autism Archives - Page 9 of 17 - Running for Autism

10 IEP Survival Tips For Parents Of Children With Autism

October 25, 2011 By Kirsten

If you want an autism parent to break out in an instant sweat, just mention the initials IEP. The Individual Education Plan, which is theoretically in place to help children with autism and their families, can instead be one of the biggest sources of frustration. The IEP process, during which the child’s educational goals for the upcoming year are formulated, is about as much fun as a root canal. It is also just as essential. Without an IEP, our special needs kids would be eaten alive by a school system designed to teach “typical” kids who can do “typical” things.

Putting together an effective IEP requires collaboration between the parents and the school, and differing viewpoints can lead to difficulty. The school views the child as one of a number of students requiring IEP’s. They want to get the job done as quickly and efficiently as they can: the less interaction they have to have with parents, the better. From my experience, teachers like to draw up the IEP, send it home for parental signatures, and be done with it. Parents, of course, view their child as a unique individual. They want their child’s IEP to be given care and consideration. They don’t want a cookie-cutter IEP; they want a plan that reflects their child’s needs. After all, the “I” in IEP stands for “Individual”.

It doesn’t have to this frustrating. There are things parents can do to derive real value from the IEP process. Today I want to share with you some tips that I have learned over the years, both from my own experiences, and from other people who have been through the IEP wringer. If you have tips of your own, please feel free to add them in the comments section.

1. Parents, educate yourselves. Find out the special ed laws in your area. Make sure you know what you as a parent are entitled to request on behalf of your child. Do research on the IEP process. If possible, try to get your hands on the IEP form if you haven’t already seen it. If you know what information the form calls for, you can be better prepared.

2. This is not a battle – or at least, it shouldn’t be. No matter how frustrated you are, avoid approaching your child’s teacher in a confrontational manner. You are not on opposite sides of the table. You are members of the same team, working together for the benefit of your child. If you adopt a collaborative attitude, chances are that the teacher will do the same. At the end of the day, your child will derive a lot more benefit from a cohesive team than from a roomful of bickering people.

3. There is another reason to play nice with your child’s teacher. The special ed community is fairly contained. There is a good possibility that the professional you are dealing with today will crop up in some other role in the special ed world at some point in the future. I’m not suggesting that you give in to what the teacher wants. I’m just saying, be nice. Treat all of the professionals you encounter with respect. Yelling at an uncooperative teacher may get you some short-term results, but it will also burn a bridge that you may need further down the line.

4. Be realistic. Your child’s goals should be formulated with reference to where they are today. A child who has not yet learned how to count to twenty is probably not going to be able to add triple-digit numbers.

5. Instead of requesting goals in absolute terms (“I want my child to be reading by the end of the year”), phrase them as an ongoing process (“The ability to read one- and two-syllable words, with a view to reading simple story-books.”)

6. Remember that kids don’t necessarily do the same things at school that they do at home. My son’s teacher, who is with him for the third year in a row, sent home an IEP draft that included the goal for him to rote-count to 100. I was initially perplexed, because he’s been counting to 100 since he was four, but it came out that this is not a skill he has demonstrated at school. Conversely, he has shown more promise in interactive play at school than he does at home.

7. Don’t be shy about writing comments on your child’s IEP. The IEP form does not allow a lot of space for comments – feel free to break out a separate sheet of paper, write your comments on that, and staple it to the form.

8. As a parent, you have the option to meet with the teacher, or to just add your comments to the IEP and sign it. I strongly recommend that you meet with the teacher. Even if it’s the same teacher for the second or third year, the goals will have evolved, and it can be very difficult to keep things in context without a face-to-face meeting.

9. If the IEP does not include a goal that you feel should be there, be persistent. You may need to compromise on the wording of the goal, but make sure it gets written into the IEP in some form.

10. Remember that the IEP is not cast in concrete. We don’t have crystal balls, and we cannot always say that the plan we come up with in October will still be valid in, say, February. If a strategy or goal that was written into the IEP is not working, talk to your child’s teacher about modifying it.

