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Farewell, My Friend

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What do you do when you receive word that a friend has died? What do you do with the memories that flood your head and collide with the cruel knowledge that you will never see that person again? How do you stem the endless flow of tears, and how do you deal with the hurt of loss?

When do you start to believe that they are really gone?

My friend Fran had cystic fibrosis. In her almost 41 years, she never experienced the feeling of being healthy. Intravenous antibiotics, nebulizers and hospital stays were a regular part of her life. None of that stopped her from living, though. Fran was not one to let chronic illness slow her down. Life was one big adventure to her.

There are so many things I could say about Fran. I could talk about the fact that she had one of most fascinating jobs I’ve ever heard of (she fixed helicopters). I could talk about the beautiful music she made and how honoured I was that she played the flute at my wedding. Or I could talk about the epic phone conversations we had from opposite ends of the country, and when we got together, the late nights of talking and drinking wine.

Or I could talk about the running.

Yes. I think I will talk about the running.

Fran started running in earnest shortly after she moved to Canada, and I kind of became her running mentor. A few months later, she flew to Toronto for a few days to celebrate Easter with me and my family. During her stay, we ran a race together. This race, a scenic lakeside 5K, was her first. Throughout the run, Fran kept having to slow to a walk to rest her lungs. At times she would have to stop entirely while she had violent coughing fits lasting for several minutes. When she was able to catch her breath, she would grin and start running again.

Fran finished the race in about 45 minutes. She was exhausted and her face was purple, but she had an enormous smile on her face that lit up the space around her. She was glowing with her accomplishment, and I was so proud of her.

Two days later, Fran woke up wanting to go running again. We laced up and I took her around my neighbourhood, letting her set the pace. We stopped often, sometimes because Fran’s lungs would go into spasm, and sometimes just to chat. I don’t remember what we were talking about as we ran the final stretch back to my house, but we were laughing so hard that we had to stop running to prop each other up as we walked towards the driveway.

It was with this image in mind that I went running just three days after learning of Fran’s passing. I hesitated for a minute in the driveway, and then set out, retracing the steps that I had taken with her. It didn’t take long for  the tears to start streaming down my face as I remembered the conversations, the sound of Fran struggling for breath as her lungs constricted, and the special way she had of embracing life so completely.

I shed many tears while I ran, but in the last kilometre, something very strange happened. The music playing from my running playlist abruptly stopped mid-song, and a different song started – a Celine Dion song that’s not even on my running playlist.

Let the rain come down and wash away my tears…

How had this happened? My screen lock was on. How could the music spontaneously change?

Hush now, I see a light in the sky…

Was it really possible for loved ones to send messages from wherever it was they went?

I can’t believe I’ve been touched by an angel with love…

As I ran towards home, a new picture filled my head. I imagined Fran running beside me, healthy and strong, the way I like to think she is running now.

 

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9 Memorable Moments Of A Lifelong Friendship

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Friendship

It has been said that people come into our lives for a reason, a season or a lifetime. Sometimes they are there for a specific purpose, and once that purpose has been fulfilled, they move on. Other people are there for a phase of our lives before the friendship drifts apart for whatever reason. Then there are those who are there for the long haul, no matter what life throws at either one of you.

Jenny came into my life when we were both 10. She is still there now, and we have made a pact that when we’re old, we’re going to sit on a porch on rocking chairs doing our knitting. Well, Jenny will knit and I will probably be doing some writing on an old-person tablet with extra-large font. I cannot knit.

When you’ve been friends with someone for 33 years, you collect a lot of memories with them. Today, in honour of Jenny’s birthday, I want to share some of those moments.

1. We were new kids together at school. We stood there side by side as the teacher introduced us to the rest of the class. We pretty much stayed side by side until we graduated high school.

2. When we were about 13, Jenny caught a bad cold that did some very weird things to her speech. This was during her phase of calling me “Spazzhead”. Try to imagine what the word “Spazzhead” would sound like when spoken by someone whose head has been stuffed full of bubble wrap. During recess one day, Jenny kept saying “Spazzhead” over and over, just because it sounded so funny. We were laughing so hard we couldn’t even sit up straight.

