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Why I Will Never Break Up With Facebook

April 11, 2013 By

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When I first moved to Canada almost thirteen years ago, the world seemed like a very big place. I had a very hard time adjusting to life in a completely new territory where I did not know a single soul. If I felt lonely, I could no longer get into my car and visit my best friend for coffee. I couldn’t drop in on my parents for an impromptu dinner. I couldn’t call anyone to find out who was going to see which movie or have a drink in which bar. Now, if I felt lonely, I had to sit alone in my apartment in this strange land and just deal with it.

I kept telling myself that this had been my own choice. No-one had coerced me into packing my life into checked baggage and moving halfway across the world. But knowing that didn’t make the process any easier.

Desperate for human contact, I turned to my computer and instant-messaged with anyone I could find online. The most oft-sought-out victim of my off-the-boat neediness was my friend Kane in Michigan, who was endlessly patient and kind even though I must have been a complete pain in the you-know-where from time to time.

That was really the first time that my computer gave me much-needed access to a friend, but it certainly wasn’t the last. At some point over the years, Facebook became an everyday part of life for most people. Admittedly, the word “friend” can be a bit of a misnomer where Facebook is concerned, but I have met some fabulous people online who I count as true friends, even though I have never met them in person. These are folks who have helped me through a pregnancy loss, the death of my father, my son’s autism diagnosis, injuries, illnesses, my bouts of mental messed-up-ness, and a number of other things.

Not only has Facebook helped me forge new friendships, it has enabled me to keep in touch with family members, and with friends I have known for a long time.

It has also provided me with access to an entire autism community. On the days when I want to feel that I am not alone, all I have to do is turn on my laptop, and within a few clicks I am having virtual conversations with people who give me advice, information, encouragement, or whatever else I might be needing. If I’m having a really good day, I am able to use my social networks to help other people who might be feeling overwhelmed or discouraged.

Because I’m human, and humans are given to complaining, I do like to hate on Facebook from time to time. I gripe about having to constantly vet my privacy settings, I lament about unsubstantiated myths and rumours being perpetuated, I whine whenever my timeline’s appearance changes. But at the end of the day – as much as I hate to admit it – I have become reliant on Facebook. Because through Facebook, I can reach so many people who really and truly matter to me.

(Photo credit: jurvetson. This picture has a creative commons attribution license.)

Filed Under: Community, Facebook, Health Activist Writers Month Challenge, Social Media Tagged With: , , , , , , , ,
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He Ain’t Heavy, He’s My Brother

August 18, 2012 By

When I tell people that I have a child with autism, their immediate focus tends to be on what that must be like for me as a parent. Very few people have expressed any kind of compassion for my younger son – the neurotypical sibling. It’s not that people don’t care, they just don’t think about the challenges of the autism sibling until I bring up the subject. The truth is that the siblings can so easily be overlooked when, in a sense, they are special needs children themselves because of the roles they find themselves in.

I am calling this “James Week” on my blog. All of the posts that I publish here for the next seven days are dedicated to James, in honour of how utterly fantastic he is. I am so proud to be his mom.

Yesterday afternoon, George was crying. He was crying because he’d gotten into trouble – actual, real trouble that involved serious consequences. This is a big deal because it happens so rarely. We scold him, of course, and we don’t let him get away with stuff like headbutting his little brother. But thereal trouble – the kind that results in timeouts and the removal of computer privileges – we save for times when he has done something that could seriously compromise his safety or someone else’s.

Like the time he climbed a ladder onto the roof a few weeks ago. Or the time he hit his brother on the head with the business end of a garden hoe.

Yesterday’s transgression happened after we had all been sitting on the front steps of the house, drinking tea and enjoying the lovely weather. James was kicking a soccer ball around on the driveway, and George was tossing plastic ball into the air and then hitting it with a baseball bat, in a surprisingly coordinated way. When it was time to go in and start thinking about dinner, George got upset because he wanted to continue playing. We know that transitions can be rough for him, so we patiently spoke to him and tried to get him to yield the baseball bat.

In the end, he yelled, “FINE!”, threw the baseball bat down on the ground, stormed into the house and slammed the front door. In other words, he acted like a typical almost-nine-year-old bratty kid who wasn’t getting his own way.

Which is great, and normally something that would have me jumping for joy.

The problem was that he flipped the lock on the front door, so none of the rest of us could get in.

Oh dear. My autistic son – my upset autistic son – was unattended in a locked house. That is a frightening prospect: we were more worried about his safety than anything else. We did eventually talk George into unlocking the door, and then, to use common parenting parlance, we read him the riot act. He was given a timeout, which he hates, and then he had to wait for an hour before he was allowed to use his computer.

He cried as if the world was about to end. Tears of absolute desolation flowed from him as he lay on the couch. He looked utterly heartbroken.