Filed Under: autism, Education, goals, IEP, School, Special Needs, Teacher Tagged With: autism, education, goals, IEP, plan, postaweek2011, school, teacher

2011 Run For Autism

October 17, 2011 By Kirsten

It is 8:55 on a cool Sunday morning. I am standing on a street in downtown Toronto, with about 15,999 other people. The atmosphere is buzzing with the collective energy of the crowd. As the national anthem, performed live, comes to an end, the crowd breaks into cheers and applause. And then, at 9:00 sharp, a siren sounds and the crowd surges forward as the race begins. This is it. My 2011 Run For Autism, the event that I have been training for all season. As I cross the start line, I am choked up with emotion as I think of the reason I am doing this run. My son George, my boy with autism and tons of love, my inspiration.

When I started training for this race in the Spring, I had a goal to finish in less than two hours. I knew that this would be ambitious: last year, I clocked a time of 2:22:38. Knocking 23 minutes off would be a tall order indeed. But if I formulated a good training plan and then stuck to it, I might just have a shot.

It has been said that life is what happens while we’re making other plans, and that was definitely the case with this season’s training. In the Spring I had a bout of bronchitis that put me out of action for a few weeks. I also had to deal with events like the brief hospitalization of one of my kids and a shoulder injury that sidelined me right in the middle of the season. Not to mention the fact that I got married in April.

Still, I somehow managed to salvage something resembling a training plan about six weeks before the race. I ran a couple of interim races and did OK, and then, right when my training was supposed to be peaking, I caught a nasty cold. I considered running through the cold: conventional wisdom is that it is safe to run as long as all symptoms are above the neck. But I knew from prior experience that running with a cold would slow my recovery and could jeopardize my race. So for once I exercised common sense and rested. Following the advice of my friend Phaedra, who is the kind of runner who wins in her category, I adjusted my training plan and made it to race day more or less in one piece.

It was obvious to me that two hours would not be doable. I considered following the 2:15 pace bunny but when I worked out the average pace that this would require, I realized that I would likely drop further and further back and just waste energy on being stressed. In the end I came up with a goal of 2:20. This struck the perfect balance between being achievable and being challenging.

I started out with the strategy of running the first 5km at an easy pace, without worrying about what my average pace looked like. If I fell behind my target pace, I would have 16km to make up the lost ground. I needn’t have worried: I was running at my goal pace by the 4^th kilometre. I was running tens and ones – meaning that I would run for ten minutes and then take a one-minute walk break. During my ten-minute running stretches, I was getting ahead of my goal pace, and this provided me with enough of a buffer to stay on target during the one-minute walks.

Throughout the run, I was following my Dad’s strategy of “fishing for runners.” It’s a simple but effective strategy: you pick a runner about 200m ahead of you, reel them in by gradually catching up to them, and then run in their slipstream for about 500m before passing them and finding another runner to fish for.

For a while, I worried that I was matching my goal pace too easily. Either my energy would run out long before the distance did, or I had seriously underestimated myself during training. I tried to rein myself in but my body wouldn’t let me. I felt good, and I just had to go at the pace that my legs were dictating. It was only in the 18^th kilometre that I started to feel the exhaustion. By then, I had less than 3km to go. I was faced with a choice: I could let my mind trick me into slowing down and missing my target time, or I could dig deep and just find the energy to keep going.

I chose to dig deep. I thought of my son George. He has to live his entire life with the challenges of autism, I told myself. The least you can do is run for another fifteen minutes.

All of a sudden, I was turning onto Bay Street for the final stretch and I had just 500m to go. Both sides of the street were lined with hundreds – maybe thousands – of spectators. My personalized bib was allowing people to cheer me on by name.

300m to go… I am exhausted and my legs feel like jelly, but I can see the finish line right up ahead of me. The closer I get, the louder the cheering is.

200m to go… a little bit of vanity takes over. I want a good finish line photo, so I start positioning myself in such a way that I will cross the line without being obscured by other runners.

100m to go… someone yells out, “Congratulations, Kirsten!” I raise my hand in acknowledgement and sprint for the finish, just metres away now. As I’m crossing the finish line, I somehow find a smidgeon of energy to raise both arms in the air in a gesture of triumph.

