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Sick Child, Sleepless Night

February 8, 2011 By

When you receive a call from your child’s daycare that includes the words “vomiting” and “diarrhea”, you know your day is about to take a nosedive.

Yesterday morning, I arrived at work and went straight into a meeting without even going to my desk first. After the meeting, I returned to my desk and saw the message light on my phone blinking. Three new messages. All of them from James’ daycare teacher, asking begging for someone to pick him up and take him home.

This was a problem for me, since I was sitting in my office at work, more than an hour away by public transit. I called my mother-in-law, who is listed on James’ paperwork as a designated pick-up person. She didn’t answer her phone. I called Gerard, whose place of business is ten minutes’ drive away. He didn’t answer his phone. For about twenty minutes, I was frantically calling the two numbers in turn, picturing my poor child huddled over miserably at the daycare. In the end, my mother-in-law picked him up, and took care of him for the day until Gerard and I were able to get home.

During the night, things got really rough. Right before bedtime, James twisted around to throw up again, into the plastic basin that he had placed beside him. As he twisted, he dinged his knee very hard on the metal frame of the futon he was lying on. All of a sudden, his knee was as much of a problem (although a less messy one) than the fact that he was sick.

He was crying because his stomach was hurting. He was crying because his knee was hurting. He was crying because he felt bad about messing up his clothes. He was crying because he was hurting with thirst and couldn’t keep anything down.

My poor baby.

I lay down with him and tried to sleep.

That didn’t work out too well. During the night, there were two episodes of vomiting and one of diarrhea, along with many, many cries of pain because of the sore knee. I iced and bandaged the knee, and that seemed to help. I dressed James in clean pyjamas, and that made him feel better. I gave him sips of flat Coke, and he managed to keep that down.

Finally my boy went to sleep.

I did not. By now my mind was racing a million miles a minute. I was thinking of anything and everything. Rest was out of the question. Finally, at around 6:00 a.m., I fell into a fitful sleep, only to be woken up half an hour later.

Going to work today was out of the question. James, while a lot better, needs to be at home, and he needs his Mommy with him. Meanwhile, Mommy’s brain is in a complete fog. I tried to do some work from home, but in the end, I decided to take the day off. Work in any reasonable form was just not going to happen today.

On the bright side, we have had about seven hours now with no throwing up, and about five hours with no diarrhea.

Things are looking up.

Filed Under: Children, Illness, parenting Tagged With: , , , , , , , , ,
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The Parent Who Disappointed

January 31, 2011 By

This weekend I had the dubious distinction of being The Parent Who Disappoints.  It’s not a nice feeling, I tell ya.  In fact, it’s downright awful.  I feel like someone’s reached down into my throat and twisted my heart around when I see my five-year-old son standing in front of me with fat tears rolling down his cheeks because of something I’ve done.  Or in this case, failed to do.

James was supposed to go to a birthday party on Saturday afternoon.  The party was being held for a little girl who goes to school and daycare with him.  She is a really, really lovely child with equally lovely parents.  James was excited about going to the party, but the catch was that I would have had to stay at the party with him. He’s not ready to be left without either of his parents at an unfamiliar house (and frankly, I’m not ready for it either).

It’s not that I mind staying at these parties.  In fact, I kind of enjoy sitting there chatting with the other parents while our kids run around and play.

On Saturday, though, I was sick. I was streaming with a cold, using up Kleenexes at the speed of sound, inhaling cough drops like they were Smarties, and feeling as if my head was about to explode.  And by Saturday afternoon I had started developing pink-eye, and my eyes were oozing in a very unsavoury manner.

Would you have wanted me hanging out in a house full of moms and kids in that condition? Would you have even wanted me driving in that condition, with my eyes pretty much sealed shut with gunk?

Gerard was not able to go, because he had an appointment with a client at work.

Gerard’s mom, the only other possible candidate, was at a funeral.

It fell to me, in my sick, dreary state, to break the news to James that I would not be able to take him to the party. James was not angry, and he did not throw a tantrum.  He just started weeping in a very, very sad way.

Now, in addition to being as sick as a dog, I felt like a piece of crap parent. I felt so sad for my little guy that I started to weep myself.

Just in case you were wondering: crying when you have pink-eye is not a good idea.

I apologized over and over to James.  I explained to him the dual problems of putting everyone at risk of illness and not actually being fit to drive.  Later, he assured me that he understood and that he didn’t hate me.  But still.  I felt horrible for disappointing my baby.

