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Accidental F Bombs

July 14, 2012 By

The first time my younger son James, who had just turned four, dropped an F-bomb, he was out with my husband buying me a new laptop to replace the one that had gone kaput. According to eyewitness accounts (i.e. my husband), the conversation went something like this:

James (sitting in the back with my husband driving): Daddy, can I have a donut?
Husband: OK! Look out for a donut shop and tell me if you see one!
James (ten minutes later): Where’s the f*cking donut shop?

My husband tried to be stern about it, but he had a hard time keeping a straight face. It was one of times where you find something funny but you cannot let on that you find it funny.

Two a bit years later, the word has fallen out of favour with James. He doesn’t understand what it means (at least, I hope he doesn’t), but he does know that certain words are “bad words”. When he hears me slip up and utter a curse word, he tells on me, running to his dad and calling out, “Mommy said a bad word!”

A recent slip-up on my part has created F-bomb issues, not with James, but with my older son George.

Some time ago, George started messing around with the timer on the oven. This in itself is understandable for a boy with autism who likes to have everything just so. If you tell him that something will happen twenty minutes from now, he takes it very literally and makes sure he knows just when twenty minutes will be up. So he goes off and sets the timer on the oven.

This is a problem from a safety point of view. Not only does it mean that he is leaning over burners that may or may not be turned on, but the timer is controlled by the same buttons that are used to actually turn the oven on. There have been a couple of instances where George has accidentally set the oven temperature instead of the timer.

It is a fire hazard, and also a great inconvenience if I happen to have something in the oven and the temperature is suddenly not what  it should be.

We have been dealing with the timer-setting habit with as much sternness as you can employ with a kid with autism. Our “punishment” involves leading him to his room, and making him sit on his bed for a few minutes during which we completely ignore him. Negative reinforcement doesn’t really have an impact on him. It just makes him giggle. No reinforcement at all, however, makes him somewhat disconcerted and uncomfortable.

Anyway, a few weeks ago, my husband called out to me, “George set the timer!”

Without thinking, I replied, “Oh, f*ck.”

Yes, the children were within earshot. It was not my finest parenting moment.

We dealt with the situation as we usually do, and life went on.

Until this week, when George had one of his frequent bouts of echolalia.

For the uninitiated, echolalia is when a child with autism repeats something that he or she has heard, without regard for the context. It can be immediate, where the child repeats what has just been said moments ago, or delayed, where the words are repeated hours or days later.

This was a case of very delayed echolalia. About a month after my F-bomb, George suddenly said, “George set the timer! Oh, f*ck!”

And then giggled as if it was the funniest thing in the world.

And then said it again. And again, and again, and again.

As parents, of course, our instinct is to reprimand the child for saying such a word. And with typical kids, that’s fine. But for kids with autism, it’s a little more complicated. You can tell George until the cows come home, and he still won’t be able to distinguish the bad words from the normal words.

Since we make a big deal of any speech George comes up with in order to encourage him, our best defense is to simply ignore him when he says that word. But it’s so hard, and goes against the grain of what we believe to be “good” parenting.

In the meantime, we are getting George his very own timer – one that has proven very effective in the autism community. Hopefully, it will keep him away from the oven. It’s called a Time Timer, and it looks like this:

How do you deal with your kid coming out with swear words? Special needs parents: what are your strategies? I need them!

(Photo credit of “See, hear, speak no evil”: John Snape. This picture has a creative commons attribution license.)

(Photo credit of Time Timer: Spectrum Nasco)

 

Filed Under: autism, Children, Echolalia, F-Bombs, parenting, Profanity Tagged With: , , , , ,
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Ramblings From The Heart

July 8, 2012 By

It is a lazy Sunday morning and I am trying to keep things low-key. My husband, who almost never drinks alcohol, was out with friends last night, and he has a bit of a hangover that he is sleeping off. My younger son is watching TV and my older son is playing on his computer beside me. I am sipping coffee and seeing if anything interesting has been happening on Facebook while I’ve been sleeping.

It’s pleasantly peaceful. I feel as if all of the pieces of my life are in harmony.

My older son abandons his computer game and comes to stand beside me. He is tall for his age, one of those long lanky kids whose pants never seem to be long enough. I regard this child of mine, this beautiful boy with autism who some higher power has deemed me worthy to parent.

In his sweet, lyrical voice and odd way of speaking, he says, “Go give Mommy a hug.”

I hold out my arms and he clambers into my lap – something that I am going to treasure while he is still just not-too-big to do so. He wraps his arms around my neck, kisses me lightly on my hair, and rests his head on my shoulder. Although neither of us is saying a word, the communication between us is profound and special. Our world of two feels complete.

I am intensely aware of the weight of responsibility. As I hold my child in my arms, I feel as if I am holding his future. Everything I do counts: every word, every gesture, every action. All of the mistakes I make – and in parenting, there are bound to be some – can cause some erosion, some little breakdown somewhere in my child’s character. But all of the things I do right can build him up. I visualize this moment that I am sharing with him right now. I imagine it adding another layer to his confidence and sense of emotional well-being.