I have done it. I cannot believe that I have done it. I have run this race, beaten my goal time, and set a new personal best time for myself.

2 hours. 19 minutes. And 46 seconds. Every single moment of it dedicated to George.

Filed Under: autism, Race, Race Strategy, running, Running for Autism, Scotiabank Toronto Waterfront Races Tagged With: autism, George, half-marathon, pace, postaweek2011, race, scotiabank toronto waterfront marathon

A World Of Anguish

October 5, 2011 By Kirsten

CRASH!

The entire house seems to shake as my seven-year-old son screams and bangs his head on the hardwood floor. He raises his head to bang it again, but I reach him first. I have no idea what has triggered this meltdown, and right now, I don’t have the time to try and guess.

My son is long and lanky: he is far too big for me to carry, but I have to get him away from the hardwood. Yes, I know what the so-called experts keep saying. When a meltdown happens, you have to ignore it. Paying any attention to him while he’s melting down will reinforce the behaviour.

Yeah, well, while I’m ignoring the meltdown, my child could be giving himself a concussion. This frantic headbanging isn’t anything I haven’t already seen. There are so many dents in my drywall that the inside of my house looks like a giant golf ball.

I half-lift, half-drag my son into the carpeted living room. I grab cushions and blankets – anything soft that’s within my reach – and I pad our immediate surroundings to stop my boy from hurting himself. Using a technique borne of experience, I wrap my arms around him and use my body weight to keep him still, to keep him safe.

While all of this is happening, he is kicking and screaming. They are not screams of anger, but of frustration. They are the screams of a child who is locked inside his own head and cannot find the way out. He looks directly into my eyes, and his expression is one of desperation. I am reminded of a caged animal who wants nothing more than the ability to run free.

As I look at my beautiful child, as I see him in such anguish, I want to cry. I fight back the tears. I have to be strong right now. Later on, when this has passed, I will have my chance to cry.

In my mind, I start talking to Autism as if it were a real person and not merely the name of the condition affecting my son.

“Damn you, Autism. There are times when I don’t mind you so much. There are times when I am completely comfortable with your presence. Hell, sometimes I even like you. But at times like this, Autism, I hate you like you wouldn’t believe because of what you do to my child.”

My son and I lie there on the living floor for what seems like ages. Slowly, so slowly that it’s barely perceptible, the screaming becomes less intense. The weight of my body provides him with the physical pressure he needs to become grounded again. And eventually, the screams stop altogether and I can loosen my hold on him. We curl up on the couch together. The silence is punctuated by an occasional hic.

I look at my child’s angelic face and tenderly smooth my hand over his hair. His eyes are closed and I think he’s gone to sleep. But then he opens his eyes and a special look passes between us, a look that no-one in the world apart from the two of us would ever be able to interpret.

You know what it’s like, he says to me with his eyes. Sometimes you can see into my world.

Yes I can, my eyes say back to him. But it’s only because you trust me enough to let me in.

And secure in the knowledge that he is not alone, he falls asleep in my arms.

This week’s Indie Ink Challenge came from FlamingNyx, who gave me this prompt: Describe “that” look you got in a secret moment of knowing. That look that no-one in the world would understand and can only pass between you and “that” person.
I challenged The Drama Mama with the prompt: Tell the story of a policeman who died in the line of duty, from the point of view of his eight-year-old child.

Filed Under: autism, Empathy, Indie Ink Writing Challenge, life, Meltdown, parenting Tagged With: anguish, autism, meltdown, postaweek2011

Rain In My Running Shoes

October 3, 2011 By Kirsten

I have never been one to let the weather stop me from running. While I prefer clear, cool conditions, I have been known to go out in the rain, wind and snow in order to rack up the miles on my running shoes. From time to time, the seemingly adverse weather conditions have worked to my advantage. It is amazing how refreshing a light shower of rain can be during a long run.

And so, when I woke up yesterday to the pitter-patter of raindrops against the window, I was not deterred. I had a long run planned, and nothing short of a meteor hitting my driveway would stop me. This was to be my last long run before my half-marathon on October 16th, so I really needed to get out there and get it done.

