post

Toy Story: The Autism Family Version

February 4, 2011 By

Last night, my younger son James bravely waded through the treacherous sea of toys in our living room. When he reached the corner he started digging in toyboxes and didn’t stop until he had unearthed this car ramp toy. You use this toy by driving your toy car into this little elevator, which you then raise up until the car is on the flat roof. You can then push the car around on the roof, or send it rolling down one of the two ramps. For a kid obsessed with Lightning McQueen and Doc Hudson (raise your hand if you recognize the references) this toy is like a slice of heaven.

James took the toy to an unoccupied space on the living room floor (i.e. a spot where he wasn’t knee-deep in other toys) and started playing with it. He was having a wonderful time. Lightning and Doc were racing down the ramps, Mater was driving backwards on the roof, and the Dinoco helicopter was flying overhead. It was all very exciting.

The peace was shattered when George came into the room and saw that the toy had been moved. George doesn’t like it when things are moved. He gets anxious, he starts shrieking and insisting that the item be put back. And so all hell broke loose.

George was grabbing at James’ toy, I was grabbing at George and telling him that James has to be allowed to move his own things around, and poor James was crying because of the sudden chaos. My husband succeeded in arm-wrestling George to a different room, where he tried to engage him in distracting activities. I stayed with James and played with him, but the sparkle had gone. James played half-heartedly while listening to George’s cries coming from a different part of the house.

James gave up on his play and said to me, “Mommy, George can put the toy back if he wants. I love him and I don’t want him to be sad.” He ran out of the room and relayed the message to his Dad. Gerard brought George back in, and George put the toy back in its place with James watching. James kept on telling me that this was what he wanted, but he wasn’t fooling me. I could see the sadness and disappointment in his eyes.

How amazing is this child? Despite my best efforts to equalize things, James does on numerous occasions get the short end of the stick because of George’s autism. And yet he is so brave, so giving and caring. He shows a maturity and wisdom that, while touching me to my very soul, makes me feel really sad. Not to mention the fact that it makes me explode with pride at the caring, sharing person my child is growing up to be.

He’s only five, but in some ways he misses out on being like a regular five-year-old. I want James to be able to play with his toys. I want him to be able to race his cars down that ramp, and I want George to be OK and anxiety-free about it.

I want both of my boys to be happy, and I find it so hard sometimes when one of them is happy at the expense of the other one.

What a tricky balancing act.

Filed Under: Children, Play Tagged With: , , , , , , , , ,
post

The Parent Who Disappointed

January 31, 2011 By

This weekend I had the dubious distinction of being The Parent Who Disappoints.  It’s not a nice feeling, I tell ya.  In fact, it’s downright awful.  I feel like someone’s reached down into my throat and twisted my heart around when I see my five-year-old son standing in front of me with fat tears rolling down his cheeks because of something I’ve done.  Or in this case, failed to do.

James was supposed to go to a birthday party on Saturday afternoon.  The party was being held for a little girl who goes to school and daycare with him.  She is a really, really lovely child with equally lovely parents.  James was excited about going to the party, but the catch was that I would have had to stay at the party with him. He’s not ready to be left without either of his parents at an unfamiliar house (and frankly, I’m not ready for it either).

It’s not that I mind staying at these parties.  In fact, I kind of enjoy sitting there chatting with the other parents while our kids run around and play.

On Saturday, though, I was sick. I was streaming with a cold, using up Kleenexes at the speed of sound, inhaling cough drops like they were Smarties, and feeling as if my head was about to explode.  And by Saturday afternoon I had started developing pink-eye, and my eyes were oozing in a very unsavoury manner.

Would you have wanted me hanging out in a house full of moms and kids in that condition? Would you have even wanted me driving in that condition, with my eyes pretty much sealed shut with gunk?

Gerard was not able to go, because he had an appointment with a client at work.

Gerard’s mom, the only other possible candidate, was at a funeral.

It fell to me, in my sick, dreary state, to break the news to James that I would not be able to take him to the party. James was not angry, and he did not throw a tantrum.  He just started weeping in a very, very sad way.

Now, in addition to being as sick as a dog, I felt like a piece of crap parent. I felt so sad for my little guy that I started to weep myself.

Just in case you were wondering: crying when you have pink-eye is not a good idea.

