Children Archives - Page 7 of 10

Letting Go Of The Old

August 2, 2011 By Kirsten

Yesterday afternoon, I found my living room floor. It had been missing for several years, buried beneath layers of toys that the kids have, over the years, played with and outgrown.

On several occasions, I have made efforts to organize the toys, painstakingly separating them into categories and storing like with like. But these toy organization systems that I have spent hours creating have lasted, on average, for about an hour. My older son sometimes copes with his autism meltdowns by picking up boxes of toys and dumping out the contents. Even as I wistfully watch my hours of work come to naught, I recognize that I would rather see my son throw toys around than bang his head against the wall hard enough to put holes in the drywall.

Quite apart from the side effects of autism, kids under the age of six don’t really get that the cars should go with the other cars, or that the Legos should be in the same container, or that the gazillion Mr. Potato Head parts are meant to stay together.

This weekend, me and my husband – ably assisted by our five-year-old son, took another crack at organizing the toys. But there was a difference in the way we did it this time.

A big difference.

This time, we actually got rid of stuff.

I thought getting rid of toys would be a nightmare, but once we had the buy-in of our younger son, it was actually quite easy. It was never going to be a problem where our firstborn was concerned. As long as he has his Lego, his gazillion Mr. Potato Heads, his measuring tapes, his alphabetic fridge magnets, and his math workbooks, he’s happy.

After a day of sorting, storing, and being bossed around by our five-year-old, we had reduced the volume of toys by a staggering amount. All of a sudden, we had enough toy boxes to contain all of the toys that we kept, without them spilling over onto the carpet. We rediscovered the concept of walking from one end of the living room to the other without getting Lego-shaped dents in the soles of our feet. It was an incredibly liberating experience.

There’s just one thing…

These are the toys that my kids played with when they were babies. The little teddy bears. The Winnie the Pooh ride-on toy. The blocks, the nesting cups, the First Words books. Getting rid of these remnants of my kids’ babyhood was like saying goodbye to a phase of my life, and acknowledging that my babies are no longer babies, that they are little boys.

As sentimental as I felt about the toys, what really made my breath catch in my throat was sorting through the little shoes that my kids wore as babies. It was the shoes that served as a physical reminder of how tiny they once were. As I held the shoes in my hands, the memories washed over me.

My older son’s very first pair of baby slippers, given to him by my Dad when he was just a few days old (no way am I getting rid of those).

Feeling my boy’s fingers grasp my hand with absolute trust as he tentatively walked in shoes for the first time.

My younger son’s face, alive with excitement, as he wore the shoes that were a miniature version of the ones his Dad wore.

My two boys laughing together as they splashed in rain puddles, wearing their new galoshes.

Their joyful oblivion as they tramped snow into the house in winter, leaving tiny wet footprints all over the floor.

The memories fade out and I reluctantly come back to reality, sitting there on the floor holding these tiny shoes in my hands. All but a couple of extra-special pairs must go. It is time to allow to the old to make way for the new, as my boys enter new and exciting phases of their lives.

Just because it has to be done though, that doesn’t make it easy.

It represents a letting go, and that is a bittersweet pill for any Mom to swallow.

(Photo credit: http://www.flickr.com/photos/ophilos/2564467134/ This photo has a creative commons attribution license.)

Filed Under: Childhood, Children, Getting organized, Letting Go, life, Nostalgia, parenting, Shoes, Toys Tagged With: babyhood, childhood, children, children growing up, getting organized, getting rid of old things, letting go, parenting, postaweek2011, remnants of babyhood, shoes, toys

Sleep Interrupted

July 18, 2011 By Kirsten

Sleep – or lack thereof – has been a big issue in my life lately. I’ve never really been one to sleep for long stretches, and particularly since entering the world of motherhood, I consider six hours to be a good night’s sleep. But these days, even getting that amount of shut-eye is a challenge. There are a number of reasons for the recent sleep deficit, ranging from a run of kids’ tummy bugs to the fact that I’m an occasional insomniac.

Saturday night was particularly brutal. I went to bed early enough, because I was planning a long run early on Sunday morning. The kids were asleep, and James, who had been afflicted with a tummy bug, seemed to be on the mend.