I asked him what I could do to make it up to him, and he said he’d like a birthday party of his own.  This works for me – I have plans to throw him a party anyway – but his answer has prompted me to step it up a notch, to make a supreme effort to provide him with a special day. He wants to have his party at an indoor playground, and he wants a Lightning McQueen cake.  I’ll provide him with a Lightning McQueen cake if I have to go all the way to Radiator Springs to get it.

James misses out on a lot. It must be tough for him, being the brother of a child with autism, and the son of a Mom who gets sick at just the wrong time.

The least I can do is give him a day that he can call his own, where he will be the centre of attention.

Filed Under: parenting, postaday2011 Tagged With: , , , , , , , , , ,
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The Parent Who Disappointed

January 31, 2011 By

This weekend I had the dubious distinction of being The Parent Who Disappoints.  It’s not a nice feeling, I tell ya.  In fact, it’s downright awful.  I feel like someone’s reached down into my throat and twisted my heart around when I see my five-year-old son standing in front of me with fat tears rolling down his cheeks because of something I’ve done.  Or in this case, failed to do.

James was supposed to go to a birthday party on Saturday afternoon.  The party was being held for a little girl who goes to school and daycare with him.  She is a really, really lovely child with equally lovely parents.  James was excited about going to the party, but the catch was that I would have had to stay at the party with him. He’s not ready to be left without either of his parents at an unfamiliar house (and frankly, I’m not ready for it either).

It’s not that I mind staying at these parties.  In fact, I kind of enjoy sitting there chatting with the other parents while our kids run around and play.

On Saturday, though, I was sick. I was streaming with a cold, using up Kleenexes at the speed of sound, inhaling cough drops like they were Smarties, and feeling as if my head was about to explode.  And by Saturday afternoon I had started developing pink-eye, and my eyes were oozing in a very unsavoury manner.

Would you have wanted me hanging out in a house full of moms and kids in that condition? Would you have even wanted me driving in that condition, with my eyes pretty much sealed shut with gunk?

Gerard was not able to go, because he had an appointment with a client at work.

Gerard’s mom, the only other possible candidate, was at a funeral.

It fell to me, in my sick, dreary state, to break the news to James that I would not be able to take him to the party. James was not angry, and he did not throw a tantrum.  He just started weeping in a very, very sad way.

Now, in addition to being as sick as a dog, I felt like a piece of crap parent. I felt so sad for my little guy that I started to weep myself.

Just in case you were wondering: crying when you have pink-eye is not a good idea.

I apologized over and over to James.  I explained to him the dual problems of putting everyone at risk of illness and not actually being fit to drive.  Later, he assured me that he understood and that he didn’t hate me.  But still.  I felt horrible for disappointing my baby.

I asked him what I could do to make it up to him, and he said he’d like a birthday party of his own.  This works for me – I have plans to throw him a party anyway – but his answer has prompted me to step it up a notch, to make a supreme effort to provide him with a special day. He wants to have his party at an indoor playground, and he wants a Lightning McQueen cake.  I’ll provide him with a Lightning McQueen cake if I have to go all the way to Radiator Springs to get it.

James misses out on a lot. It must be tough for him, being the brother of a child with autism, and the son of a Mom who gets sick at just the wrong time.

The least I can do is give him a day that he can call his own, where he will be the centre of attention.

Filed Under: parenting, postaday2011 Tagged With: , , , , , , , , , ,
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How Organization Creates Chaos

January 28, 2011 By

This morning I took my Christmas decorations down.  Yes, I know that it is January 28th, and that the 12th day after Christmas passed some time ago.  I have a history of being very last-minute where this kind of thing is concerned, and this laziness is, in fact, the reason we have an artificial Christmas tree.

When you have a real Christmas tree dropping dead pine needles and crap all over your carpet until February, things can get very messy.

The thing is, it’s always a bit of a hassle, not only to take the decorations down, but to put them up in the first place.  You have to dig out boxes that are buried under eleven months’ worth of crap in the storage room, then you have to clear a space for the Christmas tree and figure out how to make your home look festive without being tacky.  Let’s face it, I ain’t Martha Stewart.  I always envy those people who can casually throw a rug over a sofa and make it look like a designer item.  I can spend an hour arranging the rug on the sofa and it will still look like the results of the room throwing up.

