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10 Things That Shouldn’t Be Assumed About My Child With Autism

autism

1. Don’t assume that my child has low intelligence. Kids with autism are often capable of more than we give them credit for. Many of them have varying degrees of communication delays, which is why people don’t always realize the extent of their intelligence. As a result, they are often excluded from games and activities, when they should at least be given the option of participating.

2. Don’t assume that my child is a genius. When I tell people that my son is autistic, they immediately assume that he’s like Rain Man. Autistic savants do exist, but they are extremely rare. My son does have his strengths, and some of them could well turn out to be career material. But he’s unlikely to be the next Einstein, and people should not expect him to have some savant-like party-trick up his sleeve.

3. Don’t assume that my child doesn’t understand anything you say. Speech development in kids is divided roughly into two categories: expressive language (what a child says, or expresses) and receptive language (what a child understands, or receives). For many kids with autism, receptive language far outpaces expressive language, meaning a child who is non-verbal can understand and process a lot of what is said to him or her. It drives me crazy when people say things like, “Would your son like some juice?” when he is standing right beside me. Ask him if he’d like some juice. There’s a decent chance that he’ll answer, and the best way for him to develop his language skills is by practicing them.

4. Don’t assume that my child understands everything you say. Autism is an invisible disability. Apart from a very slight awkwardness in his gait, my son looks just like any other kid his age. You cannot tell just by looking at him that he has a disability. Therefore, one could be forgiven for assuming that he has the same language capabilities as other kids. If my son hesitates to answer you or act on what you’re saying, try breaking down your sentence into smaller, simpler chunks.

5. Don’t assume that my child “needs discipline”. Yes, I have on many occasions been “that mom”. You know, the one everyone is staring at because of her child melting down in the grocery store or making loud vocalizations in a restaurant. Most people, to their credit, are very understanding once they know that autism is in the picture, but there are always those who insist that a swift smack on the behind is all that is needed. I once had an elderly woman telling me, “In my day, no child was autistic because we were raised with discipline.” Here’s the truth: a meltdown can be awkward and uncomfortable for the parents and any onlookers, but it is a thousand times worse for the overwhelmed, anxiety-ridden child who is experiencing it.

6. Don’t assume that my child isn’t capable of misbehaviour. My son is twelve, and he has a twelve-year-old’s attitude. He is going through the same moodiness and unpredictability that other pubescent kids go through. It is easy to use autism as the default explanation for his behaviour, but as a doctor told me many years ago, “He is a boy with autism, but he is first and foremost a boy.” I have become quite adept at distinguishing my son’s “autistic” behaviour from his “typical bratty kid” behaviour, and I react accordingly.

7. Don’t assume that my child is incapable of emotion. Because he really isn’t. One of the biggest misconceptions surrounding autism is that autistics do not have the capacity for love and empathy. My son is one of sweetest, most loving people I have ever come across. He is full of hugs for the people he loves, and making people happy brings him joy. Here’s something he has done since he was little: when he wakes up in the middle of the night, he gets up to check on his younger brother and make sure he’s covered with a blanket.

8. Don’t assume that my child knows how to react to emotion. My son is undoubtedly an emotional being, but he does not always know how to respond to the emotions of others. And when he doesn’t know how to respond, his default reaction is hysterical laughter. This understandably appears to be incredibly insensitive to someone who is crying, but it’s a simple case of my son not knowing how to process something. He knows that crying is associated with sadness – he simply doesn’t know what to do with that.

9. Don’t assume that my child is not a social being. It is true that at times, social gatherings make my son uncomfortable. His tolerance for noise and crowds is definitely lower than that of most people, and for that reason we always choose to have events like Christmas and birthday parties at home. That way, he can retreat when he needs to. But in general, my son likes people. He likes being around them and interacting with them in his own way.

10. Don’t assume that my child is socially aware. To my knowledge, my son has never been around anyone who would deliberately want to do him harm. At his school, the general student body is tremendously respectful and protective toward the special needs kids. I have never had to worry about bullying or discrimination, but I know that this may not always be the case. My son is very trusting, as many people with autism are. He has limited sense of danger, as many people with autism do. He does not really have the capacity to understand that people can act nice but have not-so-nice motives.