At about midnight, when I had barely been asleep for half an hour, I woke to the sound of James crying his little heart out. My husband and I went to investigate, only to discover that the poor child had had a tummy-bug related accident. I whisked James off to the bathroom to clean him up and comfort him; my husband took care of changing the sheets and throwing soiled sheets and pajamas into the washing machine. James, bless his precious little soul, kept apologizing, even though I assured him that it was OK.

We got James settled and went back to bed. By the time I got back to sleep it was well after 1:00 a.m. A couple of hours later, I was roused to consciousness by a light tugging at my arm. I squinted in the darkness and saw James standing beside my bed. He took my hand, wordlessly led me to his bed, and plaintively asked me to stay with him. How could I refuse, right? So I climbed in and got settled, and James promptly threw up all over me.

As quietly as I could, I got James and myself cleaned up, threw yet another load of sheets and PJ’s into the washing machine, and having run of clean sheets, settled the two of us on the futon in our living room.

We went to sleep, and until about 4:00 a.m., I slept the sleep of the just.

At that point, George started to feel lonely, so he abandoned his bed and went in search of me. His first stop was my own bed, where he apparently found his Dad alone, and woke him up just to say, in a tone riddled with indignation, “You’re not Mommy.” Then he found me on the futon and squeezed in beside me.

There is not enough room on the futon for me and two long, lanky kids, both of whom sleep splayed out like starfish. But my discomfort was outweighed by the fact that I had my boys, one on either side of me. And so I (sleeplessly) passed the rest of the witching hours squished between my two gently snoring kids, with elbows and knees poking into my back, and my head bent at an uncomfortable angle.

Eventually, I gave up on the idea of sleep. I made coffee and drank some, and then, with my body screaming in protest, I went out for a 12km run.

It was not a good run, except in the sense that I actually finished it. By seven in the morning it was already scorching hot, I was not properly hydrated and above all, my body was utterly exhausted.

And because I love being there for my kids whenever they need me, at any time of the day or night, I wouldn’t have had it any other way.

(Photo credit: http://www.flickr.com/photos/doortoriver/2903845014/)

Filed Under: Children, Illness, life, parenting, running, sleep Tagged With: children, exhaustion, George, illness, insomnia, James, kids, life, parenting, postaweek2011, running, sleep, tummy bug

Graduation Day

June 28, 2011 By Kirsten

My Kindergarten Graduate

On Friday morning we all woke up with a sense of occasion. Especially James, my five-year-old son for whom this day was happening. He had been looking forward to it all week, and now that it was here, he could barely contain himself.

In honour of the occasion, I walked him to school myself instead of dropping him off at the daycare. Once we got to the school, he ran ahead of me to join his peers, and I joined the group of parents walking towards the gymnasium where the event of the day was being held. I secured two seats in the front row, and hoped that my husband, who was taking George to school, would arrive before the excitement started.

As I waited, there was a lot of scuffling and whispering and shhhh-ing coming from behind the curtain on the stage, as the kids were obviously brought in through an unseen entrance and put into their positions. With just moments to spare, Gerard scooted in and sat beside me.

And then it began…

The curtain opened to reveal a sight that made the audience go Awwwwwwwww in unison: a class of graduating Kindergartners, all wearing oversized white mens’ shirts that had been put on backwards, and personalized graduation hats made of construction paper.

I have to tell you, they looked cute. Especially when music was cued and the kids started singing a song to the tune of Frank Sinatra’s New York, New York (instead of singing about New York, New York the kids were singing about Grade One, Grade One). And the cuteness just about exploded near the end of the song when the kids started doing that leg-kicky dance routine. They were very enthusiastic about it, too.

The music segued into I Gotta Feeling by Black Eyed Peas. This time the kids weren’t singing, but they were dancing. Even though it was supposed to be a choreographed dance, it somehow didn’t matter that at no point during the song did any of the kids have matching dance moves. Their energy and enthusiasm – and the fact that my child was part of it – made it the best dance I’ve ever seen.

When the music faded out, it was time for the big moment. The children were called one by one to receive their Kindergarten certificates, which were rolled up into little scrolls and tied with ribbons. When it was James’ turn, he solemnly received his certificate and then posed for the pictures as if it was an occasion in the White House. He had taken this graduation concept very seriously all week, even telling me at one point that “graduation is no laughing matter”.

