. There are kids who excel in math, music, art, or any number of other things, and there are some who don’t. There are the kids with sensory processing issues and the kids without. There are so many elements of autism, and they can be combined in an infinite number of ways, with varying degrees of intensity.

With all of this variation, how can a couple of producers, neither of whom has had any prior personal experience with autism, talk about a “typical autism family”? Every family with a child autism has its own very unique, individual challenges to deal with, and I worry about the media showing only one side of it and calling it “typical”. That, to me, is disrespectful and unfair to the vast majority who are not represented.

The way I see it, our initial reservations had merit: the producers want to sensationalize autism. They want to show only the negative, challenging, heartbreaking aspects of it, and give no airtime to the possibilities, the potential, and the idea that people with autism can and do make valuable contributions to society. They want to profile a theory – a theory, mind you – about what might cause autism in some kids – and present it as something that is relevant to all kids.

I don’t think this kind of reporting does any favours to anyone. Not the families who have to live with autism. Not the public, who are not being informed about autism in a fair, unbiased way. And certainly not the kids themselves, who are being portrayed in a way that is only accurate for a few of them.

I am quite happy for my family to not be the vehicle for that kind of media sensationalism.

(Photo credit: http://www.flickr.com/photos/16961193@N06/2887772100/)

Filed Under: Accurate Portrayal of Autism, autism, Documentary, Sensationalism, Television Tagged With: accurate portrayal of autism, autism, autistic, diversity of people with autism, documentary, George, not autistic enough, postaweek2011, producers, sensationalism, television

Out Of The Darkness: Overcoming Post-Partum Depression

July 4, 2011 By Kirsten

This post was a hard one to write, even though the events described happened several years ago. It took me a number of days to get this all down, and it has taken another few days to actually decide whether or not to publish it. My hope in publishing this is that it will make a difference to somebody. Maybe you’re a new mom who is going through post-partum depression. Or perhaps you know a new mom who seems to be retreating into herself. If your life is touched in any way by post-partum depression, know that there are things that can be done. Talk to your friends and family, seek help from medical professionals. And whatever you do, don’t lose hope.

My younger son James was born at a tumultuous time in my life. I had lost my dad to cancer a year previously, and me and my husband were going through some challenging times in our life together. At around that time, we were also starting to realize that there was something wrong with George and we had started to experience the frustration of wrangling a referral out of our family doctor.

I sometimes wonder, when I look back, whether all of these factors led to the post-partum depression I went through. Or perhaps it would have happened anyway. This is an illness that can strike the most unlikely of victims.

I knew within a couple of days after giving birth that the utter bleakness I was feeling was more than a case of “baby blues”. What I had experienced with George two years previously – the mild sadness, the anxiety, the tendency to be emotionally weird – that was baby blues. What I was going through now was completely different.

On New Years Eve that year, when James was six days old, I was sitting in front of the TV nursing my newborn while I watched CNN coverage of festivities around the world. At about five to midnight, Gerard brought me a cup of tea, and as he set it down beside me, he asked in surprise, “Why are you crying?”

I was just as surprised as he was. I had not even noticed the floods of tears rolling silently down my cheeks.

Even though I was filled with this feeling of terrifying – emptiness – I did not initially label what I was experiencing with any name. The first time I thought of the term post-partum depression in relation to myself, James was about two months old. A replay of an old Oprah episode was on – the episode where Tom Cruise spouted forth about how there was no such thing as post-partum depression, and how all new moms could solve all of their problems by eating right and exercising.

What an idiot, I remember thinking. This thought was followed by the sudden light-bulb moment in which I realized that I was suffering from post-partum depression.

There was a good news and a bad news aspect to this discovery.

The good news was that I now had a name for what I was going through. I had something to Google, and sure enough, on every checklist I found, I was able to put checkmarks beside all but one or two of the signs and symptoms. I had a basis for research, and I felt some validation that I wasn’t simply going mad.

The bad news was that I too far down the path of post-partum depression to be able to actually do anything about it. Talking to someone – my doctor, my friends, or even my husband – would have taken energy. And that was something that I had in very short supply. Just getting through the day was an accomplishment. Once I had attended to the basic needs of my kids – feeding, diapering, bathing, dressing – there was nothing left over. No reserves of energy whatsoever.