I apologized over and over to James.  I explained to him the dual problems of putting everyone at risk of illness and not actually being fit to drive.  Later, he assured me that he understood and that he didn’t hate me.  But still.  I felt horrible for disappointing my baby.

I asked him what I could do to make it up to him, and he said he’d like a birthday party of his own.  This works for me – I have plans to throw him a party anyway – but his answer has prompted me to step it up a notch, to make a supreme effort to provide him with a special day. He wants to have his party at an indoor playground, and he wants a Lightning McQueen cake.  I’ll provide him with a Lightning McQueen cake if I have to go all the way to Radiator Springs to get it.

James misses out on a lot. It must be tough for him, being the brother of a child with autism, and the son of a Mom who gets sick at just the wrong time.

The least I can do is give him a day that he can call his own, where he will be the centre of attention.

Filed Under: parenting, postaday2011 Tagged With: , , , , , , , , , ,
post

The Parent Who Disappointed

January 31, 2011 By

This weekend I had the dubious distinction of being The Parent Who Disappoints.  It’s not a nice feeling, I tell ya.  In fact, it’s downright awful.  I feel like someone’s reached down into my throat and twisted my heart around when I see my five-year-old son standing in front of me with fat tears rolling down his cheeks because of something I’ve done.  Or in this case, failed to do.

James was supposed to go to a birthday party on Saturday afternoon.  The party was being held for a little girl who goes to school and daycare with him.  She is a really, really lovely child with equally lovely parents.  James was excited about going to the party, but the catch was that I would have had to stay at the party with him. He’s not ready to be left without either of his parents at an unfamiliar house (and frankly, I’m not ready for it either).

It’s not that I mind staying at these parties.  In fact, I kind of enjoy sitting there chatting with the other parents while our kids run around and play.

On Saturday, though, I was sick. I was streaming with a cold, using up Kleenexes at the speed of sound, inhaling cough drops like they were Smarties, and feeling as if my head was about to explode.  And by Saturday afternoon I had started developing pink-eye, and my eyes were oozing in a very unsavoury manner.

Would you have wanted me hanging out in a house full of moms and kids in that condition? Would you have even wanted me driving in that condition, with my eyes pretty much sealed shut with gunk?

Gerard was not able to go, because he had an appointment with a client at work.

Gerard’s mom, the only other possible candidate, was at a funeral.

It fell to me, in my sick, dreary state, to break the news to James that I would not be able to take him to the party. James was not angry, and he did not throw a tantrum.  He just started weeping in a very, very sad way.

Now, in addition to being as sick as a dog, I felt like a piece of crap parent. I felt so sad for my little guy that I started to weep myself.

Just in case you were wondering: crying when you have pink-eye is not a good idea.

I apologized over and over to James.  I explained to him the dual problems of putting everyone at risk of illness and not actually being fit to drive.  Later, he assured me that he understood and that he didn’t hate me.  But still.  I felt horrible for disappointing my baby.

I asked him what I could do to make it up to him, and he said he’d like a birthday party of his own.  This works for me – I have plans to throw him a party anyway – but his answer has prompted me to step it up a notch, to make a supreme effort to provide him with a special day. He wants to have his party at an indoor playground, and he wants a Lightning McQueen cake.  I’ll provide him with a Lightning McQueen cake if I have to go all the way to Radiator Springs to get it.

James misses out on a lot. It must be tough for him, being the brother of a child with autism, and the son of a Mom who gets sick at just the wrong time.

The least I can do is give him a day that he can call his own, where he will be the centre of attention.

Filed Under: parenting, postaday2011 Tagged With: , , , , , , , , , ,
post

How Organization Creates Chaos

January 28, 2011 By

This morning I took my Christmas decorations down.  Yes, I know that it is January 28th, and that the 12th day after Christmas passed some time ago.  I have a history of being very last-minute where this kind of thing is concerned, and this laziness is, in fact, the reason we have an artificial Christmas tree.

When you have a real Christmas tree dropping dead pine needles and crap all over your carpet until February, things can get very messy.

The thing is, it’s always a bit of a hassle, not only to take the decorations down, but to put them up in the first place.  You have to dig out boxes that are buried under eleven months’ worth of crap in the storage room, then you have to clear a space for the Christmas tree and figure out how to make your home look festive without being tacky.  Let’s face it, I ain’t Martha Stewart.  I always envy those people who can casually throw a rug over a sofa and make it look like a designer item.  I can spend an hour arranging the rug on the sofa and it will still look like the results of the room throwing up.

