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Merry Christmas And Happy Birthday

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Once upon a time, on Christmas Day, a child was born.

No, this is not a story about Jesus. Apparently, historians haven’t been able to determine exactly when Jesus was born. We just celebrate his birth on Christmas Day because it was a popular day for pagan celebrations.

The baby in my story, who was actually born on Christmas Day, is none other than my younger son James. After keeping me waiting for more than a week past his due date, he came flying out like a cannonball eight Christmases ago, and he hasn’t stopped since. Maybe he can’t walk on water or turn water into wine, but he has definitely added a special kind of energy and excitement to my life.

He has also made birthday celebrations a little challenging, simply because of the day on which he chose to make his very loud arrival. On the one hand, we feel that we need to separate his birthday from Christmas, so that his birthday can get the attention it deserves. On the other hand, we want to celebrate his birthday on the actual day of his birthday.

Over the years, we’ve gotten better and better at this birthday-on-Christmas thing. We divide Christmas Day in half and do Christmas stuff in the morning. Then we have lunch, and from that point the rest of the day is devoted to James’s birthday. We give him birthday presents and have cake, just the four of us.

The full-on birthday parties that include James’s friends have, until now, happened in early December. This year, I decided to change the formula and have the party in January, after the actual birthday. And that is how, three days ago, I had a house full of energetic boys.

The party was a resounding success. For most things, I took the easy way out: pizza and chips for lunch, and disposable dishes so I wouldn’t have to spend all night washing up. I invited the kids’ respite worker – a 17-year-old boy who the kids absolutely adore – to come and run the activities. I got a pinata and some prizes, and goodie bags for all of the guests.

As I do every year, I worked very hard on the cake. For both of the boys, I do theme cakes based on whatever they are into. George has had Bob the Builder, Mr. Potato Head and Spongebob Squarepants. James has had Thomas the Train, Lightning McQueen and Ben Ten. This time round, it was a Beyblade cake. I was up until midnight the night before the party, mixing icing of different colours and meticulously drawing out the design on the cake. I looked like a mad scientist, with my hair all wild and bowls of red and blue and grey icing surrounding me.

The end result was pretty much what you would expect from someone who knows squat about decorating cakes, but I was pleased with it. More important, James’s face lit up in delight when he saw it, and his friends were saying Oooooooooh! and Cool! The cake was clearly and instantly recognisable as a Beyblade cake, and that was really all that mattered to me.

That and the fact that the kids had an amazing time. We had just the right number of kids, and the activities flowed at just the right pace. Even George, whose autism frequently makes him retreat from things like this, was happy to be among all of the kids, even if he didn’t actively participate in a lot of the proceedings.

The birthday boy was happy, and he felt that he got the birthday he deserved.

This is an original post by Kirsten Doyle. Photo credit to the author.

 

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10 Things I’ve Learned As An Autism Parent

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My son George was diagnosed with autism six years ago, almost to the day. Most of what I’ve learned about autism since then has come not from books and websites, but from my own day-to-day life as a special needs parent. Here are some of the more surprising things I have learned over the last six years.

1. I do, in fact, have the patience to be a good special needs mom. No-one would ever have thought so when I was a child. Just ask any of the dolls that I used to have guardianship of.

2. Kids with autism often develop unique problem-solving skills, and I think this is borne from sheer perverse bloody-mindedness. If my kid with autism wants something, my kid with autism will figure out how to get it, in the face of all possible obstacles. Eventually, it becomes more about the principle than about the object. Things like locked doors and passwords are seen by my son as temporary roadblocks, not as actual barriers.

3. Corollary to #2: In my house, there is no such thing as a “safe place to keep stuff.”

4. Hell hath no fury like a child with autism who loses his hat. None of the six identical hats in your closet will do. You’ll just have to turn your house upside down and inside out until you find that hat.

5. If a child with autism gets a urinary tract infection that requires him to provide a urine sample, he will think that he now has to pee in a cup every time. You will have to watch him closely to make sure he doesn’t take any of your coffee mugs or measuring jugs into the bathroom with him.

6. Mr. Potato Head rules forever. We have just started our third jumbo-sized Rubbermaid tub of Mr. Potato Head stuff. When George is 45, he will be in the Guinness Book of World Records for having the biggest collection of Mr. Potato Heads. If he continues with his current trend, he will have about 6000 of them by then.

7. A child with autism can become the household’s unofficial tech support person from the time he or she is three. That was the age at which George literally elbowed me out of the way with an impatient click of his tongue, in order to effortlessly fix the DVD player that I had been struggling with for forty minutes.

