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Running For Autism: One Step At A Time

running for autism

Two days from now, I am running my annual half-marathon for kids with autism. You’d think that after doing ten half-marathons in the last six years, this would be old hat to me. I am familiar with the distance, and since this year is my seventh Scotiabank Toronto Waterfront race, I am familiar with the course. I know exactly where the hills are (not many, thank God, and none of them are exactly mountainous), I know where the halfway point is, and I know which sections of the course are more challenging for me.

The training, the period of Taper Madness and the race itself are supposed to get easier with each passing year, right?

Well…

This year, my family has faced some intense challenges. A series of unfortunate events culminated in my husband having just three weeks’ notice to vacate his business premises. This meant packing up and moving fifteen years’ worth of product, tools and heavy industrial-grade machinery. While this was going on, I landed a big contract for my own fledgling business that I couldn’t turn down. I was helping with the move during the day, working on my contract at night, and grabbing catnaps on the couch from time to time.

This left me no time for running. My half-marathon training called for intense speed work during the month of July. Instead, my training ground to a screeching halt, and I was only really able to get it going again halfway through August. By then, as much as I had tried to keep my work on an even keel, I had fallen so far behind that I was continuing to work late into the night. So although I was running again, I wasn’t running as much as I needed to.

Consequently, I am not as prepared for this race as I should be. I know I can complete the distance, but I do not expect it to be my finest hour. I don’t even have a goal time in mind. All I want to do is cross the finish line, get my finisher’s medal, and come home where I can sit on the couch and eat weird amounts of cheesecake. If I get a decent time – and I’m certainly not ruling that out – that will be a bonus.

My fundraising hasn’t gone as well as I had hoped either, for pretty much the same reasons. Asking people for donations makes me feel more than a little awkward at the best of times, and this year it has been particularly challenging. I haven’t had time or energy, and I have been operating in a fog of exhaustion and stress. I have fallen far short of the fundraising goal that I had set for myself.

But still – I have raised almost $300, and that money is going to make a huge difference to some kids with autism. It will provide art supplies, musical instruments, sports equipment or camp activities. It will give young people with autism opportunities and experience that might otherwise be out of reach for them. And I am more grateful than words can express to the people who have helped me reach that total.

I think, in spite of the circumstances, I have done all right. I feel excited about the upcoming race, and I feel proud to be doing my small part to make a difference to children and youth with autism.

It’s not too late to donate. If you would like to sponsor me, please click here. All funds go to the Geneva Centre for Autism, where they will be used to provide services for children and teens with autism.

This is an original post by Kirsten Doyle. Photo credit to the author.

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Running For Autism 2014: A Thousand Thank Yous

Today’s post is going to look a bit like a speech from the Oscars, only there’s no red carpet, I’m not wearing a ballgown accessorized with diamond jewellery, and I didn’t get a funny little trophy thing. Instead, there is the finish line of a race, a sweaty old running outfit accessorized with a space blanket, and a finisher’s medal. Just setting the scene so you can picture me as I start my speech.

<clears throat and waits for the audience hubbub to die down>

My 2014 autism run is now almost a week in the past. I have one day left of sitting on the couch doing nothing post-race recovery. The stiffness in my legs is gone, my knees have recovered, and the chafing from my sports bra is fading. Even the Ankle of Doom is feeling pretty good. I am almost ready to lace up my shoes for an easy run, and I have started thinking about my race calendar for next year.

I want to thank my mother, because people always start by thanking their mothers. And because my mom is awesome. She lives on the other side of the world, but I felt that she was part of the finish crowd cheering me on last Sunday. Thanks also to my brother, who is a loyal supporter and a great friend.

I want to thank my Dad, who was an elite runner in his youth and the first to fuel my love of running many years ago, in a previous life. Dad was a superb runner, and he always believed in me. He is no longer with us, but I still feel his presence when I run, and he was definitely with me on race day.

I want to thank the organizers of the Scotiabank Toronto Waterfront Marathon, Half-Marathon and 5K for putting on a fantastic event. Everything was great, from race kit pickup right through to the post-race food. I enjoyed almost every minute of the race, and I even made it through my troublesome 18K patch better than I ever have before. I had enough energy in reserve at the end to really belt it out in the last kilometre, and the look on my face in my race picture tells you how I was feeling as I sprinted to the finish line.

Best finish line shot ever!

Best finish line shot ever!

Thank you to the Geneva Centre for Autism, not only for being a constant source of support for my family since George was diagnosed with autism in 2007, but also for getting me off the couch and into my running shoes a little more than five years ago. It is a true honour to be affiliated with this organization that has given countless autism families the most precious of commodities: hope.

Thank you to all of the people who sponsored me. Your generous donations are going to make a real difference for so many kids. Thanks to you, children and youth with autism will be able to learn how to play musical instruments, participate in sports teams, attend social skills training, go to summer camps, communicate via iPads and much more. Opportunities are being created for my son and other kids like him, thanks to you. My appreciation for your support has no bounds.