Although this beautiful moment will soon be over – already, I am starting to sense my son getting ready to move on to the next part of his day – its effects will last forever.

Sometimes, as I think about the immense role that I have in creating positive, productive and happy lives for my children, a part of me – the part ruled by self-doubt – asks, “Can I really do this? Am I worthy of having such responsibility for two human beings?”

And at moments like this, as my son gets off my lap and goes off in pursuit of some adventure that only he knows about, I can hear the Universe whisper back to me.

“Yes, you can do this. And yes, you are worthy.”

(Photo credit: Kirsten Doyle)

Filed Under: autism, Childhood, parenting Tagged With: , , , , , ,
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Autism Acceptance Does Not Mean Entitlement

June 14, 2012 By

 

Since my son George was diagnosed with autism five years ago, I have learned – to some extent, at least – how to field the rude comments of strangers and the blatant stares of their children. Through my writing and through daily interactions, I do what I can to educate and inform, to discourage people from discriminating against my child on the grounds that he is “different”. I strive for awareness and acceptance, and I work towards a world in which everyone accepts George for the wonderful, albeit a bit quirky, person that he is.

In this quest I am part of a not-so-secret society of autism parents who have a common goal. We post and share autism awareness messages on our Facebook walls. We circulate articles about what to say and what not to say to an autism parent, and we brainstorm ways to make things easier for our children. In all of this, our message to the world is this: Accept our children, include  them to the extent to which they are capable, and discover what wonderful people they are.

As passionate as I am about this cause, I do believe that if we’re not careful, we can take it too far. We can make the mistake of expecting the world to bend to our children no matter what, without making any effort to equip our children to live in the world.

During my afternoon commute from work, I regularly encounter a blind woman who has a service dog. When we get off the subway, we go to the same bus bay, although she doesn’t take the same bus as me. She waits patiently for her bus, politely asking people to let her know when her bus has arrived. She is so nice and charming, and people practically climb out of their own skins in their eagerness to assist her.

In contrast, there is a man during my morning commute on the subway who is confined to a wheelchair. He is rude and aggressive. He seems to be completely OK with literally pushing people out of the way in his efforts to be first onto the train when it arrives, and he acts as if he can behave as badly as he likes because he is disabled. People are not that inclined to help him and feed his sense of entitlement.

When George has meltdowns in public, there is often very little I can do about it, but that doesn’t stop me from trying. As I try to engage strategies to help him, I offer explanations of autism to anyone who might be nearby. Am I obligated to explain my son’s behaviour? Maybe not. But I do recognize that my son’s behaviour at those times can be disruptive and a little frightening to the people around us who cannot be expected to magically know that he has a invisible disability.

In the vast majority of cases, my explanations are met with smiles and nods of understanding. On the odd occasion, I have even received offers of help. Yes, there are always the people who tell me that I shouldn’t have my child out in public if he cannot control himself, or that my bad parenting is to blame, but there’s very little one can do about people with that kind of attitude.

The point is that the road to acceptance is a two-way street, with some effort required from both sides. It shouldn’t be all up to other people, who in many cases may not know how they’re supposed to act around someone with autism. The individual with autism (depending on the level of functioning) and his or her family should do their part to make things easier too.

When I was on the subway to work one morning, a girl of eleven or twelve boarded the train with her parents. With the sense that autism parents develop as an instinct, I knew that this girl had autism. She clearly had communication deficits, but she appeared to have a reasonable level of functioning in other ways. Since this was during the morning commute, there was standing room only on the train.

The girl lost it. Over and over, with increasing intensity, she screamed, “I want to sit down.”

Bear in mind that although I knew the girl had autism, in all likelihood the other passengers didn’t. Why would they? Autism is not a visible disability. To most of the people on the train, that girl was simply a brat acting out. Her parents did not offer any explanations, nor did they make any effort to stop the screaming or help their daughter.

As the screaming escalated to an ear-splitting “I! WANT! TO! SIT! DOWN!” a woman close to where I was standing gave up her seat to the girl, who instantly calmed down. No-one thanked the woman who had given up her seat: not the girl, and not her parents. The woman, quite justifiably, was annoyed. She said something to the girl’s mother about manners, and the girl’s mother made some obscure comeback about a commuter’s responsibility to give up their seat to people with disabilities. The woman shook her head in bafflement and moved towards the opposite end of the carriage.

I didn’t mind that the girl had started melting down over the lack of seats. People with autism do not have control over what triggers them.

However, I do mind that her parents expected everyone else to accommodate her without offering an explanation, and I mind even more that they allowed the situation to escalate without trying to help her. I believe that in their lack of action, they did a great disservice to the autism community.

The next time any of those commuters encounters a child having a meltdown in a public place, how understanding are they likely to be? Does this kind of thing not reinforce all of the negative stereotypes about autism that we are trying so hard to beat?

We (autism parents) spend a lot of time talking about how we wish people would accept our kids. But we cannot really expect someone to accept something when they don’t even realize there’s something to accept.

Is it acceptable for people to be rude and discriminatory towards individuals with autism? Absolutely not. That doesn’t mean, however, that everyone has an automatic obligation to cater to us and our children, no matter what, without a little bit of effort from our side.