So far, I was doing OK. I hadn’t cried yet. I hadn’t even needed to reach into my bag for a tissue.

The kids were brought down from the stage and they were ushered to pre-assigned seats in the auditorium. A projector screen appeared from nowhere on the stage, and in a slightly alarming move, one of the teachers started handing out Kleenexes to the assembled parents. “You might need these,” we were told.

The lights were dimmed and the show began…

It was a photo montage of the kids’ school year, and it was absolutely beautiful. The pictures of James showed a kid who was happy, social, and doing really well. My heart burst with pride.

Yes, I cried. So did all of the other parents. The person who was probably crying the hardest at the end of it, though, was the teacher. She clearly cares about every child she teaches. And that shows in how well the kids have done, and in how excited they are to be in Grade One.

The day could not have been more perfect. So what if the singing wasn’t exactly in tune? And so what if the kids chose, on the day, to dance to the choreography inside their own heads? We, the parents, had the privilege of seeing our kids being the wonderful, spontaneous human beings they are.

We saw them being themselves, and it was the best thing ever.

Filed Under: Children, Graduation, Kindergarten, School Tagged With: children, cuteness, dancing, graduation, James, Kindergarten, parents, school, singing, teacher

2011 Run For Autism – The Countdown Begins

June 3, 2011 By Kirsten

I’m feeling fantastic today!

Actually, that’s not strictly true. I was awake all night with a sick child, who at some point during the process very generously shared his bug with me, as a result of which I am bone-tired and tossing my cookies. So in reality, I feel really, really rough. I feel like a hedgehog that just got dragged backwards through the business end of a lawnmower.

But despite my less than stellar physical condition, I am feeling good about some things that have happened this week.

First, I resumed early morning running. I’ve been a little out of it for a while, and a lot of my running has been done on the treadmill. But two days ago, I dragged myself out of bed and went for a run before work. It was great. I felt the way I always do when go for early morning runs: alive, invigorated, positive about starting the day with an accomplishment. And since my route involves me running east over the Rouge Valley bridge, I get treated to the most spectacular sunrises. I mean, what’s not to love about all this?

Later that same day, I got a series of emails informing me that I am now officially registered for the Scotiabank Toronto Waterfront Half-Marathon. Which means that everything I do between now and then (everything running-related, anyway) is in preparation for that race. It is my annual Autism Run – the reason I got back into running two years ago. This will be my third year doing the run. In 2009, I finished in about 2 hours and 28 minutes. In 2010, I improved that time to 2:22:38, knocking more than six minutes off my time from the previous year. This year I want to do something even more spectacular, and break 2 hours.

That will be a tall order. Taking 22 minutes off a time over a distance of 13.1 miles? It’ll be tough. But that’s not going to stop me from trying.

The other thing this all means is that I am now officially fundraising, enlisting people to sponsor me for the run, trying to gather together as much money as I can that will all go towards providing services for children and youth with autism.

I cannot stress how important this is. George’s progress since diagnosis has been off the charts, but this is no accident. It has taken many hours of hard work, buckets of tears, patience, IBI therapy, parent training, information sessions, and advice. George would not be where he is today if it weren’t for the Geneva Centre for Autism, who have provided services and training and all kinds of other resources.

I cannot help but think that if George continues to get services that evolve with his needs as he grows up, the sky will be the limit for him. This child is so loaded with potential, but he does need help and support to realize it. If funding dries up, so does my child’s future.

So I spent some time yesterday setting up my fundraising page. I have set my initial target at $500, but I am really hoping to surpass that and raise the target. Preferably more than once.

My call to action is this: if you have the financial means, please consider sponsoring me for my run. If you cannot afford it (and I totally get that – life ain’t easy for many people right now), then please spread awareness about autism. Help spread the word that people with autism are a valuable part of our society.

And if you circulate the link to my fundraising page, that will be an added bonus as well.

I am excited about getting this show off the road and doing the best I can for my George, which means doing the best I can for my family, and for the community of autism.