Taking the decorations down is worse.  I mean, when do you get the time?  You’re so busy trying to recover – and get your kids to recover – from the remnants of the Christmas season.  You’re trying to catch up on work that’s fallen behind because no-one was at work.  You’re trying to figure out how the kids’ new toys work so you can show them, and you’re trying to figure out where the hell to put all of this new stuff.  With all of this going on, it’s no wonder my Christmas decorations stay up for so long.

This year, I have had an extra excuse, and its name is Autism.  You see, George’s autism hasn’t really affected the comings and goings of the Christmas decorations before, because George has always been pretty cool about things changing.  I always used to think that for a kid with autism, he was pretty adaptable.

That has all changed.

About six months ago, a fear of routine changes reared its ugly head. Now, understand that I’m not just talking about a dislike for or a resistance to change.  I’m talking about actual anxiety fear near-panic that sometimes gets intense enough to make George throw up. We had such an incident recently involving a mirror, and in that case, Gerard and I felt that the best thing would be to restore the mirror to its rightful place to ease George’s anxiety.

So today I took the day off work, with the intention of making a few changes while George wasn’t around.  They were necessary changes that included taking down the Christmas decorations and getting my scary mess of a desk organized (cluttered physical space translates to cluttered mental space and all that).  The kids went off to school, I took a brief moment to relax, and then I started working.  I got the Christmas decorations down and put away, and then I had a major decluttering session.  All of the boxes that were under my desk are now stored more appropriately, meaning there’s room to put my feet.  My filing cabinet has been rearranged, so my files are actually in the cabinet instead of in a broken plastic container on the corner of my desk, which now boasts two stacking trays instead – one for incoming mail, and one for the kids’ homework and school forms and stuff.

When George came home from school, World War III broke out.

First it was the Christmas tree.  Kiddo was insistent on the restoration of the Christmas decorations, and went so far as to start dragging boxes of decorations out of the storage room.  I firmly took said boxes from him and put them back.  He kept mentioning the Christmas tree, but I don’t think it took him long to realize that he wasn’t getting his way with this one.

My desk proved to be the bigger issue.  The broken plastic box that I had discarded?  George wanted it back.  George wanted it back so badly that he was almost panicking.  The poor boy was looking directly into my eyes – something that he only does when he’s feeling emotionally distressed and is desperate to impart a message to me.  Those eyes, those eyes… They had such pain and fear in them.  They were brimming with tears as George begged me to put the box back onto my desk.

I had to say no.  I’m always one to pick my battles with George.  If it doesn’t matter, I don’t make an issue of it.  I let George get his way from time to time.  But sometimes the battle does matter, and this is one of them.  I need for my home office to be organized.  I always have so much to do, so much admin to keep on top of.  The way I was going, I was paying bills late for no reason other than the fact that the papers were getting buried.  I had to arrange things so that I could keep up with everything.  This is definitely a battle I needed to win.

I felt so conflicted, though.  My friend Amy went through the heartbreak of burying her child yesterday, and here I was, with my child alive and well, and I was allowing him to be sad and fearful and distressed.  What kind of mother was I being?

Even with this conflict going on, though, I knew that I was right.  I knew that this was a storm I would just have to weather.  I needed to rearrange things on my desk, and George needed to see that things could change and he would still be safe.

The storm appears to be over – at least for now.  George was upset for a long time, but gradually calmed down.  He started walking around without looking suspiciously at my desk out of the corner of his eye, and he started jumping on the trampoline, making the kinds of sounds he makes when he’s happy and settled.  When he said, “Charlie is a girl” (with reference to Charlie the Unicorn), I knew that he was OK.

Sighs of relief all round.

At least for now.

Filed Under: autism, Christmas, postaday2011 Tagged With: , , , , , , , , , , , ,
post

Being Sick Is Crap

January 26, 2011 By

I have a confession to make: I’m not a nice sick person.  Some people take being sick in their stride.  They get their blankets and their cups of tea, and they curl up on the couch and enjoy the opportunity to watch a bit of guilt-free television.  I turn into a pathetic cry-baby and start whining about the fact that I can’t go for a run.