Taking the decorations down is worse.  I mean, when do you get the time?  You’re so busy trying to recover – and get your kids to recover – from the remnants of the Christmas season.  You’re trying to catch up on work that’s fallen behind because no-one was at work.  You’re trying to figure out how the kids’ new toys work so you can show them, and you’re trying to figure out where the hell to put all of this new stuff.  With all of this going on, it’s no wonder my Christmas decorations stay up for so long.

This year, I have had an extra excuse, and its name is Autism.  You see, George’s autism hasn’t really affected the comings and goings of the Christmas decorations before, because George has always been pretty cool about things changing.  I always used to think that for a kid with autism, he was pretty adaptable.

That has all changed.

About six months ago, a fear of routine changes reared its ugly head. Now, understand that I’m not just talking about a dislike for or a resistance to change.  I’m talking about actual anxiety fear near-panic that sometimes gets intense enough to make George throw up. We had such an incident recently involving a mirror, and in that case, Gerard and I felt that the best thing would be to restore the mirror to its rightful place to ease George’s anxiety.

So today I took the day off work, with the intention of making a few changes while George wasn’t around.  They were necessary changes that included taking down the Christmas decorations and getting my scary mess of a desk organized (cluttered physical space translates to cluttered mental space and all that).  The kids went off to school, I took a brief moment to relax, and then I started working.  I got the Christmas decorations down and put away, and then I had a major decluttering session.  All of the boxes that were under my desk are now stored more appropriately, meaning there’s room to put my feet.  My filing cabinet has been rearranged, so my files are actually in the cabinet instead of in a broken plastic container on the corner of my desk, which now boasts two stacking trays instead – one for incoming mail, and one for the kids’ homework and school forms and stuff.

When George came home from school, World War III broke out.

First it was the Christmas tree.  Kiddo was insistent on the restoration of the Christmas decorations, and went so far as to start dragging boxes of decorations out of the storage room.  I firmly took said boxes from him and put them back.  He kept mentioning the Christmas tree, but I don’t think it took him long to realize that he wasn’t getting his way with this one.

My desk proved to be the bigger issue.  The broken plastic box that I had discarded?  George wanted it back.  George wanted it back so badly that he was almost panicking.  The poor boy was looking directly into my eyes – something that he only does when he’s feeling emotionally distressed and is desperate to impart a message to me.  Those eyes, those eyes… They had such pain and fear in them.  They were brimming with tears as George begged me to put the box back onto my desk.

I had to say no.  I’m always one to pick my battles with George.  If it doesn’t matter, I don’t make an issue of it.  I let George get his way from time to time.  But sometimes the battle does matter, and this is one of them.  I need for my home office to be organized.  I always have so much to do, so much admin to keep on top of.  The way I was going, I was paying bills late for no reason other than the fact that the papers were getting buried.  I had to arrange things so that I could keep up with everything.  This is definitely a battle I needed to win.

I felt so conflicted, though.  My friend Amy went through the heartbreak of burying her child yesterday, and here I was, with my child alive and well, and I was allowing him to be sad and fearful and distressed.  What kind of mother was I being?

Even with this conflict going on, though, I knew that I was right.  I knew that this was a storm I would just have to weather.  I needed to rearrange things on my desk, and George needed to see that things could change and he would still be safe.

The storm appears to be over – at least for now.  George was upset for a long time, but gradually calmed down.  He started walking around without looking suspiciously at my desk out of the corner of his eye, and he started jumping on the trampoline, making the kinds of sounds he makes when he’s happy and settled.  When he said, “Charlie is a girl” (with reference to Charlie the Unicorn), I knew that he was OK.

Sighs of relief all round.

At least for now.

Filed Under: autism, Christmas, postaday2011 Tagged With: , , , , , , , , , , , ,
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Make A List, Check It Twice…

January 23, 2011 By

They should provide customized checklists when they issue children to parents.  I mean, think about it.  We pop out these babies, and we follow the generalized instructions in baby books, which pretty much say the following:

  • Whenever the baby cries, shove a nipple in its mouth.
  • Rest when the baby rests.
  • Establish a consistent bedtime routine.
  • Don’t let the baby sleep on his tummy.
  • Cover a baby boy’s willy with a washcloth during diaper changes to avoid being peed on.