This is an original post for Running for Autism by Kirsten Doyle.

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For James On His Birthday

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To my darling son James,

Nine years ago today, you finally decided to leave the comfort of the womb and join us in the world. You were a week overdue: either you were very comfortable where you were, or you figured that we would need an extra week of quiet before the adventure began.

The day of your birth was incredible, filled with little moments that I will never forget – like the little kid in the hospital coffee shop who was convinced that I was Santa Claus. You can’t blame him: it was Christmas morning and I had a massive belly and a Santa hat. The best moment of all, though, was when you came flying into the world like a cannonball, screaming in outrage. There was never any doubt that you had a very healthy pair of lungs and an abundance of energy.

Since that day, you have filled our lives with a very special kind of magic. You are never afraid to explore and discover not only what is in the world, but what is within yourself. Your massive imagination takes all of us on weird and wonderful journeys, and the front of my fridge is covered with your fabulous artwork. Your creativity combined with your love of animals has given us a zoo of animals that have been lovingly crafted by you. As I write this, you are transforming ordinary cardboard into a set of Wild Kratts creature power disks.

You have the biggest heart of anyone I know. You are one of life’s true givers who experiences absolute joy through the act of making other people happy. Every single day, I am on the receiving end of your spontaneous hugs and little handmade gifts and notes. I see the kindnesses you extend to your friends without even having to think about it. Being a caring person is so much a part of who you are that your school gave you an award for empathy.

The love that you have for your brother is genuine and complete. You do not take anything for yourself without first making sure George has something too. If George’s autism is making things difficult for him, you calmly and patiently do whatever you can to soothe and comfort him. You play with him, you share with him, you protect him. You take care of him so beautifully, and yet you think of him as your hero.

I know that sometimes I cannot keep up with your boundless energy and your constant chatter. But I absolutely love that those things are a part of your character, and I would not change a single thing about you.

I love you, and it is a joy and an honour to be your mom.

Happy birthday.

Lots of love,
Mommy

 

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5 Myths About Autism That Really Have To Go

 

Sharing a laugh with George

Sharing a laugh with George

1. People with autism are violent

Whenever there is a mass shooting, at least one media outlet makes a point of mentioning that the perpetrator “was probably autistic” or “was suspected of having Aspergers”. This kind of reporting is irresponsible, groundless and discriminatory. Yes, it is true that some people with autism have violent tendencies, but that is also true of the general population. Some black people have violent tendencies, but we don’t go around saying that the perpetrators of crimes “were probably black”, because that would be inexcusably racist. In any case, numerous statistics have shown that people with autism and other developmental disabilities are more likely to be victims of crime than perpetrators. I could go on about this all day, but instead I will point you to this excellent post written by my friend Sophie Walker.

2. People with autism have to follow special diets

Autism parents are always being told to change their kids’ diets. We are bombarded with messages telling us that everything we buy at the grocery store is aggravating the autism and poisoning our families. We are pushed towards the gluten-free, lactose-free, sugar-free, everything-free versions of foods, and there are two problems with this. First, in many cases it is not necessary. Second, these special diets cost an absolute fortune. Many autism families can barely make ends meet as it is – it is wrong to expect them to stretch themselves even further by spending money on expensive foods that in most cases, won’t make a difference. The proper way to do it is to have the child properly tested by a qualified professional, and then make any dietary changes that are needed.

3. People with autism are not capable of empathy

Last weekend, I was at a park with my kids. James was playing on the slides and George was sitting on the outskirts of the play area, contentedly picking up handfuls of sand and letting it slip through his fingers. All of a sudden, I heard a cry of pain, and I looked up to see that a little girl of nine or ten had fallen off the swing. She was lying on the sand crying, and the swing was moving back and forth like a pendulum above her head. Without hesitation, George leapt up and ran to the little girl. He stopped the swing from moving, and guided her out from underneath it. Then he simply stood there beside her until her mother reached her. The moral of this story is: don’t tell me that my child with autism is not capable of empathy. Like many kids with autism, he is capable of empathy, but he doesn’t always know how to express it.

