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Holiday Season Survival Tips For Autism Families

November 28, 2013 By

2012-12-24 11.58.18

We have reached the time of year when Christmas decorations come out and people start talking about how much Christmas shopping they have left to do. In my case, I still have to do 100% of my Christmas shopping left to do. That percentage is not likely to change until about a week before Christmas.

Christmas also means spending time with people, going to different events, making sure the Santa picture gets taken – all of that good stuff that gets a little bit overwhelming. If it’s overwhelming for me, I cannot imagine what it must be like for a child who has autism. And so I asked a group of autism parents what measures they take to ensure that they – and their kids – get through the holiday season intact. Here are their responses.

* Schedule everything out. Avoid scheduling too much for one day, and ensure that the schedule includes breaks.

* Do a visual schedule and/or social story for each day that something is happening.

* Tie a knot in the end of the rope and hang on!

* Do what works for your family and don’t compare your celebrations to anyone else’s. Remember that all those Pinterest and Facebook pictures are snapshots of one posed instant and do not mean that everyone else has their act together. Dare to send a Christmas picture of your kids pulling each other’s Santa hats off and poking each other with candy canes.

* Do not let your relatives turn the holiday gathering into an annual progress/lack-of-progress check on your autie. Refuse to be quizzed and just pour another round of drinks.

* Appreciate the fact that your autie doesn’t care about the presents. Know that you’re giving him plenty that can’t be wrapped up — like permission to play Raffi’s Christmas album 24/7 all December. Priceless.

* Go at your kid’s speed. When it’s time to call it quits, call it quits, even if that means it takes three days to open Christmas presents.

* Try to minimize sensory input to avoid meltdowns.

* Have a quiet room your autie can retreat to when everything gets overwhelming.

* Do not insist that your autie open all of his presents at once. Let them set the pace.

* Limit the number of parties you go to with your autie. Make arrangements to leave early if you need to.

* Bring his favorite food with you, so he has something to eat if he can’t tolerate any of the party foods.

* Ask family members to remove all those wire and plastic pieces from the packaging of gifts they are giving to your child. That way, your child can just open the present and take it out.

* Take two cars if possible, so when the autie is ready to go, one parent can stay with the other kids.

* Bring familiar stuff, especially if festivities will be in an unfamiliar place. That could be a toy, or a favourite cup or plate to use.

* Don’t feel guilty about not having a Norman Rockwell Christmas. Have a Christmas your kid will enjoy, not what everyone else thinks it should be. Christmas is for kids including ours.

* Don’t be afraid to stand up for your child “just because it’s the holiday”. You and your child shouldn’t have to put up with someone’s crap just because you only see them on the holidays.

* Ask people to come to you. Other people may not have “autism friendly” houses, so it may be easier to host everything at your house. This works better for small families.

* If you have a large family, it might be easier to let someone else host the festivities. That way, you and your autie can leave if things get overwhelming, which is easier than kicking guests out of your house.

* If you have one of those families that doesn’t get along, don’t feel bad about not spending Christmas with them. Stress is not good for our kids.

If you have any tips of your own, please add them in the comments!

This is an original post by Kirsten Doyle, which input from some amazing autism parents.

Filed Under: autism, Christmas, family, Holidays Tagged With: , , , , , ,
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A Day In The Life

April 11, 2012 By

I am participating in the Health Activist Writers Month Challenge, in which I publish a post every day for the month of April, based on health-related prompts.

April 11 – Theme song: Imagine your health focus or blog is getting its own theme song. What would the lyrics be? What type of music would it be played to?

I confess that I had no idea what to do with this prompt. My writing skills do not extend to the lyrics of songs. That is my husband’s arena. Therefore, for today, I decided to use one of the bonus prompts:

Daily schedule: Write a list of your daily routine from the moment you wake up until the moment you go to bed. Be honest!

alarmclock

5:00  I wake up to the sound of the alarm on my phone. More often than not, I am on the futon in my living room with a small kid pressed up on either side of me (although it must be said that the small kids are getting less small by the day). Because I’m wedged in between my kids, I can’t simply grab my phone and throw it against the wall like I want to. It takes effort to extricate an arm. Often, as I’m reaching for the phone, I knock it off the table, and then I have to get out of bed – a supreme effort indeed – to pick it up and turn off the alarm.