There is very little consideration given to the fact that:

  • said nipple is attached to a human being who is capable of feeling physical pain from literally being sucked dry, and besides, baby bites on nipples can really hurt, even when no teeth are present;
  • when the baby is resting, Mom actually has time to take a shower or, you know, eat;
  • babies will throw up on parents who try to impose routines that they don’t like;
  • if the baby is very determined to sleep on his tummy, there’s very little you can do about it;
  • baby boy willies can be very wayward and have a mind of their own.  Kind of like grown-up mens’ willies.

And that’s before you even get into the individual differences between regular babies.  I’m sure new parents would appreciate knowing up front that their child will barf all over their nice new couch, that their daughter will like peas until the age of four and then start throwing them at everyone, and that Junior will be sent to the principal’s office on the first day of Kindergarten.  Don’t you think our lives as parents would be much easier if we knew ahead of time what contingency plans should be made?

Things get even more complicated when you add a child with special needs into the mix.  While I would certainly want the ability to eliminate the things that George finds frustrating or distressing, I would not want to change who he is (who would?  The kid is SWEET!). However, it would have been good to know some things about him right from the beginning.  My checklist for George would include the following:

  • He’s going to bang his head when frustrated, so you are going to have little dents all over your drywall.
  • Baby-proofing devices will not even slow him down, so don’t waste the money.
  • By the time he is five, there will be no such thing as a “good place to hide stuff”.
  • He will find out the password to your YouTube account simply by watching you type it in.  Very visually oriented, these autistic kids.
  • He will be freakishly good on the computer, and he will be counting backwards from 100 in increments of 3 by the age of four.
  • You will need several large boxes to store all of the Mr. Potato Head stuff, but you won’t mind because Mr. Potato Head will prove to be a major catalyst for speech.
  • He will use Lego for stimming.  You will have to make sure you have plenty of the long Lego pieces in pink and yellow.  If you don’t have the same number of pink and yellow Legos, there will be meltdowns.
  • He’s going to know how to fix your DVD player!
  • He’s going to rip down your mother-in-law’s wallpaper and write his name in Magic Marker on her couch.

And what about James?  What would his checklist say?  Let’s see…

  • He’s going to be obsessed with cars so you may as well start collecting them now.
  • He’s going to come flying out like a cannonball at birth and he’s going to just keep going.
  • If he’s anywhere near water and you’re within a thirty-foot radius, you will get soaked.
  • He’s going to go to the emergency room five times in his first four years.  He’ll just be that kind of kid.
  • Don’t let him anywhere near the diaper cream.
  • Don’t let him anywhere near the talcum powder.
  • Don’t let him anywhere near the toothpaste.
  • Be prepared for the fact that he will publicly ask his Granny if she has a willy.

The checklist would also say that the boys will fight like cat and dog but they will be the best of friends, that George will make off-the-charts progress after his autism diagnosis, and that parenting would be the best thing to ever happen to me.

I love my boys.  They are a joy and and adventure.

Filed Under: babies, parenting, postaday2011 Tagged With: , , , , , ,
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Mirror, Mirror, On The Wall

January 17, 2011 By

Before I go into the story of what happened last night, I should set a bit of context.  When Gerard’s Dad died almost eight years ago, we moved in with Gerard’s Mom, who at the time did not want to be alone. We live downstairs, she lives upstairs, and each of us has own own fully equipped kitchen and whatnot, so we can live completely independently of one another and yet still be in the same house.  For a while, things were kind of tumultuous, but now they have settled down and we are all getting along famously.

My mother-in-law – or future mother-in-law, if you want to get technical about it – is making my wedding dress.  The woman is a phenomenon with a sewing machine, and she is going to create something spectacular – far better than anything I would find in a store.  I am not even intimidated by the fact that my wedding is the day after the British Royal Wedding.  My dress is going to be much prettier than Kate’s.

Last night’s drama started because my mother-in-law and I needed a mirror. A full-length mirror that we could prop up against the wall in her sewing room, that would allow me to see the dress in all its full-length glory during fittings.

Gerard and I just happen to have a spare mirror.  I think it was originally part of some long-gone piece of furniture, and for the last three years or so it’s been propping up the wall in an impractical spot in George’s room.  No-one ever uses the thing, so last night Gerard took the mirror upstairs to the sewing room (after the work-in-progress that is the dress had been securely hidden away, of course).

To say that George got upset would be like saying Donald Trump has a little bit of spare cash.