We have to meet the world halfway on this one. Working with society, not against it, is ultimately what will build awareness, acceptance and inclusion.

(Photo credit: Kirsten Doyle)

Filed Under: Acceptance, autism, Discrimination, parenting, Society Tagged With: , , , , , , , , ,
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GUEST POST: Fighting With My Shame

June 6, 2012 By

Kerry White has a few things in common with me. She was also born in South Africa, and she also lives in North America (Texas, to be exact). Like me, she knows what it’s like to parent a small energetic boy. And like me, she knows what it’s like to live with mental illness, including depression and social anxiety.

I first got to know Kerry through a now mostly-defunct Yahoo group called Homesick South Africans. During its heyday, this group was the venue of some lively discussions – a few of them controversial, many of them humourous, almost all of them supportive. Several friendships that formed during the group’s active existence have continued through social media. I am so grateful to the Internet for existing, because without it, my friendship with Kerry would not have evolved in the way it has. This is a woman for whom I have a great deal of admiration and respect.

As I strive to talk about my own struggles with mental illness, I am immensely grateful to Kerry for this post, in which she frankly and courageously shares her own journey.

So I think I’m crazy. Absolutely strait-jacket-heavily-medicate-me-and-lock-me-up crazy! I have felt this way for a very long time, probably since I was about ten years old and reading my first Stephen King books. I recognized the signs of madness in my mind from the characters in some of his books.

As a much more jaded adult, I now recognize myself for what and who I am. I have severe depression, social anxiety, obsessive compulsive disorder, and it all comes bursting forth in the less than neat and tidy package of major panic attacks. I live with mental illness, and I am terribly ashamed of it. I feel broken, less of a person, less of a woman, and worst of all I feel like a terrible mother because of it.

Growing up in South Africa in the 80s, my mental illness was not recognized for what it was. My anxiety, and shyness, and my odd acting out behaviors gave the impression that I was a difficult child; not that I was a child in dire need of some thought of help.

Don’t get me wrong, my childhood was not unpleasant at all. My parents were hard-working and loving individuals who did the best they could for us during rocky financial times. But there was no such thing as depression, anxiety, panic attack, mental illness. There was just doing what needs to be done, threatening electroshock therapy when I refused to communicate about an assault when I was a teenager, and threatening to send me away to a mental institution. At 16 I was admitted to a psychiatric hospital for teenagers who are in crisis. I felt normal! I felt accepted! I felt safe! I was there for two weeks and then released, but promptly tried to kill myself because I didn’t get the support I needed at home. I spent another several weeks in there, but soon learned that I was better off shutting the part of myself I thought to be crazy away. I was never going to get support outside of the walls of that mental health hospital. I was always going to be told to just suck it up and get over it. Because that was just the way things were handled.

I have spent the better part of my adult life trying to just get over it, trying to avoid the idea that I have a problem that no amount of “getting over” will fix. I have tolerated abusive partners, abusive bosses, and abusive coworkers; because I felt I wasn’t worth more.

When I had my son, my depression and anxiety kicked into high gear – but I expected it to. I refused to take the prescribed antidepressants, in case they made me worse (as others have done in the past), or someone saw me as too weak to raise this child. But I do recognize now that I should have not only taken the medication but sought out help. Help wasn’t offered for my “baby blues” and I didn’t go find it. It got to the point, several times, where I wanted to end my life because I was so miserable and felt like such a failure.

I’ve found myself mentally standing on a ledge, with nothing behind me, not even one hand to reach out and pull me to safety. But then the knowledge of the small body pressing against me, raising out a hand and calling out for “mommy” reminds me that if I jump off of this mental ledge then he loses himself, too.

As my son’s needs have changed, so has my mental illness. It has to. I have to get us dressed and get him to daycare so that I can work. I work at home, which just encourages my social anxiety. We need to go to the store and get milk and the occasional toy car, so I steel myself and leave the house. For him.

I’ve made myself get on a plane to visit family; I’ve made myself go visit friends. But it is hard. I have to find a way to change this, for my son.

So what is my next step then? I have more anxiety than will allow me to even see a therapist. What if they deem me to be as unfit of a mother as I feel some nights when sobbing over a panic attack or crying in my office when he is at school? I can’t just “suck it up and get over it.” I have tried. Believe me, I have tried.

I feel crazy. Insane. Broken. But this is my normal. I just wish I didn’t feel so much shame and fear along with it. How do I find the inner strength I need to get help and not feel so broken? Help that will not judge me as being weak or unfit as a single parent?

My heart breaks for others who feel like I do, and I do my utmost to help them. I even write helpful blogs and books for a counselor who helps women like me!

Why then can’t I find what I need in order to help myself work through this? At what point will my son notice that his mommy isn’t like other mommies? I do not want to continue trying to bury my mental illness, but I do not know any other way to function. I am not strong, I am doing what I need to do in order to provide for this boy that the universe has seen fit to place in my care.

To find out more about Kerry and the children’s books she is writing, visit her website!
 