4. People with autism are geniuses

Honestly, Rain Man has a lot to answer for. Because of that movie, people keep asking me if George can instantly do large math sums in his head, or identify with a single glance how many Cheerios have fallen out of a box. The answer is no. He can’t. He’s an intelligent child with problem-solving skills that will stand him in good stead through life, but I have to be realistic. The kid isn’t a genius, nor would I expect him to be. True savants, like artist Stephen Wiltshire, or musician Derek Paravicini, are rare.

5. People with autism don’t understand what’s going on around them

Sometimes I find myself in conversations with people who are asking me about autism, talking about George’s future and making comments on his limitations. I am always happy to have these conversations, but not necessarily in front of George. He may have autism, but he has ears that work, and he understands more than his limited speech lets on. On a related note, it drives me crazy when people ask things like, “Would he like a cup of juice?” when he’s standing right there. If you want to know what George would like to eat and drink, ask him, not me. He often needs help to answer questions, but he should at least be given the opportunity to try. How is he going to learn to have a conversation if people keep talking about him and not to him?

This is an original post by Kirsten Doyle. Photo credit to the author.

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What Do You Tell A Child When Another Child Dies?

 

Luke

Luke

Last weekend, I received word that a friend’s seven-year-old son, Luke, was in ICU after a near-drowning incident. I kept near-constant vigil at my computer during my waking hours, anxiously waiting for updates, and when I got the news that Luke had died, I took it very hard. As a human being, as a parent, as the mother of a seven-year-old boy – this tragedy hit very close to home.

As I have tried to make sense of the emotions that have been swilling around in my head all week, I have grappled with the question of what to tell my younger son, James.

The concept of death is not new to James. He got a rude introduction to it in Kindergarten, when his teacher died of pneumonia. The teacher had been very popular among the kids; James had absolutely adored him, and had a hard time understanding that he’d never see him again.

In the three years since then, he has developed a reasonably healthy attitude to the fact that people die. He asks about his grandfathers and how they died, and he talks about angels and souls and stuff like that. He is sad when people close to us die, but he accepts that it is part of the circle of life.

This is different, though. Old people dying is part of the circle of life. Children dying is an idea that just doesn’t fit. The mere thought of it has a jarring effect, as if you’re listening to soft classical music and hear a sudden blast of ear-splitting heavy metal. I wasn’t sure if James was ready to be introduced to this concept, especially since he had never met Luke.

Just as I had decided not to tell him, he came up to me as I was looking at a picture of Luke that his mother had posted on her Facebook wall. He asked me about the little boy in the picture, and I found myself telling him that Luke was now an angel. This led to a discussion that was hard for both of us.

For all his bull-in-a-china-shop approach to life, James is a sensitive child with a natural sense of empathy, and he was genuinely sad as he looked at Luke’s picture. He talked about how he’d never get to play with Luke, and he expressed concern for Luke’s mother.

“She must be so sad,” he said. “Is she going to be OK?”

I told him that yes, Luke’s mother was very sad, and I assured him that she had lots of people around her who would make sure she was OK.

There was a pause, and then he said, “Mommy, if I died, would you be OK?”

I couldn’t answer him. I was too busy trying to hold my rapidly dissolving composure. I just held him as close to me as I possibly could.

A few minutes later, his little voice piped up again.

“Mommy, I’m scared. Kids can die, and there are so many ways to die.”

This was a tough one. How was I going to strike the balance between realism and reassurance? I couldn’t say, “Don’t worry, it won’t happen to you or your brother”, especially since this whole discussion had arisen from an unexpected tragedy. And I couldn’t say, “Yes, accidents can happen at any time”, because that would freak the poor child out and make him afraid of leaving the house.

And so I decided to focus on probabilities. If we only cross the street when the pedestrian light is green, there’s far less chance of being hit by a car. If we don’t answer the door to strangers, they won’t kidnap us. If we eat the right foods and run around in the back yard every day, we will get sick less often and we’ll get better faster.