The kid exploded.  This small change to his immediate environment made him go into utter meltdown.  He was frantically running around in circles, screaming, “Put the mirror back!  Put the mirror back!”  It wasn’t angry, tantrummy screaming.  It was the kind of screaming borne of frustration and anxiety.

You see, George doesn’t cope with change.  When the slightest thing changes – a lightbulb burning out, the laundry hamper in the wrong place, the cordless telephone not in its docking station – he gets really stressed.  A few weeks ago we thought our dishwasher was leaking, so we pulled it out to take a look, and this sent George into such a flurry that it was days before he would set foot in the kitchen again.

The mirror being taken away sent him right over the top, in a way that nothing else has before.  I’m guessing it’s because the mirror was in his room; that it was his own space being violated.  It’s not that he looks in the mirror, it’s just that he’s used to it being there.  And when something he is used to is taken away, it represents a wrinkle, an interruption of stability.

At some point during this wild, frenzied activity, George ran up to his Dad sobbing, and beseechingly wailed, “Put the mirror back, please!”  He turned and looked at me, and in his eyes I saw utter desperation and fear bordering on panic.

Some people might argue that we should have stood our ground, that “giving in” to George would set a bad precedent.  They might say that the only way to get George to cope with change would be to desensitize him to it, to expose him to change and weather the storm, no matter what.

But you know something?  Sometimes, it just ain’t worth it.  Nothing is worth seeing your child in that much pain and anguish. Gerard and I agreed that we would just pay twenty bucks for a new mirror, and he went back upstairs, retrieved the mirror and put it back in its place.  When the mirror had been restored, we picked George up from where he had been cowering on the couch, and took him into his room.  He refused steadfastly to look at the wall, but he must have seen the mirror in his peripheral vision, because that heartbreaking wailing came to an end.

At that point, the stress of what he had just been through must have caught up with him.  All of a sudden, he jumped up off his bed, ran to the bathroom, and threw up.  A lot.

I wanted to cry.  My poor beautiful boy was in such a state of stress that he actually threw up?  That is awful. Do you know how stressed you have to be for it to make you physically ill?  No mother wants to think of her child going through that level of anxiety.

I gently cleaned my son’s face and dried his tears, and then I turned out the lights and hugged him as lay in his bed.  Right before he drifted off to sleep, I asked him how he felt.

“Happy,” he whispered, as he closed his eyes.

That’s all a parent really wants for their child.

(Photo credit: Flickr Creative Commons Attribution License)

Filed Under: anxiety, autism, postaday2011 Tagged With: , , , , , , , , , , ,
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Things That Go Bump In The Night

January 6, 2011 By

When our kids were young, all of the experts, books, websites and other parents advised us to establish a consistent bedtime routine.  It took a little bit of time a couple of months four and a half years for us to come up with a routine that works for everyone, and usually bedtimes in my household are fairly uneventful.

Most days the kids will take a bath (I am one of those bad, bad Moms who does not bathe her kids every single day).  On the other days, they take turns in the bathroom to pee, brush their teeth, and wash their hands, faces, and any other parts of them with obvious dirt smears.  They get milk, each boy gets to pick one book for the bedtime stories, and then they are allowed to snuggle on the couch with their Dad for a few minutes.

By the time those few minutes are up, James is very often asleep.  I carry him to his bed – a task that is getting more and more difficult as he gets more and more long and lanky – and if he is still awake I lie down with him for a few minutes and tell him a story about a magic horse I invented that takes James to all kinds of wonderful places.

While this is going on, Gerard is tucking George into his own bed, and when I am done with James, I go in to spend a few minutes with George. He always wants me to stay for longer than I do, but I am always mindful of all of the nightly tasks still waiting to be done. I hug George and give him a few minutes to engage in one of his favourite activities: playing with my abundance of hair. We always have the following dialogue, without fail, every single night (bear in mind as you read this that any dialogue for this mostly non-verbal child is a miracle):

Me: George, who does Mommy love?
George: You love George.
Me: Who does George love?
George: He loves Mommy.
Me: Are you tired?
George: Yes.
Me: Are you ready to go to sleep?
George: Yes.
Me: Goodnight, George.
George: Goodnight, Mommy.

And with that, I give him a kiss, slip out of his room and let him drift off to sleep.  He usually migrates to our bed in the early hours of the morning, and we let him.  One day he’ll grow out of that and we’ll miss these days, so we enjoy it while we can.