3. One Monday, Jenny came to school with her eyes red from crying all night. The previous day, her family had seen the immediate aftermath of a serious car crash on the highway. Jenny described the scene to me, and I was horrified just listening to it. For her to have actually seen it must have been absolutely traumatic. As she told me about it, she broke down in tears again. I could not think of any words to say, so I just held her.

4. When we were 12 or 13, we went on a school field trip to the zoo, and we were admitted right into an enclosure with blue cranes. For reasons known only to God and to it, one of the birds was instantly fascinated by me. The damned thing had me dancing in circles around the enclosure, never making contact with me but getting close enough to make me very nervous. Jenny’s attempts to help me were thwarted by the tears that were running down her face as a result of her laughing so much.

5. During my university years, I got myself into big trouble, but I didn’t tell anyone about it. While I was trying to pick up the pieces of my life afterward, I did something that hurt Jenny badly. It took a couple of years, but she forgave me and I had my friend back.

6. On a beautiful sunny day, Jenny said “I do” to the love of her life. She was, without any doubt, the most beautiful woman in the world as she walked down the garden aisle with her father. The wedding was small and simple, and the air was filled with love. When you looked at Jenny and her new husband, you just knew they were going to be together forever.

7. In my late 20’s, I used a sizeable bonus from work to fund a holiday to Greece and Wales. Jenny, who was heavily pregnant, did not follow my instructions to hold off on having the baby until I got back. As I was sitting down to breakfast in my B&B near Cardiff Castle, Jenny’s husband called me with news of the birth. It was quite a birth story with many anxious moments, but Jenny and her new baby boy were doing OK. When she asked me to be the godmother, I cried with joy.

8. When my dad died, I forced myself to hold it together. I had to go through the logistics of traveling alone from Canada to South Africa, and when I got there, I needed to be strong enough to help my mom deal with the aftermath of losing a loved one. As I stood outside the church before the funeral, Jenny arrived with her mom and came right over to give me a hug. It was only then that I allowed myself to cry.

9. Last year, I took another unexpected trip to South Africa following the death of a beloved aunt. In spite of the circumstances, there were some rays of sunshine during my time there. One of these was a day with Jenny. We had a marvelous time getting rained on during a bird show and then having a leisurely lunch together. That perfect day was capped off by a phone chat with my now-almost-teenage godson.

Jenny and I live on opposite sides of the world, but that does not get in the way of a friendship like this one. Today, this amazing person celebrates a birthday, and even though she is thousands of miles away, I am celebrating with her.

Happy birthday, my dear friend. Thank you for putting up with me all these years.

(Photo credit: Jixar. This picture has a creative commons attribution license.)

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5 Signs That I’m Approaching Burnout

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If you’re anything like me, you occasionally reach the point where your mind and body just shut down to prevent you from overburdening it any further. It’s always better, in my experience, to slow down and take a deep breath before reaching that point. I’m not always good at recognizing the signs,though, and when I do, I don’t always have the ability to prevent the train wreck that’s rapidly approaching.

The tell-tale signs may be different from one person to the next, and I would suggest that at a time when things are sailing along just fine (in other words, don’t wait for the crisis), everyone take a few minutes to reflect on what those signs are. Here are mine:

1. I lose the ability to make decisions. I’m not even talking about big stuff, like whether to move my kid to a different school, or whether to change jobs. I’m talking about stupid things, like what to cook for dinner. Any time I have to decide anything, I’m overcome with a feeling of panic that varies in intensity, but always makes me feel somewhat immobilised.

2) I lose interest in the things I like. If I stop caring about running, or if I don’t want to write, chances are that I’m approaching burnout. There are few things that scare me more than having to force myself to go for a run.

3) Little things annoy me. Things that I wouldn’t notice under normal circumstances make me want to jump up and throttle someone.

4) My relationship with food goes all out of whack. Either I stop eating entirely, apart from the odd nibble here and there to stay alive, or I go nuts and eat everything in sight.

5) Three consecutive hours of sleep counts as a “good night”.

What are your signs of burnout?

(Photo credit: bark. This picture has a creative commons attribution license)

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In Pursuit Of A Dream

When I finished high school 25 years ago, I had the idea that I would become a research psychologist. I was interested in the clinical aspect of it, but I did not think it would suit my socially awkward personality. If I went into research, though, I would be able to satisfy my desire to try and figure out what makes people tick. In some small way, I might even be able to make the world a better place.