And because I didn’t do anything about it, my illness got steadily worse and worse. I didn’t talk to anyone about it, and no-one recognized the signs. My friends and family saw me retreating further and further into myself, but they did not know why. They saw that the kids were obviously being taken care of, so they didn’t realize that there was anything to be concerned about.

Even when my depression was at its very worst, I was not suicidal in the sense of wanting to actively go out and kill myself (again, that would have taken energy that I just didn’t have), and I was never in danger of harming the kids. Their health, safety and happiness were my top priorities – my only priorities.

I did start to think about dying, though. I fantasized about what it would be like to die in a car accident, or to have a sudden heart attack, or to be shot during a bank robbery. I thought about being on a plane that had a bomb on it. What if I had some undiagnosed condition, and simply went to sleep one night and didn’t wake up?

My depression went untreated for over a year, and by then I honestly thought that I was lost forever. Right after George was diagosed with autism, I went to see my family doctor, who had received a copy of the diagnostic report. I was seeing the doctor about something unrelated – an old ankle injury was acting up – but he immediately picked up that there was something seriously wrong.

My doctor, who had been absolutely dismal at detecting signs of early developmental delay in George, was able to tell right away that I was going through a major depression. He put me on medication and insisted on seeing me once a week until I was out of the woods.

The pills were both good and bad for me. The bad part was that they made me feel angry. While I was taking them, I was mad at everyone and everything. Back then, I didn’t even have running as a stress coping mechanism, so the anger just sat there and frightened the living daylights out of me.

The good thing, though, was that the pills helped with the depression. I started feeling some energy again – even though the energy itself was negative, it was a start. Negative energy was better than the absolute empiness and desolation that I had been feeling for so long now.

And so gradually, I started finding my way back. With time, I rekindled my relationship with my husband, and I discovered the true joy of parenting. I went back to work and started to find my own identity again. I started running. Little buds of hope started to grow within me.

I found my way out of the darkness, and into love and light.

Filed Under: Help, Illness, Medical, parenting, Post-Partum Depression Tagged With: autism, bleakness, children, depression, doctor, emptiness, George, help, hope, illness, James, medical, medication, newborn, parenting, post-partum depression, postaweek2011, thoughts of death

2011 Run For Autism – The Countdown Begins

June 3, 2011 By Kirsten

I’m feeling fantastic today!

Actually, that’s not strictly true. I was awake all night with a sick child, who at some point during the process very generously shared his bug with me, as a result of which I am bone-tired and tossing my cookies. So in reality, I feel really, really rough. I feel like a hedgehog that just got dragged backwards through the business end of a lawnmower.

But despite my less than stellar physical condition, I am feeling good about some things that have happened this week.

First, I resumed early morning running. I’ve been a little out of it for a while, and a lot of my running has been done on the treadmill. But two days ago, I dragged myself out of bed and went for a run before work. It was great. I felt the way I always do when go for early morning runs: alive, invigorated, positive about starting the day with an accomplishment. And since my route involves me running east over the Rouge Valley bridge, I get treated to the most spectacular sunrises. I mean, what’s not to love about all this?

Later that same day, I got a series of emails informing me that I am now officially registered for the Scotiabank Toronto Waterfront Half-Marathon. Which means that everything I do between now and then (everything running-related, anyway) is in preparation for that race. It is my annual Autism Run – the reason I got back into running two years ago. This will be my third year doing the run. In 2009, I finished in about 2 hours and 28 minutes. In 2010, I improved that time to 2:22:38, knocking more than six minutes off my time from the previous year. This year I want to do something even more spectacular, and break 2 hours.

That will be a tall order. Taking 22 minutes off a time over a distance of 13.1 miles? It’ll be tough. But that’s not going to stop me from trying.

The other thing this all means is that I am now officially fundraising, enlisting people to sponsor me for the run, trying to gather together as much money as I can that will all go towards providing services for children and youth with autism.

I cannot stress how important this is. George’s progress since diagnosis has been off the charts, but this is no accident. It has taken many hours of hard work, buckets of tears, patience, IBI therapy, parent training, information sessions, and advice. George would not be where he is today if it weren’t for the Geneva Centre for Autism, who have provided services and training and all kinds of other resources.