It was cold enough for me to abandon the running shorts in favour of my longer fall-weather running pants. I stuck to the short-sleeved tech shirt, but added a lightweight running jacket. Although the sun was not shining, I wore my hat: the peaked cap is a great way to keep rain out of my eyes. I stocked my fuel belt, cued my music, laced up my shoes, and hit the road for a 20km run.

Sometime during the second kilometre, I became aware that the gentle rain had intensified, and that raindrops were now hitting my face from the side, hard enough to feel like tiny little pellets. By the time I had completed 5km, I was running in a torrential downpour. The wind was buffeting me from side to side and I was wishing that I had brought my gloves. Worst of all, my socks were squelching inside my running shoes. I had to stop twice to pour water out of my shoes.

Still, I soldiered on. People driving by in their cars were looking at me with astonishment, as if to say, “You’re running in this?” I felt validated when, in the fifteenth kilometre or so, I saw a fellow runner braving the elements. It always helps to know that I’m not alone in my running insanity.

After more than two hours of running, I came to a stop in my driveway, having run my allotted 20km. My hands were so cold that I struggled to fish my front door key out of my pouch. Fortunately, my five-year-old son was waiting just inside the door for my return, so he spared me the necessity of actually having to unlock the door myself.

Twenty-four hours later, I am still hurting. My legs are chock-full of lactic acid, and my left ankle is aching. I feel as if I will never walk normally again (I will, of course, be fine by tomorrow).

There are those who wonder why I put myself through this, what possesses me to go out in dreadful weather conditions for the privilege of having sore legs for the next two days.

Part of it is the joy of the sport, the sense of freedom that comes with being out on the open road, the “Runners High”, and the sense of accomplishment when the run has been completed.

Part of it is that I don’t have a naturally fast metabolism like some people, and if I don’t stay active I fall out of shape very quickly. Running is the only form of exercise that really works for me.

The biggest part of it, though, is that I’m doing it for my kids. In two weeks, I am lacing up for my third annual Run for Autism. All funds that I can raise leading up to this event will go straight to the Geneva Centre for Autism, to be used for much-needed services for children and youth with autism.

It is services like the ones provided by the Geneva Centre that have helped my son achieve phenomenal things in the four years since he was diagnosed with autism. In order to see a continuation of the progress, we need a continuation of the funding. This facility really does help people with autism to touch the stars, while also providing support for their siblings and parents.

Ultiimately, I run so that I can do my own small part in making the world a better place for my children. I think that’s a pretty darned good reason to go running in the wind and the rain every now and then.

To sponsor me for my half-marathon, please visit my fundraising page. All sponsorships are being matched by a donor who wishes to remain anomymous, so any funds raised will be doubled!

(Photo credit: http://www.flickr.com/photos/13013135@N00/5879848337. This picture has a creative commons attribution license.)

Filed Under: autism, fundraising, Geneva Centre for Autism, Rain, running, Running for Autism, Weather Tagged With: autism, postaweek2011, rain, running, scotiabank toronto waterfront marathon, training, weather

Reaching For The Rainbow

September 30, 2011 By Kirsten

George admiring the rainbow

Three days ago, I saw a rainbow. It was big and bright, a perfect arched gate in the sky. I was in the company of my husband and my older son George, for whom the world is sometimes a source of wonder, sometimes mystery, sometimes bewilderment.

For George, the rainbow fell into the category of wonder. In his eight years, he has seen other rainbows, but none that stretched all the way across the sky like this one did. He clambered out of the car and hoisted himself onto the seat, grabbing onto the roof rack from the open door. He seemed to be trying to get himself as high up as he could go, as if he wanted to reach out and touch the rainbow.

The magic of the rainbow followed George around for the rest of that day.

In the evening, when it was time for him to go to bed, I tucked him in and, as always, spent a bit of time talking to him, asking him simple questions about his day. These bed-time conversations tend to be a bit one-sided: out of all of George’s autism-related difficulties, poor verbal communication is one of the most troubling. Usually his responses need a lot of prompting. On this particular day, though, he had no trouble at all. When I asked him what he had seen today, he whispered, “Rainbow!” and drifted off to sleep with an angelic smile on his beautiful face.