Filed Under: autism, Children, fundraising, running, Running for Autism Tagged With: autism, autism services, children, fundraising, geneva centre, George, half-marathon, James, postaday2011, potential, running, scotiabank toronto waterfront marathon, sponsorship

The Beauty Of Autism

May 31, 2011 By Kirsten

"Peep And The Big Wide World" by George

It was a beautiful moment. One of those moments that autism parents celebrate, that parents of neurotypical children completely fail to notice.

I got home after a long, hard day at work, feeling tired and cranky. As I trudged my way up the driveway, all I wanted to do was grab a glass of wine, collapse into a chair, and never get up again. I didn’t just feel lethargy. At that moment, I was lethargy.

I opened the front door and stepped into the house. Moments later, I heard a pair of feet thundering up the stairs from the basement, and a seven-year-old whirlwind launched itself at me, almost knocking me to my feet. After giving me a ferocious hug, George said, in his sweet sing-song voice, “Hi, Mommy!”

Without me saying hi to him first.

Without me or anyone else prompting him.

This was a social exchange that was initiated completely, 100%, by my child with autism – my child who has, as one of his biggest challenges, social communication difficulties.

Instantly, my energy was back and I was ready to laugh and play with my family, with this amazing child who always seems to give me surprises of wonder.

As a special needs mom, I find that my life is punctuated with moments like this. I remember firsts that I probably wouldn’t even notice if I didn’t have a child with autism.

Like the first time he pointed. What a joyous occasion that was, coming as it did after almost a full year of me teaching him how to point. I blubbed my eyes out that night, all over the Bob the Builder book that had been the vehicle for this accomplishment.

Then there was the first time he made a request using a full sentence. It didn’t matter to me that the sentence was only three words long. This child who said, “I want juice” was streets ahead of the child who, just a few months before, had indicated his need by grabbing my hand and thrusting it in the general direction of the juice boxes.

And what about the first time he pretend-played? It was a simple game that consisted of George crouching down on the ground, and crawling around with his back arched skyward while repeatedly saying, “Turtle.” So what if it was unsophisticated play that included only himself? He was pretending – something he had never done before.

More recently, we celebrated him drawing his first picture. He’d made lots of scribbly-type drawings in the past, of course (and I have kept every single one of them), but this was his first picture depicting an actual scene. That it was an instantly recognizable scene from his favourite kids’ show, Peep And The Big Wide World, makes it even more special.

We have seen the advent of humour, and this is all kinds of significant. Humour is a complicated intellectual process, and George gets it. And let me tell you, he is funny.

All of these moments, when strung together, tell a story of a very special little boy who is making a journey through life that is somewhat different to the way other kids do it. But the point is that he is making the journey and having all kinds of adventures. He may be taking the scenic route, but ultimately, he does pass through the same places that other kids do. He achieves many of the same things, but it takes a little longer and is accomplished in unconventional ways.

I believe that having a child with autism makes me a better parent than I would be otherwise.

It has given me the ability to spot a single flower in a sea of long grass, and more importantly, the power to stop and smell every single flower that I pass on this journey through my kids’ childhoods.

Filed Under: Accomplishments, autism, Children, family, life, Milestones, parenting, Special Moment Tagged With: accomplishments, autism, Bob the Builder, children, drawing, family, George, humour, life, milestones, parenting, Peep And The Big Wide World, pointing, postaday2011, pretend play, scenic route, social communication in child with autism, special moments, special needs

The Beauty Of Autism

May 31, 2011 By Kirsten

"Peep And The Big Wide World" by George

It was a beautiful moment. One of those moments that autism parents celebrate, that parents of neurotypical children completely fail to notice.

Without me saying hi to him first.

Without me or anyone else prompting him.

This was a social exchange that was initiated completely, 100%, by my child with autism – my child who has, as one of his biggest challenges, social communication difficulties.

Instantly, my energy was back and I was ready to laugh and play with my family, with this amazing child who always seems to give me surprises of wonder.

As a special needs mom, I find that my life is punctuated with moments like this. I remember firsts that I probably wouldn’t even notice if I didn’t have a child with autism.

We have seen the advent of humour, and this is all kinds of significant. Humour is a complicated intellectual process, and George gets it. And let me tell you, he is funny.