I graduated high school with good grades and went off to university to pursue a Bachelors degree with a psychology major.

You know how life has this way of barging in and messing up all your plans?

Life barged in and messed up all my plans. During my second year at university, I met someone who I initially thought was charming, but who turned out to be a chaotic and disruptive force. I compare that part of my life with a tsunami. A gigantic wave rushes in and knocks over everything in its path. When the water recedes, the landscape is completely different. Some things have been turned upside down, others have completely disappeared. Virtually nothing is recognizable, and the only way to move forward is through a process of recovery and reinvention.

One thing is clear: after such a disruption, nothing can ever be the same again.

I did finish my Bachelors degree, but I abandoned the dream. I did not have good enough grades to pursue further studies, and even if that weren’t the case, my sense of self had been so completely obliterated that it would not have been possible.

In the 20-odd years since then, a lot has happened. I spent some time drifting, both metaphorically in my own mind and literally through travel, and eventually washed up in a career. I moved to Canada, had children, got married. I have buried my father, been thrust into the role of special needs mom, started running and discovered a passion for writing.

I have a lot to be thankful for, including the fact that in spite of the storm that I endured all those years ago, I have managed to make a life for myself. There has always been an undertone of regret, though. Regret for the poor decisions I made back then, and regret for the fact that I had a dream that got swept away. While the career I did end up in has been pretty good, I have never been able to shake the feeling that this is not what I want to do, that I have been living my whole adult life in response to things that happened a long time ago.

Maybe I cannot pursue the dreams I had back then. Maybe those dreams belong in the past along with all the ugly stuff that happened there.

What about new dreams, though? Is there anything stopping me from pursuing them?

In a move that has surprised absolutely no-one except myself, I have made the decision to go back to school. I have enrolled in a post-graduate certificate in fiction and non-fiction writing, and this will be followed up with a Masters degree in creative writing.

It is daunting. Quite apart from the extra time commitment that this will involve, my mind keeps drifting back to how my first shot at a university education went so wrong. I freely admit that I am scared. A part of me feels like that naive kid who made dumb choices. On the other hand, though, this might be a chance of personal redemption, an opportunity to get it right.

I owe this to myself, and I owe it to that scared, overwhelmed kid of long ago who gave up a dream.

(Photo credit: Raoul Luoar. This picture has a creative commons attribution license.)
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Teen Series Part 5: Teenage Life

Over the last month or so, we have heard from three teenagers about how they think, what their dreams are, and what they want us “old” people to know about them. I am wrapping up the series the same way I started it: with South African teen Alex Zeeman. Today, she gives us a candid view of life as a teenager. Here are her words, uncut and unedited.

People think that the life of a teenager is easy, that we have no worries or, that we care not what the world thinks of us, that we’re unscathed by the world around us ……..

But the truth is that we, you, me and all the teens in the world feel, think and care what the world thinks of us.

Sure you get the rebels, people pleasers, the nerds, geeks and freaks, the jocks, athletes and bullies you get the popular and even little miss OR mister perfects …… people think that teen life is the PINICLE, the ABSOLUTE best stage in a humans life ……

But they forget, they forget what it was like to be mocked, bullied and ridiculed just because you had a higher IQ than those around you or what it was like to have no say in the way your life progressed or even what it was like to be everyone’s favorite, some may think that being popular is easy, sure for some it is, some thrive in the adoration of others …..

But to me, I personally think that “POPULARITY” is just too much hassle. Why you ask well, the answer is simple you always have to watch what you say you must walk this way, and wear that …… to be “PERFECT” to me means to basically be a robot, the way people look at you, talk to you and even interact with you dictates the way you look, act, speak, walk and even think ….. I mean teenage life is hard enough as it is why burden your-self with the added responsibility of being everybodys  favorite or by lashing out at people who just want to help you ….. There is too much in life that we have to worry about …. WHY ………

If every one tells us that we are kids, do we worry about what we’re going to be studying in 3, 4, 5 years we’re young but we act like were 40 ….. If we’re kids we should act like it we should have FUN, we should laugh and cry and do STUPID, STUPID things with our friends because the role of a child, of a teen is TO BE STUPID!!!!!