I sat there for a while watching him sleep. I hoped he was having blissful dreams about rainbows.

Filed Under: autism, Dreams, Rainbow, Wonderment Tagged With: autism, conversation, dreaming, George, postaweek2011, rainbow, sleep

Stupid Or Just Different?

September 23, 2011 By Kirsten

While I was having lunch with some work friends today, we started talking about an incident several years ago in which a kid was mauled by a wolf at a zoo.

What happened was that the child, who was maybe ten, climbed into the wolf enclosure. The leader of the pack, understandably upset about the invasion to his territory, attacked the child. The child suffered serious injuries, and the family had to fork out thousands of dollars for expensive medical procedures.

The family was desperate to recoup some of their expenses, so they filed a lawsuit against the zoo. They claimed that the zoo was responsible for the injuries suffered by the child. None of us could remember the outcome of the case.

As we discussed this story today, several opinions emerged around the table. The person who raised the topic believes that it was ridiculous for the parents to sue the zoo. After all, if your child climbs into an enclosure occupied by wild animals, what do you think is going to happen?

I pointed out that if it was so easy for the child to get into the enclosure, maybe the zoo was responsible. There clearly were not enough safeguards in place to prevent the incident. I mean, zoos are full of kids, and kids are not exactly predictable in their actions.

The guy seated to my left had an opinion of his own: the zoo would have been entitled to sue the family because the child was so stupid.

This remark offended me more than a little, and I think my lunch companions were a bit taken aback with the intensity of my reaction.

Here’s the thing. My older son George – the one who has autism – is streets away from being like a typical kid. He does not respond to things the way other kids do. He has his own special blend of needs, wants, perceptions and anxieties. He has a view of the world that the rest of us do not necessarily understand. And because of the way he is, because of his autism, he sometimes behaves in a way that would be widely regarded as counterintuitive. He will do things that do not make sense. Only they do make sense. Just because his actions do not always make sense to anyone else, we have to respect the fact that they make sense to him.

I have fairly very through-the-roof strong feelings about the idea of anyone daring to refer to my child as “stupid” just because he doesn’t do things the way other kids would do them.

I am not necessarily saying that George would climb into a den of wolves, but I can understand how a kid with autism could look at the wolves and see dogs. I can get how that kid’s mind could tell him that these “dogs” are no different from the friendly dog at his grandma’s house. And I am totally see how a child with autism may not have the sense of danger that other people do. He may not read the cues of bared fangs and growls.

All I am saying is that it is wrong to assume that a child is stupid just because he does something that most people wouldn’t do. You never know what is going on with the child or his family. There could be a lot more to it than meets the eye.

What are your thoughts on this? Is it ever OK to label a child as “stupid” on the basis of actions that are undeniably unwise? Is my outrage at my co-worker’s remark justified?

(Photo credit: http://www.flickr.com/photos/ell-r-brown/4691235153. This picture has a creative commons attribution license.)

Filed Under: Animals, autism, Children, Stupid, Thinking Differently Tagged With: assumptions, autism, children, postaweek2011, seeing the world differently, stupid, wolves, zoo

Autism Meltdowns: Six Strategies For Helping Siblings

September 10, 2011 By Kirsten

It is a scenario that parents of children with autism are confronted with countless times: the child melts down for no apparent reason while his or her brother or sister stands by helplessly, not understanding what is going on. Autism meltdowns can be particularly bewildering for younger siblings who may not fully understand what autism is or why the meltdown is happening.

The strategies that I am describing today are based purely on my own experiences. I did not read them on the Internet or get them from any parenting books. I learned these in the best way possible: from the School of Hard Knocks.

1. When a child with autism starts having a meltdown, the primary concern should be for everyone’s physical safety. The child is going to lash out wildly, hitting or kicking whatever or whoever he comes into contact with. He may run around with no real direction and bang his head on objects or people. Children going through an autism meltdown seem to have superhuman strength, and there could be a real threat to siblings who are standing too close. Therefore it is imperative to ensure the safety of the siblings as early as possible in the incident. This can be accomplished by taking them to a different room and making sure they have enough toys or books to see them through for what could be a couple of hours.