(Photo credit: Kerry White)
Filed Under: anxiety, Depression, Guest Posts, Kerry White, Mental Illness, OCD, parenting Tagged With: , , , , , , , , , ,
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GUEST POST: It’s A Marathon, Not A Race

June 4, 2012 By

The first time I met Jennifer Krumins, she was having a fight with her laptop. She was slated to give a parent education presentation at George’s autism therapy centre, and she couldn’t get her technology to work. She endured some good-natured heckling from the front row (read: from my husband), got her PowerPoints to work, and went on to deliver a riveting presentation.

Jennifer is an autism parent, educator and author. She willingly shares her hard-earned wisdom for the benefit of parents who may be feeling a little overwhelmed by the whole special needs gig. Thanks to what I have learned from her, I have become somewhat good at advocating for my son in the school system without alienating anyone along the way. Whenever I start getting my annual IEP-related panic, I start posting stuff about it on Facebook in hopes that Jenn will respond with a gem of wisdom, and she always does.

Since the first time I met Jenn, I have attended more of her presentations and roped my mom into filling out a questionnaire for her book entitled Autism and the Grandparent Connection (which you really should read, even if you’re not a grandparent). We have become friends and we’re looking forward to having a drink together at this year’s autism symposium that Jenn will be presenting at.

Today, she tells us about her journey as an autism parent, and offers us some advice to help us along the way.

I don’t run marathons. I really admire people who do. I have some friends that train faithfully and test their endurance over the course of a few hours…by choice!

I am the parent of a sixteen year old boy with autism. Biggest marathon of my life. Yes, raising a child with autism is perhaps the supreme test of endurance. And yet, like many of my running friends, I would sign up to do it again because in my memory, the moments of success were far more remarkable than the moments of pain, exhaustion and heartbreak.

So what are the secrets of our successful marathon? Is it a medicated state of euphoria that I am experiencing….only to be rudely awakened by reality when the meds wear off?

No. I can honestly say that while the road has been long, harrowing at times and I have fallen on my butt on many an occasion…the journey has delivered far more emotional, intellectual, spiritual and social growth than our family could have dreamed.

The secrets have been revealed to me through fellow “autism marathoners,” trial and error, and most of all through the wisdom of children with autism (my own son and those students whom I have had the privilege to teach). I have learned some valuable tips to enrich the journey and increase endurance:

1. Instead of carb loading…try optimism loading. It’s very good for you and your child! Optimism is a way of looking at life and its inherent stresses. Being an optimistic person does not mean that one is always happy and peppy… it is that you choose to look for opportunity in the middle of adversity. Feed your brain with daily/hourly reminders that adversity is temporary, and that your child is making progress (even if it’s tiny steps). “Children learn what they live,” and as the adults in a child’s life it is our responsibility to model an attitude of positive persistence and hope. We can choose to believe that there is hope, meaning and joy within any given moment.

2. Take a long term approach to training. You would not be able to run your first marathon immediately after deciding to do so. You need to train. It’s the same thing with raising your child. Too often, we get stuck on a panic button in the early years. We may feel like we have to do it all right now in order to win the race against autism. It doesn’t work that way. Live in the present but plan for the future. Each day, each hour that you invest in being the kind of parent you want to be has a cumulative effect. In the long run, it is the lessons of perseverance, self- advocacy, and hope that will develop your child’s ability to be resilient and to ignite a sense of self- worth and self -confidence. Children learn by doing….by failing and trying again. They do not gain self- confidence when we tell them they can do it….and then we do it for them. The values you live by will be the greatest gift you give your child with autism….more than any treatment/intervention.

3. Visualize and rehearse the route. What are your long-term goals for your child? What do you envision for your child in the future? Design your plan so that you not at the mercy of someone’s map. Take the time to write down your thoughts on the following: What are my child’s strengths, skills, interests, challenges and limitations? What about my child gives me the most joy? What are my biggest fears or worries? What goals do I value for my child’s development? What specific behaviours, or other problems, have I observed? How did I react? What did I do in the situation? What could I do better next time, if anything? Have I recently noticed any changes in behaviour or ability? Be prepared to share what you know with those who are on the journey with you (even if you don’t like them). But remember, your plan must be in writing.

4. Talk with folks along the way, enjoy the course, smile often. The autism marathon is a social event. Too often we try to do it alone and we burn out. We need each other. We even need the people that drive us nuts because they keep us running; trying to learn more, be more and advocate more. Choose not to allow bitterness, resentment and hatred ruin the journey. We are the ones who suffer (as do our children) when we allow destructive feelings to shape us. Advocate one step at a time, one person at a time with patience and humility. The journey is much richer when we allow others to help. It is a sign of strength and selflessness to say, “Yes, I could use your help.”

5.  Set goals. Work to achieve them and stay focused on the things you want. Your life does not wait until you “fix” the autism. This is it. Treat your life as the gift it is. The time is now to take figure out what you will be living in the next five years (ten and twenty). Start with small steps towards those goals. Catch yourself if you are waiting to live your life. Perhaps, autism is in some way a vehicle for achieving those goals. Seize the time and model for your child what it looks like to live a goal directed life.

The marathon continues. There are more times of peace now…but never for too long. Struggle creates a rich environment for personal growth. Just set your eyes and heart on the target and keep putting one foot in front of the other.