Last night, the routine went smoothly enough.  I had my miracle dialogue with George, left his room, and started making sure the boys’ backpacks had what they needed for their respective school days.  All of a sudden, I heard the following from the direction of George’s room:
*Thump* (George flopping himself out of bed and onto the floor)
*Scream* (frustration)
*WHUMP WHUMP* (George banging his head on the wall. Hard enough to dent the drywall)

Oh dear.

I returned to George and calmly made him get back into bed.  As I was trying to settle him, James suddenly appeared by my side crying about how he didn’t feel like being alone.  This was a tricky situation to be in.  Usually, when both boys need me, I simply lie down between them and comfort them at the same time.  But when George is in a state where he is hitting his head off the wall, I need to keep James away from him, otherwise James becomes the target for headbanging.

This was one of those times when I had to send James back to bed crying so I could make sure George was safe.  I always feel truly horrible when I have to do that.  I feel so bad for James.  But sometimes there just isn’t any other choice. It is part of the life and times of special needs parenting.

I got George calmed down – or so I thought – and went in to see James.  I hugged him and comforted him, and told him I loved him.  Sometimes, I said, I have to make sure your brother isn’t getting hurt.  Sometimes I have to make you wait, and that makes you sad, and I am really, really sorry.  But I love you so much and I’ll always take care of you, and I think you are a wonderful boy.

James was content.  He sighed softly and went to sleep.  Just as I was leaving his room, I heard the *thump scream whump whump* from George’s room again.

What, are they trying to tag-team here?  When one stops the other starts?  Can they sense my stress and exhaustion?  Is this that thing that animals do, where they go after the weakest member of the herd?

I am afraid to say that my patience ran out.  I did not go in to George.  I did not hug him or talk to him or try to settle him.  From where I was, I called out angrily, “Get back into bed!  That’s enough!”

There were a couple more screams and one more head-meets-wall incident.  After that, things got quiet and both boys slept through the night in their own beds.  I wasn’t woken at four in the morning by George climbing into bed beside me and wrapping his arms around my neck.  A bittersweet feeling, that.

The logical, rational part of me feels that I did the right thing by not rewarding the second incident of headbanging.

But the Mom in me – the one with a heart full of love for her kids – feels horrible that the last thing my sweet George heard before going to sleep was the sound of my angry voice.

Sometimes, no matter what we do, we feel that we just cannot get it quite right.

Photo credit:  Flickr Creative Commons Attribution License

Filed Under: autism, Children, family, parenting, postaday2011, Siblings, sleep Tagged With: , , , , , , , ,
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All We Need Is A Reason

November 17, 2010 By

This morning I woke up early and went to the gym for a rare run on the treadmill.  As a general rule, I am not fond of treadmill running.  It makes me feel a bit like a lab rat, or a hamster running in one of those little wheels.  You never actually go anywhere. You don’t feel the freedom of the open road.  It all seems a little pointless, like tofu or decaffeinated coffee.

On the odd occasion, though, a treadmill workout is better than a road run. This can be true from a circumstantial point of view (you’ve woken up with sore knees and you need to run on a surface with some give; you’re tired and cannot be bothered to map out a route; the weather outside is frightful and you cannot find your balaclava or your will power).  A treadmill run can also be beneficial from a training perspective, especially during the winter.  It can be kind of difficult to do a tempo run or speed reps outside when it’s snowing and there’s a gusty wind blowing.  Far better to head to the gym where you can focus on maintaining 5:30 minutes per kilometre without stressing about snow, wind, ice on the sidewalks, or the fact that it’s dark and you look like a burglar.

So anyway, I went for my treadmill run and worked up a good sweat.  I had some anxiety to work out of my system, so I really belted it, clocking 5km in 24 minutes. Feeling a lot better and pleasantly loosened up, I returned home, where everyone was still asleep.  Before taking a shower, I checked on my boys.  At some point during my absence, George had crawled into bed beside his little brother, and the two of them were sleeping peacefully, James clutching his stuffed giraffe, George with arm over James’ shoulders.  It was one of those moments that reminds me of why I love being a mother, and why, in fact, I was running on the treadmill at such an ungodly hour in the first place.