2. Siblings should never be punished while a meltdown is happening. This may seem intuitive, but it can be really easy to fall into the trap of yelling at siblings who happen to get too close while the parent is trying to deal with the autistic child. We are, after all, only human. If a child wanders up during a critical moment, we can have a knee-jerk reaction to yell, “Get away!” or “Go to your room!” Doing this may make the sibling feel that he is somehow responsible, and that is not a burden any child should carry. A better strategy would be to ask the child to leave the room, promising that you will go to them as soon as their brother or sister is OK.

3. Recognize that the siblings are not only bewildered and confused by what is happening, they are also in all probability deeply concerned about their brother or sister. In the scenario described above, where the sibling is getting too close, it may be helpful to verbally acknowledge this. Tell the sibling that you know how scary this is for them, that you know they are worried. This simple strategy will validate their feelings and give them permission to feel the way they feel, and it can go a long way to helping them weather the storm.

4. When the meltdown is over, take the time to explain to the siblings what just happened. Talk to them about autism and how children affected by it sometimes have difficulty processing emotions or sensory overload. It is fairly common for siblings to start apologizing in the aftermath, worrying that something they did caused the explosion. They have to be reassured that this was not their fault.

5. More often than not, the sibling is going to need some post-meltdown reassurance that their brother or sister is OK. Bear in mind that they have just been witnesses to an extremely intense melting pot of emotion. They may want to see or talk to their brother or sister. Exercise caution, because meltdowns that have passed can flare up again, but is important for you allow (but not force) interaction between your children.

6. Reserve some time to spend exclusively with your autistic child’s sibling. It can be tough, being brother or sister to a child with autism. There are many times when the needs of the typically developing children are sidelined because of the special needs of their sibling. Meltdowns definitely fall into this category. Because of the nature of these explosions, parents have no choice but to mostly ignore one child so they can focus on the safety of another. When the meltdown is over – be it immediately or later in the day – that time should be given back to the sibling without autism. Read to your child, watch his favourite DVD with him, let him choose a game to play, or simply spend time snuggling with him.

Managing meltdowns involves so much more than taking care of the child with autism. We have to consider our typically developing children as well. Even though they don’t have autism, they are still children, and they look to us to protect and reassure them. Using these strategies consistently can help them develop their coping skills and enhance their relationship with their autistic brother or sister.

Do you have any tips to add to my list? Please leave them in the comments!

(Photo credit: http://www.flickr.com/photos/nicolesfromtheheart/4290444513. This picture has a creative commons attribution license.)

Filed Under: autism, Meltdown, parenting, Siblings Tagged With: autism, coping skills, meltdown, parenting, postaweek2011, reassurance, safety, sibling, weathering the storm

The Angst Of Back-To-School Shopping

September 6, 2011 By Kirsten

I’m a last-minute shopping kind of girl. Despite my annual promises to the contrary, I am still running around doing Christmas shopping at noon on Christmas Eve. While my husband greets family members as they arrive for our annual Christmas Eve dinner, I am upstairs frantically wrapping presents.

When it’s back-to-school time, I put myself through a variation of the same thing. It would make far too much sense to get the necessary shopping done early in the summer, when the stores are less crowded and the people are less manic. But instead, there I am, the day before Labour Day, scrambling to get shoes and backpacks for the kids. The only reason I don’t do my shopping on Labour Day itself is that nothing is open.

You’d think I’d know better. You’d think that I, special needs Mom, would take reasonable endeavours not to expose my autistic son to last-minute crowds of frenzied children and their equally frenzied parents.

But no. Try as I might, I just cannot seem to get myself into the stores until I absolutely have to. Either I have some kind of illness or I thrive on the pressure of last-minute shopping.

It therefore comes as no surprise that I found myself and my two boys in a shoe store on Sunday afternoon, along with every other family in the Greater Toronto Area. The kids’ feet were measured without incident, and then we started browsing the aisles for shoes that would fit them.

I started with George, just because the display of shoes his size happened to be right where we were standing. Initially, I had trouble distracting him from the girls’ display, where he had seen shoes with castles on them. Once I got him looking in the right direction, he picked out a pair of shoes that he wanted to try on. He put them on, and then, in a moment of verbal clarity that was utterly astonishing, he said, “The shoes are too small.”