5:15 I turn on my computer to check my email. I am dressed in my running clothes and I am waiting for the coffee to finish brewing. While I’m reading my emails my younger son wakes up. I get him a cup of milk and start preparing to leave, knowing that I will be delayed by my son’s constant chatter.

5:25  I kiss my older son goodbye. He is asleep, but he will know if I’ve left without kissing him goodbye. I field a gazillion questions from my younger son and eventually manage to escape. I sprint to the bus stop and make it with seconds to spare.

6:30  I arrive at work and head straight for the corporate gym in the bowels of the building. I dump my stuff in a locker, fill up my water bottle, and head out for a run. I’m still groggy and sleepy, but the first kilometre or so takes care of that.

8:00  I get to my desk, all showered and feeling good from my run. I drop my bag on my chair and go straight back out for coffee and a bite to eat. I bring it back to my desk and work until noon.

12:00 Lunch-time! I curse about having once again left my carefully prepared lunch in my fridge at home. I gather up my notebook computer, buy a random salad somewhere, and sit in the common room writing words.

12:30  Back to the grindstone.

2:45 Arrival of my mid-afternoon energy crash. I go out for coffee, and while I stand in the queue I stare at the display of donuts and cookies wondering if it would be OK for me to have one. By the time I get to the front of the line I’m so undecided that I don’t get anything except the coffee. Which is a good thing.

4:00  I pack up, log off, say my goodbyes to my co-workers and leave. I go to the subway station and position myself on the platform just where I think the train doors will end up. More chance of getting a seat that way.

5:30  I arrive home, lamenting the fact that once again, I did not get a seat on either the subway or the bus. I walk home from the bus stop, and stop to check the mailbox on the way home. I do so much stuff over the Internet these days that I hardly get any actual mail.

5:35  The husband and children, who get home before I do, have been standing at the living room window watching for my arrival. The husband opens the front door to release the kids, who run towards me in that joyous, unrestrained way that only children are capable of. I dump my bags, drop to my knees, and open my arms. My boys come hurtling into my arms and almost knock me backwards with the force of their love.  My cup overfloweth with happiness.

6:00 The kids were fed their dinner before I got home, and now the husband and I are cooking up something for ourselves. I enjoy the companionship as we chop vegetables together and chat about our days. I reflect on how fortunate I am to have a husband who supports me in my writing and my running, who accepts me for all of my weird little quirks, and who is the best dad ever.

7:00  Dinner has been cooked and eaten. I clean up the kitchen but don’t start the dishwasher – not yet. My older son, the one with autism, has a lot of angst where the dishwasher is concerned. I have only just gotten to the point where I can unpack and reload it without him completely melting down. Actually running it would be asking for trouble. Best to wait until he is asleep.

7:30  Bathtime for the kids. George goes in first, because he really doesn’t like being in a tubful of water. I soap him down and then, amid panicky cries of protest, I wash his hair. Like many autistics, he has a big problem with having his hair washed. James dives for cover, only emerging when George is safely out of the tub and in his pyjamas. James’ bath-time is a splash-fest. I have to keep a towel handy for myself, and I’m not even in the water.

8:30  The kids go to bed. George has done his homework (and got it right) in about three seconds flat. Bedtime milk has been consumed, stories have been read, hugs and kisses have been administered. I wait until George is asleep and then turn on the dishwasher. I make lunches for the following day and ensure that everyone has clean clothes to wear. I sit down at my computer and do whatever admin needs to be done.

9:30  My day’s work is done and now it’s time to reward myself. I pour a glass of wine, send my daily email to my mom, and waste time on Facebook. I complete and schedule any unfinished blog posts and start one or two new ones. Sometimes I abandon Facebook in favour of a nice soak in the tub. There’s something very decadent about sitting in a bubble bath with a book and a glass of wine.

10:00 I have a cup of tea with the husband and sigh dramatically as he channel-surfs. Why do men do this? Just as I’m getting into whatever happens to be on the channel gets changed.