In other words, staying safe and healthy does not guarantee that something won’t happen, but it does vastly improve our chances. It’s good to be cautious and mindful of potential danger, but we have to live our lives.

As I spoke to James, his fears seemed to ease. Since then, he has returned to the topic a few times, and as hard as it is, I am glad that the original discussion opened a door for him to talk about a subject that is important.

Later on that day, James came up to me and said, “Mommy, I’m still sad for Luke’s mommy, but I’m not so worried about her anymore.”

“Why is that?” I asked.

“Because Luke is still alive in her heart, and he can hug her from the inside.”

This is an original post by Kirsten Doyle. The picture of Luke is reproduced with the kind permission of Janice Zimmerman.

 

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13 Signs That Cats Have Autism

Murphy

Murphy

1. They have poorly developed social skills and little interest in playing with other animals.

2. They have great problem solving skills. If they want something, they will find a way to get it.

3. They’re not big on empathy, but they can be very loving towards those who are close to them.

4. They won’t sleep at night if they don’t want to.

5. When they’re not sleeping at night, they’re doing whatever they can to keep you awake.

6. Understanding what they want often involves a combination of guesswork and luck.

7. They can make you laugh when you least expect it.

8. They will lash out and scream bloody murder if you try to cut their nails.

9. They will lash out and scream bloody murder if you try to get them to swallow a pill.

10. If you try to give them a bath, you will often end up with more water on you than they do.

11. They won’t play with the toys you buy them, but they’ll find new and exciting uses for a piece of string.

12. They have a superhuman ability to focus for long periods of time on things that interest them.

13. When they snuggle up to you with absolute love and trust, that is the best feeling in the whole world.

(Photo credit: Kirsten Doyle)

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Band-Aids and Autism: How my Son Saved the Day

Several nights ago, right after lecturing my younger son James about keeping fingers away from sharp objects, I sliced my thumb open on the lid of a freshly opened can of tuna.

I made a run for the bathroom and held my profusely-bleeding hand over the sink while James trailed in saying, “Mommy, you really should learn to be more careful.”

I really should, indeed. I’m not at all sure how this even happened. What I do know is that the amount of blood was startling. It was a deep cut, right across the soft padded part of my thumb. I wasn’t really sure what to do about it. I had a full box of Band-Aids, but I didn’t think they would do a great job of stemming the flow. I was out of gauze pads, and George had surreptitiously used up all of my surgical tape to stick bits of paper to other bits of paper.

As I stood at the bathroom sink stupidly watching my blood go down the drain, George – eight years old and autistic – came in with the box of Band-Aids, that he had gotten out of the cupboard without anyone asking him to. He started unwrapping Band-Aids and wrapping them around my thumb. They were instantly getting soaked, but George kept at it, adding Band-Aids down the entire length of my thumb. Eventually, my thumb was trussed up in about twenty Band-Aids. It looked absolutely ridiculous, but the bleeding was contained.

George then added an extra-special touch: he took my hand, and lightly kissed my Band-Aided thumb.

It’s hard to say what aspect of this whole incident is most significant.

George, autism and all, responded immediately and appropriately to what he saw as an emergency. This child, who gets totally freaked out at the sight of blood, showed no more than a little bit of mild distress. He managed to stay completely calm as he bandaged me up. He quietly took charge of the situation in a way that astounded me. The kiss demonstrated tenderness and empathy – just the kind of bedside manner that someone with a fresh injury needs.

It makes me think that I should start teaching him First Aid. If this incident is anything to go by, George seems to have that instinct of calmly wanting to help when someone gets hurt. It could serve us well to empower him to help in situations like this, starting on a small scale, of course. I wouldn’t expect my eight-year-old to perform CPR, but if he had the tools to handle minor First Aid emergencies, that could be good not only for his potential patients, but for himself.

Do you think George’s response to this situation might be evidence of some instinct that he naturally has? What opportunities do you think might arise from this?