It is so weird to think that two years ago, I could barely run around the block. I had been bitten by the running bug previously, of course, but after seven years of no exercise my lifestyle was decidedly sedentery. I was decidedly unhealthy, and my clothing was decidedly tight.  I had tried, over the years, to make comebacks to the world of running, but there was always something that stopped me. Injury, illness, lack of time. When it came down to it, though, all I lacked was the right motivation.  When I got that email from the Geneva Centre for Autism back in April 2009, inviting me to join their team for the upcoming marathon/half-marathon/5km Charity Challenge, I knew instantly that I had finally found a reason to get with the program, and to stick with the program.

Initially I considered the 5km event.  After all, I hadn’t run in seven years and I was about seventy pounds overweight. And the event was just six months away. But the little voice in my head that never shuts up until it gets its own way piped up and chanted, “Half-marathon! Half-marathon! Half-marathon!” And before I knew it, I had clicked on the link in the email and signed up for the half-marathon. Six months later, I stood at the finish line somewhat stunned by the fact that in just half a year I had shed sixty pounds, gotten myself into some semblance of “shape”, and completed a half-marathon.

A year further down the line, I have run several races and two more half-marathons.  Another two are planned for 2011, and my comeback to running is now firmly established.  All thanks to those two little boys who were snuggled up together this morning, sleeping beside each other, making me feel like the richest person on the entire planet.

Have you ever done something that you thought would be beyond your limits?  What motivated you, and what helped keep you going when things got tough?

(P.S. My first post for World Moms Blog was published today.  Check it out:
http://worldmomsblog.com/2010/11/17/little-brother-big-hero/)

Filed Under: autism, Children, family, fundraising, parenting, running, Siblings Tagged With: , , , , , , , , , , , ,
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Give me a place to stand…

November 8, 2010 By

Last week I stepped out of the real world for a few days while I attended the 2010 Geneva Centre for Autism symposium, here in Toronto. It was a phenomenal event – it was much more than I had expected it would be. When the conference ended on Friday afternoon, I literally felt as if I had to step out of a bubble back into my life. But I resumed my life with an altered perspective, and a deep new understanding of my son.

For three days, I was in the presence of true greatness. I had the opportunity to listen to presentations by professionals in the field of autism, such as Tony Attwood and Nancy Minshew.  I heard talks by individuals who have lived with autism themselves, who have made successful lives for themselves – people like Temple Grandin and Stephen Shore. I listened to the beautiful music of two people with autism, Michael Moon and Samantha Mutis, which brought tears to my eyes. I was surrounded by hundreds of delegates – teachers, therapists, other parents like myself – who were all gathered together for the sole purpose of learning how to help and support people with autism, and thereby make the world a better place.

Going into the conference, I expected to learn some new stuff. That was, after all, my reason for going. I wanted to get some insights, hear about new research, learn about possible ways of doing things differently and more effectively for George. Did I accomplish this goal? Let me put it this way. Not only did I learn more about autism than I would have thought possible in three days, I actually feel as if I got to step into my son’s mind. Listening to the speakers, many of whom live their lives on the spectrum, I got to step into the world of autism in a way that I have, until now, not been able to accomplish.

I feel honoured that these individuals allowed me into their world and shared of themselves so freely. These people, for whom life has been a series of challenges that most of us will never understand, have collectively turned me into a better person and a better Mom.  They have, through their willingness to share their experiences and give hope to parents of children with autism, created a landscape in which my son can have a better, more productive, more fulfilling life. What an opportunity that is.  What a gift those people have given to me and my family.  I feel truly blessed to have been there.

I learned that in order to teach social communication, we need to teach social thinking, and that in too many instances we focus on the diagnosis – the word “autism” – rather than on the specific challenges of the individual. I heard about how in all of us – especially people with autism – negative emotions may manifest as anger, and that we should always dig deep and look for the real underlying emotion. I have learned to use the phrases “expected” and “unexpected” when describing behaviour because the terms “appropriate” and “inappropriate” imply a value judgment that doesn’t help anyone. I now know that instead of fighting George’s fascination with garage doors and writing it off as an autistic obsession, I should use it as a stepping stone to help him learn and accomplish new things. And much more.  So much more.  I am still internally processing everything.

I left the symposium with the knowledge that so much is possible. I can see a whole new world opening up for my boy.  It is up to me and Gerard to ease the path for him, to help him see where he can go and what he can achieve.

While I was at the conference, I bought myself a piece of autism awareness jewellery.  It is a chain with a puzzle piece on it, the puzzle piece being the universal symbol for autism awareness. Behind the puzzle piece is a circular disk with a quote engraved on it. The quote is a perfect reflection of the possibilities that lie ahead for George, if he is given the right support along the way.

