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Easy Breezy Autism Covergirl?

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Being an autism parent comes with many challenges. One of them is society’s tendency to sensationalise people with autism who have any kind of talent. Temple Grandin, for instance, is frequently held up as a shining example of what autistic individuals might be able to accomplish. So, bizarrely, is Rain Man, who isn’t even real.

One of the latest autism whiz kids is a young woman by the name of Carly Fleischmann. She is non-verbal, and at a young age doctors predicted that her cognitive development would be limited. She had a breakthrough when she typed a message on a computer, and since then the world of communication has opened up to her. With the help of her father, she has written a book, Carly’s Voice, giving an insider’s view of autism.

My reaction to Carly’s story is a mixture of admiration and skepticism. Admiration because this girl has clearly achieved more than anyone thought she would. She has found a way to communicate, she has co-authored a book, and by all accounts she is now attending college. Good for her. And I don’t say that in a snarky, sarcastic way. I say it with all sincerity.

The skepticism arises from her reaction at being rejected as a Cover Girl model. She seems to be of the opinion that (a) Cover Girl rejected her because she has autism, and that (b) the reason Cover Girl should have accepted her is because she has autism.

Let me pause for a moment to say that I’m not intending to start a big debate about media portrayals of beauty. Yes, I know that the models we see on magazine covers have been Photoshopped to Kingdom Come. Yes, I’m aware that real people don’t look like that in real life.

I also know that physical beauty has nothing whatsoever to do with the presence or absence of autism. There are ordinary-looking people with and without autism, and there are absolutely show-stoppingly gorgeous people with and without autism. As the parent of a child with autism, I have heard many insults and unfair stereotypes aimed at people who are on the spectrum. But I have never heard anyone claim that people with autism are ugly.

This leads me to the following question: should Carly Fleischmann be granted a Cover Girl contract in spite of not meeting their physical standards, just because she has autism? I’m no oil painting myself, but I would venture to say that I have just as much inner beauty as Carly does. Why, then, should she have more entitlement to be a Cover Girl model than me? I’ve also overcome challenges and accomplished great things.

My son George is ten. He is described as “functionally verbal”, which means he has enough verbal communication to meet his needs. He has enough words to make requests and get by, but he cannot have a conversation. He has good academic skills, but lacks the ability to apply the academic concepts to real life. He can independently get dressed and use the washroom, and he can make himself a sandwich or pour himself a glass of milk. But he would not look at the colour of a traffic light before crossing the road, and if you gave him $10 and put him in a store, he wouldn’t know what to do.

I am big on accommodations for kids with autism. My child needs plenty of them, and if I’m to be realistic, he’ll more than likely need accommodations well into adulthood. He’ll probably be able to hold down a career – maybe he’ll even get to go to college – but he will almost definitely need to have his environment adapted in a way that enables him to succeed.

But.

I would not want my son to be on the cover of some magazine just because he has autism – unless it was a magazine about autism, or at least a magazine featuring a story about autism.

Look, if my son turns out to be the fastest athlete in the province but is denied a place on the Olympic team just because of his autism, I will turn into the world’s biggest autism advocate warrior mom. But if he misses the Olympic qualifying standards, would I want him to be given a place on the team anyway, just because he has autism? Hell, no.

I want my son to come by his accomplishments and accolades honestly, by earning them. I don’t want people to say that he got this job or won that award “just because he has autism”.

What do you think? Is Carly Fleischmann right to be upset over not being accepted as a Cover Girl model? Am I short-changing my son by wanting him to be judged by the same standards as other people?

This is an original post by Kirsten Doyle. Photo credit: mhs.journalism. This picture has a creative commons attribution license.

 

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Dining With The Stars

I am participating in the Health Activist Writers Month Challenge, in which I publish a post every day for the month of April, based on health-related prompts.

April 19 – 5 dinner guests: Who are five people you’d love to have dinner with (living or deceased) and why?