(Photo credit: http://www.flickr.com/photos/honan/3779689068/)

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You Think You Know…

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Today, I am also participating in the WEGO Health True Life Tuesday Blog Party, in which participants start their posts with the phrase, “You think you know, but you have no idea…”

You think you know, but you have no idea.

You look at parents who have special needs kids, and you contemplate the things you think they are doing wrong. Thinking you know better, you utter sentences that start with the phrase, “If that was my child…”

Until you get handed a diagnosis of autism and realize that, wait a minute, that is your child. You find yourself facing the same challenges as all of those parents you used to be quick to judge, and you find yourself responding in very similar ways.

You have no idea what special needs parenting is like until you are wearing those shoes.

Yes, my child has sometimes been the kid having a very loud meltdown in a grocery store.
Yes, I am the mom who has occasionally snapped needlessly at her kids in public, because she was just so overwhelmed.
Yes, I sometimes let my child play on the computer for longer than is considered ideal, because I am so desperate for time to take a shower.
Yes, I do want to get all available services for my child, but that is way easier said than done.
No, I don’t invite my son’s classmates over for playdates to encourage interaction. They are all special needs kids, and seeing each other outside of school is too weird and overwhelming for them.
Yes, my son’s hair is tangled and unruly. He is terrified of having it either washed or cut, and I just have to do the best I can. I know it doesn’t always look great.
Yes, I vaccinate my kids. I think the autism/vaccine link is pure bumph. I respect anyone who does believe in the link and I expect the same courtesy from them.

And no, I had no clue what special needs parenting was all about until I woke up one morning and discovered that I was now one of them. Many things have surprised me about this journey. There are things both good and bad that I did not expect. Being a special needs mom has taught me a great deal about myself and about other people. One of my biggest surprise discoveries is that I have far bigger reserves of patience than I thought. For the most part, I can stay calm in the face of a meltdown, and do what I need to do to see myself and my son through the storm.

Last week, I used my social media channels to ask other moms the question: just what is it about special needs parenting that has surprised you the most? I got responses that were both poignant and uplifting. Many of them I can relate to myself.

Here’s what other special parents have found surprising about their journeys:

  • The apathy of most people. If it’s not affecting them personally, they don’t give a crap or they say ” Why should I? It’s not affecting me” (Leigh)
  • It’s not as bad as I thought it would be. (Jacquie)
  • How much energy it takes at times…like mid-meltdown… (Lucette)
  • The lack of community support. I was also surprised by my reaction to that – one of passion and action! (Amy)
  • How ignorant the NT’s can be (Ron) (For the uninitiated, NT means neurotypical, a fancy term for “typically developing”)
  • How strong it can make a mother! (Mimi)
  • How screwed up my idea of success was. (Jennifer)
  • How uncaring the rest of the community is and how much energy it takes to keep on fighting for acceptance. (Susan)
  • The fact that we have to fight our school systems for EVERY support and service that will help our kids in the future. (Barbara)
  • How hard it is to accept offers of help, and how much better it works for everyone when I do. (Ruth)
  • How strong I’ve become, physically and emotionally…well, most days anyway. 😉  (Megan)
  • How after a while you stop seeing the special needs, and just see the child. It’s only ever other people who make you notice the special needs again. (Freya)
  • How hard but rewarding it is! (Hike. Blog. Love)
  • How much you truly learn from them! And I now know the real meaning of determination. (Vera)
  • How I have forced myself to re-evaluate some of the values I had about life. Some people will always do “bad” things, our faith in a Higher Power should be our motivation to forgive those people since we ask forgiveness from “Above” and HE forgives indiscriminately (Naadia)

Reading what these parents have to say should send a very clear message that even when there’s a common diagnosis, like autism, everyone’s journey is unique. We all have our own sets of challenges.

So next time you think someone is falling short of what they could or should be doing as a parent, just remember that you’ll probably never have the opportunity to wear their shoes.

(Photo credit: http://www.flickr.com/photos/libookperson/6187904322/. This picture has a creative commons attribution license.)

