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Remembering A Captain

January 24, 2012 By

A year ago today, a baby named David got his angel wings. After tirelessly staying by his side during his five-month-stay in hospital, his Mom – so brave, so beautiful inside and out, and with a heart bursting with love – held him in her arms as he winged his way into the next world.

During his time on earth, David – known to many of us as Captain Snuggles – changed many lives. He inspired people to appreciate what they had and to live their lives better. Through him, people started donating blood. Because David was here with us, because he fought so bravely, lives have been saved, continue to be saved because of the people who continue to donate blood in his honour.

What an amazing legacy for an eight-month-old baby.

To Captain Snuggles: rest in peace, smile on the people who live because of you, and touch your family with love.

To David’s mom Amy, who fought so hard for her son’s life: I send you vibes of love, strength, and peace. I wish I could be close enough to hug you, but through the bonds of friendship, I am with you tonight. May you and your family find strength in being together, and may all of you feel the loving presence of the brave Cap’n.

 

 

Filed Under: Baby, Baby loss, Bereavement, remembrance Tagged With: , , , , ,
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Remembering the Captain

May 11, 2011 By

Captain Snuggles would have been one year old today. His mom, Amy, should be wiping birthday cake off a sticky face and cursing about how difficult it can be to get new toys out of packaging these days. Instead, she is going to the cemetery to visit a tiny grave.

Amy, if you’re reading this, my thoughts are with you today. I am sending you love and hugs, and wishing for a day of peace for you.

Filed Under: Bereavement, Birthday, Death Tagged With: , , , , , , ,
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Remembering the Captain

May 11, 2011 By

Captain Snuggles would have been one year old today. His mom, Amy, should be wiping birthday cake off a sticky face and cursing about how difficult it can be to get new toys out of packaging these days. Instead, she is going to the cemetery to visit a tiny grave.

Amy, if you’re reading this, my thoughts are with you today. I am sending you love and hugs, and wishing for a day of peace for you.

Filed Under: Bereavement, Birthday, Death Tagged With: , , , , , , ,
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A Letter For Amy

April 3, 2011 By

To my dear friend Amy,

It has been more than two months now since you held your beautiful Captain Snuggles in your arms for the last time. I was one of many people who had been sending out prayers, positive thoughts, positive energy, in the hopes of keeping him alive and with you. I like to think that although the brave Captain still left us, we collectively managed to shift the Universe just enough to give you some extra time with him. Maybe, during those long sleepless nights, you felt a warm aura surrounding you as people sent out virtual hugs for you. The outcome was not what anyone wanted, but maybe – just maybe – we made some kind of difference.

I was so desperate to help you back then, to do something that could be of some practical use to you. But with us living on opposite sides of the border, this was not possible. So I donated blood. It was a momentous occasion. I felt humbled by the fact that it had taken a baby’s tragic situation to spur me on to action, and at the same time, I felt good that it had spurred me on to action. David was still with us on that day when I made my first donation, and I had entertained fantasies of meeting him someday and saying thank you to him for making me a better person.

My heart shattered when I learned of his passing. I could not begin to imagine what this was like for you, what it would be like for you going forward. I confess that I did not know what words to say to you to comfort you, so I opted for honesty. I told you that I didn’t know what to say, but that I was thinking of you, and that I was there for you whenever and however you needed.

Please know that this has not changed. More than two months have passed since Captain Snuggles left us, but for you there must be times when it feels like the blink of an eye. Grief is such a personal process. Everyone goes through it in their own way, at their own pace. No-one can truly understand another person’s grief. I still cannot imagine what you are going through and how it feels, but I am still there for you. You will be in my heart and mind as you go through this first year of birthdays and anniversaries.

This is a big week for us. This is the week of the Captain Snuggles Blood Drive. This week, many people are going to donate blood (some already have) in memory of your beautiful boy. Every unit of blood has the potential to help up to three people. It has the potential to give up to three families that precious commodity of hope. Through the inspiration of Captain Snuggles, this week is all about giving life.

I know that the blood drive is not going to bring the Captain back, and it’s probably not going to make your grieving process any easier. But he will live on in the hearts and minds of all who donate, and all who want to donate but are medically unable to. There could well be people whose lives will be saved by this blood drive – people who, although they will never know it, will be alive because of this baby who has touched so many hearts.

I send you lots of love and hugs, and vibes of strength and peace.

Your friend Kirsten

Filed Under: Baby loss, Bereavement, Blood donation Tagged With: , , , , , , , ,
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I Don’t Want To Say The Words

January 24, 2011 By

Oh God, how badly I don’t want to say the words.  What I would give to not have to write this, to have to tell you that after five months of sitting by the hospital bedside of Captain Snuggles, my dear friend Amy now has to leave there without her son.