Thank you to the runners in my life, who have always been there with words of advice and encouragement when I’ve needed it. You have celebrated with me after the good training runs this season, and you have commiserated with me when the going has been tough. You know what it’s like – the long runs on rainy days resulting in squelchy shoes, the uncomfortable chafey bits where you didn’t apply enough Body Glide, the runs that are just bad for no reason – and you always encourage me to keep going.

Thank you to all of my non-running friends, who tolerate my running-related social media postings: the race-time status updates, the moans and groans about sore muscles, the Instagram pictures of my training watch. You are kind enough to like and comment on my posts, you tag me in running-related things that you think I will like (and I do – I love all of them). Your messages of support and love last Sunday were overwhelming, and they meant the world to me.

Thank you to my husband, who holds the unenviable position of being the partner of a runner. Over the course of the season, he made sure I could get out for my long runs and races, and he tended to my aching muscles with the right combination of concern and humour. The night before the race, he sacrificed sleep so that I could rest undisturbed by children, and he got up early to make sure I got to the start line on time.

Thank you to my younger son James, my tireless supporter and cheerleader. He cheerfully saw me off for my long training runs throughout the season, and he always welcomed me back with a hug, even though I was stinky and sweaty. He is a fantastic champion for his brother’s cause: it was his idea for me to run in a cape last Sunday, to “get into the spirit for autism”. His energy is contagious, and I took a bit of it with me on my race.

The final thank you is reserved for George, my older son, my brave and amazing autism boy. George is my inspiration. He is the reason I get up early in the morning to run in the dark, the reason I do ten-mile training runs in the midsummer heat, the reason I am willing to get rain in my running shoes on wet days. George teaches me about life every single day. And when I am struggling through a run, feeling like it will never end, thoughts of George get me through. I tell myself that this kid lives with autism every hour of every day. That doesn’t stop him from being one of the most determined people I have ever encountered. If he’s not going to give up, then neither am I.

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This is an original post by Kirsten Doyle. Finish line photo credited to Marathon-Photos. Picture of runner’s wall message credited to Kirsten Doyle.

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What I Think About the Ice Bucket Challenge

Since the ALS Ice Bucket Challenge started doing the rounds, my opinion about it has gone back and forth. And back again. There are things I don’t like about the challenge, one of them being the choice between dumping ice water on your head and donating $100. The message that being cold, wet and uncomfortable is preferable to donating $100 to charity doesn’t sit well with me.

I do know, however, that many people do both: they douse themselves with ice water and they donate the $100. No-one can deny that this campaign has been extremely successful in terms of raising money and awareness. Fundraising in today’s world is such a monumental challenge. Every year I try to raise funds for autism, and while I am always grateful for the funds that I do raise, I cannot escape the fact that it is getting harder and harder every year. Simply asking people for donations is no longer effective. These days, people seem to need gimmicks in order to donate to good causes.

And that’s fine. It has me thinking that maybe I need to come up with a gimmick to help with my own fundraising efforts. However, as much as I support those who have participated in the Ice Bucket Challenge, I have to confess that I still don’t like this particular gimmick. Yes, it has raised money. Yes, it has more people Googling ALS. Both of these are good things.

But what about those of us who choose not to participate? I have watched in dismay as people with limited financial means have been nominated for the challenge, and I have watched in bitter disappointment as those people have been mocked for not taking up the challenge. I have seen people being called things like party-pooper and apathetic. People are being advised to “give up one cup of coffee a day for a couple of weeks” in order to have funds to donate. I saw a priceless Facebook post in which someone arrogantly stated, “Everyone can afford to donate something.”

You know what, though? Not everyone can afford to donate something. There are people who have to dig around in couch cushions in order to buy diapers for their children, people who are choosing to let their Internet and phone services be cut off because they can’t make the bill payments, people who stand in the grocery store counting their coins and wrestling with the choice between buying milk or bread.

Those people should not be guilted into taking part in a trend that they cannot afford, simply because everyone else is doing it. People who do have money shouldn’t feel compelled to take part. This should be a matter of choice, not of coercion or emotional blackmail. And before people start jumping on me, I do realize that those who engage in these tactics could well be in the minority. But they do exist, and the fact is that many, many people who are short on cash – and some who aren’t – are feeling guilt that they should not be feeling. I’m sure it’s not the intent of those who started this challenge, and it’s not the intent of a lot of people who pass it on, but it has been an unfortunate effect.

The Ice Bucket Challenge is problematic for another reason, which is best described in the following picture that I saw on Facebook this morning.

icebucketWhile people all over the world are dumping water on themselves – water that is essentially being wasted – children are dying of thirst. If we need a gimmick in order to donate, shouldn’t we come up with a gimmick that does not involve so much waste? Could this gimmick be tweaked in a way that raises funds for ALS and also draws attention to the plight of people who do not have access to clean water?