When I have people over for dinner, it’s always a very casual affair, from the planning right down to the execution. It usually starts when my husband or I casually mentions someone we haven’t seen for a long time. We call that person up on an impulse and invite them to come over that evening. And since we’re inviting this person, well, we may just as well invite that person. The more, the merrier, and all that. With the phone calls made, the husband goes out to buy alcoholic beverages to suit our guests’ tastes. I go wading in our big freezer and emerge with a giant store-made lasagna, those ones that take about seventeen years to defrost. I throw together a salad and make garlic butter for the bread. I’m not much of a cook, but I make a mean garlic butter. The guests arrive and we all dispense as quickly as possible with the business of eating. I get the kids settled into bed and then spend the rest of the evening drinking wine, which let’s face it, was really the whole point of having the dinner party.

My fantasy dinner party would have to be more carefully planned, simply because the people I would want to invite are kind of busy. You can’t just call them up and ask  them to show up at your house in the next two hours. You have to schedule their time, usually months in advance, and it’s a case of “your people calling their people”.

There wouldn’t be any frozen lasagna, and the whole thing would have some finesse to it. You can’t invite a guy like Nelson Mandela to your house and serve him frozen lasagna on the pretext of having a booze-up. No, I would hire a chef, a posh one who makes things normal people cannot pronounce and who knows what wine goes with what food.

My guests, assuming they all accepted the invitation (and, I mean, who wouldn’t?) would include the following five people:

Nelson Mandela. If you discriminated against most people throughout their early lives and then threw them into prison for twenty-seven years, they’d probably be a little bitter. It takes a very special kind of man to emerge from all of that and become a successful statesman, and to do it with grace, dignity and humility. Mandela is South Africa’s answer to the Royal Family, with one exception: everyone loves him, and with good reason.
What I have in common with him: we share a country of birth.

Terry Fox. The most iconic runner of all iconic runners, Terry Fox ran almost all the way across Canada with a prosthetic leg, while cancer was eating away at his body. His “Marathon of Hope” started a worldwide movement that continues to this day, more than thirty years after his death. If anyone had a reason to give up, it was him, and yet his absolute dedication to his cause and to his sport did not waver. His body was absolutely shattered, but his mind was super-hero strong.
What I have in common with him: I run for a cause.

Ed Mirvish. The world can be a peculiar place. Many rich people just want to get richer, regardless of the cost to anyone else. At the same time, a lot of the true humanitarians of the world are willing to give away what little they have for the betterment of their fellow man. Ed Mirvish was a rich old Canadian bloke with a landmark retail store and a near-monopoly on Toronto’s theatre industry. He had a truckload of money, and he kept giving stuff away to people who really needed it. While many rich people and corporations donate to charity for the purpose of making themselves look good in the public eye, Ed Mirvish did it because he really cared. You gotta love a guy who stands around handing out free turkeys to people who cannot afford Thanksgiving dinner – an annual tradition that has been continued in his memory.
What I have in common with him: I care deeply about making the world a better place.

Drew Barrymore. I’ve never been big on celebrities, but I confess to being totally in awe of Drew Barrymore. Like many people, I first saw her as the adorable child star in E.T. She shot to stardom so spectacularly as a child that her descent into a lifestyle of substance abuse almost seemed inevitable. It would have been so easy for her to live her life in the tabloid media by virtue of her addictions, but instead she went to rehab, sorted out her life, and established herself as an actress to be reckoned with.
What I have in common with her: I have overcome some intense challenges of my own – albeit ones of a different nature – instead of drowning in the events of the past.

Temple Grandin’s mother. Temple Grandin was a child with autism in the 1950’s – a time when autism was barely understood, much less known. She is now a highly successful adult, with a PhD in animal sciences. She done a lot of groundbreaking work in fields relating to animal welfare, and she is an outspoken autism advocate and educator. She puts much of her success down to her mother, who offered her unfailing support and mentoring throughout her childhood. It is a challenge to raise a child with autism in today’s world of IBI therapy and online support groups and autism advocacy everywhere. I cannot imagine what it must have been like for a mom back then, with far less knowledge and support to draw on.
What I have in common with her: I am the parent of a child with autism, who I would move heaven and earth for.

Who would be at your dinner party and why?

(Photo credit: http://www.flickr.com/photos/lisa_nichols/3288476050/. This picture has a creative commons attribution license.)