To learn more about Jennifer and the books that she has written, check out Autism Aspirations.

(Photo credit: Jennifer Krumins)

Filed Under: autism, Coping Skills, Guest Posts, Jennifer Krumins, parenting, Special Needs Tagged With: , , , , , , , , , , ,
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Sticks And Stones And Words That Hurt

May 31, 2012 By

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Special needs parents come with all kinds of super-powers, one of them being the ability to grow a thick skin. This is a necessary part of survival: without it, we would not be able to withstand the stares from strangers during public meltdowns, the judgmental comments that are designed to make us feel like bad parents, and the mothers who steer their children away from our kids in the park, as if autism were contagious.

These things never really stop hurting. They never fail to make our hearts ache for our beautiful children who through no fault of their own, are targets of ostracism and discrimination. As we grow into our roles as special needs parents, though, we learn coping skills. We come up with ways to shield our children from the hurt, and to let the strangers know that our kids have a place in this world, differences and all.

We learn how to accept that the blatant looks and rude comments are not a reflection on us as parents. They are a reflection of the ignorance and prejudice in other people.

But.

No matter where we are in our special needs parenting journey, nothing can prepare us for the first time someone maliciously refers to our children as “retarded”.

Although this word was originally used in a medical sense, it is now generally regarded as a derogatory term, especially when the intent is clearly to hurt either the child or the parents. As conventional wisdom states, “It’s not what you say, it’s how you say it.”

Today marks the fifth anniversary of my son George’s autism diagnosis. I guess it is a cause for celebration: not only have we survived for this long, we have seen great strides along the way.

It is also the first – and hopefully only – day on which someone referred to George as our “retarded son”. It happened in the early hours of the morning during a telephone argument between my husband and someone else. There is no doubt that the words were spoken with malicious intent.

George was asleep, so he was spared the pain of hearing himself referred to in this way. The hurt behind the words had to go somewhere, though, and it slammed into me, almost leaving me breathless, and then settled over my shoulders like a heavy cloak.

Several hours later, I am left with a knot in the pit of my stomach that won’t go away, and unshed tears that I am trying with all my might to contain.

As I try to prepare my son for life in the big wide world, I worry about what the big wide world is going to throw at him. Will it be a place of opportunity for him, or will it be a minefield of insults and discrimination?

Do I try to shield him from the hurt, or do I let some of it get through to him so he can learn how to protect himself?

How do I ensure that my son will be OK, that he will be happy and feel safe, in the days when I am no longer here?

Filed Under: 2012 Wordcount Blogathon, autism, Bullying, Discrimination, life, parenting, Respect, Special Needs, stereotyping Tagged With: , , , , , , , ,
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Making Peace With A Tough Choice

May 29, 2012 By

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

When I went for my six-week postpartum checkup after George was born, my OBGYN raised the question of whether my husband and I were going to have more children. We stared at each other in a perplexed kind of way, shrugged our shoulders and said, “I dunno.”

It was a question that we had honestly given no thought to. George had been an extremely welcome surprise, but he had been a surprise nonetheless. Family planning hadn’t exactly been a key feature in our lives.

When we did talk about it – this topic that we had simply never thought to discuss – we discovered that both of us had always envisaged life with three children. This was good. I thought it was a positive sign that I was with a man who wanted the same number of children as me.

When we decided to try for Baby Number Two, I got very serious about it. I downloaded those free online calendars that tell you what the best dates are to – well, you know. I was going to chart my cycles and keep track of my temperature to tell when I was ovulating.

As it happened, I didn’t need any of that stuff. Just six weeks after we decided we were officially trying to conceive, we got a big fat plus sign on the pregnancy test. Several months after that, James came barreling his way into the world like a cannonball.

Two down, one to go.

By the time we were ready to try for Baby Number Three, though, things had gotten complicated. James was almost two, and George, who was four, had been diagnosed with autism. We were recalibrating our lives after discovering that we were special needs parents, and I was still trying to find my way out of the terrible darkness of postpartum depression.

What if our third child had autism? Would it be fair for us, knowing that we weren’t going to be around forever, to leave James with the responsibility of having two siblings with special needs?

We were so conflicted about whether or not to have another child that we went to see a geneticist. The DNA testing did not confirm a genetic link to autism, but it did not rule it out either. The geneticist turned to the very detailed questionnaires that we had completed. Based on my own developmental history, which was almost identical to George’s, it seemed not only possible but likely that I was on the spectrum myself.

The geneticist advised that in spite of the inconclusive DNA test results, there was reason to believe that George’s autism might be genetically based. We were looking at a 12-15% probability that any other child we had would have autism.

This created a problem. My husband and I found ourselves on opposite sides of the fence. He was very concerned about the 15% probability. I, on the other hand, tried to focus on the other percentage: the 85% probability that the child we had would not have autism.

We flip-flopped back and forth for several months, torturing ourselves with possibilities and what-ifs. We were torn between doing what was right for the kids we already had, and doing what both of us had always wanted. We really could have done with a crystal ball at around that time.