So if you want to be 20 when your 16 then act it, wear the shortest skirts you can find, sleep around with whomever looks at you the right way but DON’T get mad at the world when your decisions get you hurt, don’t lash out when you find yourself in a dark, dark hole with no escape because if you want to act older, then you should be able to face the problems, worries and stress of an older life ……..

Teens should be teens.

We are not children but neither are we adults so we either think like a child and so are usually categorized as such or we think like an adult and are categorized as such …… But we NEVER think as a teen you shouldn’t worry about the future ‘cause that’s what parents are for …. You shouldn’t worry about the past ‘because that’s what the dead are for ….. You shouldn’t even worry about the present ‘cause then you’ll never LIVE!!!!!

So think about what I wrote comment about it, and spread it ‘because it might not help you but maybe it’ll help someone else…….

Sincerely yours
A.E.Zeeman

(Photo credit: James Laurence Stewart. This picture has a creative commons attribution license.)

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Once Upon A Time

This week I am participating in the WEGO Health “Advocating for Another” carnival, in which I write posts in response to prompts. I am having a lot of fun with this!

Today’s prompt: Once upon a time – It’s storytelling day! Write a story about yourself, your loved one, and others as though you’re a children’s book author. Be sure to include a beginning, middle, and end. Extra points for illustrations!

Once upon a time, there was a little girl who didn’t really like dolls, except for the rag doll her granny made her and the child-size walking doll she once got for Christmas. She didn’t really play with dolls, though. She preferred to play “Cops and Robbers” with her brother and his friends, even though her brother always made her be the bad guy who was shot dead.

The little girl thought her brother was bossy and annoying.

Many people thought the little girl would never be a mommy. She didn’t know how to take care of dolls, and she couldn’t sew or cook. Everyone thought that you had to be able to sew and cook in order to be a mommy. The little girl didn’t really care. She wanted to be an astronaut.

The little girl became a teenager and stopped being little. She still couldn’t sew or cook, and she was painfully shy around people she didn’t know. Apart from a couple of short-lived attempts at relationships, she didn’t have boyfriends. People still didn’t think she would ever become a mother. The girl still didn’t care about that, but she was starting to wonder if she would be alone for her whole life.

When she went away to university, the girl – now a young woman – met a man who flattered her and made her feel special. But then he hurt her and made her feel worthless. Now the young woman didn’t want to be a mother. She didn’t want to be a wife. She wanted to be alone, and for a long time, she was.

The woman grew older and moved to another country. One day, when she was sitting in a park, a man sat down beside her and told her she had beautiful eyes. When she looked at him, she felt as if she was looking at her future.

The man and woman moved into a house together. They had a baby, and two years later, they had another one. The woman had become a mother! She loved her children more than anything, and her children loved her.

The woman no longer thought her brother was bossy and annoying. He walked her down the aisle when she got married.

When a doctor told the woman that her older son had autism, she cried. But after a few years, she knew that even though there would be hard times, her child would be OK, because he had a family who loved him.

(Photo credit: Kirsten Doyle)

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A Portrait of Two Brothers

For the next week, I will be participating in the WEGO Health “Advocating for Another” blog carnival. As I talk about the joys and challenges of raising a child with autism, I also recognize the contributions – of which there are so many – of my younger son James. All of the posts that I publish here this week are dedicated to him.

Today’s prompt: Portrait Post – Write a descriptive portrait of your child/ren. Share qualities that make them, them – and include an image!

They lie curled up together on the bed, their identical-coloured curls tangled together on a single pillow bedecked in a Thomas the Train pillowcase. The larger of the two boys has his arm thrown casually but protectively over his little brother. These boys are both amazing individuals in their own right, but at times like this, it seems that one would not be complete without the other.

Although only one of the children has a diagnosis, I am an advocate for both of them.

On the left is George, almost nine years old. He is tall for his age: one of those long lanky kids who somehow manages to stay skinny despite eating startling quantities of food. He bears a strong physical resemblance to me: our noses are the same shape, our eyes are the same shade of blue, and when we’re tired, both of our left eyes droop ever so slightly in the corner.

George has autism. He has profound delays in speech and social communication, and he gets anxious – almost panicky – when an established routine is deviated from. He has trouble regulating his emotions, and will bang his head in frustration when he is unable to make us understand what it is that’s bothering him. There are times when I look into his eyes and see the depth of his frustration, his sadness, his desperation to communicate in ways that he is not able to. It’s as if he wishes he could emerge from his world, even if just for a moment.