I have a thing about needing control over my body, and in this respect I’m probably no different from anyone else.   Where I might differ, however, is in the level of anxiety I feel when my body lets me down.  I don’t like the fact that I am always overwhelmed by all of the stuff I have to do on a daily basis, but I need to know that I can.  If I am not able to get up in the morning, go for a run, go to work, and do everything associated with parenting my kids, I get very stressed and anxious, almost afraid.  I don’t like the feeling of being physically weak and unable to do things.

So when I suddenly started feeling ill yesterday I was not pleased.  What started as a sore throat yesterday afternoon progressed into a full-blown cold by bedtime.  The kind of cold that comes complete with aches and pains, and ice-cold chills.  I was lying on the couch watching TV with Gerard last night, wearing about four layers and with three blankets piled on top of me.  By the time I woke up this morning, my voice was a thing of the past and both of the kids had a cold as well.

I had to stay home today.  Not only to be with the kids, but to try and rest a little and shake the cold myself.

The chaos started when James appeared by my side at about 11:00 a.m. telling me that he had made a swimming pool.  When I went to investigate I found that there was indeed a swimming pool – right in the middle of my mattress.

An hour later, James told me that he had made a water factory on his Dad’s desk.  Against my better judgment, I went to take a look: there were several bowls on the desk, precariously balanced and filled to the brim with water.

Later in the day, the two kids worked in collaboration to empty a dump-truck full of water all over the living room floor.

Dear Lord in heaven…

There was the upended stationery drawer, the melted Popsicle on the bedroom floor, the melted Popsicle on the couch, and the milk spilled in the kitchen.

Is it any wonder I don’t like being sick?  Look what happens!

I am exhausted, and mysteriously feeling well enough to go to work tomorrow.

Filed Under: Children, Illness, postaday2011 Tagged With: , , , , , , , ,
post

Photographic Retrospective

January 25, 2011 By

Do you remember the days when we used to take pictures with cameras that required film?  When all 34 pictures on the film had been used up we would take it to the drugstore for processing and pick it up three days later (eventually, drugstores got their own in-store processing equipment and the concept of “one hour pictures” was born).  We would go home and look at the pictures, only six of which were any good, and we would throw them into a cardboard box already containing seventeen thousand other pictures.  Every time we put the box back in the closet we would say to ourselves, “I must buy albums and get these photos organized”, but we would know that the pictures wouldn’t be looked at for at least six years, when the bottom of the box would collapse and all of the pictures would fall onto the ground.

Things are so much easier now.  We just take the picture, plug either the camera or the SD card into a slot on the computer, and ten seconds later the pictures are there for our viewing pleasure.  We print the ones we want to print.  Mostly, though, we make desktop backgrounds out of them, upload them to Facebook, and email them to friends and family.  There are no pesky films that cost a fortune and get all screwed up if you open the camera at the wrong time, no dusty old cardboard boxes that take up space, and no pictures lying around that we cannot bring ourselves to throw out even though the top of the subject’s head is cut off and the red-eye makes everyone look like minions of Satan.

The thing is, we look at the pictures.  If we don’t like them, we can edit them, remove the red-eye, fix up the lighting.  And if we really don’t like them, we just hit the Delete button.  Easy-peasy.  The point is, we end up with pictures that we actually like and enjoy looking at.

And that’s what I was doing earlier today.  I was looking at pictures of my kids from when they were a lot younger and littler, and marveling about how they’ve grown and changed since the pictures were taken.

Here are a few of my favourites…

George, age 3

James' first Halloween, aged 10 months. He was a pirate!

Family picture taken on Gerard's birthday, 2006. George was almost 3, James was 8 months

George (almost 4) and James (19 months)

James, about 15 months

George, aged about 3 1/2 - a rare shot of him looking into the camera

Ah, how they grow up!

Filed Under: Children, Photography, postaday2011 Tagged With: , , , , ,
post

Make A List, Check It Twice…

January 23, 2011 By

They should provide customized checklists when they issue children to parents.  I mean, think about it.  We pop out these babies, and we follow the generalized instructions in baby books, which pretty much say the following:

  • Whenever the baby cries, shove a nipple in its mouth.
  • Rest when the baby rests.
  • Establish a consistent bedtime routine.
  • Don’t let the baby sleep on his tummy.
  • Cover a baby boy’s willy with a washcloth during diaper changes to avoid being peed on.