I cannot help but think that if George continues to get services that evolve with his needs as he grows up, the sky will be the limit for him. This child is so loaded with potential, but he does need help and support to realize it. If funding dries up, so does my child’s future.

So I spent some time yesterday setting up my fundraising page. I have set my initial target at $500, but I am really hoping to surpass that and raise the target. Preferably more than once.

My call to action is this: if you have the financial means, please consider sponsoring me for my run. If you cannot afford it (and I totally get that – life ain’t easy for many people right now), then please spread awareness about autism. Help spread the word that people with autism are a valuable part of our society.

And if you circulate the link to my fundraising page, that will be an added bonus as well.

I am excited about getting this show off the road and doing the best I can for my George, which means doing the best I can for my family, and for the community of autism.

Filed Under: autism, Children, fundraising, running, Running for Autism Tagged With: autism, autism services, children, fundraising, geneva centre, George, half-marathon, James, postaday2011, potential, running, scotiabank toronto waterfront marathon, sponsorship

The Beauty Of Autism

May 31, 2011 By Kirsten

"Peep And The Big Wide World" by George

It was a beautiful moment. One of those moments that autism parents celebrate, that parents of neurotypical children completely fail to notice.

I got home after a long, hard day at work, feeling tired and cranky. As I trudged my way up the driveway, all I wanted to do was grab a glass of wine, collapse into a chair, and never get up again. I didn’t just feel lethargy. At that moment, I was lethargy.

I opened the front door and stepped into the house. Moments later, I heard a pair of feet thundering up the stairs from the basement, and a seven-year-old whirlwind launched itself at me, almost knocking me to my feet. After giving me a ferocious hug, George said, in his sweet sing-song voice, “Hi, Mommy!”

Without me saying hi to him first.

Without me or anyone else prompting him.

This was a social exchange that was initiated completely, 100%, by my child with autism – my child who has, as one of his biggest challenges, social communication difficulties.

Instantly, my energy was back and I was ready to laugh and play with my family, with this amazing child who always seems to give me surprises of wonder.

As a special needs mom, I find that my life is punctuated with moments like this. I remember firsts that I probably wouldn’t even notice if I didn’t have a child with autism.

Like the first time he pointed. What a joyous occasion that was, coming as it did after almost a full year of me teaching him how to point. I blubbed my eyes out that night, all over the Bob the Builder book that had been the vehicle for this accomplishment.

Then there was the first time he made a request using a full sentence. It didn’t matter to me that the sentence was only three words long. This child who said, “I want juice” was streets ahead of the child who, just a few months before, had indicated his need by grabbing my hand and thrusting it in the general direction of the juice boxes.

And what about the first time he pretend-played? It was a simple game that consisted of George crouching down on the ground, and crawling around with his back arched skyward while repeatedly saying, “Turtle.” So what if it was unsophisticated play that included only himself? He was pretending – something he had never done before.

More recently, we celebrated him drawing his first picture. He’d made lots of scribbly-type drawings in the past, of course (and I have kept every single one of them), but this was his first picture depicting an actual scene. That it was an instantly recognizable scene from his favourite kids’ show, Peep And The Big Wide World, makes it even more special.

We have seen the advent of humour, and this is all kinds of significant. Humour is a complicated intellectual process, and George gets it. And let me tell you, he is funny.

All of these moments, when strung together, tell a story of a very special little boy who is making a journey through life that is somewhat different to the way other kids do it. But the point is that he is making the journey and having all kinds of adventures. He may be taking the scenic route, but ultimately, he does pass through the same places that other kids do. He achieves many of the same things, but it takes a little longer and is accomplished in unconventional ways.

I believe that having a child with autism makes me a better parent than I would be otherwise.

It has given me the ability to spot a single flower in a sea of long grass, and more importantly, the power to stop and smell every single flower that I pass on this journey through my kids’ childhoods.

Filed Under: Accomplishments, autism, Children, family, life, Milestones, parenting, Special Moment Tagged With: accomplishments, autism, Bob the Builder, children, drawing, family, George, humour, life, milestones, parenting, Peep And The Big Wide World, pointing, postaday2011, pretend play, scenic route, social communication in child with autism, special moments, special needs