10:30  I suddenly remember some crucial email or piece of admin that absolutely cannot wait until the following day. I turn on my laptop again to take care of it.

11:00 I fall into bed in a state of exhaustion, and fall into a fitful sleep that will, at least once, be interrupted by one of the kids needing something. Sometimes, I wake up to find one of them beside me. And I’m completely fine with that.

(Photo credit: http://www.flickr.com/photos/szift/3196084839. This photo has a creative commons attribution license.)

Filed Under: autism, Children, Commuting, Daily Schedule, family, Health Activist Writers Month Challenge, running, WEGO Health, Work, Writing Tagged With: , , , , , , ,
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Treadmill Running: Better Than Nothing

July 14, 2011 By

Today, for the first time in many months, I came face to face with the treadmill at the gym.

Anyone who’s read my previous posts about treadmills will know exactly how I feel about them. For those who haven’t, I will merely say that I’m not a fan of the lab-rat machines, but regard them as a necessary evil. There are times when road running is just not possible, and running on the treadmill is better than not running at all.

Over the last few months, when I have had to run on the treadmill, I have used the one at home. It sat gathering dust for a few years after my younger son, then aged two,  put his hand onto the treadmill while it was moving, and took off the top few layers of skin. He is now old enough to respect the treadmill, and he knows to stay well away from it.

Treadmill running at home is marginally better than treadmill running at the gym. For a start, my home treadmill has a natural incline to it, so even on its “flat” setting I can simulate outdoor running reasonably well. And in addition, I can watch what I want on the TV without having to plug headphones into a weird little box that may or may not work. So the home treadmill has been a reasonable enough stand-in for “real” running on occasions when I’ve had no-one to watch the kids.

I was supposed to do a tempo run yesterday morning, which under normal circumstances wouldn’t have been a problem. The only thing is that when I do morning runs during the workweek, I have to get out early. I have to be awake by 5:00, outside waiting for my GPS watch to get a signal by 5:10, and running by 5:15. I have discovered that running on less than six hours of sleep makes me feel sick (unless I am racing: I can race on virtually no sleep at all, but racing has its own special set of rules), so I have to be asleep by 11:00 the night before an early morning run.

The night before last, we were having a whole lot of things happening at home. No hot water. Kids refusing to settle. A visit from my accountant. A dryer that wasn’t drying properly, resulting in me having to put each load through the cycle twice.

I did not get to bed until shortly after midnight, and by then my husband and I were so wound up that neither of us could sleep, so we talked until the wee hours of the morning. I did not get to sleep until well after 1:00 in the morning.

There was no way I could run when I woke up. I felt nauseous when my alarm clock went off, and that was before I’d gotten out of bed, never mind attempted to actually run anywhere.

But runners can be flexible, so I decided that it was no problem. I would just move yesterday’s run to this morning, and tomorrow’s run to Friday.

Last night – or should I say this morning – I got to sleep at about 2:30. Fannnnnnn-tastic.

When my alarm went off this morning, I got up, thinking that maybe I should just bite the bullet and run. But as I got up, I felt light-headed. I actually swooned, like they did in eighteenth century novels.

I was left with no choice. Either skip the run entirely (Scandal! How could I even think that!), or I could put in time on the treadmill at the gym at lunchtime. Like I said before, treadmill running is better than not running at all, so the gym it was. I stuck my headphones in my ears and turned on the music, set my training watch, and programmed the treadmill for a 45 minute hill workout.

It was good. I mean, as good as a treadmill run can be. My legs felt strong, my heart rate – inexplicably – stayed in the 150-155 range despite the fact that I was running quite intensely, and I actually kind of enjoyed it. I’m not suggesting that I am going to make treadmill running a regular part of my program, I’m just saying that it’s not always so bad.

So my scheduled run was finally done – albeit a day and a half late – and I have taken another baby step towards my goal of shattering last year’s time for the Autism Run.

And I feel a sense of accomplishment that has me grinning like a village idiot.

(Photo credit: http://www.flickr.com/photos/mahidoodi/199747855/)

Filed Under: Changing Plans, Exercise, Gym, Roadrunning, running, Training, Treadmill Tagged With: , , , , , , , , , , , , ,