There is very little consideration given to the fact that:

  • said nipple is attached to a human being who is capable of feeling physical pain from literally being sucked dry, and besides, baby bites on nipples can really hurt, even when no teeth are present;
  • when the baby is resting, Mom actually has time to take a shower or, you know, eat;
  • babies will throw up on parents who try to impose routines that they don’t like;
  • if the baby is very determined to sleep on his tummy, there’s very little you can do about it;
  • baby boy willies can be very wayward and have a mind of their own.  Kind of like grown-up mens’ willies.

And that’s before you even get into the individual differences between regular babies.  I’m sure new parents would appreciate knowing up front that their child will barf all over their nice new couch, that their daughter will like peas until the age of four and then start throwing them at everyone, and that Junior will be sent to the principal’s office on the first day of Kindergarten.  Don’t you think our lives as parents would be much easier if we knew ahead of time what contingency plans should be made?

Things get even more complicated when you add a child with special needs into the mix.  While I would certainly want the ability to eliminate the things that George finds frustrating or distressing, I would not want to change who he is (who would?  The kid is SWEET!). However, it would have been good to know some things about him right from the beginning.  My checklist for George would include the following:

  • He’s going to bang his head when frustrated, so you are going to have little dents all over your drywall.
  • Baby-proofing devices will not even slow him down, so don’t waste the money.
  • By the time he is five, there will be no such thing as a “good place to hide stuff”.
  • He will find out the password to your YouTube account simply by watching you type it in.  Very visually oriented, these autistic kids.
  • He will be freakishly good on the computer, and he will be counting backwards from 100 in increments of 3 by the age of four.
  • You will need several large boxes to store all of the Mr. Potato Head stuff, but you won’t mind because Mr. Potato Head will prove to be a major catalyst for speech.
  • He will use Lego for stimming.  You will have to make sure you have plenty of the long Lego pieces in pink and yellow.  If you don’t have the same number of pink and yellow Legos, there will be meltdowns.
  • He’s going to know how to fix your DVD player!
  • He’s going to rip down your mother-in-law’s wallpaper and write his name in Magic Marker on her couch.

And what about James?  What would his checklist say?  Let’s see…

  • He’s going to be obsessed with cars so you may as well start collecting them now.
  • He’s going to come flying out like a cannonball at birth and he’s going to just keep going.
  • If he’s anywhere near water and you’re within a thirty-foot radius, you will get soaked.
  • He’s going to go to the emergency room five times in his first four years.  He’ll just be that kind of kid.
  • Don’t let him anywhere near the diaper cream.
  • Don’t let him anywhere near the talcum powder.
  • Don’t let him anywhere near the toothpaste.
  • Be prepared for the fact that he will publicly ask his Granny if she has a willy.

The checklist would also say that the boys will fight like cat and dog but they will be the best of friends, that George will make off-the-charts progress after his autism diagnosis, and that parenting would be the best thing to ever happen to me.

I love my boys.  They are a joy and and adventure.

Filed Under: babies, parenting, postaday2011 Tagged With: , , , , , ,
post

Getting Roped In

January 21, 2011 By

"Peep And The Big Wide World" by George

A few months ago, George went through a phase of tying one end of a rope to his ankle, and the other end to the ankle of a willing or not-so-willing participant.  He would then insist that the other person walk with him to wherever he wanted to go. He didn’t care what the other person was doing, so frequently I found myself trying to cook dinner or do the laundry with a kid attached to my ankle.  He also didn’t mind who the other person was, as long as they had two legs and the ability to walk.  Guests to our home would discover that there was suddenly a child at their feet tying up their ankles.

The rope wasn’t always a rope.  Usually, it was a bathrobe cord, which meant that every time I needed to put on a bathrobe, I would stalk around the house cursing while I looked for a cord to tie it with.  When I got the brilliant idea of hiding the bathrobe cords, my mother-in-law’s measuring tapes started disappearing, much to her consternation.

Initially, we weren’t sure what all of this ankle-tying business was all about. The whole thing loosely resembled a three-legged race, but we couldn’t think where George would have been exposed to that.  We’re pretty sure they don’t do that kind of thing at the therapy centre.  Lord, can you imagine trying to do that with a bunch of kids who all have autism?  But we went with the three-legged race thing because we just couldn’t think of what else it could be.