In the end, it was more than George’s autism that made the decision for us. I was already at an age where there’s a higher risk of having a baby with Downs Syndrome. I was finally starting to see a pinprick of light at the end of the postpartum depression tunnel. We had just successfully potty-trained James, and I wasn’t sure that I wanted to start a new two-year cycle of diapering.

Most importantly, I realized that I didn’t need more children. The two that I had were absolutely perfect. When I came home from work at the end of each day and hugged them, I felt complete. I did not feel that there was piece missing – a piece that would be filled by another child.

When I am sitting on the floor in my living room, with one kid on my lap and the other jumping on my back, I know that we made the right choice. I know that my family is whole.

Have you had to wrestle with the question of whether to have more children? What was the deciding factor for you?

(Photo credit: http://www.flickr.com/photos/joehowell/2282930348/. This picture has a creative commons attribution license.)

Filed Under: 2012 Wordcount Blogathon, autism, Choices, family, Genetics, parenting, Siblings, Special Needs Tagged With: , , , , , , , ,
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Taking Off The Parenting Hat To Go On A Date

May 22, 2012 By

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

The last time I saw a movie with my husband – a real movie, in a movie theatre, with a giant bucket of popcorn to share – my firstborn son was about a year old. Because we just had the one child back then, and because one-year-olds who aren’t yet fully mobile are easier to manage than hyperactive eight-year-olds, my ageing mother-in-law was able to babysit.

We have gone out on other occasions, of course. We are regular patrons of a nearby dinner theatre that’s run in a barn – if once or twice a year can be considered “regular”. We go to the annual Christmas gala organized by my employers, and on the odd occasion, we’ll go to a party or a wedding.

For the most part, though, our outings include the kids. We frequent parks with slides and swings, and we go to restaurants where the waitstaff bring paper cups filled with crayons along with menus that the kids are allowed to draw on.

I am always hearing and reading about the importance of a couple going out on their own to spend time just with each other. I fully subscribe to that idea, and from time to time my husband and I make a commitment to have a date night once a month. But the logistics are so difficult.

People often assume that living with my mother-in-law gives us a built-in babysitter whenever we need it, and while that may have been true to an extent at one time, it’s not anymore. My mother-in-law is almost eight years older now than she was when we went to the movie that time, and instead of having one one-year-old, we have a six-year-old and an almost nine-year-old.

Finding a trustworthy babysitter is hard enough for any parent. There’s something very frightening about entrusting the most valuable things in our lives to people who usually aren’t old enough to vote. And when one of those valuable things is a vulnerable special needs child, the angst about it increases ten-fold.

Most babysitters do not know how to handle a special needs child. We have to find people who have some understanding of autism, are quick on their feet, and have the physical strength and presence of mind to restrain a child for his own safety. If it’s someone who can take the time to actually get to know the child while I am home, so much the better.

Usually, it’s just easier for us to not go anywhere by ourselves at all. But then our relationship definitely starts to take strain, because we are not paying enough attention to nurturing our relationship. Eventually, because of our increasing levels of stress, it starts to take some kind of toll on our parenting, in spite of all our efforts to the contrary.

Last night, we had the opportunity to go out to a concert – meaning that my husband had free tickets – and we had to scramble for a babysitter. The free tickets had come about unexpectedly, so we hadn’t exactly planned for an evening out. I desperately said to my husband that I didn’t even know who to ask.

My husband came up with the perfect solution. He asked M, one of the guys who works for him, if he would be willing to watch the kids for the evening, and M willingly accepted. M has kind of become a friend of the family. We invite him to the kids’ birthday parties, he came over for Easter dinner, and we eat out with him from time to time.

We completely trust M with the kids. He is so used to George’s autism that he doesn’t bat an eyelid when autism-related things happen. George knows him and likes him. James downright hero-worships him, and when we told him that M was babysitting, he practically pushed us out the door so he could hang out with his idol.

Safe in the knowledge that our kids were safe and happy, and that they might or might not tie M to a totem pole by the end of the evening, my husband and I headed into the city to see a live performance by Paul Weller, former member of The Jam and Style Council.

The music was every bit as good as we had hoped it would be, and my husband and I felt that buzz of happiness that you get simply from being with someone you love. M didn’t get tied to a totem pole. The kids behaved like model children. They were like the kids on those reality TV shows after the Super Nanny has whipped the family into shape. M said he would babysit for us again anytime we needed him to.

Last night, my husband and I renewed our intention to have regular dates nights to connect with one another, enjoy each other’s company, and just be.

How important do you think it is for couples to spend time together away from the kids? Is it something you manage to do regularly?

(Photo credit: Kirsten Doyle)

Filed Under: 2012 Wordcount Blogathon, Children, Date Night, life, parenting, Reconnecting, relationships Tagged With: , , , , , , , , ,
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5 Tips For Moms Who Want To Run

May 18, 2012 By

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Today’s post is also a part of the 2012 Fitness & Health Bloggers Conference Blogger Challenge, in which bloggers are invited to write about an aspect of women’s health.

James and I taking part in the Whitby Waterfront Races

At the time my older son was conceived, I was an active runner. I wasn’t as into racing as I am now, but I was in good shape and I hit the road regularly. Running was logistically easier in those pre-baby days, when I didn’t have to worry about whether I’d had enough sleep and who was going to watch the kids.