I believe that having a child with autism makes me a better parent than I would be otherwise.

Talking Toys

May 19, 2011 By Kirsten

The day before yesterday, I felt like buying presents for the kids. It’s not Christmas, it’s not anyone’s birthday, it was just a day when I wanted to pull out surprises for the kids when I got home and see their faces exploding with smiles.

Getting presents for James is easy. There’s just one general guideline to follow: if it has wheels, he’ll love it. When he was younger, it was Thomas the Train. Then it was Hotwheels. And for the last year or so, it’s been Disney’s Cars. The kid has about twenty Lightning McQueens and fifteen Maters, plus a Sally, a Sheriff, a Red The Fire Truck, a Doc Hudson, and all of the other characters, and it’s still not enough. The Cars obsession showed signs of starting to flag a little, but that was before the preview for Cars 2 came out.

And now the toy stores have come out with a whole new line of Cars 2 products. And so I headed straight for the display and picked out a Lightning McQueen (yes, another one) and a Mater (yes, another one). These aren’t just any Lightning and Mater, though. Some previous iterations have had features like the ability to light up or make vroom-vroom noises. These new ones do all of that AND talk!

Buying presents for George is more of a challenge. He doesn’t play with toys in the same way that other kids do. He’s into more cerebral stuff that lets him work with words or numbers, but there are only so many alphabetic fridge magnets and alphanumeric toys that you can buy for one child. The only toy toys that he really likes are Lego blocks and Mr. Potato Head. And again, he has so much of that stuff that buying more would seem like overkill. I mean, his Mr. Potato Head collection fills three large boxes.

But still, there’s always hope that Hasbro has come up with a new Mr. Potato Head character to add to Indiana Jones Taters of the Lost Ark, Darth Tater, and all the rest of them. So I headed over to the Mr. Potato Head section, and to my utter astonishment, I struck gold.

A talking Mr. Potato Head.

This thing is super-cool. You don’t even have to press any buttons to make him talk. He’s equipped with a built-in microphone that picks up on conversation and noises in the room, and he talks back. His repertoire of things to say is surprisingly extensive. An added feature is that when the room is silent, he will say things like, “Can I get some attention around here?” And if you make a sudden loud noise like banging on the table or clapping your hands, Mr. Potato Head’s pieces come flying off.

It’s a fun, fun toy. A bit challenging to have in the room when you’re trying to watch TV because it keeps providing a running commentary, but that’s a minor detail to live with. What’s really fantastic about it is how much George loves it. Getting him a toy that he instantly engages with and has fun with is such a rare experience, and we savour it.

In the meantime, James has fallen in love with his talking Cars cars. He gets them to have conversations with each other (they too, have a decent repertoire).

So things are peaceful in my house right now, with the kids each having cool new toys to play with.

And because of the nature of the toys involved, things are very, very talkative.

(Photo credit: http://www.flickr.com/photos/kiraca/5651863946)

Filed Under: Children, Disney Cars, Fun, Mr. Potato Head, Toys Tagged With: cars, children, Disney, George, James, Lightning McQueen, Mater, Mr. Potato Head, postaday2011, toys

Resurrecting Beanie

May 16, 2011 By Kirsten

On Saturday afternoon, I was startled from a Facebook-induced trance by the sound of James wailing as if the world had just ended.

“What on earth is the matter?” I asked.

“Plant died!” he cried. “Plant died!”

Bearing in mind that five minutes previously, James had been crashing toy monster trucks into each other, it is understandable that I was completely confused.

When I investigated, I discovered that each child in James’ class at school had grown a small potted plant from seed as part of a project. On Friday, the project was deemed a success, and the children were allowed to take their plants home with them. James’ plant was placed in a large brown paper bag, which was placed in his backpack. Which James’ lazy mommy did not check on Friday evening.

So by the time James opened his backpack on Saturday, the soil in the pot was dry and much of it had spilled into the bottom of the paper bag.

The good news, though, was that although the plant looked a little the worse for wear, it was still alive. Somehow I managed to calm down this hysterical child who was screaming as if the family Labrador had died, and I convinced him that – um, Plant – would be OK.