“Give me a place to stand and I can move the world”  ~ Archimedes ~

Filed Under: autism, parenting Tagged With: , , , , ,
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Running in the concrete jungle of life

October 22, 2010 By

I suffer from the age-old, clichéd, and frankly boring problem of being a woman with not enough hours in the day. I find myself going to bed ridiculously late and not getting enough sleep, and from time to time I wonder why this is. Am I really that busy or do my time management skills just suck? In analyzing this question, I decided to draw up a rough schedule of what happens in a typical day.

6:00 – 7:15    Wake up, get myself dressed and ready, get James dressed and ready.
7:15 – 7:30    Take James to daycare
7:30 – 8:45    Commute to work
8:45 – 4:45    Earn my keep
4:45 – 6:15    Commute home
6:15 – 7:30    Cook dinner, eat dinner, get kids to eat their dinner
7:30 – 8:00    Supervise George’s homework, read library books with both boys
8:00 – 9:00    Get kids bathed and into bed. Throw load of laundry into washing machine. Make sure car is locked. Make tea.
9:00 – 9:30    Get clothes ready for myself and kids for the following day. Make George’s lunch. Ensure kids’ backpacks contain homework, library books to be returned, forms to be returned to teachers, etc.
9:30 – 10:00    Clean up kitchen. Unload and load dishwasher. Turn dishwasher on and wash any dishes that don’t fit in dishwasher. Get coffee machine ready for the following morning.

What this means is that in the evenings, it’s around ten before I can even sit down at my computer and read emails. This is why I have given up on all of the Facebook games that end in “ville”. I just never have enough time to check on my farm, or my kitchen, or my pet. FarmVille – crops keep dying. FrontierVille – weeds keep growing. PetVille – pet keeps running away to the pound. You get the picture. So now, my Facebook games are the ones that I can spend five minutes or less on, where I won’t suffer penalties if I neglect them for five days.

Do you notice anything missing in the schedule above? Running. Where am I supposed to find time to run? If my daily timetable is anything to go by, my only options are (a) go running in time to be back by six in the morning, or (b) go running after ten at night. Option (b) isn’t really an option to me, because I would be worried about safety.  Something tells me that a woman running alone at that time of night would not be the smartest idea. So I’ve been going with option (a), getting up at 5:00 a.m., being out on the road by 5:15, and trotting back into my driveway by around 6:10 or so.

Except lately, this hasn’t been working out too well. George has been having issues sleeping – a phenomenon very common to children with autism. On any given night, there is roughly a fifty/fifty chance of him – and thereby me – actually getting a full night’s sleep. On the nights he wakes up, he crawls into bed next to me and plays with my hair. No matter how many times I gently move his hands away from my head, they always find their way back there, and he wraps it around his fingers, scrunches it up in his hands, sniffs it, strokes it, on and on and on until he drifts back to sleep. On the good nights, this lasts for half an hour or so. On the bad nights, it will go on for two or three hours.

It doesn’t matter how dedicated a runner you are. If you have a small child keeping you awake from 2:30 until 4:30, it is going to be near-impossible for you get up at 5:00, go running, and then put in a full day of work. It’s not even as if George’s nocturnal adventures are an occasional thing.  For the last month or so, it has been happening two or three nights a week.

It is hammering me, and I am increasingly stressed out by my inability to find time to run. Not running is not an option. Running late at night when I feel vulnerable is not an option. Running first thing in the morning when I’ve had no sleep is not an option.  So I have to get creative.

To solve the problem, I started by considering each run individually. I run five days a week, with Mondays and Fridays off. The weekend runs are not a problem: even if I have to get up early for those, I have the option of vegetating in front of the TV for the rest of the day (true, I’d have two kids jumping on me, but still). That takes care of four days of the week right there. On Wednesdays I go running with a group after work (kills my Wednesday evening schedule but I can live with that once a week), and I’ve worked out that I could do my Tuesday runs on a treadmill at the gym at lunchtime.

All of a sudden, the problem is a lot more manageable. Now, all I have to worry about are the Thursday runs. I’m still not too sure what I will do about those, but I’ll figure something out, either by just living with the early-mornings-after-no-sleep once a week or by doing some kind of creative reorganization to my schedule.

It just goes to show: when the running bug bites you, somehow you find a way to fit it all in.

Filed Under: life, running Tagged With: , , , , , ,
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