Today, the Captain – a brave, tough little boy who touched and inspired so many lives – lost his battle to survive.

The heartbreak and devastation I am feeling at this moment is but a drop in the bucket compared to what Amy is going through.  This is a situation where “Sorry” cannot begin to be enough.

Thank you for all of your prayers, your positive thoughts, the healing vibes you have sent out into the Universe.  Even though Captain Snuggles is no longer with us, your thoughts and prayers did make a difference.  They made a difference to Amy, who drew comfort from knowing that we were out there, rooting for her son.

And who knows: maybe, through our collective efforts, we succeeded in shifting the Universe just enough to give Amy a bit of extra time with baby David.

Amy continues to need lots of prayers, love and positive thoughts.  Maybe, when she has the time to sit down and take a quiet moment, she will feel our love and support, and be uplifted by it, even for a moment.

R.I.P. Captain Snuggles
11 May 2010 ~ 24 January 2011

 

Filed Under: Bereavement, life Tagged With: , , , , ,
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Giving Blood, Giving Life, Giving Hope

January 20, 2011 By

I sit in the chair across from the nurse, anxiously waiting for that tiny little needle to pierce the end of my finger.  Has it worked?  Has my healthy eating, strict regimen of iron-enriched vitamins, and consumption of gross vegetable juice made my blood as healthy as it needs to be? If I am turned away now, I will be pissed off.

I am lost in my thoughts, willing my blood to cooperate, trying to analyze everything I’ve eaten in the – OUCH!  Holy crap!  For a tiny little needle that HURTS!

Not as much as the big fat needle going into my arm is going to hurt.

Not as much as the multitude of agony that Captain Snuggles has endured over the last five months has hurt.

It’s a tiny little needle, don’t be such a baby.

The nurse puts a little smear of blood onto a slide and feeds it into a machine.  She tells me that the number has to be 125 or higher.  We wait for a few seconds, the machine beeps, and…

…154.  YES!  As I follow the next nurse into the next screening area, I imagine my healthy blood cells, marching around my body like sergeants, getting ready for deployment into the next human body that needs them.

Screening goes well.  My temperature is good.  My blood pressure prompts the nurse to tell me I must work out a lot.  My heart rate is slightly elevated because I am excited to be doing this.  No lesions or bruises on my arms, all of my questionaire answers are acceptable.

I am deemed Fit To Donate.

I am taken to a row of folding chairs, where I take a seat and wait my turn.  I know that my friend extraordinaire and maid of honour Michelle is a short way behind me in the process.  I look for her and she is not in the room; she is probably in the screening area telling the nurse whether she has ever taken money for sex or taken cocaine intravenously.

As I am waiting, a man starts to pass out with his blood in mid-flow.  The kindly woman seated beside me looks at my “First Time Donor” sticker (which I feel entitled to since my one and only donation attempt, over 20 years ago, ended in disaster and could not be completed) and says, “Don’t look at him.  He’s a man.  Us girls can handle this!”

I am led to one of the stations, and as I take my seat in the thing – it’s not a chair; it’s not a bed; what’s the word for it? – I imagine those blood cell sergeants lining up in my arm, getting ready for their marching orders.

Michelle takes a seat on one of the folding chairs, which means I can talk to her instead of looking in the direction of the nurse who is taping tubes to my arm in an ominous manner.  I squeeze my eyes shut, grit my teeth, and – the needle is in!  Those little sergeants have started marching!  I imagine the blood cells in the Captain’s body straightening up and getting their act together (because let’s face it, they have been slacking off in the last little while).  I imagine them coming together, strong and whole, forming a line of defence against illness and infection.

As my blood flows out of me, I imagine Captain Snuggles getting better.  I picture his broken body healing, becoming whole.

My actual blood will not get to Captain Snuggles.  But it will get to someone who needs it.  Captain Snuggles, through his suffering, will have saved a life.  Many lives, since I am now committed to being a regular donor.

It takes less than ten minutes.  When the needle is removed, I sit in my thing-thats-not-a-bed-or-chair for the prescribed five minutes.  There is more fiddling with my arm and bandages, and then I am permitted to go and sit down in the cookie and juice room (no caffeine for first-time donors!)

As I sit there drinking my orange juice and eating my cookie, I imagine where my blood will go from here.  Samples will go to the lab for testing, and the donation will be added to the blood bank.

I imagine it being transfused into someone’s broken body, transforming the probability of death into the possibility of life, into hope.

I imagine the joy of some family, in some hospital, when they are given the news that their loved one is going to make it.

I imagine Captain Snuggles healing and becoming whole.