I poured the soil from the paper bag back into the pot. I stood the pot on a saucer and stuck a stick into the soil to support the plant, which is some kind of viney thing that cannot stand on its own. I watered the plant and showed James how it was green and strong, and not at all dead. I promised him that together, him and I would take care of it.

Yesterday, I asked James if he wanted to check on Plant’s progress.

“His name is not Plant,” said James in grand tones. “His name is Beanie.”

Beanie? Why Beanie?

When asked, James replied as if I was a complete moron for not getting it: “Because it’s a beanstalk.”

It is? Well, I’ll just have to take James’ word for it. I wouldn’t know a beanstalk if it jumped up and bit me on the butt.

Beanie was doing well. James fed it – I mean, him – some more water. On the advice of my mother-in-law, who knows considerably more about gardening than I do, we moved Beanie to a different spot, where he would get just the right mix of sun and shade.

And so the care of Beanie, who is maybe seven inches high but is, according to James, fourteen years old, has become an integral part of our daily routine.

This plant had better not die. There is a lot of pressure on me to make sure it stays alive. If anyone has any horticultural tips on ensuring the survival of what may or may not be a beanstalk, please pass them on.

(Photo credit: http://www.flickr.com/photos/emeryjl/1157150558)

Filed Under: Children, parenting, Plants, Uncategorized Tagged With: beanstalk, children, gardening, James, plants, postaday2011

He Ain’t Heavy, He’s My Brother (2010/04/23)

April 23, 2011 By Kirsten

With the arrival of my Mom yesterday, I did not have the time or inclination to post. However, I do still want to keep up with the Post A Day challenge, so for the next two weeks, while I’m doing stuff like visiting with my Mom and getting married, you may see a number of reposts. Like this one… I thought it would be fun to unearth the post from this day in 2010…

My boys have fallen into a new sleep routine. At bedtime, we do all the stuff we always did. They get their jammies on, use the bathroom, brush their teeth (most days they have a bath earlier in the evening). For story-time, I sit on my glider chair between their beds – the same glider chair that saw me through countless night-time feedings when my boys were infants. George gets right into bed, James curls up on my lap, and they each drink their milk while I read a story (current flavour of the day: anything to do with Thomas the Train). After the story, James gets into his bed, each of them gets a sip more milk, and the lights go out.

About five minutes later, we usually see a little face quietly peeking around the corner: George, trying to sneak onto the futon we have in our living room so he can watch TV. Or maybe he just wants the extra hugs we always give him, because once we’ve hugged him he goes back to bed amenably enough. At some point during the night, usually fairly early on, he migrates to the sofabed in the playroom, and sleeps there for the rest of the night.

Sometimes I worry about this. From time to time, when one of the kids is having a hard time, I have to sleep on the sofabed with said kid, and that thing ruins my back. I always wake up the next morning feeling as if I’ve been tortured by Vikings. I worry about whether the sofabed is doing to George’s back what it’s doing to mine. But once he’s there he won’t budge, he sleeps soundly, and he wakes up cheerfully enough. So maybe he’s OK and I just need to chill out a little instead of finding yet another thing to be perpetually stressed about.

In the meantime, James is sleeping soundly in his own bed. He’s a little champion at bedtime, James is. Once the lights are out he goes right to sleep without a fuss. He usually wakes up in the middle of the night, though – sometime between midnight and three in the morning. When I found out the reason for his nocturnal awakenings, my heart soared: he gets lonely for his big brother. He makes his way to the sofabed, climbs in beside George, and goes right back to sleep. George surfaces just enough to shift to make room for James, then he goes to sleep as well.

I am always the first one in the household to wake up in the mornings. Some days – like today – I go for an early morning run. Other days, I like to get dressed, pour out a cup of coffee, and have some me-time at the computer reading emails or playing meaningless games on Facebook. I love carving out that time for myself in the mornings, before the rest of the world wakes up.

Whatever I am doing – running or playing on the computer – the first thing I always do is check on my boys. I go to the playroom and watch them sleeping peacefully, each completely at ease with the other’s presence. They look cosy and comfortable, like a pair of sleepy kittens. There is always physical contact between the two: James’ hand resting on George’s, or George’s hand lightly touching James’ shoulder. When I checked on them this morning, George’s arm was flung over James’ shoulders. It looked big brotherly and protective.