8. Having a child with autism is like having a living, breathing GPS that knows the location of every single Tim Hortons coffee shop in a 75-mile radius.

9. Boys with autism are, above and beyond all else, boys. A couple of weeks ago, my almost non-verbal child said to me, “I spy with my little eye something that’s a white bra.” He then lifted up my shirt to peek at my bra and ran away giggling.

10. It is possible for a nine-year-old boy to sit on a can of apple juice.

(Photo credit: Kirsten Doyle)

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My Husband Doesn’t Believe Me

Being a mom is very hard work, especially when you add autism into the mix. While it is more rewarding than anything else in the world, it is also exhausting and overwhelming. At times we special needs moms feel isolated from “real” life, misunderstood by friends and family members, and under-appreciated by our spouses.

Very often, it seems as if we have to carry the full load by ourselves. We are the ones who make sure the laundry is done and the dishwasher is packed. We supervise homework and get the kids to bed at a reasonable hour – at least, we try to. When a child has a sensory-induced meltdown, we are there to catch the fall-out. Many of us also have jobs that involve lengthy commutes, and most of us will sometimes pretend we need to use the bathroom just to get a couple of minutes to ourselves.

I would venture to say that at some point in time, all special needs moms – and possibly all moms in general – feel as if our husbands just don’t get it. They don’t understand how hard it is for us or how overwhelmed we feel. They get confused when we say we are lonely, because they don’t realize that our lack of a circle of friends is not a matter of choice. And sometimes, they are absolutely baffled by the resentment we express when we work ourselves to the bone until late every night while they sit on the couch watching TV.

I am generalizing, of course. There are plenty of men who are not lazy, self-centred and disinterested, just as there are plenty of women who are. Most dads do step up to do the parenting thing, and they do it well. They at least try to be supportive of their partners, even if they don’t always “get” it. I know some of these men. Hell, I’m married to one of them. Even on days when things are less than perfect – you know, those days when I complain about how hard my life is – I am grateful to have a husband who loves and supports me and is Dad to his kids in the ways that really matter. In fact, my husband doesn’t believe me when I tell him about things that some other dads either do or fail to do.

I belong to an Internet support group for parents of children with autism. The vast majority of members are moms, but there is a sprinkling of dads. A thread that’s going on in the group now makes me reflect on how lucky I really am.

You see, parenting a child with autism goes beyond the usual tasks of providing nutritious meals and ensuring that clothes are clean. You have to do things that you wouldn’t have to do for typical children, like teaching basic living skills that other kids naturally pick up from environmental cues. For example, I’ve never had to teach the toothbrushing routine to my younger son, who does not have autism. But for my older son, who does have autism, I have visuals set up and I have to give him verbal prompts throughout. And still, he requires a certain amount of hand-on-hand assistance for this task.

Where boys are concerned, there are certain life skills that it’s far easier for Dad to teach than Mom. Shaving facial hair being one. Aiming properly while peeing standing up being another. Women don’t have the need for one or the equipment for the other.

One of the dads in my Internet group posted a message several days ago offering tips for teaching a boy how not to pee all over the bathroom. Some of the advice was based on the notion of the boy’s father teaching by example. A mom in the group responded to the message by saying that her husband refused to teach their son this particular skill. Her response generated a number of other messages from moms in a similar boat.

Seriously? A father cannot take the time or trouble to teach his son such a fundamental skill? Yes, teaching stuff relating to bodily functions can be less than pleasant, and yes, this kind of thing does come with a certain lack of privacy. But these are our kids, and if we don’t teach them this stuff, who will?

I’m not saying that the dads I am referring to are bad fathers. You don’t have to teach your son how to pee properly in order to be a good dad. I’m just suggesting that it is perhaps a short-sighted approach, and that sometimes we just have to put the needs of our kids over and above our own sense of discomfort. The discomfort is temporary, while the skill learned will last forever.

There are times, of course, when male input is not available. Single moms, or those whose husbands are too incapacitated to help out, make a plan to teach their kids whatever skills are needed.

But dads, if you are present and physically able, please help teach your sons the stuff that dads can teach best. You will give your boys essential skills that will stand them in good stead for the rest of your lives, and the mothers of your children will be that much less frazzled and stressed. Who knows? It could even lead to you and your partner having more quality time to spend together.

And in a world that is high on pressure and low on time, that can only be a good thing.