At around the same time, both of the boys were discovering YouTube videos featuring Peep And The Big Wide World, a children’s TV show that remains a firm favourite with both of them. You should listen to the theme song – it is very catchy.  I have to confess that I find the show itself kind of catchy.  Shut up!  I know I’m 41 but I can still be a kid, can’t I?

[youtube=http://www.youtube.com/watch?v=hqikhlUodC8]

To provide context for the rest of this story, I have to give you a brief outline of the cast of characters in this show.
Peep – a baby chick who has just emerged from his egg, who is very curious and wants to explore the world that he finds himself in.
Chirp – a baby robin who has a strong sense of fairness, and frequently finds diplomatic solutions to a problem.  Her biggest ambition is to be able to fly.
Quack – a purple duck who I think actually looks more like a grape with legs.  He is obsessed with wearing a hat (a characteristic he shares with George), and he is very vain and bossy.  He thinks the sun shines out of his you-know-where.

So anyway, one evening I happened to be passing the kids’ computer while they were watching a YouTube episode of Peep.  And all of a sudden the whole rope-around-the-ankle thing fell into place.  In this particular episode, Chirp and Quack somehow find their legs joined by a rope, so they have to go everywhere together.

All of this time, George had been replicating this episode.

Can we take just a moment to consider the significance of this?  George was engaging in PRETEND PLAY!  For a child with autism, this is through-the-roof HUGE! What made it even bigger was the fact that it was pretend play that required a partner.

Hmmm.  Pretend play that incorporates social interaction. To borrow a phrase coined by my online autism support group, Holy Moly Shit! This represents an exciting chapter in George’s development.  He has outgrown this phase now, and he has not engaged in much pretend play since then, but it’s the potential that strikes me.  The fact that he CAN.  If it’s happened once, it will happen again.

Shortly after the ankle-tying phase came to an end, George drew his first real picture (i.e. the first picture that actually depicted something other than scrawls and scribbles).  I was most amused – and highly thrilled – to see that the picture was an illustration of George’s favourite Peep episode.

This kid astounds me. From time to time, he does these amazing things to remind me of what he can achieve if given the opportunity.

Archimedes said it best: “Give me a place to stand and I can move the earth.”

Filed Under: autism, postaday2011 Tagged With: , , , , , , , , , , ,
post

2011 Run For Autism: The Countdown Begins

January 7, 2011 By

This is so weird.  It seems like it was just yesterday that I did my first autism fundraising run, back in September 2009.  I still remember how it was.  I had resumed running after a layoff of several years just six months previously, when I weighed almost 200 pounds or 91kg (to put that into context, my height is 5′ 6″) and I could barely stagger around the block, never mind run 21.1 km.

Since then, I have run a 5km event, three 10km races, two ten-milers and two more half-marathons, including the 2010 autism run.  This year I am planning more and aiming for some ambitious time goals.  How things have changed since 2009.

What’s really exciting me today is that we have already started the process of planning the 2011 Run for Autism.  I was on the organizing committee for the event last year – a committee made up of Geneva Centre for Autism staff members and parents of children with autism – and I will be helping out again this year.  Yesterday I met with Holly, the outgoing fundraiser for the Geneva Centre, and we threw around some ideas.  The first official committee meeting will happen sometime this month, and soon I will be registered for the half-marathon and starting to raise sponsorships.

People have different reasons for running.  Some people do it competitively.  Others do it to stay in shape, and others do it simply for the love of the sport.  People get hooked on the endorphins that kick in after thirty minutes or so of pounding the pavement.  And me?  My reason for running is my kids.  I got back into it because of the opportunity to raise funds for autism services, to do my bit to improve the lives of people like my son George, and also their siblings who need a special kind of support of their own.

The running is not always easy, of course it’s not.  I go through peaks and valleys (right now, in fact, I am trying to claw my way out of a bit of a valley), and there are times when I want to simply quit a run half-way because the going is so rough.  But I put a picture of my boys in my head, and that gives me the strength I need to keep going.  It is the reason I started running, and while I am really enjoying the other benefits that come from running, my boys are the reason I keep it up.

I would run to the other end of the world for my children.  Surely I can manage the occasional 21.1 km.

Filed Under: autism, Children, fundraising, postaday2011, running Tagged With: , , , , , , , , ,
post

Things That Go Bump In The Night

January 6, 2011 By

When our kids were young, all of the experts, books, websites and other parents advised us to establish a consistent bedtime routine.  It took a little bit of time a couple of months four and a half years for us to come up with a routine that works for everyone, and usually bedtimes in my household are fairly uneventful.

