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Autism and Bedtime: 11 Steps For Not Going Completely Insane

 

The Hyperactive Neurotypical Child

Since the beginning of time, when Adam and Eve got talked into eating an apple by a psychotic snake, women – and to a lesser extent, men – have been pondering the same question. It is a question that crosses all geographic, ethnic, cultural and religious boundaries, one that unites mothers in a way that nothing else can.

How am I going to get this child to sleep?

When there’s a child with autism in the family, that question crops up with frightening regularity. It becomes an automatic response to just about everything. Here’s a typical conversation between husband and wife while the kid with autism bounces on the ceiling like a yo-yo:

Husband: What should we have for dinner tonight?

Wife: How am I going to get this child to sleep?

Husband: Ummm. I don’t know. So, dinner. What do you think? Chinese takeout?

Wife: Sure, sure. How am I —

Husband: Do you want chop suey or chow mein?

Wife (sobbing): How am I going to get this child to slee-eee-eeeeeep?

Husband (fumbling awkwardly with takeout menu): OK, I’ll just order something.

For you autism parents who are feeling a little desperate, I offer you my Bedtime Survival Tips.

1) Make sure you have wine. You won’t need it for the bedtime ordeal itself, but it will a great reward for you to give yourself if when the kids get to sleep.

2) About two hours before bedtime, sweetly ask the fruits of your loins to put on their pajamas. You’ll have to ask both of them about a gazillion times before they comply, so the more lead time you give yourself, the better.

3) An hour before bedtime, calmly talk to the Hyperactive Neurotypical Child and ask him to put on his pajamas. If When he argues on the grounds that his brother doesn’t have pajamas on, explain to him that you need him to lead by example. Bribe him with a donut.

4) Send your husband out to buy donuts.

5) Repeatedly tell the Autie to put on his pajamas, with your voice gradually increasing in pitch and panic. Right before you hit your breaking point, sob with relief when you hear your husband return with the donuts. Armed with your confectionary currency, coax your kids into their pajamas and then give them their reward. Fail to care when they wipe their gooey hands all over the fronts of their nice clean pajamas.

6) Sergeant-Major the kids into the bathroom one at a time to pee and brush their teeth. Do the Autie first. If you do the Hyperactive Neurotypical Child first, the Autie will head for the hills and you won’t see him until next Christmas.

7) Get the kids their bedtime milk. Remember to break a Melatonin capsule into the Autie’s milk, otherwise he will spend the entire night gleefully and vigourously rubbing the top of your head.

8) Channel the days when you used to herd cats and get your kids moving in the general direction of their rooms. Naively believe the Hyperactive Neurotypical Child when he says he’ll quietly try to go to sleep.

9) Kiss the little darlings goodnight and retreat into the living room. If When one of them makes a sudden appearance by your side, calmly shepherd them back to bed.

10) Repeat Step Nine 84 times.

11) When there has not been any activity for three geological eras, you can safely assume that the kids are asleep. Pour some of the wine from Step One into a glass and drink. If you’re feeling really frazzled, cut out the middleman and just drink straight from the bottle.

(Photo credit: Kirsten Doyle)

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Santa and Autism: A Special Brand of Magic

This morning I was faced with a minor dilemma, brought on by the fact that it was Pajamas and Stuffed Toy day at my son’s school. If it had been my younger son – the one who doesn’t have autism – it wouldn’t have been a problem. But since this is my older son we’re talking about, I had to make a choice. Do I encourage him to take part even though the idea of wearing pajamas instead of clothes to school could make him feel seriously disoriented and possibly distressed? Or do I let him just wear clothes even though that would mean yet another thing that sets him apart from the typical kids in his school?

See? Dilemma.

As an autism parent, I constantly have to make tradeoffs of this nature on behalf of my child. On the one hand, I want him to have as many “typical kid” experiences as possible, but on the other hand, I don’t want to cause him to be upset.

It always come down to the idea of choosing my battles, and by now I know that I should only pick the battles that really matter. And let’s face it – wearing pajamas to school does not exactly count as an essential life skill, especially when he’s part of a class of special ed kids who probably wouldn’t be into the whole pajama thing either.

And so I decided to let him exercise his preference in the only way he knows how. I would dress him in a clean pair of pajamas and then see what happened. And what happened was that he promptly crawled back into bed. It was only when he realized that he was actually going to school that he started to resist the pajamas idea. Within seconds the pajamas were coming off and George was rummaging around for clothes to wear.

Surprisingly, though, he did want to take a stuffed toy. I say “surprisingly” because George has never really been into stuffed toys. This is a kid who sleeps with about a dozen Mr. Potato Heads and a pineapple. But not only did he want a stuffed toy today, he wanted two. In an intriguing fusion of holidays, he selected an Easter bunny and a stuffed Santa.

I was sure he’d lose interest in the whole thing by the time the school bus showed up, but he went off to school with Santa and the bunny, and by all accounts he had a great day.

Friday is always Show & Tell day in George’s classroom, and from time to time we send him in with something and his teacher gets him to “participate”. In a dramatic break with tradition today, he independently – independently! –  joined the Show & Tell circle and proudly showed off his Santa.

This moment of progress proves to me that although Santa is not real, he is capable of producing magic.

(Photo credit: Kirsten Doyle)