I savour those moments as I watch them and wonder what dreams are going on in those little heads. Even though they are sleeping, I feel as if I am witnessing a moment of special connection between the two brothers.

Filed Under: Brothers, Children, Siblings, sleep Tagged With: big brother, brother, children, George, James, nocturnal wandering, postaday2011, protectiveness, siblings, sleep

The Wheels On The Bus Go… WHERE?

April 14, 2011 By Kirsten

The start of the next school year in September is going to be a big time for our family, as both boys make the leap to full-time school. In August, George is being discharged from the therapy centre where he currently spends his mornings, and James will be graduating from half-day Kindergarten and going into First Grade. It is a big adjustment for both boys, and although I expect some fallout, particularly from George, I am not too concerned. I have faith in both of the boys’ schools.

It’s the school buses I’m worried about.

For James, this isn’t an issue. We live too close to his school for buses to be in the picture for him (much to his disappointment; James would love to ride in a school bus like his big brother).

George, on the other hand, needs the bus, and four years’ worth of problems in the school bus system have taught us a very unfortunate fact: when it comes to scheduling school bus runs, special needs children are treated as an afterthought. The children who do not have any disabilities – in other words, the ones who as a rule are more adaptable and resilient – have their scheduling sorted out very early on in the school year. And the children who do have disabilities – the ones who are vulnerable, have higher levels of anxiety and more reliance on routines – easily spend six weeks or more being picked up at different times, by different drivers, and spending inordinately long periods of time on the bus, while their parents try to figure out what is going on.

Like most parents of young children, I want to know where my kids are at all times. I want to be able to know that at this time, George is on the bus, or at that time, James is eating lunch at the daycare. I do not want to be wondering whether or not George is still at the therapy centre and why the school is calling me to ask why he hasn’t shown up yet.

Last year, right after the Thanksgiving weekend, there was an incident with George’s bus that, while turning out OK, could have had terrible consequences. At that point, we had struggled with the bus company for almost two months getting George’s schedule worked out, and we thought that it had finally been resolved. George was being picked up at a consistent time from the therapy centre by a driver he knew from the previous year, and he was spending half an hour at most on the bus before being dropped off at school for the afternoon.

On the first day back after the Thanksgiving weekend, George was picked up at the usual time by the usual bus driver. He was driven to school.

The only problem was this: it was the wrong school.

Thank goodness George had on a seatbelt lock, which prevented him from getting up, walking off the bus, and getting lost or worse. Thanks to the seatbelt lock, someone had to actually get onto the bus to remove the seatbelt.

The teacher who took George off the bus didn’t know what was going on. She took the driver’s word that George was supposed to be there. It was only when the driver had left and George was standing in the principal’s office with a confused babble of grown-ups surrounding him that someone realized that a mistake had been made.

For a regular kid this would have been bad enough. For a child with autism who is afraid of people and places he doesn’t know, and who has severe communication impairments, it was downright traumatic.

Somehow the principal figured out who George was, and through a series of phonecalls, was able to figure out where he was supposed to be. A child’s booster seat was dug up from somewhere, and the principal bundled George into his car and drove him to the right school.

It only then, when George had arrived at his own school, that someone thought of calling me and Gerard to tell us what had happened. Up until that point, we had been completely oblivious to all of this.

While we were unbelievably grateful to have our child home safe and sound at the end of that day, we were haunted by thoughts of “what if”. The thoughts of “what if this happens again” prompted us to spend the next few weeks trying to figure out what the hell had happened.

We never did receive satisfactory answers. We do know that the bus driver was not at fault, that she was given the wrong information from higher up. We also know that in said higher-up’s attempt to avoid responsibility, the bus driver was relieved of her duties. There were no attempts made to figure out what had gone wrong so that steps could be taken to prevent it from happening again.

And in a few short months, we are going to have to fight a new battle for a new school year.

(Photo credit: http://www.flickr.com/photos/alextakesphotos/149198520)

Filed Under: autism, Children, School, School Bus, System Tagged With: autism, children, George, James, mistake, parental anxiety, postaday2011, scheduling, school, school bus, what if