Most days the kids will take a bath (I am one of those bad, bad Moms who does not bathe her kids every single day).  On the other days, they take turns in the bathroom to pee, brush their teeth, and wash their hands, faces, and any other parts of them with obvious dirt smears.  They get milk, each boy gets to pick one book for the bedtime stories, and then they are allowed to snuggle on the couch with their Dad for a few minutes.

By the time those few minutes are up, James is very often asleep.  I carry him to his bed – a task that is getting more and more difficult as he gets more and more long and lanky – and if he is still awake I lie down with him for a few minutes and tell him a story about a magic horse I invented that takes James to all kinds of wonderful places.

While this is going on, Gerard is tucking George into his own bed, and when I am done with James, I go in to spend a few minutes with George. He always wants me to stay for longer than I do, but I am always mindful of all of the nightly tasks still waiting to be done. I hug George and give him a few minutes to engage in one of his favourite activities: playing with my abundance of hair. We always have the following dialogue, without fail, every single night (bear in mind as you read this that any dialogue for this mostly non-verbal child is a miracle):

Me: George, who does Mommy love?
George: You love George.
Me: Who does George love?
George: He loves Mommy.
Me: Are you tired?
George: Yes.
Me: Are you ready to go to sleep?
George: Yes.
Me: Goodnight, George.
George: Goodnight, Mommy.

And with that, I give him a kiss, slip out of his room and let him drift off to sleep.  He usually migrates to our bed in the early hours of the morning, and we let him.  One day he’ll grow out of that and we’ll miss these days, so we enjoy it while we can.

Last night, the routine went smoothly enough.  I had my miracle dialogue with George, left his room, and started making sure the boys’ backpacks had what they needed for their respective school days.  All of a sudden, I heard the following from the direction of George’s room:
*Thump* (George flopping himself out of bed and onto the floor)
*Scream* (frustration)
*WHUMP WHUMP* (George banging his head on the wall. Hard enough to dent the drywall)

Oh dear.

I returned to George and calmly made him get back into bed.  As I was trying to settle him, James suddenly appeared by my side crying about how he didn’t feel like being alone.  This was a tricky situation to be in.  Usually, when both boys need me, I simply lie down between them and comfort them at the same time.  But when George is in a state where he is hitting his head off the wall, I need to keep James away from him, otherwise James becomes the target for headbanging.

This was one of those times when I had to send James back to bed crying so I could make sure George was safe.  I always feel truly horrible when I have to do that.  I feel so bad for James.  But sometimes there just isn’t any other choice. It is part of the life and times of special needs parenting.

I got George calmed down – or so I thought – and went in to see James.  I hugged him and comforted him, and told him I loved him.  Sometimes, I said, I have to make sure your brother isn’t getting hurt.  Sometimes I have to make you wait, and that makes you sad, and I am really, really sorry.  But I love you so much and I’ll always take care of you, and I think you are a wonderful boy.

James was content.  He sighed softly and went to sleep.  Just as I was leaving his room, I heard the *thump scream whump whump* from George’s room again.

What, are they trying to tag-team here?  When one stops the other starts?  Can they sense my stress and exhaustion?  Is this that thing that animals do, where they go after the weakest member of the herd?

I am afraid to say that my patience ran out.  I did not go in to George.  I did not hug him or talk to him or try to settle him.  From where I was, I called out angrily, “Get back into bed!  That’s enough!”

There were a couple more screams and one more head-meets-wall incident.  After that, things got quiet and both boys slept through the night in their own beds.  I wasn’t woken at four in the morning by George climbing into bed beside me and wrapping his arms around my neck.  A bittersweet feeling, that.

The logical, rational part of me feels that I did the right thing by not rewarding the second incident of headbanging.

But the Mom in me – the one with a heart full of love for her kids – feels horrible that the last thing my sweet George heard before going to sleep was the sound of my angry voice.

Sometimes, no matter what we do, we feel that we just cannot get it quite right.

Photo credit:  Flickr Creative Commons Attribution License

Filed Under: autism, Children, family, parenting, postaday2011, Siblings, sleep Tagged With: , , , , , , , ,
« Previous Page
Next Page »