While internally celebrating the fact that he had clearly verbalized a problem instead of simply melting down, I found the same shoes in the next size up. They fit, and George was happy.

While all of this was going on, James was walking down the aisle, removing shoes from their boxes and leaving them on the floor. My stern warning looks morphed into verbal reprimands that gradually increased in intensity and desperation. James’ innocent explanations that he was “just looking” did nothing to dissipate the cloud of dark thunder that was slowly but surely gathering above my head.

I succeeded in getting him to stop and put all of the shoes back in their boxes by threatening to take away his Bumblebee Car. He did, of course, cry and loudly declare me to be a Mean Mommy, but there you go. Sometimes a Mom’s gotta do what a Mom’s gotta do.

James ceased and desisted from crying when I told him it was his turn to pick out shoes. All of a sudden, I was the best mommy ever and he loved me “all the way up to space”. The Plight Of The Bumblebee was forgotten.

As we waded through masses of squiggly kids, I held firmly onto George’s hand. He was not having a meltdown, but he was visibly restless, and I could tell that he was itching to make a dash for it.

James picked out a pair of Lightning McQueen shoes and tried them on. I let go of George for a moment to help James with the Velcro strap, and just like that, George had taken off at the speed of light. Yelling at an assistant to keep an eye on James, I took off after my firstborn, dodging and leaping acrobatically over children. I flew after George into the stockroom as startled assistants looked up from their stockroom tasks. I finally caught up with him at the end of the stockroom. He only knocked down two large piles of shoeboxes. I crouched down and started picking up the shoes, but a kindly man with an Irish accent waved away my efforts and said he would take care of it. I apologized for the extra work we had caused, and he gently said, “Looks like you’re the one with the work, love”. He added that I should go and get myself a lovely cup of tea.

He was a nice, nice man.

Fortunately, James was sitting exactly where I had left him, and the Lightning McQueen shoes met with his approval. We paid for our purchases and left.

Calm gradually returned, and later that night, I took the advice of the kindly Irishman. Except instead of tea, I had wine.

Next year, I will do my back-to-school shopping at the beginning of summer.

(Photo credit: http://www.flickr.com/photos/8136496@N05/3900289380/. This picture has a creative commons attribution license.)

Filed Under: autism, back-to-school, Children, School, Shoes, Shopping Tagged With: autism, back to school, children, crowds, last-minute shopping, postaweek2011, shoes, shopping

Autism: Running To A Better Future

September 4, 2011 By Kirsten

Running in the 2010 event - I want this one to be even better!

Six weeks to go…

As of today, I have precisely six weeks to do two things: first, to get myself into good enough physical shape to put in a half-decent showing at a half-marathon, and second, to raise a thousand bucks.

On October 16th, I will be participating in my third annual Run For Autism. I am joining the Charity Challenge at the Scotiabank Toronto Waterfront Marathon/Half-Marathon/5K. I will be running the half-marathon, any funds I can raise in sponsorships or donations will go directly to the Geneva Centre for Autism.

My stated goal on my fundraising page is $500, but I am really hoping to raise at least $1000.

There’s just one problem: I’m not really pushy enough to be a good fundraiser. I suffer from social anxiety, and I have a hard enough time talking to people about things in general. When I have the added pressure of asking for money, that makes things so much harder. So usually I send out fundraising emails to people who I think might be receptive to the idea of forking out a few dollars. While my fundraising efforts have, in the past, had reasonable enough results, I cannot help thinking that I would be better at this if I was just a different kind of person.

This year, I am trying to be more ~~pushy~~ assertive about making my sponsorship requests. I have sent out my fundraising email to people I actually know, and now I am appealing to you, the general Internet public, to consider sponsoring me for this run.

I would appreciate, and so would the children and youth with autism who would benefit from expanded services – services that can be a crucial part in helping people with autism become integral, economically active parts of their communities.

My son George, who is almost eight, would appreciate it. He has an entire future ahead of him, and the quality of that future could have a lot to do with the services he has access to now.

To sponsor me, please visit my fundraising page.