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Affection, Empathy And Autism

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Several years ago, my mom volunteered at a “Riding For The Disabled” program. She would help a child with cerebral palsy or Downs Syndrome onto a horse, and then lead the horse around a field. Many of the kids she worked with would be on the edge of meltdown at the beginning of the designated hour, but after five minutes on horseback they would be completely calm.  My mom, always an animal-lover, adored the horses, and she loved working with the children.

There was a little boy with autism in the group, and although my mom didn’t love him any less than the other kids, she did find him a lot more challenging to work with. He was a highly intelligent child with severe communication deficits and some intense behavioural issues. Once settled on his horse, he would jab at the horse’s neck and tug at its mane, and any attempts by my mom to stop him would lead to meltdown. She swore that he deliberately kicked her as he was getting down from the horse after his turn. More than once she returned home with nasty bruises on her arms or legs.

Although this was all in the day before autism became a more direct part of our lives, my mom was sufficiently aware to know that the child’s behaviour was a result of his autism, and not a personal vendetta against either her or the horse. She believed, though, that he was not remotely capable of either affection or empathy. And because people form generalizations based on what they know, for a long time we subscribed to the commonly held belief that people with autism are not able to have meaningful connections with other human beings.

In fact, when we were waiting for my own son’s diagnosis, in our ignorance we pretty much ruled out autism in our own minds.

“He’s so affectionate,” we would say. “It couldn’t possibly be autism.”

Now, of course, we know better, and we are able to gently correct the people we come across who follow the same stereotype.

My son George may not ever be a great talker, but there is nothing wrong with his ability to feel and express love. All I have to do to know this is come home after work. My husband and sons watch for me from the front window, and as soon as they see me walking down our quiet street, my husband opens the door. The kids dash out and race each other to me. And then, with looks of pure joy on their faces, they launch themselves at me so hard that the force of their love knocks me off-balance.

Sometimes, when I am working on my laptop at home, George will  come up to me and somehow arrange his lanky eight-year-old self on my lap. And he will wrap his little arms around my neck and hug me, oh so fiercely. Then there are the times I wake up in the night to find him snuggled up to me, sleeping peacefully with one of his hands curled around a strand of my hair.

Admittedly, there was a time when I worried about what seemed to be a lack of empathy towards his little brother, James. About a year ago, I told a member of George’s therapy team that whenever James was crying, George would laugh hysterically at him. I expressed concern at the lack of empathy and the apparent joy that he got out of his brother’s pain. The therapist smiled at me kindly and said, “He’s a seven-year-old boy. That’s what seven-year-old boys do.”

While most other people have to be educated on the behaviour of special needs kids, my husband and I frequently have to be told how typical kids behave. It’s a little bizarre, but there it is.

The truth is that although George can be a typical pain-in-the-ass brother, just like any other brother, it is clear that he adores James. He is never comfortable with James’ absence, and his demeanour takes on an air of tenderness when James is sick. There are times when one of the boys will go in search of the other one during the night, and I will find them in the morning, curled up together, with George’s arm thrown protectively over James’ shoulders.

When I think about George’s future, there are many things I worry about.

His relationship with his brother is not one of them.

(Photo credit: Kirsten Doyle)

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Campbell: A Story Of Kindness

Tazz and Campbell

Once upon a time, I had a child and called him George. I had all kinds of hopes and dreams for that child. We were going to  take him on the kinds of outings kids love, and for his birthdays, we’d invite his friends to come too. We would delight in watching him grow from babyhood to childhood as he ran and jumped and played with his peers; we would laugh at the funny things he said as he was learning to talk; he would make cookies with me and we’d go for picnics at the zoo. When he became a big brother he would take pride in helping with the baby.

One day, when George was almost four, the hopes and dreams crumbled as a doctor gave me the news that George had autism. As I sat there in shock (strange really, since I’d known for a year that something was wrong) I did not yet know that at some point in the future, I would come to accept a new kind of “normal”, that my hopes and dreams would take on a different, but still meaningful form, and that while the journey would take us on the scenic route, we would still see many wonderful things along the way.