There are times, though, when his world is a wonderful place. He can see patterns where the rest of don’t even know one exists. He sees beauty in numbers: he is comforted by their consistency and their power, and he has always outperformed typical kids of his age in math. If there’s a problem to be solved, he will solve it, albeit by a somewhat unconventional method. He has a quirky sense of humour along with the most infectious laugh you ever heard. When George laughs, the whole world really does laugh with him.

And he has the most beautiful, pure heart that is just bursting with love. I treasure the moments when he says in his sweet lyrical voice, “Go give Mommy a hug”, and then clambers onto my lap, drapes his gangly arms around my neck and buries his face in my hair.

On the right of the bed is James, who is six going on twenty-seven. He came flying into the world like a cannonball one cold Christmas afternoon, and he hasn’t stopped since. He is a bundle of dynamite who zings his way around life with a seemingly endless supply of energy. His face is bright and vibrant, brought to life by shiny blue eyes that view the world with wonder and curiosity.

It is hard for him, being the sibling of a child with autism. Things happen that he perceives to be unfair, but in spite of this, his love for his brother does not waver. He tells me that he loves George more than he loves me – and I am completely fine with that. When George is having a meltdown, James treats him with concern and compassion. Many times, he will be the first one to know what George is trying to say and what he needs. We sometimes see George seeking out the comfort of his brother – comfort that James is always ready to give.

James shows wisdom and empathy beyond his years. But when he wakes in the morning and sleepily climbs into my lap, his little body melts against mine and I am reminded that he is just a baby. He may be a little brother with a big brother’s role, but he needs to be nurtured, cared for, protected. We need to be make sure that as he grows up, his role as George’s brother is balanced by his identity as James, as an individual with his own hopes and dreams.

I worry about the future for both of my boys. They will each have their challenges to deal with, and their battles to fight.

But now, as they lie sleeping, they don’t have a care in the world. And that’s just the way it should be.

(Photo credit: Kirsten Doyle)

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Sticks And Stones And Words That Hurt

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Special needs parents come with all kinds of super-powers, one of them being the ability to grow a thick skin. This is a necessary part of survival: without it, we would not be able to withstand the stares from strangers during public meltdowns, the judgmental comments that are designed to make us feel like bad parents, and the mothers who steer their children away from our kids in the park, as if autism were contagious.

These things never really stop hurting. They never fail to make our hearts ache for our beautiful children who through no fault of their own, are targets of ostracism and discrimination. As we grow into our roles as special needs parents, though, we learn coping skills. We come up with ways to shield our children from the hurt, and to let the strangers know that our kids have a place in this world, differences and all.

We learn how to accept that the blatant looks and rude comments are not a reflection on us as parents. They are a reflection of the ignorance and prejudice in other people.

But.

No matter where we are in our special needs parenting journey, nothing can prepare us for the first time someone maliciously refers to our children as “retarded”.

Although this word was originally used in a medical sense, it is now generally regarded as a derogatory term, especially when the intent is clearly to hurt either the child or the parents. As conventional wisdom states, “It’s not what you say, it’s how you say it.”

Today marks the fifth anniversary of my son George’s autism diagnosis. I guess it is a cause for celebration: not only have we survived for this long, we have seen great strides along the way.

It is also the first – and hopefully only – day on which someone referred to George as our “retarded son”. It happened in the early hours of the morning during a telephone argument between my husband and someone else. There is no doubt that the words were spoken with malicious intent.

George was asleep, so he was spared the pain of hearing himself referred to in this way. The hurt behind the words had to go somewhere, though, and it slammed into me, almost leaving me breathless, and then settled over my shoulders like a heavy cloak.

Several hours later, I am left with a knot in the pit of my stomach that won’t go away, and unshed tears that I am trying with all my might to contain.

As I try to prepare my son for life in the big wide world, I worry about what the big wide world is going to throw at him. Will it be a place of opportunity for him, or will it be a minefield of insults and discrimination?

Do I try to shield him from the hurt, or do I let some of it get through to him so he can learn how to protect himself?

How do I ensure that my son will be OK, that he will be happy and feel safe, in the days when I am no longer here?