I imagine myself someday saying to him, “Thank you.  Thank you for making me a better person.”

Filed Under: Blood donation, life, Medical, postaday2011 Tagged With: , , , , , , , , , , , ,
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Making The Giving Worthwhile

January 15, 2011 By

On Thursday morning (at 11:30 a.m. EST if anyone wants to be that precise) I will be donating blood.  I am greatly looking forward to it, and if you’re reading any sarcasm in that sentiment, none whatsoever is intended.  I really, genuinely, truly am looking forward to sitting in one of those reclining chairs while a unit of my blood is transferred from my body for the purpose of saving a life that needs saving.

I am excited to be doing this.  I am excited to be doing something, giving of myself in some small way, to help other people.

The last time I tried to donate was about twenty years ago.  I passed the initial iron test and got settled in one of the reclining chairs in the clinic.  The entire process from that point on was an absolute disaster.  The nurse – a kind, gentle soul who felt terrible about the pain she was putting me through – had to poke multiple holes in both arms before she could get the blood to flow.  When it did flow, it was painfully slow, and when about third of a unit had been taken from me, I passed out. I was sick for days after that, and when I went to my doctor, he advised me not to donate blood while my health was in such a fragile state.

It just wasn’t the right time for me to donate, back then.  There was a whole mess of crap happening in my life, and the stress of it all took its toll on my health.

Now things are different.  I am fit and healthy.  I am not under constant stress, I sleep as much as two kids and a hectic schedule allow me to, and my running regimen pretty much forces me to eat more or less healthily.  I am ready to put the memory of my last donation attempt behind me and try it again.  I am confident that the results will be far, far better.

I’m doing what I can to make sure, though.  My main objective over the next few days is to ensure that my blood is whole and healthy, that it can indeed be used to help someone who needs it.  If I show up on Thursday to give my pint of blood in honour of Capt. Snuggles, and they turn me away because my iron is too low, I will not be happy.  I have to do whatever I can to make sure that does not happen.

I share these tips for the benefit of anyone reading this who might be interested in donating blood (Michelle, maid of honour and friend extraordinaire, has already said that she will try to join me on Thursday).

  • For several days prior to donating, eat foods rich in iron.  Breads, meat, fish, chicken, fruit, raisins, nuts, dark leafy greens.  This is especially important for the ladies, whose iron levels tend to be less stable.
  • Be aware that many foods rich in iron are also high in fat, and a high lipid content can also result in you being turned away.  For 2-3 days before you donate, focus on a low-fat diet, but keep on consuming iron-rich foods that are low in fat.
  • Hydrate, hydrate, hydrate.  If you don’t drink enough fluids, the nurses will have a hard time finding your vein, and once you are hooked up, your blood will flow slowly and the process will take longer.  Limit sugar and caffeine in your beverages, since these slow the absorption of water.
  • Get enough sleep!  This will not necessarily change the quality of your blood, but it will make your recovery a lot easier.
  • The day before, load up on iron-rich foods, but ones that are low in fat.  Drink lots of water and go to bed early.
  • The day of, have a good breakfast so that you have the calories to start regenerating your blood.  Eat fruits with a high water content, and drink water and energy drinks (this can also give you one last iron boost before you go).
  • Try to eat either a meal or a snack right before you go.  You don’t want to donate on an empty stomach.  Take a bottle of water with you.
  • After you’ve made your donation, sit down and rest, and have a snack to raise your blood sugar.  Many clinics provide juice and cookies – if you don’t have a snack of your own on hand, accept the juice and cookies!
  • Light to moderate exercise several hours after you donate will help raise your energy levels.  I’m not talking about a five-mile run, I’m talking about an easy walk.

Many of these are good inroads to a healthy lifestyle, and following these steps will help make your blood healthy and vibrant.   If you are medically able to donate blood, I appeal to you to please consider it.  It really could be a matter of life and death for someone.

I am humbled and kind of ashamed that it has taken this – the life-threatening tragedy of a little baby – to spur me on to do this.  Ultimately, it is Captain Snuggles saving lives here, because he is the reason I am doing this.

Click here for Amy’s latest update on Capt. Snuggles.

Filed Under: Blood donation, Giving, postaday2011 Tagged With: , , , , , , , , , , , ,
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Life Blood

January 12, 2011 By

What can I do?

This has been the question plaguing me for the last few days, while friend and fellow writer Amy sits at her critically ill baby’s bedside, waiting, hoping and praying.  I have been doing my best to send out an ever-expanding circle of positive energy to Amy, and to the baby, David.  I have tried to let Amy know – hopefully Amy does know – that I am with her in spirit, waiting and hoping and praying with her. I have been giving my own kids lots of extra hugs, letting them stay up past their bedtime just so that I could have an extra fifteen minutes with them, not getting so het up over silly things that prior to learning about the severity of David’s illness, would have had my knickers in a twist.