I am glad this campaign has been successful, and I truly applaud those who have participated and contributed to its success. All I ask is two things. First, be respectful toward those who do not take part, either because of financial hardship or simply because they choose not to. Second, if you dump water on your head, try to do it in a way that the water can be reused. Catch the water in something and use it to water your plants, or wash your car, or fill the dog’s water dish – anything that does not result in the water simply wasting away.

And whether you choose to take part in the challenge or not, take a moment to Google ALS.

This is an original post by Kirsten Doyle.

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Training Roundup: Focusing On The Why

Why I Run

Why I Run

This has been an odd week for a variety of reasons. I attended a magazine and writer’s conference for most of the week, and that left me with very little time to do other things. But still, I was able to get some good training in.

On Sunday last week, I went out for an 18K run. I didn’t know how it would go, because I wasn’t able to do my long run the previous week. I feared that I might be a little rusty. It went well, though. I completed the distance in just over two hours – a very satisfactory pace. What made it even better was that it took me just four hours or so to recover. That afternoon, I was in the backyard with the lawnmower and just a tiny bit of stiffness.

I rested on Monday, even though I didn’t feel as if I needed to. Things caught up with me on Tuesday, though. I woke up with my bad ankle feeling – well, bad. I was supposed to do a tempo run, but I decided that an extra day of rest might be a good idea.

It turned out to be a good call: on Wednesday I felt fine. So fine, in fact, that I did my 6K tempo run as well as a full weights workout. Afterwards, I felt that pleasant all-over ache that you get after a good workout.

I didn’t have time for a proper workout again during the week, but I did manage to squeeze in a ten-minute run and a few weights on Friday afternoon. So although I didn’t get in all of my workouts, I count this week as a success.

The training was almost secondary to the other aspect of my running, though: the fundraising. I am, after all, doing this for my son George and other kids with autism. This week, I got to reflect on this as my fundraising page got hit with its first donation. I am aiming to raise $1000 this year – a lofty goal in these hard times. That money, if I can raise it, will go a long way to helping children and youth with autism. It can get them art and music supplies, sports equipment, summer camps and job training, iPads and all kinds of other things that can help in their cognitive and sensory development. This is all stuff that can really change the lives of some of these kids.

Sometimes, when I am on my long runs, I feel as if I don’t have it in me to take another step. I am exhausted and sore, and I just want to stop.

But then I think about George, who is going to live with autism 24 hours a day, seven days a week, for the rest of his life. He is brave and determined in the face of his challenges, and he is chock-full of love and sweetness.

If he can live with autism every single day while he brings such richness to my life, surely I can find the same strength and determination to run for a couple of hours at a time.

To sponsor me in this year’s Run for Autism, please click here. All proceeds go to the Geneva Centre for Autism.

This is an original post by Kirsten Doyle. Photo credit to the author.

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2012 Run For Autism: Starting The Journey

Many of you already know the story.

You already know how I was a runner way back when, and then stopped and completely neglected my physical health after the birth of my kids. You know how I always wanted to get back into running, but never found the discipline. You know how I became completely comfortable as a couch potato but never quite got rid of that residue of regret.

You also know how an email landed in my inbox one day that completely changed everything. The email was an invitation for me to join the team being put together by the Geneva Centre for Autism for the forthcoming Scotiabank Toronto Waterfront races. Participants could run the 5K, half-marathon or marathon, and in the process raise funds for services for children and youth with autism.

It turned out to be just the motivation I needed. Within 24 hours I had made the transition from couch potato to speed demon extremely slow runner. Six months later, I had dropped almost sixty pounds and I was standing exhausted but triumphant at a half-marathon finish line, clutching my finishers medal and sobbing with emotion.

Here I sit, three years later, getting ready to embark on training and fundraising for my fourth Run for Autism. Since that first half-marathon in 2009, most of the weight has stayed off, my half-marathon time has improved by almost ten minutes, and I have raised over $2000 for the Geneva Centre for Autism.

This year’s race is on October 14th. My fundraising goal is a cool thousand dollars. This means that for the next four months, I will be shamelessly asking people for money – friends and family, complete strangers, and everyone in between. The money will go towards supplies and services for children and youth with autism. These are services that can provide skills that will last a lifetime, enabling people like my son George to lead happy, productive lives as fully integrated members of their communities.

Some examples of what $1000 can do are as follows:

  • Art supplies for 40 children and young adults
  • Sports equipment for 20 children and young adults
  • Musical instruments for 15 children and young adults
  • Job training for 15 young adults
  • Field trips for 10 children and young adults
  • Summer camp for 4 children and young adults
  • 2 iPads loaded with apps for individuals with autism
  • 1 piece of state-of-the-art sensory equipment

This list goes to show that every single cent really does make a difference. If you have the ability to, please consider sponsoring my Run for Autism and contributing to this incredible cause for my child and for other people with autism.

To donate, please visit my fundraising page.

It takes a very special kind of village to raise a child with special needs. Today, I invite you to be a part of my village.

(Photo credit: Brightroom Professional Event Photographers)