I had intended to continue running throughout my pregnancy, but my body had other plans for me. Pregnancy wreaked havoc with the fluid in my inner ear, so I developed the inconvenient tendency to simply fall over without warning. This obviously meant that running would be too much of a risk, especially during the tail-end of winter when there was still a lot of ice on the ground.

After my son was born, I started running again, but only for a few months before I got injured. That was when my six-year break from running started. There was always something that kept me out of it – injury, illness, post-partum depression, plain old garden-variety depression – before I finally found the right motivation to start running again in earnest three years ago.

Combining motherhood with running can be a tricky endeavour, especially when you add a full-time job and special needs parenting into the mix. But with a bit of practice and planning, it is possible to strike the right balance, and it is very worthwhile.

Today, I offer you some tips on how you can successfully combine running with being a mom. These tips do not come from any books or websites. They come from my own experiences.

1.       Lose any preconceived notions of what a female runner “should” look like.

Pregnancy and childbirth can really do a number on a woman’s body image. Our post-baby bodies include new wobbly bits (unless you are blessed with spectacular genetic material), larger-than-before breasts that now serve a practical purpose, and stretch marks that make our bellies look like a railway network. Some of us are self-conscious about the way our bodies look, and we are reluctant to go out in public wearing shorts and tank tops.

We tend to have this idea that in order to run, women have to be skinny and flat-chested. I get a lot of women telling me that they would love to run, but cannot because they are not built for it, or because their breasts are too big. From experience, I can tell you that those are not good reasons not to run. I am not skinny by any stretch of the imagination, and I am definitely not flat-chested. Barring any serious medical conditions, anyone who wants to run can run, no matter what size or shape they are.

Yes, it is true that the women who win the Olympic marathons are skinny and flat-chested, but you’re not trying to win the Olympic marathon. You are doing this for yourself. And if you have a post-baby body to contend with, wear it with pride. It serves as a reminder of the life you have borne.

2.       Remember that women have unique nutritional needs.

Women have to deal with all kinds of stuff that men never have to think about. Our bones start to degenerate after a certain age, and this increases our calcium needs. We have periods every month that deplete our iron stores and can throw our entire bodies temporarily out of synch. For the time we are nursing babies, our bodies are directing all of the good nutrients to our breast milk, leaving us with just the leftovers to live on.

There are scores of books out there that talk in general terms about what runners are supposed to eat and when. The material you read can be confusing and downright contradictory. I have come to the conclusion that different things work for different people. Whatever eating plan you end up adopting, you need to ensure that the nutritional needs unique to women are taken care of.

Here are a few basics:

  • Eat foods rich in iron and folic acid, particularly during your menstrual cycles.
  • Increase your consumption of Vitamin C: this has been shown to improve the body’s efficiency in absorbing iron.
  • As you get into your 40’s, start taking calcium supplements to compensate for the hit that your bones start to take in middle age.
  • If you are nursing, you need anywhere from 500-1500 extra calories per day, and that’s before you take into account the calories you burn while running. Make sure you are well fed on nutritional stuff, and take along an energy bar when you go running.

3.       Get the right support structure.

Whether you are small- or large-breasted, or somewhere in the middle, a good sports bra is essential. The last thing you want to deal with while you’re running is your boobs bouncing around like ping-pong balls. It is not only uncomfortable, it is downright painful. Although I speak from the standpoint of someone with large breasts, I have spoken to women who made the mistake of thinking that their breasts were small enough for them to do without a sports bra. With a couple of exceptions, they have bitterly regretted it.

If you are small-breasted, you can probably get away with getting your bra from a sporting goods retailer. Larger-breasted women could benefit greatly from being professionally fitted at a specialist bra shop that carries sports bras. No matter where you get your bra from, it is important to ensure a good fit. Not only can ill-fitting sports bras add to the bounce, they can lead to very painful chafing.

If you have just had a baby, be aware that the size of your breasts probably changed during your pregnancy. Don’t assume that what fitted you before will still fit you now. The same applies to moms whose babies have recently been weaned from the breast. As your body’s production of milk slows down, the size and shape of your breasts may alter.

Nursing mothers who want to wear breast pads should take precautions to ensure that they don’t shift during the run. When I ran as a new mother, I secured my breast pads with surgical tape and that worked well enough.

4.       Make it a family thing.

You don’t have to force your husband and children to go running with you, but at least enlist their support. Tell your significant other about your intentions to run, and let him or her be a part of the planning. You will need someone to watch the kids while you are out, and if that same someone massages your aching feet at the end of the day, so much the better! Most running moms I’ve spoken to report having supportive partners, and that makes all the difference.

For those with young babies, running can be logistically very easy. All you need, apart from your running gear, is a baby jogger – a three-wheeled stroller designed for motion. Look for a baby jogger that can be adjusted to have the baby forward-facing or rear-facing. These strollers do not have wheels like regular strollers, they have tires that look almost like bicycle tires. That makes them suitable for a variety of terrains and weather conditions. Not only is this a fun way to bond with your baby, pushing the extra pounds as you run is a great booster of upper body strength!