All of this is important.  I believe that the positive thoughts and the shifts in focus and the offers of support do at least let the intended recipient know that they are being thought of, that they are not alone.  But it doesn’t seem enough.  I have found myself wishing, longing to do something practical to help make this journey even a little bit easier for Amy to bear.

What can I do?

The obvious problem is that Amy and I live in different countries.  If I lived in Ohio, I would be able to do stuff.  I could cook meals for Amy’s family.  I could take her laundry away and bring her fresh changes of clothing.  I could bring books to read to Captain Snuggles. I could offer to babysit her kids so that she could get time with her husband.  The list of what I could do if I were there goes on and on.  But the fact remains that I live in Toronto and Amy lives in Ohio.

What can I do?

Realistically, my ability to help Amy in any practical sense is severely limited.  But this morning, I thought of something I can do that could potentially help other people in her situation, in David’s situation.

Over the last few days, Captain Snuggles has had multiple blood transfusions.  His mother has watched desperately as his life blood has flowed out of him faster than it can be replaced.  Without the transfusions he has received so far, it is extremely likely that David would not still be with us.

That blood has to come from somewhere.  I have plenty of what I assume is perfectly good blood: there is no reason for me to not give it to someone whose life might well depend on it.

The last time I donated blood, it did not go well.  But that was twenty years ago, and due to extremely stressful events that were happening in my life at the time, my health had taken a hammering.  Now my health is fine, and I feel inspired to give it another go.  There is a blood donor clinic at my place of work next week, and I have made my appointment to be a part of it.  For the next week, I will be eating lots of healthy stuff and doing what I can to make sure my blood is whole and healthy.

Maybe this small act will save someone’s life.  Maybe it will bring some family back from the brink of despair.  Maybe it will give someone hope.

Amy, if you are reading this, I really wish I could do something that would help you directly.  But please know that my decision to donate blood is inspired by you and your beautiful boy.  Even though he will not physically benefit, I am doing this for Captain Snuggles.

(Photo credit: Flickr Creative Commons Attribution License)

Filed Under: health, Illness, life, Medical, postaday2011 Tagged With: , , , , , , , , , ,
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He Lives To Fight Another Day…

January 10, 2011 By

For those following the story, Captain Snuggles chugs along.  Last night was a bad one.  There was much bleeding, so much that a blood transfusion was called for.  Amy’s full update can be found here.

I want to take a moment here to spare a thought for a special group of people: donors.  Baby David is still with us – albeit in a tenuous state – because of a liver and Lord knows how many pints of blood that originated from other human beings.  Blood and organ donors save lives.  They give hope where otherwise there would be none.

I have my usual request tonight, which is to please keep thinking those positive thoughts.  Keep saying those prayers to whatever supreme being you happen to believe in.  Continue to send out that vibrant, life-giving energy to Amy and her son David.

And Amy, may you feel the love of a thousand hugs, and know that there are many people rooting for David and reaching out a hand to hold you steady when you need it.  Know that you are not alone.

Kirsten

 

Filed Under: Illness, positive thoughts Tagged With: , , , , , , ,
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A Captain’s Courage

January 9, 2011 By

I find that I am posting twice on some days now.  I wish I didn’t have the material that allows me to do so.  I wish that I didn’t have a friend keeping vigil at her critically ill baby boy’s hospital bed.  But I do, and Amy – a woman with immense strength and bravery – is in need of any many prayers and positive thoughts that she can possibly get for her son, David, affectionately referred to as Captain Snuggles.

This kid is amazing.  He is not even a year old and he has been through a liver transplant, intubation, countless medications, complications, skin blistering and sloughing away – and he is hanging in there.  He is not doing well.  His kidneys are acting up, to the point where this tiny little human being could end up on dialysis.  His lungs are acting up, so the doctors having to up his ventilator settings and are now looking at upgrading the ventilator itself.

But he is hanging in there.

This is one brave, brave little boy.

Let’s all help him to be brave.  Let’s help his Mom to be brave.

Please.

Those positive thoughts that people have been sending out for Amy and the Little Cap’n?  They are being noticed.  The nurses in the hospital have commented on the atmosphere in David’s room.

So let’s keep it going, people.  Let’s keep that energy flowing, bright and beautiful, to Amy and David.

Thank you so much for caring.
Kirsten

For a full update, please check out Amy’s blog.

 

Filed Under: Illness, positive thoughts Tagged With: , , , , , ,
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