It hasn’t all been a cakewalk. There have been hard times. I have had to learn how to restrain my son with my bodyweight to stop him from hurting himself. Speech is still sporadic enough that we celebrate every single word, every single sentence. It saddens us that George does not have friends, preferring to play by himself.

One of the hardest things to deal with has been the reactions of other people. We get rude stares in grocery stores, and complete strangers tell us that what our child needs is “a good hiding”. When people see George having difficulty in a public place, they jump to the immediate conclusion that he is misbehaving. Don’t get me wrong – sometimes he is. He may have autism, but let’s face it – an eight-year-old boy is an eight-year-old boy. Most times, though, George is having trouble with the brightness of the florescent lighting, or the overabundance of sounds, or all of the conversations going on around him that he does not know how to filter.

I sometimes wish for a magical potion, a Perfume of Arabia that I could sprinkle onto people to open their eyes and help them understand.

In the absence of a Perfume of Arabia, the best I can do is write about my experiences and hope that it will make a difference to someone’s life. Like it did to a reader, Tazz, who along with her dog Campbell, had an incredible encounter with a special needs child. With Tazz’s permission, I am sharing the story here. I’m not even going to bother rewording it. Tazz’s words can speak very well for themselves.

“One thing I learned is to never ever judge what I see a child doing, because for all I know there may be a problem I do not know about. Turns out this info came in very handy for me not long ago. There is a family who are members of the church I am currently attending part time. Their son has some kind of a problem that they have not quite diagnosed yet. However, it causes him to sometimes have horrible meltdowns. I was walking down the hall one day during Sunday School time going back to class from the bathroom when from a room down the hall a ways I heard the most heartbreaking crying I ever heard, and knew it was this little boy having another hard time. His mother was doing all she could to calm the child. I followed my heart and took a chance. I softly knocked on the door, and asked if I could help. She had come to the door with the melting down child in her arms, and when he saw Campbell his screaming stopped. I mean like turning off a switch. I asked if I could bring Campbell in and visit for a minute. She agreed and we all sat on the floor with the little boy calming down and petting Campbell. They are now looking in to the possibility of getting a therapy dog for this child. Campbell has come to rescue this child a couple more times since that day. Because now if we are there, and this child starts to have a problem they come and get me from where ever I am and I happily go and help. Well, Campbell helps.

Is this not the most amazing story? Tazz had an instinct and she followed it. She and her dog were exactly what that little boy and his Mom needed. We special needs parents all need people like this – people who don’t necessarily know the circumstances, but who open their hearts to people who really need it.

To Tazz and all of the people like her, thank you. Thank you for being there. Thank you for being you. You restore my faith in the goodness of human nature.

This week’s Indie Ink Challenge came from Head Ant, who gave me this prompt: What would your proverbial “perfumes of Arabia” take care of? Fiction or non-fiction.
I challenged lisa with the prompt: Write about anything you like, but include the following: cotton candy, a dog, and a broken-down taxi.

Photo credit to Tazz. This picture was taken at an event to remember the victims of domestic violence.

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Empathetically speaking

Two years ago, while I was home alone with the kids, I sliced my hand open on a broken glass.  I called my husband to take me to the hospital to get stitched up, and enlisted the babysitting services of my mother-in-law. As I sat with a bloody dishcloth wrapped around my hand, waiting for said husband and mother-in-law to show up, the kids stood there gawking at me.  To put it more accurately, James stood there gawking at me.  Then only two years old, he hadn’t yet grown a sense of empathy.  He was intensely curious about why Mommy was clutching her hand and making funny noises. George just laughed.  I guess the sight of me sitting there with a white face and straggly, witchy hair, dripping blood all over my clothes, could be seen as amusing, but at the time I was too focused on whether my hand was still attached to appreciate the humour of the situation.