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The Queen Of The Stage

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

I sit in the darkened theatre, holding my breath with anticipation. I have been waiting for this night for weeks. My husband, who has seen this performance before, has promised me that it will be the theatrical experience of a lifetime. We are not in one of the big-name theatres in London or New York. We are not even in Toronto’s theatre district thirty minutes’ drive from where we live. We are at the Herongate Barn Theatre in the Pickering countryside, and right here, in this gem of comedy and culture, I am going to see a performance like none other. The audience’s collective heartbeat pauses, the curtain is raised… and I am instantly transported into another world.

The performance of Shirley Valentine that I saw that night defied imagination. When Margaret St. John-Francies took the stage in the role of a middle-aged housewife disgruntled with life, I did not feel as if I was sitting in a chair in a theatre. I felt as if I was sitting at Shirley Valentine’s kitchen table while she cooked chips and eggs and wondered aloud what had happened to her life.

It was so real that I wanted to cry. My heart twisted for this woman who felt trapped in an unsatisfying life, and I almost got up to give her a hug before reminding myself that this was just a play.

When the action of the play shifted from the Liverpool kitchen to a beach on a Greek island, I went right along to Greece as well. I could feel the sun on my back and the sand between my toes as the unhappy housewife was transformed into a fulfilled woman with romance in her life and hope for the future.

I wanted to stay on that beach, gossiping about the lover, asking Shirley what she was going to do next. I wanted to tell her not to return to her old life,because she so clearly deserved more. I wanted to be her friend, her confidante.

Instead, the play ended, and I went to the bar with my husband. A few minutes later, Margaret walked in – no longer in her role as Shirley Valentine, but as herself – and that was a different kind of magic.

Margaret graced many theatrical productions with her immense talent, usually alongside her husband Paul. The pair of them were perfectly matched not only on the stage, but in life. We shared many laughs with them in the bar after the shows we saw them perform in.

Margaret could fill a room with her presence. She was larger than life but down to earth. She touched everyone she met with her own special brand of magic.

On April 22nd, surrounded by the love of her family, Margaret passed away. To realize the impact of her death, you only had to look at the number of people at her memorial, which was held at the theatre. People were parking in the driveway because all of the spaces were taken, and extra chairs had to be brought into the room.

The Queen of the Stage has taken her final bow, but the memory of Shirley Valentine will forever remain.

“Don’t cry because it’s over. Smile because it happened.”     ~ Dr. Seuss ~

(All pictures are reproduced with the kind permission of Paul Francies)

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Homecomings

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

When my kids were little – well, littler than they are now – they went to a great daycare centre a few minutes’ walk away from our house. When the weather was nice, the kids would be allowed to play outside at the end of the day while they were waiting for their parents to pick them up. When I got off the bus from work, I would walk directly to the centre, and as I approached, I would hear the sound of children laughing and playing in the outdoor play area behind the building.

There is no sound in the world that is more magical than the laughter of children. I used to treasure that part of every day – those moments in which the sounds of childhood joy floated through the air and reached my ears.

When my boys reached the age-limit of the daycare and had to leave, I knew that I would miss those precious sounds.

Now that both boys are always home by the time I get off the bus, my homecoming is quite different to what it was back then, but it is no less magical.

My husband and children, alerted to my impending arrival by a text or phone call from me, stand together at the front door, peering out of the frosted glass panels on either side. When I appear at the end of the road, my husband opens the door and releases them into our quiet street. They charge down the road towards me, running in that completely natural, unrestrained way that only children are capable of, and they launch themselves at me, giggling helplessly as I pretend to fall over backwards.

By this time, my husband is usually ambling down the road to meet me. We go for a walk around the block, all four of us holding hands. Then we turn and head back towards the house. When we’re about half a block away, we line the kids up.

On your marks!

The kids look up at us with anticipation.

Get set!

George starts to giggle and looks all around him. James, who has acquired my love of running and actually takes this seriously, looks straight ahead as he braces himself for takeoff.

GO!

And they’re off, racing each other to the house. In that moment, we are not looking at a child with autism and a child without autism. We are looking at two typical boys, being brothers.

And this is what life is all about. Love. Togetherness. Family.

(Photo credit: Kirsten Doyle)