(That wasn’t too pushy, was it?)

(Photo credit to the author)

Filed Under: Asking for Money, autism, fundraising, running, Running for Autism, Scotiabank Toronto Waterfront Races, Sponsorship Tagged With: autism, fundraising, geneva centre, George, half-marathon, postaweek2011, running, running for autism, scotiabank toronto waterfront marathon, sponsorship

Autism Meltdown: Surviving The Storm

August 24, 2011 By Kirsten

It all started when I turned on the light in the kitchen. My almost-eight-year-old son George sidled up to me and, as usual, said, “Turn off the light soon.”

George hates the overhead light in the kitchen, and whenever it is turned on, he glues himself to my side and repeatedly tells me to turn it off, like a stuck record. I am so used to this that I barely notice it anymore. I just carry on with whatever I need to do, which last night included unpacking and reloading the dishwasher.

Uh oh. The dishwasher. This is another source of extreme discomfort for George. He gets very anxious when it is open, and like a record stuck on a different track, he tells me over and over again to “put it back soon”.

This – the combination of the light and the dishwasher – was a precursor to the explosion that would happen later in the evening.

I was probably not helping, at least, not at that point. I was in an agitated state of mind, having just come home from a stressful workday. I was multitasking too much, juggling about six tasks simultaneously, and getting stressed because neither of the kids would eat their dinner. I was frazzled and fraught. There is no other way to put it.

The explosion gradually built up throughout the evening, and finally erupted when George turned on the kitchen tap and found the water hotter than he expected. He screamed in outrage and started running around in a panic. I caught him, and using an expertise borne of experience, I used my body to restrain him from thrashing around and hurting himself.

I determined that he was not burned or injured, and sat there wrapped around him while he screamed. And screamed and screamed.

It has been a while since George had a meltdown this bad, but I knew that there was not a thing I could do to diffuse it. This was going to last for as long as it lasted, and we were just going to have to ride it out. Fortunately, my husband was home, so I had someone to tag-team with. One of us would stay with George, while the other would comfort our younger son James, for whom these meltdowns can be mysterious and frightening. Every thirty minutes or so, we would switch kids. Anything else that either of us had planned for the evening was abandoned.

After two hours or so, George finally started winding down. My husband and I cautiously allowed ourselves to breathe. He went back to the work he had been doing on his computer, and I went into the kitchen and made a cup of tea. I got the kids into their pajamas and gave them their bedtime milk. Because they were both still unsettled, I allowed them to chill out on the couch for a while before going to bed.

The period of relative calm turned out to be the eye of the storm.

The dishwasher had been running in the background without anyone paying attention to it. George, with his super-sensitive ears, heard the quiet click that heralds the end of the dishwasher’s cycle, and just like that, he was off again. For another hour, this poor child was experiencing an emotional storm that I felt ill-equipped to help him weather.

The worst part of all this was not the screaming. It was not the panicked running around and frantic scrabbling with the dishwasher. The worst thing by far was the look in George’s eyes. He kept looking directly at me, trying desperately to communicate – something. If the eyes are indeed the window to the soul, then my son’s soul was frustrated, unspeakably sad, desperate – almost tortured. It broke my heart to see him that way, to see him in such obvious pain and to be unable to help him.

Much later, when everything was finally quiet and when the entire household (sans me) was asleep, the question of why kept running through my mind. What happened to trigger the worst meltdown we’ve seen in about a year? Could the light and the dishwasher have suddenly morphed from a source of anxiety to a source of full-on panic? Was the hot water just too much for him to handle? If I had not been stressed and agitated, would the situation have escalated to such an extreme degree? In an interesting theory offered by my mother – one that resonates with me – could yesterday’s earthquake have unsettled George and made him more susceptible to stress?

As with most things autism-related, there are no definitive answers. Every question just spawns more questions. All I can really do is go with my instincts and strive to be the best mom I can be.

(Photo credit: http://www.flickr.com/photos/powazny/3782692376/. This picture has a creative commons attribution license.)

Filed Under: anxiety, autism, Meltdown, parenting, Special Needs Tagged With: anxiety, autism, explosion, George, meltdown, parenting, postaweek2011, special needs