That George’s reaction was so at odds with the situation is not surprising.  Lack of empathy is one of the hallmarks of autism. When James is hurt or upset, George will stand there laughing at him, much to poor James’ distress.  He has no way of understanding that George is not trying to be mean.  It’s not a case of George deliberately laughing at someone else’s pain. He simply doesn’t have the social cues to know when someone else is actually in distress.  The rest of us know that when someone cries, they’re sad, or when they say “ouch”, they’re hurt. People with autism have difficulty with this.

George has discovered a series of Youtube videos that fascinates him no end.  The videos feature an orange talking to other fruits on the kitchen counter.  The orange is incredibly annoying and makes all kinds of jokes at the expense of whichever fruit is unfortunately enough to be engaged in a conversation with it.  The videos always end by the orange saying something like “knife”, and then watching in horror as the other fruit gets sliced up to the sound of its own screams.  The videos are quite funny in a disturbing, South Park kind of way, and absolutely not appropriate for children.  George finds them absolutely hilarious – or he did before I got wind of them and started an endless campaign to stop him from watching them.

Yesterday, George’s attempts to watch the annoying orange were blocked.  Every time he tried to access them, I would close the browser window and drag him away from the computer.  He was getting very upset and agitated – more so when I announced that his allotted time on the computer was up.  The legs were kicking, the hands were flapping, the little face was wearing an expression of utter distress.  Just as I thought we were getting to the point of a meltdown, he looked directly at me – a relatively rare event – and with supreme effort, he said, “Mad”.

I was bowled over. This was a new development – a milestone to be celebrated, despite George’s state of upset.  In most circumstances, George would have simply exploded in a fit of frustration.  But now, for the first time ever, he had used an emotive word to express how he was feeling.  Instantly I saw the possibilities: if he was able to identify and label his own emotions, surely the next step would be to identify what other people were feeling and react appropriately.

Somehow I was able to divert George’s attention from the violent fresh produce videos.  I allowed him a bit of extra time on the computer, and he clicked onto Youtube videos showing scenes from Toy Story.  There is one scene where Buzz Lightyear and Woody are weaving in and out of traffic as they try to catch up with the family’s moving van.  The other toys band together and try to help them, and during all of the excitement Mr. Potato Head topples over and some of his bits fall off.  At this point in the video, George tapped me on the shoulder to get my attention.  He pointed at the computer screen and said, “Ouch.  Hurt.”

Empathy!  George had just shown empathy!  Who cares that it wasn’t for a real person in an actual situation?  Who cares that he felt empathy for a toy in a fictional tale?  He saw a situation, assessed it correctly, and identified that Mr. Potato Head was hurting.  And he wasn’t even laughing – his face was all seriousness.

They say things happen in threes, and this turned out to be the case yesterday.  After the excitement of the dual milestones in the morning, there was an incident in the evening that capped off the day in the best possible way.  Both of the boys had spent the afternoon in the backyard, and they were absolutely filthy (word of advice: kids + sand + ice cream = not a good combination). Although tempted to simply hose them down in the backyard, I settled for giving them a bath.  George, as is his custom, grabbed his box of alphabetic fridge magnets and dumped them into the water.  He doesn’t play with them when he’s in the bath, he just likes to have them with him.  It makes bathtime a very interesting and noisy event.

When bathtime was over, I let the water out of the tub, and got the kids towelled off and in their jammies.  Then it was time to dry the alphabetic magnets.  If they are not shaken off and dried, George dumps wet letters on his bed and everything gets soaked.  So I was kneeling by the tub, drying off letters and putting them into the empty plastic fish tank that serves as their receptacle, and I dropped one.  I discovered that when those things are dropped in a bathtub, they bounce about a mile.  I was unceremoniously hit in the face by the letter “Q”.

George was standing by, patiently waiting for his letters.  Usually this incident would have brought forth peals of infectious giggles.  But there was silence for about ten seconds.  Then, George tentatively approached me, and shyly said, “Mommy?” I said, “Yes?”, and he said, “Are you OK?”

Not only was this such a wonderful demonstration of empathy, it was the most natural spontaneous exchange I have ever had with George.  It was an exchange that was appropriate to the situation, one that he initiated himself with no prompting.  It was a genuine moment of connection, one that will be with me for a long time.