Running with older children can be immensely enjoyable as well. My younger son, now six, is showing an interest in running. He ran his first kiddie’s race last year, and he plans to more. I often take him out with me on a Sunday, just for a kilometre or two, and then I drop him off at home with my husband before heading out for my longer run

5.       Enjoy the me-time

People run for different reasons. Some runners are competitive, and are in it to win the races. Others want to get fit, or lose weight, or address some specific health issue. Some people simply run because they like it. Whatever your primary reason for running is, use it as an opportunity to switch off from the day-to-day business of parenting. Allow your mind to wander a little – bearing safety in mind, of course. Get an iPod and listen to some music. For a busy mom, it can be incredibly liberating to pound the pavement for a few miles. It is a great stress-reliever, it loosens the joints, and it refreshes the mind. When you get back home after your run, you will feel ready – and eager – to step back into role of Mom.

Disclaimer: The information given in this blog post, or anywhere on this website, is not intended to replace the advice of a medical professional.

(Photo credit: Kirsten Doyle)

Filed Under: 2012 Wordcount Blogathon, family, Fitness, health, Mother, parenting, running Tagged With: , , , , , , ,
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A House Full Of Love

May 14, 2012 By

I am participating in the 2012 Wordcount Blogathon, which means one post every day for the month of May.

Today is Guest Post Exchange Day! I am honoured to introduce you to a fellow special needs mom, who is not only an awesome blogger, but also an awesome friend. Mimi has not one, not two, but five children with special needs. That would sound daunting to anyone, but Mimi wouldn’t change her life for anything.

Hi!  I’m Mimi, mom to 5 great kids, all with special needs, but we don’t focus on that.  We focus on their achievements, their triumphs and the love that they have for each other.  Sure, they fight just like any other siblings would fight but at the end of the day the love is still there for each other.  My oldest daughter is 24 and diagnosed with PDD-NOS (a form of autism) and is an unmedicated bipolar by her choice.  My next daughter is 22 and was born with Down Syndrome, hydrocephalus, PDD-NOS and acanthosis nigricans, she’s my spit-fire child.  Next is my soon to be 16 year old daughter who was born with spastic diaparesis cerebral palsy, she also has Asperger’s Syndrome, bipolar with psychosis, anxiety disorder and an eating disorder.  Next are my two boys, my first son is 10 (11 in June) and for some unknown reason he is cognitively impaired, he too has PDD-NOS and a mood disorder.  My youngest son is 9 (10 in June) and he was born with Fetal Valproate Syndrome, static encephalopathy (due to a traumatic birth), he has PDD-NOS and a mood disorder.

Raising special needs children has its ups and downs, but I wouldn’t trade my life for anything the world has to offer me.  My children are the reason my world rotates on its axis.  Some people call me a mother polar bear because I am so protective of my children, but who else is going to protect them besides me?

My boys are the best of friends, they are great playmates for each other and I hope and pray that the bond between them stays forever.  It’s similar to the bond between my 2 oldest daughters.  They are close because when they were young girls, I was a single parent by my choice, so it was just us 3 girls against the world.  Until I met my husband in 1994, Bethany was 6 and Lauryn was 4 and Jon has been their daddy ever since.

What entertains my kids?  Different things…  My boys are video gamers with their dad, they each have either their PSP’s or PSP Go’s or in Jons case his PSP Vita, but they all three will gang up on the bed and be gaming, ignoring everything else that’s going on, whereas Maurra my (almost) 16 yr old loves doing research on various things, which is very common for children diagnosed with Asperger’s Syndrome, right now she’s focusing on historical events.  Lauryn is crazy for Justin Bieber and loves to watch horror shows in her bedroom.  Bethany is my crazy football fan – well I’m pretty crazy for our Green Bay Packers also, so we tend to watch football together and we DVR the games so we can watch them through the week.

Our social outings look a little different than most.  First of all, my 3 youngest kids can’t handle car rides very well, so our trips have to be short in nature, and there has to be a reward at the end of the trip.  Lauryn enjoys going to her adult day program 4 days a week, but that’s about the extent of her traveling comfort.  She loves to dance in the truck which is fun and the cars around us seem to be her audience.  Bethany (my oldest) and I tend to do mother-daughter outings or she will go with me if I have to run errands.  It’s hard to break things up so the kids can handle everything, but in the end it’s for the best for them.

The boys are getting ready to start their 3rd year playing Miracle League baseball, which is baseball strictly for children who are disabled.  I volunteer my time with the league as the team coordinator and absolutely love watching all of the kids play the game.

Like I said before, I love having special needs children, and now we are looking into adopting a special needs child because there is more room in my heart for more children, but I can’t have them myself anymore.  So we are looking into a special needs adoption.  I hope it all works out for the best.

Well, thank you for letting me share my family with you.  Have a great day!

And thank you, Mimi, for sharing your family with us!

Mimi has a great blog at Wife… Mom… Writer… All Blessings. She can also be found on Twitter @Gigi_S.

Filed Under: 2012 Wordcount Blogathon, family, Guest Posts, life, parenting, Special Needs Tagged With: , , , , , , , ,
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