Well, this was no good. We had wanted to discipline him, not make him miserable. I lay down on the couch beside him and told him I loved him. I tried to comfort him, but he would not be comforted. I started thinking that this might be one of those times where you just have to let the kid cry it out of his system.  But it turned out that he simply needed something else.

He got off the couch and ran into James’ room, where James was lying quietly on his bed waiting for the storm to pass. George got onto the bed beside James and gently tugged at James’ arm. James responded by looping his arm over George, and the boys lay there hugging each other.

And just like that, George was calm, as if someone had flicked a switch. Which in some way, James clearly had.

I instinctively knew that I needed to back away and let the brothers have some time alone.

As I quietly left the room, I heard James softly say to George, “I would do anything for you, George.”

(Photo credit: Kirsten Doyle)

Filed Under: autism, Brothers, family, parenting Tagged With: , , , , , ,
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My Favourite Things

April 13, 2012 By

I am participating in the Health Activist Writers Month Challenge, in which I publish a post every day for the month of April, based on health-related prompts.

April 13 – 10 things I couldn’t live without: Write a list of the ten things you need (or love) the most.

When people ask me what one item I would grab if my house was on fire, I never know what to say. I mean, who can pick just one? I’m a woman, for Pete’s sake. Women need stuff, just like they need chocolate. It’s a scientific fact.

So in my hypothetical fire, I’m allowed to grab ten things. How I will carry them from a burning building while I’m simultaneously ferrying my kids to safety is not a cause for concern. When my hypothetical fire breaks out, all of the items are easily at hand along with a large duffel bag, I have superhuman strength and an extra pair of arms, and my kids are being fully cooperative.

The ten things I would save from the fire (apart from my family, who technically are not things), are as follows, in no particular order.

1. My Garmin training watch and accessories. I love this gadget. It combines my love of running with my love of technogeeky things. It is the coolest device ever. I can go for a run anywhere in the world, and when I am within range of my computer, it downloads a nifty little map of where I’ve been. The desktop app also tells me stuff about my pace and heart rate, and that appeals to my inner math nerd.

2. My smart phone. This thing does almost everything a computer can do, only on a smaller display. It functions as a camera, a Skype interface, an e-reader, an email client, a music player, and many other things. To be completely honest, I hardly ever use it as an actual phone.

3. My laptop computer. I would be lost without my computer. Seriously. I do everything on there. I don’t know how people like my grandmother coped without technology. Sure, that generation may have been more resourceful and better able to cope in a crisis, but they didn’t have Facebook or the ability to connect online with fellow autism parents when things were getting too overwhelming.

4. My notebook computer. I know, I know. I have a large number of technology devices for one human being. But I love my notebook. It goes everywhere with me. It’s a great little device for writing and web-browsing when I don’t feel like lugging my full-sized laptop around with me.

5. My coffee machine, along with ground coffee and filters. Because, well, obviously. My house just burned down in a fire. I’m stressed. I think I’m entitled to some coffee, and if it’s late at night the coffee shops might not be open.

6. A selection of my older son’s Mr. Potato Heads. George would be at a complete loss without his Potato Head family. These little characters have been with him since he was first diagnosed with autism. They were the means by which he started to tentatively explore language, and they were the tool that my mom used to teach him his colours. As a child with autism, George does not play in the way other kids do, but when he’s got his Mr. Potato Heads, he’s in heaven.

7. A selection of my younger son’s Disney Cars cars. When James first saw Lightning McQueen, it was love at first sight. Thomas the Train and his friends instantly got relegated to the toy box. Now it’s all about Lightning McQueen, Mater, Finn McMissile and all the rest of them. James would be heartbroken if his Cars cars got burned up in a fire.

8. My favourite shoes. Those who know me well know that I hate shoes. They are uncomfortable and don’t look good on my ugly, non-dainty feet. Shopping for shoes to go with my wedding dress was probably the most stressful part of my wedding planning. The only shoes I actually like are my running shoes. My mantra is: There’s no such thing as “too many running shoes”. I would grab my favourite pair and rescue them from the fire.

9. My purse. You never know what will be in my purse from one day to the next. Delving into my purse is like going on a scavenger hunt. It has all of the staples, of course. A little bit of cash, drivers’ license, maxed-out credit card, and the most essential item of all – a tube of lipstick.

10. A clean pair of knickers. From the time I was a little girl, I was taught to always have clean underwear with me. If I was in an accident and I was wearing dirty underwear then, you know, what would the ambulance men say? I would hope that the ambulance men would have better things to do than inspect the state of my knickers, but the lesson stuck.  Besides, if my house has just burned down, I don’t want to be wasting time worrying about the state of my underwear.

What are your favourite things? Share in the comments!

(Photo credit: Kirsten Doyle)

Filed Under: Disney Cars, Electronic Gadgets, family, Favourite Things, Health Activist Writers Month Challenge, Mr. Potato Head, Shoes, Uncategorized, WEGO Health Tagged With: , , , , , , , , , ,